Category Archives: Jewish

A Night with ‘Harriet Craig’


This past weekend, we took the opportunity to motor  to Mount Dora, Florida.  Funny how the last two weekends have developed for us; two weekends ago we were on the verge of heading to the hospital, this past weekend, we are traveling to Mount Dora.  It is difficult to know just what to expect when you are dealing with cancer.

Photo Credit: The Bow-Tie-Guy

Why Mount Dora, Florida you ask?  Going back to their days in Manhattan, ‘The Little One’ has a friend of 60+ years living in Mount Dora.    Mount Dora is a little town just north of Orlando, known for its quaint antique shops.   It is a beautiful town and surprisingly, has plenty of things to do.  But this was not a  weekend for tourism, this was a weekend of storytelling and laughter!

With over 60 years of friendship behind them, the conversation was unrestrained.  Names from the past,  (celebrities to boot!) stories that never ended.  To them, yesterday was today and tomorrow will come: it was a beautiful experience.   Finally the name…’Harriet Craig’ was blurted out and the laughter got more pronounced.   Harriet Craig was a nickname  given to ‘The Little Ones’ friend years ago because of his constant need to clean the apartment he shared in Manhattan with his partner of over 40 years.  Apparently, ‘Harriet’ just could not stand a dirty ashtray, one flick of the ash and up Harriet would go to clean the tray; always in constant motion, always on top of the conversation.  Once I learned why Harriet Craig, I understood the connection to the character in the movie as the villa was in impeccable condition!   As we moved on to dinner, it was easy to see who was in charge…Harriet Craig!     

Photo Credit: Wikipedia

Harriet Craig is a 1950 movie played by the legendary Joan Crawford.  The movie credits go like this… ‘Domineering Harriet Craig holds more regard for her home and its possessions than she does for any person in her life. Neurotic perfectionist Harriet Craig (Crawford) makes life miserable for everyone around her.’  While the description of the character in the movie does not accurately depict ‘The Little Ones’ friend, the metaphor is there in order to create the ‘sting.’

I was told that I was not old enough and privileged enough to call him ‘Harriet Craig!’

Their stories sounded quite familiar to that what you would hear today. If you are a ‘Sister’ you know what I mean. Long standing friends reminiscing about their past, grateful for their partners, their friendship and their freedom to be who they are.  Gay Marriage, Equal Rights and the sorts, all talked about in their day, just not in the volume that we hear today.   

Yet…Who Are They?

They are two close friends, in separate (gay) relationships, lasting over 40 years each, which is quite the accomplishment, no matter what side of the fence you are on!  Yet these accomplishments often go unnoticed in our society as we here more about what’s wrong with gay relationships than what’s right about gay relationships.  They are your uncles, cousins,  they are your friends…

Who Are They? 

Photo Credit: Unknown

They are your neighbor right next door.  We have all heard the phrase…’home is where the heart is.’  That phrase applies to everyone’s home, not just a selected few.

Our friend in Mount Dora is just a few years older than ‘The Little One’, leads an active life, accepted by his cohorts, active in his neighborhood, has dinner with his neighbors and volunteers at hospice.   He is your neighbor. 

Who Are They? 

Stonewall Inn 1969 Photo Credit Diane Davies

They are two men who lived not only during the time of the Stonewall Riots, they lived in the mist of the Stonewall Riots where  friends of them were killed just for being who they are.  The riots inspired LGBT people throughout the country to organize in support of gay rights, and within two years after the riots, gay rights groups had been started in nearly every major city in the United States.   They are your pioneers…

This weekend, when you see all the stores on the news about Gay Pride weekend, remember those Gay Seniors who live alone and cannot get to the parade.  Remember those Gay Seniors who still live in fear; Remember those gay seniors who lived and worked in the trenches in order to bring LGBT equality issues of today to the forefront.

And finally, remember the thousand upon thousand of Gay Seniors who have lived their life in committed and long lasting relationships only to be denied their equal rights.

 Who Are They?   

They are your American Seniors, who just happen to be Gay.

Photo Credit: Webshots

You See…We might have Cancer; but Cancer does not have us!’

