Tag Archives: cancer

Be A Healthy Caregiver on Blog Talk Radio


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On Tuesday April 16th at 1:00 pm (est) we welcome John Schwaig from Fabrication Arts Center in St. Louis to our show.   You can access Tuesday’s show by clicking here!

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Fabrication Arts creates and designs custom and unique art for home and office decor. Their beautiful custom beveled and stained glass, is truly a sight to behold.

 After a mid-life change from teaching and counseling, John has turned what he thought was a hobby, into a second career! Through his classes and workshops on Stained Glass, John offers cancer patients and survivors a chance to find a new hobby and a chance to take their mind off an insidious disease.

Through our conversation today, John will demonstrate to us how the importance of having a hobby will allow us all to “Be A Healthy Caregiver!”

To visit Fabrication Arts Center  website simply click here!

  You can access Tuesday’s show by clicking here!

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Can’t listen to the show live, NO WORRIES, all of our shows are archived for your listening convenience.  You can access all of our archived shows by clicking here! 

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“He’s My Miracle Patient!”


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“He’s MY Miracle Patient”  Dr. Milica Starcevic April 1, 2013

Today as we visited Richard’s primary care physician for his quarterly check-up. This is no April Fools joke, reality before our eyes, a miracle in the works!  BRS2

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After reviewing all the blood work, checking in on recent history with his health, then receiving updates from both of us she just uttered these words:

“He Is My Miracle Patient!”

Given 3 to 4 months to live in October of 2011; In August of this year we will ‘celebrate’ 2 years since the original diagnosis of esophagus  cancer.  Like many families who go through a cancer diagnoses, we were filled with so many diverse emotions.  Now two years past, we are thankful for each and every day we spend together.  Sure some days are better than others, and the esophagus does ‘act-up’ from time to time; the tumor does have a mind of its own!

Being a family caregiver comes with quite a bit of sacrifice and courage, and just like ‘The Little One”, I have my good days and I have my bad days.  Sleepless nights, worrying about things that I cannot control and wondering what’s going to happen next.  It’s all part of the role of being a family caregiver. 

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Yet on a day like today, being a family caregiver is put into perspective  when Dr. Starcevic turned to me and said “thank you  for being a Caregiver.”  Those long nights, followed by those uncertain  days were a thing of the past by those simple words uttered by Dr. Starcevic!  Of course, a big smile from ‘The Little One Helped, too!

You see…We Might Have Cancer,

But Cancer Does Not Have Us!

Listen to:

cjmbtr (1) Every Tuesday at 1:00 pm est

Access all our shows by clicking here!

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Filed under Advocate, Be A Healthy Caregiver, caregiver, Caregiving, Esophagus Cancer

Be A Healthy Caregiver on Blog Talk Radio


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On Tuesday March 26th at 1:00 pm (est) we welcome Dr. John J. Garnand,  author of ‘Cancer Caregiver Roles: What You Need to Know’ to our show.  You can listen to our show by clicking here.

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Dr. John J Garnand

 

John is a lifetime educator, award-winning instructor in the general areas of business strategy, management operations and ethics.   Yet I am sure John will tell you that his most important role he has had in his life, is that of a Caregiver!

His book, ’Cancer Caregiver Roles: What You Need to CCRcoverKnow’ is John’s effort to pull together all the information that he learned over nine years of attending to his cancer patient loved one.  John’s book is well worth reading!

Through our conversation today, John will help us all learn how to ‘Be A Healthy Caregiver’ 

You can listen to our show live at 1:00 pm (est) by clicking here.

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Cannot listen live, NO WORRIES, all our shows are archived so you can listen at a time that is convenient for you by clicking here

Purchase John’s book by simply clicking  here

Visit John’s blog by simply clicking  here

Visit John’s Facebook page by simply clicking here

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Filed under Advocate, Be A Healthy Caregiver, Blog Talk Radio, cancer treatments, Caregiving, The Bow Tie Guy

Caregiving and Those Silly Hats


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I will be the first to admit that I have hit a dry spell recently in my writing.  When chatting with other bloggers about this, I have learned that hitting a dry spell, or ‘The Wall’ as it has been described to me, is not uncommon.  When you are a working family caregiver, there is often this tug of war between what you want to do,  versus what you have time to do, coupled with the fact of what you have to do.   No matter what role you might have in life, finding that  balancing act is always a challenge.

