Tag Archives: spirituality

The Night I Turned the Cell Phone Off


be-healthyLove is composed of a single soul inhabiting two bodies. Aristotle

For many caregivers, there is never a day off. Sure respite care is available, but even when we have a day or an hour of respite, we are always just a phone call away, and we are always wondering what is going on with our Caree.

My phone call came on Wednesday January 25 , 2006…’Chris, I am sorry to have to tell you, but Father Orlando’s kidneys have failedI am so sorry, he does not have very long to live.” The call was surrealMy response was…”Can you hold off on giving him morphine until I get there, I want to be able to talk to him.” ‘I’m sorry, Chriswe have already started him on the morphine, we do not want him to experience any pain. Of course, I did not want him to experience any more pain, too.

When Father Orlando started his transition to eternal life, it was a peaceful 36 hours for him. While the last few years of his life were filled with many health calamities, his peaceful transition into eternal life was truly a gift from God; it was a special gift for us both.

When I arrived at the hospital, he was lying peacefully in bed with an angelic smile on his face. What was significant about Wednesday January 25th was that he was going to be discharged from the hospital that afternoon. I spent the morning preparing for his return home with a visit to the grocery store, storing up his favorite foods for the next chapter in our Caregiving journey.

004God certainly had other plans for us that day!

The next 36 hours were filled with scripture readings, visits from close friends, calls to family and a few hours of respite care from our friend Dan who had been such a great help during our Caregiving journey. The last communication I had with Father Orlando was when I was holding his hand as he gently rubbed his thumb over the top of my hand. Those gentle strokes across the top of my hand was his way of telling me that he loved me and that he was at peace. I can still feel his gentle strokes across the top of my left had today.

When he took his last breath at 1:13 am on Friday January 27th, he had that same angelic smile on his face that he did when I arrived at the hospital on Wednesday. It was at that time that I realized what an honor it is to be a caregiver.

As I walked to my car, leaving the hospital that early Friday morning was unreal as a relationship of 18 years had just ended. The intensity of being his caregiver for the last 18 months, revealed a deeper love and commitment that we had never experienced in life. Upon arriving at my car, I was finishing up with one last phone call before leaving the hospital on last time.  As I settled into my car, I could see that the light was still on in his hospital 4th floor room. Then suddenly, the light went off in his room as  I was finishing the call. I looked at my phone, then looked back up at his room and then simply turned my cell phone off.

IMG_1121The significance of turning off the cell phone was the stark realization that my role as his caregiver had ended. I could not ever remember the last time I had turned the cell phone off at night!  No were more emergencies, no more calamities, nothing more worry about, he was finally at rest.  For me, this was the start of a transition in my life in how I would love and care for him differently, that continues to evolve today.

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Every Tuesday at 1:00pm (est)

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Filed under Be A Healthy Caregiver, Bow Tie Guy, Caregiving, Catholic, Hospice, Inter-generational Relationships, Life after Death, Spirituality, The Bow Tie Guy

Caregivers: How Do We Listen at the End of Life?


On Tuesday  we welcomed  Dr. Richard Wagner, M.Div., Ph.D., ACS to our ‘Be A Healthy Caregiver’ show on Blog Talk Radio.

Dr. Wagner’s book ’The Amateur’s Guide to Death and Dying: enhancing the wagner._SL110_End of Life.”   provides us with a realistic view of a topic that is often difficult to talk about.  Out of Seattle, WA., Dr. Wagner has worked in the field of end of life issues for over 30 years.

As Caregivers, we often face the issues of death on a daily basis.  Yet as caregivers, we often help facilitate healthy transitions for the person that we care for and love.  ”Curiously enough, people who are dying usually have a different priority system at this time in their life…..”   As the caregiver, we are so focused  on the needs of our caree, sometimes we just need to be present and listen.

