Category Archives: Advocate

Gail Gibson Hunt from the National Alliance for Caregiving on Healing Ties Radio


 

Join us on Wednesday, February  25th at 7 pm EST on HealthCafeLive.com as we welcome the President and Chief Executive Officer of the National Alliance for Caregiving, Gail Gibson Hunt, to our show. Established in 1996, the National Alliance for Caregiving is a non-profit coalition of      national organizations focused on improving the lives of family caregivers. As Caregivers, we are often faced with the task of managing our Caree’s health during a variety of stages. But what about managing the Caregivers health and well-being?  Recognized as a national expert on family  caregiving and long-term care,  Gail has a keen understanding of the issues Caregivers and their Caree’s face on a daily basis.  Listen in and learn how Gail and the entire staff at the     National Alliance for Caregiving are creating “Healing Ties” all around us!

 To listen live at 7:00 pm (est) simply click here!

Not available to listen live?  NO WORRIES!  All of our episodes of Healing Ties are available on demand at our iHeart Radio Channel by clicking  here!

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Filed under Advocate, Caregiving, Healing Ties

Lost Dreams


Your big opportunity may be right where you are now. Napoleon Hill

Nobody can escape the agonizing losses that are part of our everyday existence —the loss of our dreams.  We had thought so long of ourselves as successful, liked and  deeply loved.  We had hoped for a life of generosity, service and self-sacrifice.  We had planned to become forgiving, caring and always gentle people. We have a vision of ourselves as reconcilers and peacemakers. But somehow—we aren’t even sure what happened—we lost our dreams.  We became worrying, anxious people clinging to the few things we had collected and exchanging with one another news of political, social and ecclesiastical scandals of our day.  It is the loss of spirit that is often hardest to acknowledge and most difficult to confess.  ~ Author Unknown

Never Give Up On Your Dreams

 

 

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Filed under Advocate, Healing

Progressive Holiday Blog Party with Caregiving.com


Caregiving_Logo_Small1 2013_blog_party-300x199Welcome to the Progressive Holiday Blog Party 2013

Greetings!  ‘The Purple Jacket’ pleased to join the 2013 Progressive Holiday Blog Party with the wonderful members of Caregiving.com.  The Community at Caregiving.com  is like having an extended family;  I am proud to be a part of this wonderful group!

TLO_Certificate

I graduated from radiation!

For those first time visitors to ‘The Purple Jacket’ welcome and Thank You for stopping by!  I blog about my Caregiving experience for my partner, who I loving refer to as ‘The Little One.’  He was diagnosed with esophagus cancer in August of 2011.  Given three to four months to live, he has outlived all predictions.   Yet in October of 2013, Cancer has returned to ‘The Little One’ with a vengeance as he was diagnosed with Cancer on the spine.  With three tumors on his spine; ‘The Little One’ just recently completed 30 radiation treatments.  For the most part, he is pain-free at the moment, my that continue!

While each one of us deals with the reality of cancer in a different way, each 20131015-225104.jpgone of us wants to look on the bright side of life. Yesterday is gone, today is here, not sure about tomorrow. It is our hope that lets us withstand problems; it is our beliefs that let us find solutions.

I have been blogging here and at Caregiving.com for almost two years now.  The Caregivers I have met along the way have become a part of our family.   While our Caregiving journey’s might be different, Caregivers have this innate ability to understand each other, to be there for each other, to care for each other.  

Things that I am looking forward to in 2014:

My Blog Talk Radio Show, ‘Be A Healthy Caregiver’  has been on hiatus since October, but will be back on the air in January with a new title, ‘Healing Ties.’  You can visit my Blog Talk Radio page and listen to archived versions of the show by clicking here! 

I will be (returning) to studying Theology at St. Joseph’s College in Standish, Maine with the intent to finish my Thesis, ‘The Social Sin of Geriatric Care in America.”

I hope we do another CareCruise in 2014!

To learn more about me,  I invite you to visit my ‘about page’ on my website by clicking here.

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 We Might Have CancerBut Cancer Does Not Have Us!

TLOCJM

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Filed under advocacy, Advocate, Caregiving, LGBT Caregiving, LGBT Couples, LGBT Seniors

Happy Thanks-Caregiving


You must do things you think you cannot do.  Eleanor Roosevelt

ViolenMan

 We are Thankful for those who are Caregivers today:

We are Thankful for those who will be Caregivers tomorrow:

We are especially Thankful for those Caregivers whose journey has past. 

We share  in our Caregiving Journey in a special way, knowing that while our Caregiving roads might be different, our paths are filled with comfort and joy from the support we receive from each other!  