A great example of finding that balancing act in life happened this past weekend at a fundraising event for work.   While I always like to include ‘The Little One’ in on as many events that he feels up to attend, this past weekend I was quite surprised when we both went ‘all in’ at SunServe’s Garden and Hat party.  Creating crazy looking bonnets is not something that we do on a regular basis, yet we had a great time together shopping, creating and wearing ‘those’  hats on Sunday.

The Mad HattersWhile we did not win the crazy hat contest,  the weekend event reminded me that bonding over something that is fun is essential  for both of us.  If you’re a caregiver like me, I am sure you get caught up in the daily routine of making sure everything is prefect for your caree.

The past few months, ‘The Little One’ has been blessed with more good days than bad,  for which we are both grateful. Yet to  ‘Be A Healthy Caregiver’ it is essential to find those times when we can take our mind off of things that we cannot control (cancer), and have fun with something that we can control (crazy hats).  Letting go of control can be hard, yet in those bonding moments, there is a sense of freedom that for a moment, helps take all our worries away.  Come to think about it…having one less worry  in our day, helps us us find that elusive balance in our lives that we so constantly strive to achieve.

  We Might Have Cancer…

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But Cancer Does Not Have US!

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End of Life Wishes: Let’s Talk About It!


‘Some people are so afraid to die that they never begin to live.’  Henry Van Dyke

Join us this morning (Saturday 1/26) at 10:00 am est  (9 a.m. CT, 7 a.m. PT) with Denise Brown CaregivingLogofrom Caregiving.com  on  ”Your Caregiving Journey” on Blog Talk Radio.  Richard and I join Denise  to discuss Richard’s end-of-life wishes,  my decision to ‘without’ the oncologist ‘prediction’ and a variety of other to end of life topics that are often difficult to discuss, yet important to get out in the open.   TLOCJM

Listen to the show live and join the chat room click here: blogtalkradiologo

We Might Have Cancer…

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But Cancer Does Not Have US! 

 

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82: Who Would Have Known?


Love is composed of a single soul inhabiting two bodies.  Aristotle 

026Today, ‘The Little One’ turns 82! It is a feat to recognize considering we are now 16 months past the oncologist‘s original  estimation of 3-4 months to live after the completion of his radiation and chemotherapy treatments in October of 2011.      We all know that Cancer is an insidious disease, unpredictable and unkind to many.  While we feel blessed to have the extended time together,  we are cognizant of all  cancer victims and their families today.

We learned from our oncologist prediction in October of 2111 that there is really no one who can tell us how this ordeal was going to play out.  There are no timetables in life:  what is here today, is gone tomorrow.  Knowing full well that I am not the one with cancer, I had to learn my supporting role as the caregiver as time played out.  Remembering ‘TLO’ determination and commitment to ‘fight this as best I can’ still rings in my ears from October 2011.  His determination is still prevalent today!

I have never liked phrase ‘terminal illness‘ …some people view life as a terminal illness.  Yikes, how sad that is!   TheWorry TLO and I have both buried our previous partners, in one sense that is what drew us together.  Our previous Caregiving experiences give us the foresight to know that…we really don’t know what is going to happen.  The best we can do is be present in the day.  That is why is it our hope that lets us withstand problems, and it is our dreams that lets us find solutions.  

We celebrate birthdays as milestones, and today is a special milestone for ‘TLO’.  Happy Birthday to my best friend, pal and partner.   May your hills always have a gentle wind at your back.

We Might Have Cancer…

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But Cancer Does Not Have US!

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Filed under Advocate, Be A Healthy Caregiver, Caregiving, Gay Seniors, Intergenerational, oncology

November is National Caregivers Month


From ‘The Bow Tie Guy’ and ‘The Little One’

We recognize and thank all Caregivers… especially during National Caregivers Month

You see, We Might have Cancer, but Cancer Does Not have us

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On Borrowed Time?


 

I decided to try something different this evening with my blog post… I am using Dragon Naturally Speaking to post my blog this evening.  I have come to the realization that I am much better at speaking than I am at typing: this just might be a better way for me to communicate my thoughts, feelings and emotions as I moved forward with ‘The Purple Jacket.”  So far so good!

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This past week,  The Little One had his appointment with the oncologist. What was amazing about this appointment was that I did not feel the need, nor did I have the time to go to the appointment with him.   Now the ‘Mother Hen’ in me worried all morning about the whereabouts of “The Little One” yet  I knew deep down inside me that could handle the oncologist, handle the drive down to the office and be independent.  He did not get to be 81 without some form of independence!

