Monthly Archives: November 2011

A Night with Opera St. Louis


Wednesday night we had the pleasure of listening to a couple of performers from Opera St. Louis. With ‘The Little One’ being a big fan of Opera, I knew we were in for quite an enjoyable evening.

As we were preparing for the festivities, I heard the ‘The Little One’ say in the distance…”well, this should be interesting”. Curious, I peaked in to the bedroom to see what he was he was talking about; his dress pants!

Once I saw him holding up the pair of pants, I knew exactly his concern. With a weight loss of over 35 lbs, we both knew these dress pants were not going to hug the hips.

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Thank goodness for suspenders!

When he put the pants on, we were both amazed at how much weight he has lost. He has easily lost four pants sizes! (I now need to do the same)

While his weight loss is good for his overall health, they way it has happen is certainly not one of those fad diets you see on TV!

The second PET scan has now been scheduled for December 12 in Fort Lauderdale; we will be heading south in just a little more than a week. We are anxious to see where we stand with the tumor and the only way for that to happen is to conduct the follow-up PET scan.

While the PET scan might give us the physical facts of the tumor; we will not be held back by the results. We are moving ahead with our heads held high.

You see, we might have cancer… But cancer does not have us! We are putting money away for a trip to Paris in Spring of 2012. I have never been, ‘The Little One’ has been three times!

Live each day like it is your last; care for those who are always by your side!

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Great information that I wanted to share with you.

Nancy Brain's avatarboomermarketconsulting

Geriatric Care Managers are trained professionals who can provide resources, support and help create a care plan that will maximize the independence of the care recipient and help with all aspects of the caregiving process.  The following are helpful tips to use when deciding on which Geriatric Care Manager to use.

  1. What services are provided?           
  2. Is routine monitoring an option, and if so, how frequently and at what cost? 
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  9. Is there a waiting period before beginning services? 
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  11. What is considered to be a crisis…

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We Give Thanks…to the Horn Blower!


One of our favorite breakfast nook’s is Chris’ Pancake & Dining (it gives us the illusion that I am cooking!). As we pulled the car up to the parking lot, I stopped the car in front of the building so that ‘The Little One’ would have a short distance to walk to the restaurant. (Four weeks ago he would not have been able to walk on his own to the front door of the restaurant.)

As he was getting out of the car, the person behind us had to blow the horn as we were not moving fast enough to meet his needs. In the classic ‘The Little One’s’ style, he got out of the car and asked the horn blower…’What’s the hurry?’ That exchange reminded me that he is feeling better as four weeks ago, he would not have even bothered with an exchange like that.

While thinking about the ‘horn blower’ and his impatience, I was reminded about what really is important on Thanksgiving… Giving thanks, being present to your loved ones and caring for those around you.

Cancer has taught both of us a lesson that has been invaluable and it comes in one simple word… Thanksgiving!

We are thankful for today, hopeful for tomorrow and want to enjoy as many sunsets as we possibly can. There are so many things that happen in life that are not in our control. Why blow the horn if you are not in danger?

When you give up control, you gain freedom!

The horn I am blowing today is in thanksgiving and gratitude for the things I have, the family and friends that surround us and the continued good health and happiness of ‘The Little One.’

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So…you want to go dancing?


As we move into the celebration of Thanksgiving, we have plenty of things to be thankful for.

‘The Little One’s’ marked improvement over the past four weeks is gratifying; we are cautiously optimistic as we look ahead to the follow-up PET scan the first week of December. While we understand the reality of cancer, we penetrate the disease with love and affection.

When we started this journey in late August, it has ended up being quite a learning experience for both of us. Being separated during the first four weeks of treatments was probably the most difficult part, yet these last six weeks has truly been remarkable. We have gone from a man who could barely stay awake for the entire day, to a man who is up and around on a daily basis enjoying so many of the things that he loves to do, including bossing me around. (Don’t let him know that I let him get away with it!)

For those who have been reading my blog, you know that we like to inject as much humor into our care giving experience as possible. One of the ‘funny’ lines we have been using since day one has been…’Are you ready to go dancing?’ I started asking that question to ‘The Little One’ when I arrived in Florida after ‘The Little One” was admitted to the hospital. We’ve used that question to gauge how he is feeling. It does get a little tired asking someone on a daily basis…’So, How are you feeling’…well…uh…’I feel like s__t, I’ve got cancer’ would be the typical answer. So we changed it up…’Are you ready to go dancing’…’no, not yet but getting closer.’ The funny thing about this question is that we both hate to dance! That is what makes this so much fun. (Two men dancing is weird anyway, no matter what side of the fence you’re on)

In the spirit of Thanksgiving, we are thankful for the time spent together because each day is like extended play. All too often in our busy schedules, we lose focus on our own realty and human frailty. What is here today, can be gone tomorrow.