Thank You for being a part of our Caregiving Journey.  

From our Caregiving Journey to yoursHappy Thanks-Caregiving         

The Bow Tie Guys!

You see…We Might Have Cancer...But Cancer Does Not Have Us! 

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‘Be A Healthy Caregiver’ is on hiatus until January 2014 while ‘TLO’ is undergoing radiation treatments.  To listen to  archived episodes of our show, simply click here! 

Christopher MacLellan is a Certified Senior Advisor, the coordinator of senior services for SunServe Social Services and the host of ‘Be A Healthy Caregiver’ on Blog Talk Radio.  ©ThePurpleJacket

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Filed under advocacy, Advocate, caregiver, Caregiving, Live Love Laugh, oncology

That’s What Caregivers Do!


Presidential Proclamation — November is National Family Caregivers Month!

BHC_fb

 I am proud to be one of the over 60 million Caregivers in the United States today.  Being a Caregiver can be, and often is challenging… But also so very  rewarding.  I believe that to be entrusted with the care of another human being is one of the greatest honors that can be bestowed on another person.  Those long sleepless nights, those challenging trips to the doctor and hospitals, those times when you have to intercede, educated and advocate come full circle when your Caree looks at you and  simply says…”Thank You for what you do for me.”  

I am also mindful of those family Caregivers who are never thanked, never appreciated and overworked.  If it means anything to you, from one Caregiver to another, I offer my thanks and appreciation to you because… That’s what Caregivers do! 

Caregiving is not a role that is often chosen and Caregiving is not for everyone.  Caregivers come in many different shapes, sizes, philosophies and cultures:  Caregiving and Caregivers are diverse. While our Caregiving  journeys might be different, Caregivers have this innate ability to understand each other,  to care for each other, to be there for each other, because…  That’s What Caregivers do!

Through the wonders of the internet, my Caregiving journey has been enriched by the countless number of people I have met along the way.  Each one of you have inspired me, supported me and have been there for me because… That’s what Caregivers do! 

A special ‘thank you’ to Author, Caregiving Coach, Speaker and owner at Caregiving.com Denise Brown and my extended family at  Caregiving.com  for your support. You opened up your ‘home’ to us and made us feel welcome from the start because…  That’s what Caregivers do!

We know that our current Caregiving journey is going to be filled with a few bumps and bruises along the way; Cancer has a way of doing that.  Yet we know those bumps and bruises will be a tad softer because of our extended Caregiving family we’ve met along the way because…That’s what Caregivers do!.  

TLO

Caregivers: Thank You for all you do from Bernard Richard Schiffer…’The Little One’

To all Caregivers, I share this simple smile from a very special fellow whose courage is unbounded, as a way of thanking you for all that you do, because…That’s what Caregivers do! 

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Filed under Advocate, Cancer, Caregiving, Healing Ties, Health, Never Alone, The Bow Tie Guy

The Foundation: The Honor Of Caregiving.


I have looked into your eyes with my eyes.  I have put my heart near your heart. Pope John XXIII

This Friday I will be presenting on Caregiving at SunServe’s Silver Serve Luncheon.   I’ve taken most of what I have written below from previous blog post on ‘The Purple Jacket’.  Your feedback is always welcomed! 

The Foundation: The Honor Of Caregiving

To be entrusted with the care of another human being is one of the greatest honors that can be bestowed on you.  Caregiving takes on meaning that is beyond reproach.  New parents have nine months to prepare for the responsibility of bringing a child into the world.  Doctors and nurses undergo years of rigorous training for the work that they do.   But CaregiversDavid Allen can find themselves thrust suddenly into roles, roles that they often do not choose, when called to care for a spouse, partner or loved one after a diagnosis or accident.

At a moment’s notice you become a Caregiver, without any warning, with any training, without any time to think things through.  You feel like you have no idea of what you are supposed to do, so you do your best as you follow your instincts and common sense.  You embrace the new reality…You simply care for the one you love.

When you become a Caregiver for your spouse, partner, significant other,   a new and uncharted realm opens up.  Two distinct relationships must now be blended into one.   The familiar partner from the past remains and is always present. But now there is someone different on the scene – someone with a significant illness.

Suddenly, two people sharing a life together will face challenges that cannot  be left unattended?  A whole set of new and intense emotions are likely to intrude on the relationship.  Worry, detachment, mortality, anger, fear of abandonment and having to live life alone,  begin to intertwine with the idiosyncrasies of your personal dynamics.  These gut wrenching emotions can lurk in a caregiver’s mind when faced with a life-and-relationship-altering illness with your life partner.