Just as is the primary care doctor was encouraged at his progress, so was the oncologist.  It just so happens that the oncologist and the primary care doctor share the same office space;  this convenient for sharing information between staff and doctors.  The other benefit of this location in that the chemotherapy treatments is on the site, too! This  setup has made easier, not only for “The Little One”, but for all the patients that these physicians see on a regular basis.

The oncologist continued to spread good cheer,  good health and well-being for “The Little One.”  As I mentioned in my last blog post, the oncologist had projected 3 or 4 months to live after the initial diagnosis and subsequent treatments.  While he is pleased to be proven wrong, statistically speaking, the cure rate for esophageal cancer is one of the lowest there is.  If we are going solely by the book, then 3 to 4 months is correct.

It is understandable why a diagnosis like this would be attached to such a short lifespan.  That being said,  we forged ahead mindful of the pitfalls, yet striving for the best possible results.  We never want to rule out hope!

 I guess what amazes me the most about this visit to the oncologist is not the fact that we all recognize that the little one has far exceeded anyone’s expectations; it’s why is the doctor felt like he has to end this positive visit with the words…”You know you’re on borrowed time!”

Photo Credit: Pinterest

Granted I was not there for this conversation, and I have no reason to doubt what “The Little One” has told me in regards to this conversation.  Yet, I am not sure what the purpose of comments like this does for a patient, for a caregiver or for the physician themselves?  Throughout this whole ordeal, we have taken a positive approach to dealing with the effects of cancer. We could sulked, we could  have  played the blame game, we could have gone into denial… However, what good would that have done for either one of us?  That’s just like saying…”you know we’re on borrowed time.”  

I do not claim to be a doctor, I do not claim to be a clinician, but I do believe that I understand how a positive outlook and healthy communication  can have a soothing and  healing effect on the mind, on the body, and of the spirit when dealing with critical health issues.  When you think about it,  we are all on borrowed time, yet does a cancer patient really need to be reminded of that?

Photo Credit: Pinterst

The healing power of body, mind and spirit plays such an important role in overcoming physical (and mental) illness.   To use a sports metaphor, the best defense is usually a good offense.  The best way to deal with a diagnosis of cancer is to be as realistic and honest as possible.  Our best offense was to plunge full force  When I look at this comment from the oncologist in this light, I can understand it.  Yet to presuppose a diagnosis without the addition of hope, only leads us to despair.  Reality is painful enough, more so without the effects of hope!

Sometimes Just Being There is all we need

Through this experience, I am convinced that one of the key tools in transmitting hope and reality,  is the ability to be an empathetic communicator.    Calmly… Empathy transmits hope and reality.  I don’t think that there is anymore that we can ask for when dealing with the stark reality of Cancer or any other disabling illness.

You see…We Might Have Cancer…But Cancer Does Not Have Us! 

Photo Credit: ‘The Bow-Tie-Guy”

 

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Filed under advocacy, Advocate, Bow Tie Guy, cancer treatments, Caregiving, Esophagus Cancer, Gay Caregiving, Gay Seniors, LGBT, LGBT Caregiving, LGBT Couples, LGBT Seniors, Spirituality

Amazement!


Photo Credit: Pinterest

As we continue to move forward with his aftercare, there is amazement on every side of the aisle. Our last report from the primary care doctor was terrific. She, like everyone else involved in his care, is utterly amazed at the progress that ‘The Little One’ has made since this ordeal started almost a year ago. I have been reluctant to blog lately, because quite frankly, I am amazed (and quite busy) too.

When ‘The Little One’ was diagnosed with cancer in late July of 2011, we started six weeks’ worth of treatments almost immediately. The outcome looked bleak back then, and in fact the doctors gave us little hope for the future when the diagnosis came in. ‘Three maybe four months” said the oncologist back in September of 2011.

It was at that time I made the conscious decision to withhold that information from ‘The Little One’ while telling the doctor ‘let’s wait and see how he responds to treatments.’ I never shared that conversation with ‘The Little One’ until after our last appointment with his primary care doctor just a few weeks ago. (If we are doing the math, that last appointment was in June; I was told in August of 2011 that he had 3 to 4 months. We are almost to a year since the first treatments….) Of course, I consulted with the oncologist on the decision not to share this information with ‘The Little One’ , and he agreed. “Let see how the treatments go and let him live his life to the fullest!” He has exceeded all expectations, and now his doctors want to do a case study on him.