Photo Credit: The Bow-Tie-Guy

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Filed under advocacy, Advocate, Bow Tie Guy, caregiver, Caregiving, Gay Caregiving, Jewish, LGBT, LGBT Caregiving, LGBT Couples, LGBT Seniors, Unconditional Love

Caregivers…”Never Alone”


One of the many things that I have missed while being away from Fort Lauderdale for the past four years has been congregation at The Sunshine Cathedral .  While attending worship services this past Sunday, the senior Pastor  Reverend Durrell Watkins,  preached on a topic that really hit home for me: his sermon was entitled, “Never Alone”.

What I know is that prayer connects us to all the prayers of eternity and to all the people who have ever prayed and so the very act of prayer is a reminder that we are not alone, and if we are not facing the challenges of life alone, then hope, peace, and joy are always possible and that’s pretty miraculous.”   Reverend Durrell Watkins Sunday April 22, 2012.

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Florida arrival


We arrived safe and sound in Deerfield Beach this week. While we miss our family and friends in St. Louis, We are both thankful to be in South Florida.

This afternoon we are visiting the primary care physician; Monday the cardiologist and Tuesday the Oncologist. The report today at the PCP has been great. There is weight gain, all the critical numbers are good. The doctor is quite pleased, and so are we…This has been a remarkable recovery!

It’s great to share our sunshine with you from the Sunshine State!

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Thankful!


We have plenty to be thankful for today on this beautiful Christmas morning and wanted to share our gratitude with you.

Our journey has just begun; pleased with the outcome of the pet scan we still have a long way to go in order to build up strength in order to keep the big ‘C’ at bay. We have quite a bit more work to do!

For all those who are experiencing the trauma of cancer in your life know of our heart felt love and support.

For all the care givers know that your love and commitment never goes unnoticed!

Merry Christmas to all and
‘Thank You’ for reading ”The Purple Jacket.’ We look ahead with anticipation, courage and thankful for the love and support of our family and friends.

We have cancer; but cancer does not have us!

Merry Christmas, Happy Hanukkah and peace and love to all.

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Goodness Gracious St. Ignatius!


If you have ever had the chance to sit by the beach at night to hear the thunderous waves while smelling the salty wind, you know how relaxing that experience is.  Tonight I write from beautiful Hillsboro Beach; relaxing, reflecting and thinking about the events of the long-awaited results of the day.

“Near resolution of a previously seen hyper-metabolic focus at the gastroenterology junction since the prior study, indicting an excellent response to therapy.”    Whew…that’s a mouth full!  

Of course the conversation with the oncologist did not start out that way as he was startled to see us sitting in the waiting room.   “Bern” he called out; “you look GREAT, I did not recognize you at first!”  (We both look at each other and said…’We’re not dead yet!) If he only knew how much ‘The Little One’ hates to be called, ‘Bern’…but not today!

In layman’s terms, the reports indicates that the majority of the tumor has been removed by the ‘intense’ treatment; what is left of the tumor we hope will lay dormant for many years to come.

‘Cautiously Amazed‘ is two words that come to mind.

The oncologist recommended that ‘Bern’ live his life as he is able.  ’Enjoy what you can, do what you want to do.’   You don’t have to worry, doc…The Grim Reaper will have to chase us, we do not intend to grow any daisy’s under our feet.    Out of the woods, yes?  When you think of it, how many of us are really out of the woods?   You know the story…death and taxes;  It’s all in the attitude, don’t you think?  We hope and pray that what is remaining of the (little) tumor leaves us alone, let it lie idle for many years to come.

PET scans are pretty magical and pretty revealing, too…

“There is a large calcified gall stone in the gallbladder.”    Oh Boy…here we go again, another health calamity  to deal with.  The gall stone explains the pain in the back; we’ll deal with this on Monday morning, enough is enough for one day.  Aging gracefully has nothing on us!

One of the key components to age gracefully is to have acceptance of your reality. Fiercely independent most of his life, “The Little One’ knows and accepts that he just can’t do it solo.  There will be some good days, there will be some bad days…it’s just the process of aging gracefully.