During my Caregiving experience with Fr. Orlando, I had the privilege to hold him while he made his transition.  I would not have been able to do that without knowing from our conversations that he was at peace with his life and had accepted what was going to happen.  Of course, during those marvelous conversations, we had no idea when the time would come, yet we both knew that it would come. Those last few weeks with him were amazing and filled with raw emotions.  Honest, heartfelt conversations seemed to happen with such ease.  That was his way of preparing me for what was coming down the road.   Sometimes, listening is the best answer.

While death is not a ‘lively’ topic to talk about, I am confident that you will find the conversation with Dr. Wagner upbeat, real and sensitive.

To listen to Tuesday’s episode,  simply click here (I would appreciate your feedback on this episode.)

To learn more about Dr. Wagner, click here.

To purchase Dr. Wagner’s books, click here.

Next Tuesday, January 15th at 1:00pm (est) our guest will be Mandy Harrell from WeareverUSA .  The Wearever brand offers comfortable, quality, affordable and stylish apparel solutions for everyday health and wellness concerns.

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To access all our ‘Be A Healthy Caregiver’ episodes on blogtalkradiologo

Simply click here

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‘Be A Healthy Caregiver’ on Blog Talk Radio


On Tuesday January 8th,  we welcome Dr. Richard Wagner, M.Div., Ph.D., ACS to our show Be A Healthy Caregiver!  Out of Seattle, WA., Dr. Wagner is a psychotherapist/clinical sexologist and has been in private practice since 1981.

Dr. Wagner has been working with the terminally ill, chronically ill elder and dying people in hospitals, hospice and home settings for over thirty years.

We will be chatting about Dr. Wagner’s work and his book The Amateur’s Guide to Death and Dying: enhancing the End of Life.  As Caregivers, we are often dealing with issues surrounding life and death.  Our conversation will be upbeat, real and with a touch of spirituality.

To learn more about Dr. Wagner, click here.

To purchase Dr. Wagner’s books, click here.

To Listen to  Dr. Wagner on ‘Be A Healthy Caregiver’ on  Blog Talk Radio click here

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Our show is available live or archived online for your convenience.

To access all our ‘Be A Healthy Caregiver’ episodes on blogtalkradiologo

Simply click here

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Every Day: Set An Intention For Yourself.


‘Be A Healthy Caregiver’ on Blog Talk Radio 

On Tuesday’s ‘Be A Healthy Caregiver’ Blog Talk Radio Show, my special guest was David Levison from ‘Get2BFit’ in Fort newlogoLauderdale, Fl.  David and I talked at great length about the importance of getting into a routine the centers around our personal health and well-being, along the importance of having a good body image.     Yet one of the comments from David that stood out the most was simply this:  Every day:  set an intention for yourself.

As caregivers, we often take a back seat and never ‘set and intention’ for ourselves: I think David is on to something sunset_yoga_girlshere!    Often time as caregivers, our intentions are completely focused on our Caree.  To set an intention for ourselves seems scary, but…it is the right thing to do.  Setting an intention keeps us on track, allows us to focus on our needs, while making us better caregivers, too!

To listen to ‘Be A Healthy Caregiver’ featuring Chris MacLellan ‘The Bow Tie Guy’ and ACSM Certified  Trainer,  blogtalkradiologoDavid Levison on ‘Be A Healthy simply click here

Join us every Tuesday at 1:00 pm (est) for ‘Be A Healthy Caregiver’ on Blog Talk Radio.   Upcoming Guests:

December 11th:  David Treece from Treece Financial Group 

December 18th:  Author and Caregiver Rob Harris from Rob Care

If you are interested in being a guest on ‘Be A Healthy Caregiver’ please email me at Chris@thepurplejacket.com

If you cannot join us live, you can listen to this show, or  any of our earlier episodes of ‘Be A Healthy Caregiver’ by simply by clicking here

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Remember…We Might Have Cacner...But Cancer Does Not Have us!