Photo Credit: Pinterest

To withhold this information is a difficult judgment call that caregivers, spouses, doctors have to make on a daily basis. I made this decision based on one simple fact. ‘The Little One’ knew that he had cancer, and he knew that it was serious; I also knew that he was going to do anything he possibly could to beat the diagnosis. Why train the mind to think something is going to happen, when we really do not know when is going to happen?

This week, ‘The Little One’ will visit his oncologist for a quarterly check-up. I am confident that the oncologist will be pleased and say again….”Bern, you look great,” which ‘The Little One will reply, “ Yes, I’ve got a new embalmer!” Laughter is the best medicine, even in its most trying times.

What is left of the tumor is dormant and for all intent and purposes, his cancer is in remission. From the first day, we have taken this day by day. What else is there to do? Every case is different. My decision to withhold this information from “The Little One” was not an easy decision to make. After revealing this decision to him, he was glad not to know… even though he did know.

Photo Credit: Pinterest

In a sad, but beautiful twist of fate, ‘The Little One’s lifelong friend Jill has recently been diagnosed with cancer. Like our first report, Jill’s first report has us all concerned. What is beautiful about this is how ‘The Little One’  is able to transfer his experience of this insidious disease to Jill… to encourage her, to console her, to simply be there for her.  This gift of encouragement is one of the best gifts that one can give to a friend.

We send out a big hug and hello to our friend Doug in STL who is going through treatments at this time.  We are thinking of you Doug!

 Remember…We might have cancer…But cancer does not have us.

Photo Credit: The Purple Jacket

As you have noticed, we have taken a break from Blogging on ‘The Purple Jacket’ for the past few weeks.  As I transition into a new job and into a new academic program at Gonzaga University, “The Purple Jacket” will be taking on a new look too.   We will continue to provide you updates on ‘The Little One’ as this blog is really dedicated to him.  Yet in future weeks, we will expand the content of the blog to discuss the effects of Caregiving on the caregiver.   What is often overlooked in Caregiving is the importance of the health of the caregiver.  Personally, I have had to take a long hard look at this issue, and have come to the conclusion  that the best way to deal with this issue is to blog about it.  In essence, there is a real purple jacket.  I just can’t fit into it any longer.   We have to explore the issue of what it means to be a healthy caregiver!

Photo Credit: Caregiving.com

I am BIG fan of Caregiving.com  The community on Caregiving.com is just tremendous and Denise Brown who is the proprietor of this wonderful website, is an expert in the field of Caregiving. You want to be sure to check out Caregiving.com and become a part of the Caregiving family too!  Follow Denise on Twitter @caregiving and on Blog Talk Radio, too!

WE will also be exploring a new communication theory entitled ‘The Theory of Empathic Communication” in an upcoming blog posts, as well as our Phone A Friend program at SunServe Social Services.  We will also be chatting about a great program at the Pride Center in Fort Lauderdale, Coffee & Conversation which takes place every Tuesday morning at 11:00 am in Wilton Manors, Florida.   I will also have some speaking engagements to announce in August and September.  Coming soon,  ‘The Bow-Tie-Guy’ on Blog Talk Radio!  

Photo Credit: The Bow-Tie-Guy

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Filed under advocacy, Advocate, Blog, Bow Tie, Bow Tie Guy, cancer treatments, Caregiving, Gay Caregiving, Gay Seniors, Inter-generational Relationships, LGBT, LGBT Caregiving, LGBT Couples, oncology

Make an Oncologist Smile.


The trip to the oncologist brought a big smile to everyone face. Amazed at the progress of ‘The Little One’ the doctor encouraged us to continue on this smooth path and don’t come back for six months!

Now seven months past the diagnosis and five months past the last Chemo/radiation treatment, we find ourselves on an upwards swing. We have much to be thankful for…

Wonderful family…

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Fun times…

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Great Friends…

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Love comes in all shapes and sizes: don’t let love pass you by because life can change at a moments notice.

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You see, we might have cancer… But cancer does not have us!

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Filed under Advocate, cancer treatments, Caregiving, Chemotherapy, Esophagus Cancer, Humor, LGBT Couples, Life after Death