Take time to ask your loved on to dance… It’s just as meaningful as telling them that you love them!

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Intergenerational


Barbara Streisand once sang…’People Who Need People Are The Luckiest People In the World.’ We are all attracted to different people and for different reasons; life would be boring if that was not the case. Love and attraction are so personal and hard to describe.

What does age have to do with love?

During a telephone conversation Tuesday evening with a close friend in Indianapolis, I came upon a word that I rarely like to use…”intergenerational.” The word just popped out of my mouth as we were discussing ‘The Little One’s’ marked improvement over the last week.

While I have never been big on buzz words, acronyms or labels; there are plenty of descriptions used to describe ‘us.’ “May and December” is probably the most common description, yet there are plenty of unsavory descriptions, too.

What really is the issue here?

Age is something that doesn’t matter unless you are cheese!

What is important to recognize is that the roles that we are currently experiencing in our life could easily be reversed; I could be the one with cancer and he could be the one doing the care giving. Age really has nothing to do with it! Of course we understand the physical limits age can have on the body, yet that does not take away the determination of the soul.

I do not expect anyone to really understand this ‘intergenerational relationship.’ Heck, there are many relationships that I do not understand. ‘Those who don’t like what they see, don’t have to look’ is what a famous philosopher once said to me. (RIP-RJO) What is important to remember is that the only two people who really know what is going on in a relationship, are the two that are in it. Everything else is pure speculation

The best description I have ever heard in regards to love is spoken in one…simple…word. Unconditional.

To love someone unconditionally breaks down barriers, enables trust and ensures commitment. Cancer or no cancer, it’s all about giving of oneself to the love and care of another.

Love and acceptance are music to the heart and soul…those are the labels that we can all live with!

So, what does age have to do with it?

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November – National Care Givers Month


November is National Care Givers Month!

 We all know some one who is a caregiver, whether we find ourselves taking care of a loved one, know someone who takes care of a loved one, or even if we have heard an inspritational story on the news.

 In today’s busy world it can be easy to forget to show our appreciation to those who make a difference in our lives and the lives of others everyday. As we prepare to celebrate another Thanksgiving, let us give thanks to those who choose to spend their days serving others.

“Appreciation is the highest form of prayer, for it acknowledges the presence of good wherever you shine the light of your thankful thoughts.”
Alan Cohen

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Downsizing


While we know that the tumor has been downsized by the radiation and chemotherapy treatments, we have taken a long look at our personal belongings and have started the process of downsizing in this area too.  So far, the experience has been quite cathartic.

How much ‘stuff’ does one really need to be comfortable in life?  China that has never been used, kitchen gadgets (well, except for the Tumor Extractor!), glasses, roasting pans; yikes where did all this stuff come from?   And better yet… what really is the need?

Funny as it seems, when I was in the seminary those little rooms we lived in seemed so small…now as I look back at that experience, living austerely has its benefits.  Thomas Merton does know what he is talking about!

Cancer is a life changing experience for all who are involved in it.  We have grown closer because of the disease and have I have come to a reality check with my life.   You see, what is important is not how many items you collect, rather what is important is how many lives you touch.   The last few years I have lost touch with my own reality; cancer does have its peculiar benefits.

As the green leaves transition to beautiful autumn colors, we are in a transition mode as well.  What we do for ourselves dies with us.  What we do for others will ever be immortal.  I am honored and proud to be a caregiver, it is one of the most remarkable experiences in life.  I am also grateful for the reality check that our downsizing has provided to us.  May the ‘Little One’s’  health continue to improve; let the downsizing begin!

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The Tumor Extractor just $19.99


We have all seen those gadget that they sell on TV… It seems that all those gadgets sell for just $19.99 and better yet, all these gadgets are a must need for every household!

As I was preparing waffles for breakfast this morning I came across a new product called ‘The Tumor Extractor’

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Simply apply to the area of the tumor and all your troubles will be gone!