 

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‘Be A Healthy Caregiver’ on Blog Talk Radio


On Tuesday’s ‘Be A Healthy Caregiver’ show, we had a wonderful conversation with Fr. J. Lawrence Richardt from the Archdiocese of Indianapolis where we discussed how Spirituality can play a role in being a healthy caregiver.   Approaching his 50th anniversary of his ordination, Fr. Larry has been a caregiver for his mother for the past seven years in Indiana.

During our conversation we talked about:

  • How being present to others is important in ministry and in Caregiving…
  • The importance of being anchored to a larger world outside of Caregiving…
  • How Scripture and Spiritual Direction helps keep me  (us) honest…
  • How we laugh and find beauty during those dog days of caregiving…

To listen to our conversation on Blog Talk Radio, please click here.

 

Join us next Tuesday at 1:00pm (est)for another episode of ‘Be A Healthy Caregiver’ on Blog Talk Radio for a discussion with Attorney’s Ryan Shaughnessy and Michelle Silies as we discuss the importance of having your legal documents in order.  For the link to next week show you can click here

 

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‘Be A Healthy Caregiver’ on Blog Talk Radio


Join us on Tuesday at 1:00 pm (EST) for another episode of ‘Be A Healthy Caregiver’ on Blog Talk Radio.   On this week’s  ’Be A Healthy Caregiver’ show, we’ll be chatting with the Reverend Larry Richardt who is a retired Catholic Priest from the Diocese of Indianapolis.  As a caregiver for his mother and formally trained Spiritual Director, Father Richardt has a keen understanding on how the role spirituality plays in order to ‘Be A Healthy Caregiver’   To listen to the show live on Tuesday (or anytime that is convenient for you) just click here

 

 

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November is National Caregivers Month


From ‘The Bow Tie Guy’ and ‘The Little One’

We recognize and thank all Caregivers… especially during National Caregivers Month

You see, We Might have Cancer, but Cancer Does Not have us

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The ‘Price’ of CareGiving


I have found the paradox, that if you love until it hurts, there can be no more hurt, only more love.  Mother Teresa 
 

As Caregivers we are often put in a position where we have to choose between what’s good for ourself and what is  good for the person for whom we are caring.  If you are a caregiver like me (and I bet you are), you are always putting the needs of your caree first.   Placing someones else’s needs in front of your own can be difficult for some people to understand; but not for the caregiver! In our me first society, and in many business circles, decisions like this are frowned on and often not understood.

To be a healthy caregiver, we have to learn how to live life in the solutions of our Caregiving experience; not solely in the problems of our Caregiving experience.  By living a life focused on solutions, we live our life with clarity, hope and love. Focusing solely on problems, we live in fear, worry and despair.  Focusing on solutions is not only a  healthy mindset for caregivers, it is a healthy mindset for everyone.  

I have had to learn this lesson the hard way. After almost 10 years of Caregiving,  I started to focus more  on the problem, not the solutions. By focusing only on the problems, I lost myself and just created more problems in return.   Losing yourself complicates Caregiving.  While the love for your caree is strong and sealed, you have to love yourself first in order to solidify your inner peace and purpose.  Your life can’t be that of your caree!

Photo Credit: The Purple Jacket

The price of Caregiving is not fixed, it is different for everyone. But if you don’t recognize the personal cost in Caregiving, you can lose yourself in the process, and that cost is priceless.   What are the signs of losing yourself: weight gain, loss of focus/clarity, financial stress, spiritual uncertainty, your own purpose, professional satisfaction, detachment just to name a few.

For people who care, this is a conundrum. We are always asking ourselves…”Did I do enough; could I have done something different.”  

Yet what we might ask ourselves is…

Are we always looking at the problem, and not the solution? 

While I do not intend to lose  focus on the care of ‘The Little One’,  I am starting to refocus on caring for myself. This has been a revelation of sorts because ‘The Little One’  has been asking me (telling, demanding, requesting, you get the picture) to take better care of myself. Yet immersed in this care and unwilling to listen, reality has come full force.  How can I be a good caregiver, if I can’t take better care of myself?