Caregiving is an intense experience that asks you to surrender yourself to the needs of someone else.  Often times, you have to give up things that you love, in order to care for the one you love.  Even though it might feel like a hardship, you make the choice, you make the choice because you know that it is what love and commitment is all about.  Yet it is not that simple, because Caregiving can be an emotional, physical, and interpersonal roller coaster that is both tremendously rewarding and frustrating.   These emotions can surely test even the best communication and trust in a relationship.

The common denominator when blending a life partnership with Caregiving is communication.

Successful relationships are built on strong communication and trust.  It is throughcaring hands honest communication that the true essence of a life partnership is revealed.  This does not change when you add the role of Caregiver to the mix.  Communication has to be the focal point for conveying the wants and needs of the one who is ill. This must be accomplished without losing one individuality, the life partnership, or the role of the Caregiver.  The term “delicate balance” takes on a whole new meaning

Frequent review and maintenance of clarity in your roles becomes crucial so that our judgment and decision-making skills are based on sound facts instead of raw emotions.  How much can the mind and body take when faced with so many changes in such period of time? I think that really depends on the couple’s ability to safely, clearly and honestly communicate their wants, needs and desires as indicated by the partners health needs first and the relationship second.

While I have no doubt that caring for your life partner will strengthen a relationship, Caregiving will change a relationship too!  It is not uncommon to see someone who has been firmly independent, become dependent in certain areas of life that have been difficult for them to accept. Stepping outside one’s comfort zone and asking for assistance with mundane everyday chores adds stress to both parties…That is undeniable!

Caregivers often become the voice for the one who is ill.  As Caregivers, we have to be mindful that we are in a supporting role.  First and foremost, Caregivers are advocates.   In our role as an advocate, we must remember that what we may want for our loved one may not necessarily be what the love on wants. What a slippery slope this becomes when caring for your life partner!

Life’s journeys are not often driven on smooth roads, but we can always hope for a gentle wind at our back. This gentle wind is always fortified by love, trust, commitment and communication.

…My your hills be always be slight and with a gentle wind at your back.

The Purple Jacket©

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Filed under Advocate, Healing Ties, Inter-generational Relationships

That’s What Caregivers Do!


Presidential Proclamation — November is National Family Caregivers Month!

 I am proud to be one of the over 60 million Caregivers in the United States today.  Being a Caregiver can be, and often is challenging… But also so very  rewarding.  I believe that to be entrusted with the care of another human being is one of the greatest honors that can be bestowed on another person.  Those long sleepless nights, those challenging trips to the doctor and hospitals, those times when you have to intercede, educated and advocate come full circle when your Caree looks at you and  simply says…”Thank You for what you do for me.”  

I am also mindful of those family Caregivers who are never thanked, never appreciated and overworked.  If it means anything to you, from one Caregiver to another, I offer my thanks and appreciation to you because… That’s what Caregivers do! 

Caregiving is not a role that is often chosen and Caregiving is not for everyone.  Caregivers come in many different shapes, sizes, philosophies and cultures:  Caregiving and Caregivers are diverse. While our Caregiving  journeys might be different, Caregivers have this innate ability to understand each other,  to care for each other, to be there for each other, because…  That’s What Caregivers do!

Through the wonders of the internet, my Caregiving journey has been enriched by the countless number of people I have met along the way.  Each one of you have inspired me, supported me and have been there for me because… That’s what Caregivers do! 

A special ‘thank you’ to Author, Caregiving Coach, Speaker and owner at Caregiving.com Denise Brown and my extended family at  Caregiving.com  for your support. You opened up your ‘home’ to us and made us feel welcome from the start because…  That’s what Caregivers do!

We know that our current Caregiving journey is going to be filled with a few bumps and bruises along the way; Cancer has a way of doing that.  Yet we know those bumps and bruises will be a tad softer because of our extended Caregiving family we’ve met along the way because…That’s what Caregivers do!.  

TLO

Caregivers: Thank You for all you do from Bernard Richard Schiffer…’The Little One’

To all Caregivers, I share this simple smile from a very special fellow whose courage is unbounded, as a way of thanking you for all that you do, because…That’s what Caregivers do! 

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Filed under Advocate, Cancer, Caregiving, Healing Ties, Health, Never Alone, The Bow Tie Guy

The Financial Struggles of Caregiving


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On Tuesday, October 1st at 1pm (est), I am pleased to welcome Nate Purpura, from eHealth, Inc.   To listen to our show live, simply click here! 

There is an estimated 44 million working family Caregivers in the United States today. Recent studies also indicate that due to time off of work, Caregivers can expect to lose wages totaling over $140,000!  According to eHealth Insurance, about one-third of adults who provide unpaid care for their elderly parents say they’ll have to use their own retirement savings to help their parents financially.