‘The Little One’ and I enjoyed a great laugh when I presented him with our new ‘Tumor Extractor’ for just $19.99 and just think…we only spent $10,000 on chemo and radiation! (Of course Monty Python’s Spamalot is playing in the background.) Every cancer patient and caregiver wishes there was something as quick and simple as ‘The Tumor Extractor’ to remove cancer from the body. But what is available to every cancer patient and caregiver is hope, love, support and humor. That is the true Cancer Extractor!

While Each one of us deals with the realty of cancer in a different way, we want to look on the bright side of life!
Yesterday is gone, today is here, not sure about tomorrow. Today we are enjoying our new ‘Tumor Extractor’ even if it will only help us make waffles.

It is hope that let us stand problems…but our beliefs let us finds solutions.

Happy Sunday! And remember… ‘Always look on the bright side of life!’

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Honest Dialogue is the BEST Medicine


Tonight we had ‘The Talk’…The ‘What If’s…The ‘unmentionable’…It happen so matter-of-factually that by the time the conversation was over, there was no pain, no agony, no tears. It’s simply called, planning…planning for the day when there will be no more days. How does one really do that…By having honest dialogue so that everyone is on the same page so that no stone is left unturned.

When The Little One mentioned the word “Hospice” this evening, it opened the door up for one of the most beautiful and meaningful conversations that two people could ever have on such a sensitive subject. The funny thing about this word “Hospice” is that we have both experienced hospice in the past as both of our deceased partners went through this wonderful program. Yet for some reason, we have not been able to talk openly about this topic between ourselves until today.

We are both advocates of Hospice yet for very different, yet similar reasons. While I tend to be on the spiritual side (I can’t completely let go of my theological background) ‘The Little One’ claims to an agnostic Jew. I always find that funny because he is one of the most spiritual and ground persons that I have ever met. Often misunderstood for his gruff demeanor and direct comments, ‘The Little One’ is rooted in clear thought and perspective. You may not like what he has to say, yet he leaves no dust uncovered. You know where you stand, win or lose. It is really the best way to communicate.

For me, Hospice is a way to celebrate all stages of life. Hospice is not only for the patient, it is also for the entire family of the patient. ‘The Little One’ would say the same thing, yet he would omit the spiritual side of the experience. Yet the spiritual side of Hospice is undeniable because so many lives are transformed by the experience. During my CPE (Clinical Pastoral Education) internship several years ago, I was honored to have the chance to work for a summer in Hospice. I truly saw some remarkable things during my Hospice internship. High profile Doctor’s humbled; broken families reunited; husband’s, wife’s, children, partners letting go. It is as raw as a human experience one can have attending to one’s happy transition. Just as no one should be born into life alone; everyone should be afforded a beautiful sunset to their lives as well. Hospice is one of the tools that allows that to happen.

While we have all the legal paperwork in place, having the conversation out in the open allowed us to speak boldly on the ‘what if’s’…’how are we going to handle this or that’…and merely…;just what are we going to do?’ With the second PET scan scheduled for the first week in December, we will have a clear idea what effects of the radiation and chemotherapy had on the insidious tumor. Will our plans become clear at that point? Maybe so, maybe not!

You see, what ever the oncologist tells us in December, we are going to live each day to the fullest. We are going to do what we can do each day and simply move on. We know some days are going to be better than others, yet why wait around for the Grim Reaper? Let the Grim Reaper chase after us. I’ve used this line in a previous post….”It is a known fact that 100% of the people born are going to die.” So as we continue on with our Monty Python Theme of ‘We’re Not Dead Yet” we’ve decided not to ACT the part, but rather embrace it with a life as full and rich as we can have under the circumstances.

Honest Dialogue often brings out the best (and sometimes) worst in people. However without honest dialogue, what then is communication? While there is not a need for Hospice today, we both know where we stand, we both know what is important to us and we both know that when and if the time comes for this wonderful program, we’ll embrace it, deal with it and make it the best possible experience for all of our family and friends who care to share in the experience with us.

While the effects of Cancer are enormous on everyone, we can’t allow the disease to drive the bus. While ‘The Little One’ and I might share different opinions on life after death; one thing that we do know is that while we are on this earth, we are going to enjoy every second, minute, hour, day, month, year we have left. Life is intended to be lived; we move on with faith, happiness and love. While we can’t avoid pain, we can choose to overcome it. That is simply how Herman and Richard (the first) would want that for us, and for all of you as well!

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