Photo Credit: The Purple Jacket

It’s simple:

Eat Less… Move More

Focus on Solutions…Not Problems

Never quit caring… Especially for yourself  

You see…We might have Cancer…

but Cancer does not have us!

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On Borrowed Time?


 

I decided to try something different this evening with my blog post… I am using Dragon Naturally Speaking to post my blog this evening.  I have come to the realization that I am much better at speaking than I am at typing: this just might be a better way for me to communicate my thoughts, feelings and emotions as I moved forward with ‘The Purple Jacket.”  So far so good!

Jewish Halo

This past week,  The Little One had his appointment with the oncologist. What was amazing about this appointment was that I did not feel the need, nor did I have the time to go to the appointment with him.   Now the ‘Mother Hen’ in me worried all morning about the whereabouts of “The Little One” yet  I knew deep down inside me that could handle the oncologist, handle the drive down to the office and be independent.  He did not get to be 81 without some form of independence!

Just as is the primary care doctor was encouraged at his progress, so was the oncologist.  It just so happens that the oncologist and the primary care doctor share the same office space;  this convenient for sharing information between staff and doctors.  The other benefit of this location in that the chemotherapy treatments is on the site, too! This  setup has made easier, not only for “The Little One”, but for all the patients that these physicians see on a regular basis.

The oncologist continued to spread good cheer,  good health and well-being for “The Little One.”  As I mentioned in my last blog post, the oncologist had projected 3 or 4 months to live after the initial diagnosis and subsequent treatments.  While he is pleased to be proven wrong, statistically speaking, the cure rate for esophageal cancer is one of the lowest there is.  If we are going solely by the book, then 3 to 4 months is correct.

It is understandable why a diagnosis like this would be attached to such a short lifespan.  That being said,  we forged ahead mindful of the pitfalls, yet striving for the best possible results.  We never want to rule out hope!

 I guess what amazes me the most about this visit to the oncologist is not the fact that we all recognize that the little one has far exceeded anyone’s expectations; it’s why is the doctor felt like he has to end this positive visit with the words…”You know you’re on borrowed time!”

Photo Credit: Pinterest

Granted I was not there for this conversation, and I have no reason to doubt what “The Little One” has told me in regards to this conversation.  Yet, I am not sure what the purpose of comments like this does for a patient, for a caregiver or for the physician themselves?  Throughout this whole ordeal, we have taken a positive approach to dealing with the effects of cancer. We could sulked, we could  have  played the blame game, we could have gone into denial… However, what good would that have done for either one of us?  That’s just like saying…”you know we’re on borrowed time.”  

I do not claim to be a doctor, I do not claim to be a clinician, but I do believe that I understand how a positive outlook and healthy communication  can have a soothing and  healing effect on the mind, on the body, and of the spirit when dealing with critical health issues.  When you think about it,  we are all on borrowed time, yet does a cancer patient really need to be reminded of that?

Photo Credit: Pinterst

The healing power of body, mind and spirit plays such an important role in overcoming physical (and mental) illness.   To use a sports metaphor, the best defense is usually a good offense.  The best way to deal with a diagnosis of cancer is to be as realistic and honest as possible.  Our best offense was to plunge full force  When I look at this comment from the oncologist in this light, I can understand it.  Yet to presuppose a diagnosis without the addition of hope, only leads us to despair.  Reality is painful enough, more so without the effects of hope!

Sometimes Just Being There is all we need

Through this experience, I am convinced that one of the key tools in transmitting hope and reality,  is the ability to be an empathetic communicator.    Calmly… Empathy transmits hope and reality.  I don’t think that there is anymore that we can ask for when dealing with the stark reality of Cancer or any other disabling illness.

You see…We Might Have Cancer…But Cancer Does Not Have Us! 

Photo Credit: ‘The Bow-Tie-Guy”

 

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The Bow-Tie-Guy Tip of the Day:


Life is meant to be lived in forward, not in reverse.

Photo Credit ‘Free Digital Photo’s’

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