Tag Archives: LGBT Seniors

Cardiologist…Day Two…


While we know that the tumor has shrunk, we also know that the tumor still have its ‘activities’ within the body.  Like a rumbling volcano, the tumor will react to certain foods and hard swallows.  ‘The Little One’ really has to be careful on how and what he eats, or else he’ll have an ‘eruption’ filled with gastric acid and sharp pain.

The location of tumor has made it difficult for us to decide the origin of  the sharp pain, hence the need to see the cardiologist.  Pleased with the weight loss, the cardiologist went about his work in the most pleasant of ways.   The EKG showed that the heart was in good shape and that the pain that ‘The Little One’ has been experiencing is directly related to the tumor.

Of course, these are all scientific speculations and based on his years of experience as evidence from the EKG.  While there is relief in this news, that fact of the matter is that the pain still is a part of his every day life.    As we age, we all have to accept the little bumps and bruises to our health that come along in life.

Each one of us handles those little bumps and bruises in a different manner, and my suspicion is that those of us who have a healthy acceptance  of our health calamities,  tend to fare better with their reality than those who don’t.  I certainly see a healthy attitude of acceptance in “The Little One”.

Acceptance goes a long way in building a healthy attitude.  Of course, we have our bad days and ask ourselves…’why me’…that’s just a part of human nature.   The lesson that I have learned from this experience  while watching  ‘The Little One’s’ attitude  is to simply just give up control;  but boy…do I have a long way to go with that!

Just like the doctors who can’t control the outcomes of the test, we can’t control the reality of disease. We know that the tumor has shrunk, but we also know that the tumor is still causing some issues.  Yet what we can control is how we react to the pain and issues that it creates,  and that my friends,  is where the secret lies.

 

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Honest Dialogue is the BEST Medicine


Tonight we had ‘The Talk’…The ‘What If’s…The ‘unmentionable’…It happen so matter-of-factually that by the time the conversation was over, there was no pain, no agony, no tears. It’s simply called, planning…planning for the day when there will be no more days. How does one really do that…By having honest dialogue so that everyone is on the same page so that no stone is left unturned.

When The Little One mentioned the word “Hospice” this evening, it opened the door up for one of the most beautiful and meaningful conversations that two people could ever have on such a sensitive subject. The funny thing about this word “Hospice” is that we have both experienced hospice in the past as both of our deceased partners went through this wonderful program. Yet for some reason, we have not been able to talk openly about this topic between ourselves until today.

We are both advocates of Hospice yet for very different, yet similar reasons. While I tend to be on the spiritual side (I can’t completely let go of my theological background) ‘The Little One’ claims to an agnostic Jew. I always find that funny because he is one of the most spiritual and ground persons that I have ever met. Often misunderstood for his gruff demeanor and direct comments, ‘The Little One’ is rooted in clear thought and perspective. You may not like what he has to say, yet he leaves no dust uncovered. You know where you stand, win or lose. It is really the best way to communicate.

For me, Hospice is a way to celebrate all stages of life. Hospice is not only for the patient, it is also for the entire family of the patient. ‘The Little One’ would say the same thing, yet he would omit the spiritual side of the experience. Yet the spiritual side of Hospice is undeniable because so many lives are transformed by the experience. During my CPE (Clinical Pastoral Education) internship several years ago, I was honored to have the chance to work for a summer in Hospice. I truly saw some remarkable things during my Hospice internship. High profile Doctor’s humbled; broken families reunited; husband’s, wife’s, children, partners letting go. It is as raw as a human experience one can have attending to one’s happy transition. Just as no one should be born into life alone; everyone should be afforded a beautiful sunset to their lives as well. Hospice is one of the tools that allows that to happen.

While we have all the legal paperwork in place, having the conversation out in the open allowed us to speak boldly on the ‘what if’s’…’how are we going to handle this or that’…and merely…;just what are we going to do?’ With the second PET scan scheduled for the first week in December, we will have a clear idea what effects of the radiation and chemotherapy had on the insidious tumor. Will our plans become clear at that point? Maybe so, maybe not!

You see, what ever the oncologist tells us in December, we are going to live each day to the fullest. We are going to do what we can do each day and simply move on. We know some days are going to be better than others, yet why wait around for the Grim Reaper? Let the Grim Reaper chase after us. I’ve used this line in a previous post….”It is a known fact that 100% of the people born are going to die.” So as we continue on with our Monty Python Theme of ‘We’re Not Dead Yet” we’ve decided not to ACT the part, but rather embrace it with a life as full and rich as we can have under the circumstances.

Honest Dialogue often brings out the best (and sometimes) worst in people. However without honest dialogue, what then is communication? While there is not a need for Hospice today, we both know where we stand, we both know what is important to us and we both know that when and if the time comes for this wonderful program, we’ll embrace it, deal with it and make it the best possible experience for all of our family and friends who care to share in the experience with us.

While the effects of Cancer are enormous on everyone, we can’t allow the disease to drive the bus. While ‘The Little One’ and I might share different opinions on life after death; one thing that we do know is that while we are on this earth, we are going to enjoy every second, minute, hour, day, month, year we have left. Life is intended to be lived; we move on with faith, happiness and love. While we can’t avoid pain, we can choose to overcome it. That is simply how Herman and Richard (the first) would want that for us, and for all of you as well!