Unfortunately for many LGBT seniors, aging gracefully often comes with some difficulty.  In my opinion, our bodies age by our metabolism and what we choose to put in it; our mind ‘ages’ because of our personal experiences and understanding — it’s not all relative.   I’ve never been much of a political person and my theological training has always leaned more to the social side of dogma;  bias aside, should we all not be given the opportunity to age gracefully?

Unless you’ve lived in fear, you never really know what it feels like.  Many LGBT seniors live in fear of being outed, in fear of being mistreated, in fear of the type of care they received simply because of someones personal bias.  Some are fearful that their life long partners will be turned away at their bedside because of someone’s bias.   Think of being in a hospital, nursing home or an independent living center and living in fear because of someones bias?   The closet is no fun.

It’s concerning; having empathy for  bigot is simply a misplacement of morals.

While societal norms have adjusted in recent years, we are all products of our youth.  What is ‘accepted’ today, in most cases was not on the books when we were kids.  Imagine the climate that  an 80-year-old LGBT senior faced when they grew up in?  That is their reality.  We are all a product of the societal norms in which we grew out of; some grow out of it, some over come it, some don’t care about it, some live it their entire life, many are in fear of it.  Acceptance is a two-way street.

Having the experience as a caregiver himself  for  his partner Herman of 43 years for the last 9 years of his life, provided ‘The Little One” with a keen sense of his own needs as he ages gracefully.   (History aside, 43 years together is a feat, no matter what side of the fence you’re on!)     We are fortunate that we have not experienced bias in relation to health care, yet I carry my legal documents where ever we go because you just don’t know what or when you’ll need it.  However the legal documents don’t necessarily open all the doors to the closet.

We  started on this health journey just about a year ago when we had the first flare up with the esophagus while enjoying a meal with a number of friends in Indianapolis.  Over this past year, we’ve learned a bit about ourselves; we’ve  met some new friends, had some friends leave and we have grown closer.  In our diversity, we’ve all had one thing in common and that is  we’ve all aged gracefully,  I hope.  We can’t avoid the aging process, we just do it!

Care-giving will always be an honor; and just like his health…there are going to be some good days and some bad.    It is all about the attitude: every sunset should have its dream.

I think we can see Paris in the Springtime.

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Cardiologist…Day Two…


While we know that the tumor has shrunk, we also know that the tumor still have its ‘activities’ within the body.  Like a rumbling volcano, the tumor will react to certain foods and hard swallows.  ’The Little One’ really has to be careful on how and what he eats, or else he’ll have an ‘eruption’ filled with gastric acid and sharp pain.

The location of tumor has made it difficult for us to decide the origin of  the sharp pain, hence the need to see the cardiologist.  Pleased with the weight loss, the cardiologist went about his work in the most pleasant of ways.   The EKG showed that the heart was in good shape and that the pain that ‘The Little One’ has been experiencing is directly related to the tumor.

Of course, these are all scientific speculations and based on his years of experience as evidence from the EKG.  While there is relief in this news, that fact of the matter is that the pain still is a part of his every day life.    As we age, we all have to accept the little bumps and bruises to our health that come along in life.

Each one of us handles those little bumps and bruises in a different manner, and my suspicion is that those of us who have a healthy acceptance  of our health calamities,  tend to fare better with their reality than those who don’t.  I certainly see a healthy attitude of acceptance in “The Little One”.

Acceptance goes a long way in building a healthy attitude.  Of course, we have our bad days and ask ourselves…’why me’…that’s just a part of human nature.   The lesson that I have learned from this experience  while watching  ’The Little One’s’ attitude  is to simply just give up control;  but boy…do I have a long way to go with that!

Just like the doctors who can’t control the outcomes of the test, we can’t control the reality of disease. We know that the tumor has shrunk, but we also know that the tumor is still causing some issue  Yet what we can control is how we react to the pain and issues that it creates,  and that my friends is where the secret lies.      

 

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PET Scan… Day One


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Our drive to Florida was uneventful; today all the events begin.

‘The Little One’ is now in enduring his second PET scan which will take just about an hour and a half to complete. As we left the house today (sunny and 80 degrees in Florida…what were we thinking four years ago!) we talked openly about the events of this week and how we will go through this process together.

I am amazed at how brave he is as he goes through these tests. For someone who claims to be non-spiritual, he is grounded in his thoughts and accepting in his realty. There is a calmness in him that is truly remarkable: I am honored to be a part of this process.

