Category Archives: Uncategorized

“Because They Are Nice”


As we continue to recover from the chemo and radiation therapy, we often reflect on ‘how things used to be’.  Always willing to be on the go, ‘The Little One’ has taken a wait and see attitude on many of the things he used to like to do.   While there has been steady progress in his overall health these past few weeks, we are really on a ‘day-to-day event planner schedule.

Crowds has never been his thing, even when feeling good.  So approaching his 81st birthday, I was puzzled at what might we do?  And…if we would be able to do it!  With a small gathering in Brentwood, ‘The Little One” was greeted by ‘The Sisters’ and a couple of friends from our Tuesday night group at Pietro’s.   (of course, one sister forgot to make it)

What struck me about the evening was not so much about the significance of the day, but rather the engagement in conversation of “The Little One.”    I will be the first one to admit that I can be a little worry wort and always have one eye out for him, yet on this night I glad that I did because I saw a person return to life in a way that was good to see.

You see, cancer can take the root out of your being. Cancer drains your energy, it drains your confidence and it drains your piece of mind.  It is easy to understand why so many people give up, that is why outside support is so important in the healing process.  What I saw on Saturday was a man who enjoyed talking about topics that were important to him, all removed from the thought of having cancer.  When the topic turned to the Virgin Islands, well…he was off and running. You can’t go through 81 years of life without having special memories of people, places and things.   It was a joy to watch him revel in the conversation.

When we talked about his ‘engagement’ at the gathering, I mentioned to him that it was great to see him involved in conversation that was important to him and completely outside to scope of health, cancer and the rest.  He too, acknowledged that it was a great experience, with lots of fun  and easy to talk to ‘because they are so nice.’

What “The Little One” learned on this evening is that its good for him to be in conversation on topics that he enjoys as it takes his mind of the health concerns.  What I learned is that I cannot be mother hen, worried about every step in the road.   We live day by day.   Often times we go through life with so many misunderstandings, so many unresolved conflicts and so many worries that seem unbearable.

Yet when you think about it, it is easier to get through the day simply when people are nice!

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Anticipation


That Carly Simon song in the late 70′s ‘Anticipation’ comes to mind this evening as we prepare for our 9:15 am appointment with the oncologist on Friday.   We’ve done all the rounds this week: PET Scan on Monday, Cardiologist on Tuesday, Primary Care Physician on Wednesday we have been on the go constantly since we left St. Louis last Friday.  Today, we rested!   Yet the appointment with the oncologist is ‘the big one’. ..’Anticipation…it’s making me wait!’

While all the doctors we’ve seen this week have given us high marks, the Primary Care Physician was steadfast in her recommendation.   “Focus on your cancer treatments, everything else looks great.”

The human body sure is a funny place to live.  One of the positive outcomes of this experience is that ‘The Little One’ is off his diabetic medication.  So in essence, we’ve made a trade…Diabetes for Esophagus Cancer!   Tomorrow we’ll see just where we stand in this ‘trade’.  This ‘trade’ can prove to be beneficial with a good report on Friday from the oncologist.

“Anticipation…it’s making me wait!”

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Choosing a Geriatric Care Manager

Reblogged from boomermarketconsulting:

Geriatric Care Managers are trained professionals who can provide resources, support and help create a care plan that will maximize the independence of the care recipient and help with all aspects of the caregiving process.  The following are helpful tips to use when deciding on which Geriatric Care Manager to use.

  1. What services are provided?           
  2. Is routine monitoring an option, and if so, how frequently and at what cost? 

Read more… 139 more words

Great information that I wanted to share with you.

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November – National Care Givers Month


November is National Care Givers Month!

 We all know some one who is a caregiver, whether we find ourselves taking care of a loved one, know someone who takes care of a loved one, or even if we have heard an inspritational story on the news.

 In today’s busy world it can be easy to forget to show our appreciation to those who make a difference in our lives and the lives of others everyday. As we prepare to celebrate another Thanksgiving, let us give thanks to those who choose to spend their days serving others.

“Appreciation is the highest form of prayer, for it acknowledges the presence of good wherever you shine the light of your thankful thoughts.”
- Alan Cohen

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Downsizing


While we know that the tumor has been downsized by the radiation and chemotherapy treatments, we have taken a long look at our personal belongings and have started the process of downsizing in this area too.  So far, the experience has been quite cathartic.

How much ‘stuff’ does one really need to be comfortable in life?  China that has never been used, kitchen gadgets (well, except for the Tumor Extractor!), glasses, roasting pans; yikes where did all this stuff come from?   And better yet… what really is the need?

Funny as it seems, when I was in the seminary those little rooms we lived in seemed so small…now as I look back at that experience, living austerely has its benefits.  Thomas Merton does know what he is talking about!

Cancer is a life changing experience for all who are involved in it.  We have grown closer because of the disease and have I have come to a reality check with my life.   You see, what is important is not how many items you collect, rather what is important is how many lives you touch.   The last few years I have lost touch with my own reality; cancer does have its peculiar benefits.