EHealth Medicare

Our guest, Nate Purpura, is the Director of Public Relations for eHealthmedicare.com and eHealthinsurance.com – division of eHealth, Inc has spent the last decade working in the health care and insurance industries. Nate’s area of focus have included everything from pharmaceuticals, health and wellness and chronic disease management programs to cutting diagnostic tools, insurance products, including Medicare, and internet-based “exchanges” or  marketplaces.

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Having a grasp of finances is a critical component to Caregiving, but at times, an area that can be left unattended.  Through our conversation with Nate, we will learn why Caregivers often struggle with finances, along with gaining some helpful tips make this area of our Caregiving journey less stressful so that we can all ‘Be A Healthy Caregiver!’

To listen to our show live, simply click here! 

To Visit eHealth online:

Homepage: http://www.ehealthmedicare.com/ 

Blog: http://blog.ehealthmedicare.com/ 

Facebook: https://www.facebook.com/ehealthmedicare 

Google+: https://plus.google.com/108383927295539973030/posts  

Twitter: https://twitter.com/ehealthmedicare

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Tuesday On Be A Heatlhy Caregiver


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Tuesday’s topic on ‘Be A Healthy Caregiver’ is the  Society of Certified Senior Advisors in Denver, Colorado.   To listen to our show live, simply click here!

Member 2C

Through the vision of Ed Pittcok, founder of Society of Certified Senior Advisors,  Ed gathered experts in all facets of aging, including doctors, attorney, geronotoligst, accountants and financial planner.  All shared Ed’s vision; that seniors would benefit from an in-depth, standardized education from professionals who work with seniors. The education program that his group of renowned experts created became the basis for the Certified Senior Advisors (CSA) designation.

Why work with a CSA?  CSA’s are held to a high standard of competency as the society wants only ethical, honest and principal professionals as members. Any professional who wants to become a CSA must first agree to the CSA Code of Professional Responsibility.

CurtisPeterson

Curtis Petersen

Our guest today,  Curtis Petersen, has spent 7 years as a National Accounts Manager with the Society and works directly with national companies and professionals in the senior market navigating the education and certification process.  Through our conversation today with Curtis, not only will we learn of the importance of working with a CSA, we will all learn how to ‘Be A Healthy Caregiver!’

To listen to our show live, simply click here! 

To contact the Society of Certified Senior Advisors call 888-819-3917

To locate the Society of Certified Senior Advisors on-live visit these links:

www.csa.us

https://www.facebook.com/CertifiedSeniorAdvisors

www.linkedin.com/in/curtispetersen

www.twitter.com/SocietyCSA

blog.csa.us

Listen to:

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Tuesday’s at 1:00 pm / Thursday’s at 8:00 pm: all times eastern

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Filed under advocacy, Advocate, CSA

Tuesday On Be A Heatlhy Caregiver


BHC_fb

Tuesday’s topic on ‘Be A Healthy Caregiver’ is the  Society of Certified Senior Advisors in Denver, Colorado.   To listen to our show live, simply click here!

Member 2C

Through the vision of Ed Pittcok, founder of Society of Certified Senior Advisors,  Ed gathered experts in all facets of aging, including doctors, attorney, geronotoligst, accountants and financial planner.  All shared Ed’s vision; that seniors would benefit from an in-depth, standardized education from professionals who work with seniors. The education program that his group of renowned experts created became the basis for the Certified Senior Advisors (CSA) designation.

Why work with a CSA?  CSA’s are held to a high standard of competency as the society wants only ethical, honest and principal professionals as members. Any professional who wants to become a CSA must first agree to the CSA Code of Professional Responsibility.

CurtisPeterson

Curtis Petersen

Our guest today,  Curtis Petersen, has spent 7 years as a National Accounts Manager with the Society and works directly with national companies and professionals in the senior market navigating the education and certification process.  Through our conversation today with Curtis, not only will we learn of the importance of working with a CSA, we will all learn how to ‘Be A Healthy Caregiver!’

To listen to our show live, simply click here! 

To contact the Society of Certified Senior Advisors call 888-819-3917

To locate the Society of Certified Senior Advisors on-live visit these links:

www.csa.us

https://www.facebook.com/CertifiedSeniorAdvisors

www.linkedin.com/in/curtispetersen

www.twitter.com/SocietyCSA

blog.csa.us

Listen to:

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Tuesday’s at 1:00 pm / Thursday’s at 8:00 pm: all times eastern

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Filed under advocacy, Advocate, CSA