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Being in a ‘mixed’ relationship (jewish /catholic) which also happens to be intergenerational (May to December) poses for a lot of interesting experiences and conversations. Yet in all my years of seminary training and ministerial experiences, I have never come across someone like ‘The Little One’ who has dealt with his health calamities like he has.

There are no laments, no blame; just an acceptance of the reality of life. For someone like me who has a bad habit of worrying about things that I can’t control, his sense of spirituality has been a lesson that no seminary was able to teach me.

At the end of this week, we will have a better understanding of where this chapter in our lives is leading us. We can’t control the results and you know, that’s OK because the best way to deal with the results is with a clear sense of reality. The serenity prayer comes to mind!

Life is meant to be lived; don’t let love and commitment pass you by, no matter what shape or form it is in.
When there is love, there is a sense of spirituality that is not defined by religious beliefs or society norms. It’s just two people, who’s roads collided to be as one.

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Filed under Bow Tie Guy, cancer treatments, Esophagus Cancer, Jewish, LGBT Couples, Live Love Laugh, Looking into the future, may to december, maytodecember, PET Scan, radiation

November – National Care Givers Month


November is National Care Givers Month!

 We all know some one who is a caregiver, whether we find ourselves taking care of a loved one, know someone who takes care of a loved one, or even if we have heard an inspritational story on the news.

 In today’s busy world it can be easy to forget to show our appreciation to those who make a difference in our lives and the lives of others everyday. As we prepare to celebrate another Thanksgiving, let us give thanks to those who choose to spend their days serving others.

“Appreciation is the highest form of prayer, for it acknowledges the presence of good wherever you shine the light of your thankful thoughts.”
- Alan Cohen

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Downsizing


While we know that the tumor has been downsized by the radiation and chemotherapy treatments, we have taken a long look at our personal belongings and have started the process of downsizing in this area too.  So far, the experience has been quite cathartic.

How much ‘stuff’ does one really need to be comfortable in life?  China that has never been used, kitchen gadgets (well, except for the Tumor Extractor!), glasses, roasting pans; yikes where did all this stuff come from?   And better yet… what really is the need?

Funny as it seems, when I was in the seminary those little rooms we lived in seemed so small…now as I look back at that experience, living austerely has its benefits.  Thomas Merton does know what he is talking about!

Cancer is a life changing experience for all who are involved in it.  We have grown closer because of the disease and have I have come to a reality check with my life.   You see, what is important is not how many items you collect, rather what is important is how many lives you touch.   The last few years I have lost touch with my own reality; cancer does have its peculiar benefits.

As the green leaves transition to beautiful autumn colors, we are in a transition mode as well.  What we do for ourselves dies with us.  What we do for others will ever be immortal.  I am honored and proud to be a caregiver, it is one of the most remarkable experiences in life.  I am also grateful for the reality check that our downsizing has provided to us.  May the ‘Little One’s'  health continue to improve; let the downsizing begin!

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The Tumor Extractor just $19.99


We have all seen those gadget that they sell on TV… It seems that all those gadgets sell for just $19.99 and better yet, all these gadgets are a must need for every household!

As I was preparing waffles for breakfast this morning I came across a new product called ‘The Tumor Extractor’

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Simply apply to the area of the tumor and all your troubles will be gone!

‘The Little One’ and I enjoyed a great laugh when I presented him with our new ‘Tumor Extractor’ for just $19.99 and just think…we only spent $10,000 on chemo and radiation! (Of course Monty Python’s Spamalot is playing in the background.) Every cancer patient and caregiver wishes there was something as quick and simple as ‘The Tumor Extractor’ to remove cancer from the body. But what is available to every cancer patient and caregiver is hope, love, support and humor. That is the true Cancer Extractor!

While Each one of us deals with the realty of cancer in a different way, we want to look on the bright side of life!
Yesterday is gone, today is here, not sure about tomorrow. Today we are enjoying our new ‘Tumor Extractor’ even if it will only help us make waffles.

It is hope that let us stand problems…but our beliefs let us finds solutions.

Happy Sunday! And remember… ‘Always look on the bright side of life!’

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