As the green leaves transition to beautiful autumn colors, we are in a transition mode as well.  What we do for ourselves dies with us.  What we do for others will ever be immortal.  I am honored and proud to be a caregiver, it is one of the most remarkable experiences in life.  I am also grateful for the reality check that our downsizing has provided to us.  May the ‘Little One’s'  health continue to improve; let the downsizing begin!

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The Tumor Extractor just $19.99


We have all seen those gadget that they sell on TV… It seems that all those gadgets sell for just $19.99 and better yet, all these gadgets are a must need for every household!

As I was preparing waffles for breakfast this morning I came across a new product called ‘The Tumor Extractor’

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Simply apply to the area of the tumor and all your troubles will be gone!

‘The Little One’ and I enjoyed a great laugh when I presented him with our new ‘Tumor Extractor’ for just $19.99 and just think…we only spent $10,000 on chemo and radiation! (Of course Monty Python’s Spamalot is playing in the background.) Every cancer patient and caregiver wishes there was something as quick and simple as ‘The Tumor Extractor’ to remove cancer from the body. But what is available to every cancer patient and caregiver is hope, love, support and humor. That is the true Cancer Extractor!

While Each one of us deals with the realty of cancer in a different way, we want to look on the bright side of life!
Yesterday is gone, today is here, not sure about tomorrow. Today we are enjoying our new ‘Tumor Extractor’ even if it will only help us make waffles.

It is hope that let us stand problems…but our beliefs let us finds solutions.

Happy Sunday! And remember… ‘Always look on the bright side of life!’

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Honest Dialogue is the BEST Medicine


Tonight we had ‘The Talk’…The ‘What If’s…The ‘unmentionable’…It happen so matter-of-factually that by the time the conversation was over, there was no pain, no agony, no tears. It’s simply called, planning…planning for the day when there will be no more days. How does one really do that…By having honest dialogue so that everyone is on the same page so that no stone is left unturned.

When ‘The Little One’ mentioned the word ‘Hospice’ this evening, it opened the door up for one of the most beautiful and meaningful conversations that two people could ever have on such a sensitive subject. The funny thing about this word “Hospice” is that we have both experienced hospice in the past as both of our deceased partners went through this wonderful program. Yet for some reason, we have not been able to talk openly about this topic between ourselves until today.

We are both advocates of Hospice yet for very different, yet similar reasons. While I tend to be on the spiritual side (I can’t completely let go of my theological background) ‘The Little One’ claims to an agnostic Jew. I always find that funny because he is one of the most spiritual and ground persons that I have ever met. Often misunderstood for his gruff demeanor and direct comments, ‘The Little One’ is rooted in clear thought and perspective. You may not like what he has to say, yet he leaves no dust uncovered. You know where you stand, win or lose. It is really the best way to communicate.

For me, Hospice is a way to celebrate all stages of life. Hospice is not only for the patient, it is also for the entire family of the patient. ‘The Little One’ would say the same thing, yet he would omit the spiritual side of the experience. Yet the spiritual side of Hospice is undeniable because so many lives are transformed by the experience. During my CPE (Clinical Pastoral Education) internship several years ago, I was honored to have the chance to work for a summer in Hospice. I truly saw some remarkable things during my Hospice internship. High profile Doctor’s humbled; broken families reunited; husband’s, wife’s, children, partners letting go. It is as raw as a human experience one can have attending to one’s happy transition. Just as no one should be born into life alone; everyone should be afforded a beautiful sunset to their lives as well. Hospice is one of the tools that allows that to happen.

While we have all the legal paperwork in place, having the conversation out in the open allowed us to speak boldly on the ‘what if’s'…’how are we going to handle this or that’…and merely…;just what are we going to do?’ With the second PET scan scheduled for the first week in December, we will have a clear idea what effects of the radiation and chemotherapy had on the insidious tumor. Will our plans become clear at that point? Maybe so, maybe not!

You see, what ever the oncologist tells us in December, we are going to live each day to the fullest. We are going to do what we can do each day and simply move on. We know some days are going to be better than others, yet why wait around for the Grim Reaper? Let the Grim Reaper chase after us. I’ve used this line in a previous post….”It is a known fact that 100% of the people born are going to die.” So as we continue on with our Monty Python Theme of ‘We’re Not Dead Yet” we’ve decided not to ACT the part, but rather embrace it with a life as full and rich as we can have under the circumstances.

Honest Dialogue often brings out the best (and sometimes) worst in people. However without honest dialogue, what then is communication? While there is not a need for Hospice today, we both know where we stand, we both know what is important to us and we both know that when and if the time comes for this wonderful program, we’ll embrace it, deal with it and make it the best possible experience for all of our family and friends who care to share in the experience with us.

While the effects of Cancer are enormous on everyone, we can’t allow the disease to drive the bus. While ‘The Little One’ and I might share different opinions on life after death; one thing that we do know is that while we are on this earth, we are going to enjoy every second, minute, hour, day, month, year we have left. Life is intended to be lived; we move on with faith, happiness and love. While we can’t avoid pain, we can choose to overcome it. That is simply how Herman and Richard (the first) would want that for us, and for all of you as well!