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The Future is Now


“No one wants to die. Even people who want to go to heaven don’t want to die to get there. And yet death is the destination we all share. No one has ever escaped it. And that is as it should be, because Death is very likely the single best invention of Life. It is Life’s change agent. It clears out the old to make way for the new. Your time is limited, so don’t waste it living someone Else’s life. Don’t be trapped by dogma — which is living with the results of other people’s thinking. Don’t let the noise of others’ opinions drown out your own inner voice. And most important, have the courage to follow your heart and intuition. They somehow already know what you truly want to become. Everything else is secondary.” – Steve Jobs

As I pondered this quote from the late Steve Jobs, I took quite a bit of solace and inspiration from it.  As a caregiver, you freely give your life to someone else while being mindful of your own individuality and needs.    As The Little One heads into his final four days of radiation treatments, our lives are changing before our eyes.   We can’t predict the future, we can only deal with the present.   We intend to live our lives to the fullest and enjoy each and every day we have.

The key here is not to wait until there is a serious illness to have this revelation.  We have been fortunate to have followed our heart and intuition since we became friends.   While our life is different because of the  illness, the illness will not control our lives.

While completing my internship in Hospice a few years ago, I was often observed families who were trying to resolve life long issues at the ’11th’ hour.  We all know that is an impossible task, yet understandable under the circumstances.   We can’t fix the past, yet we should not live in it either.    We can live today and search for tomorrow; that is what life and hope is all about.   Or as Steve Job’s put it…”Don’t be trapped by dogma — which is living with the results of other people’s thinking. Don’t let the noise of others’ opinions drown out your own inner voice. And most important, have the courage to follow your heart and intuition. They somehow already know what you truly want to become. Everything else is secondary.”

 

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“Not Dead Yet” from Monty Python Spamalot


As we were enjoying breakfast this morning, I asked ‘The Little One’ how he was feeling…he uttered…”I am feeling a little stronger; I’m not dead yet!” Of course, we both broke into laughter as we knew we were referring to the song “Not Dead Yet” in ‘Spamalot.

If you are a fan of Monty Python, you know that their off-color humor usually hits a nerve, yet where would be without a little laughter in our lives? While cancer is a serious illness with far-reaching implications, humor, when used correctly, can lighten the burden of a stressful experience. The song ‘Not Dead Yet’ has wonderful lyrics and when seen live and in person on stage, you grasp the total meaning of the play on words.

Now that The Little One has been out of the hospital for a few days, he is starting to regain this strength; he is starting to feel a little better!  As the song goes… ‘I feel happy, I feel happy…I’m not dead yet…I can dance and I can sing…I am not dead yet…I can do the Highland Fling!

When The Little On realized what he had said this morning, it changed his whole perspective to the start of the day. I can only imagine how difficult this has been for him going solo for the first month of his treatments.

Today, there is a beautiful Florida sunshine outside, let there be sunshine and laughter on the inside! We carried this theme with us all day-to-day as we’ve traveled to  radiology and now to the urologist.

Laughter is the antidote to fear; why not live in laughter even, in these difficult days?

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A Trip to the Hospital


The phone rang and there was a trembling voice on the other end…”They are admitting me to the hospital”  The Little One said.  It was not difficult to hear the fear and anxiety in his voice; the psychological aspects of going through chemo and radiation are often overshadowed while in the mist of the treatments.   Even more unbelievable…his doctor wheeled him to the hospital emergency room herself! 

While no one really relishes a trip to the hospital, this was the best way for ‘The Little One’ to help regain his strength and take a break from the cancer treatments.  The chemotherapy and radiation has zapped his strength;  low white blood cell count and low potassium levels seem to be the culprit in this sordid mess.     All fixable items on the health dept chart when recognized early and treated properly.   We are thankful for the chemo-therapist for his swift action and recognizing that was something amiss.

Try as we might, we just can no longer do these treatments apart.  Independent as he is, these treatments are just not something that you can do on your own.   The issues are enormous;   house and doctors in Florida, job and family in St. Louis.  Yet one thing is certain…home is always where you are when you are with the one you love.

Last Saturday I met with a wonderful geriatric social worker in St. Louis by the name of Jeanette.  The hour I spent with Jeanette was worth its weight in gold.  One of the great lessons that I was reminded of during my visit last week with Jeanette is the need to network and explore expertise other than your own.  (Now is not the time to be a legend  in your own mind.)  There are more options available than meets the eye, it’s just getting to the right resources in time to make the proper decisions.  I am thankful for her knowledge and thankful to Sherrill Wayland from Metro SAGE St. Louis for the great referral.

As I have previoiusly mentioned, being a caregiver is a privileged…Yet in order to be a good caregiver you have to sometimes detach your emotions and explore knowledge and resources outside your area of expertise.  There is no need for the caregiver to go solo!  My visit with Jeannette reminded me that in order to think outside the box, I have to get out of my own world.

As we move into the final stages of the chemotherapy and radiation treatments, we are doing this together…side by side, one by one.  Now that I am in Florida, one decision is firm…’The Little One’ will no longer be ‘physically’ alone to go through these daunting treatments.  We look ahead with hope, with anticipation and most of all…with all your love, prayers and support!

 

 

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