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The Future is Now


“No one wants to die. Even people who want to go to heaven don’t want to die to get there. And yet death is the destination we all share. No one has ever escaped it. And that is as it should be, because Death is very likely the single best invention of Life. It is Life’s change agent. It clears out the old to make way for the new. Your time is limited, so don’t waste it living someone Else’s life. Don’t be trapped by dogma — which is living with the results of other people’s thinking. Don’t let the noise of others’ opinions drown out your own inner voice. And most important, have the courage to follow your heart and intuition. They somehow already know what you truly want to become. Everything else is secondary.” – Steve Jobs

As I pondered this quote from the late Steve Jobs, I took quite a bit of solace and inspiration from it.  As a caregiver, you freely give your life to someone else while being mindful of your own individuality and needs.    As ‘The Little One’ heads into his final four days of radiation treatments, our lives are changing before our eyes.   We can’t predict the future, we can only deal with the present.   We intend to live our lives to the fullest and enjoy each and every day we have.

The key here is not to wait until there is a serious illness to have this revelation.  We have been fortunate to have followed our heart and intuition since we became friends.   While our life is different because of the  illness, the illness will not control our lives.

While completing my internship in Hospice a few years ago, I was often observed families who were trying to resolve life long issues at the ’11th’ hour.  We all know that that is an impossible task, yet understandable under the circumstances.   Often we can’t fix the past, yet we should not live in it either.    We can live today and search for tomorrow; that is what life and hope is all about.   Or as Steve Job’s put it…”Don’t be trapped by dogma — which is living with the results of other people’s thinking. Don’t let the noise of others’ opinions drown out your own inner voice. And most important, have the courage to follow your heart and intuition. They somehow already know what you truly want to become. Everything else is secondary.”

 

 

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‘Not Dead Yet’ from Monty Python


As we were enjoying breakfast this morning, I asked ‘The Little One’ how he was feeling…he uttered…”I am feeling a little stronger; I’m not dead yet!” Of course, we both broke into laughter as we knew we were referencing the song ‘Not Dead Yet’ in ‘Spamlot.If you are a fan of Monty Python, you know that their off color humor usually hits a nerve, yet where would be without a little laughter in our lives? While cancer is a serious illness with far reaching implications, humor, when used correctly, can lighten the burden of a stressful experience. The song ‘Not Dead Yet’ has wonderful lyrics and when seen live and in person on stage, you grasp the total meaning of the play on words.

Now that ‘The Little One’ has been out of the hospital for a few days… he is starting to regain this strength,…he is starting to feel a little better…as the song goes… ‘I feel happy, I feel happy…I’m not dead yet…I can dance and I can sing…I am not dead yet…I can do the Highland Fling!

When “The Little One’ realized what he had said this morning, it changed his whole perspective to the start of the day. I can only imagine how difficult this has been for him going solo for the first month of his treatments.

Today, there is a beautiful Florida sunshine outside, let there be sunshine and laughter on the inside! We carried this theme with us all day to day as we’ve traveled to the radiology and now to the urologist.

Laughter is the antidote to fear; why not live in laughter even in these difficult days?

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The Paper in Hand or the Words From Your Lips?


Medical Directives, Durable Power of Attorney, Health Care Proxies are all important documents to have readily available when you or your loved one is working through the health care system.   These documents are equally important for non traditional families in order to establish communication between health care service providers as well as securing  visiting rights  for their partners and loved ones.

I was recently told of a story of a women who had enlisted her sister as her health care surrogate.  The health care surrogate did not agree with her sisters life style, denied her access to all her friends, instructed the staff to dress her  only in the clothes she had purchased for her only because the surrogate did not approve of her life style.   This cliff note version of this story is one of the saddest stories that I have ever been told in regards to heath care directives.

Imagine spending your life with someone only to be denied access to them because of someone’s bigotry? 

 

In my book, advocacy does not mean control, rather it means to stand up for your loved one in the manner in which they want to be represented

As ‘The Little One’ and Imuddle through the legal jargon in order to get him the best care plan possible,  these documents are critical to have in place.  I bring this topic up today to remind all of us for the need to have ‘all our ducks in a row’ because you just never know when you are going to need your medical directives, health care proxies and living wills.

However, it just makes sense that when a patient is of sound mind and body, a simple verbal permission by the patient should be sufficient to ensure communication between the patient’s advocate and the health care staff.  That is not always the case, which is way having the legal documentation in place is critical at these times.  Dealing with a critical  illness is difficult enough, having to worry ones advanced directives just makes it even worse.

 I am so proud of ‘The Little One’ as he fights to rid this disease from his body.   His determination to see this through is admirable; I am not sure that I would have the same strength and courage that he has demonstrated these past four weeks.     With just seven more treatments to go of radiation and one more treatment of chemotherapy, we are in the home stretch of this first and hopefully last round of cancer treatments.  There is indication that the tumor has shrunk, yet we will not know the results of the treatments until 30 days past the completion of the radiation and chemotherapy.

We will make it through these next 10 days and point to Wednesday October 5th…When ‘The Little One’ returns to our northern home

 

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