Tag Archives: Health

“Because They Are Nice”


As we continue to recover from the chemo and radiation therapy, we often reflect on ‘how things used to be’.  Always willing to be on the go, ‘The Little One’ has taken a wait and see attitude on many of the things he used to like to do.   While there has been steady progress in his overall health these past few weeks, we are really on a ‘day-to-day event planner schedule.

Crowds has never been his thing, even when feeling good.  So approaching his 81st birthday, I was puzzled at what might we do?  And…if we would be able to do it!  With a small gathering in Brentwood, ‘The Little One” was greeted by ‘The Sisters’ and a couple of friends from our Tuesday night group at Pietro’s.   (of course, one sister forgot to make it)

What struck me about the evening was not so much about the significance of the day, but rather the engagement in conversation of “The Little One.”    I will be the first one to admit that I can be a little worry wort and always have one eye out for him, yet on this night I glad that I did because I saw a person return to life in a way that was good to see.

You see, cancer can take the root out of your being. Cancer drains your energy, it drains your confidence and it drains your piece of mind.  It is easy to understand why so many people give up, that is why outside support is so important in the healing process.  What I saw on Saturday was a man who enjoyed talking about topics that were important to him, all removed from the thought of having cancer.  When the topic turned to the Virgin Islands, well…he was off and running. You can’t go through 81 years of life without having special memories of people, places and things.   It was a joy to watch him revel in the conversation.

When we talked about his ‘engagement’ at the gathering, I mentioned to him that it was great to see him involved in conversation that was important to him and completely outside to scope of health, cancer and the rest.  He too, acknowledged that it was a great experience, with lots of fun  and easy to talk to ‘because they are so nice.’

What “The Little One” learned on this evening is that its good for him to be in conversation on topics that he enjoys as it takes his mind of the health concerns.  What I learned is that I cannot be mother hen, worried about every step in the road.   We live day by day.   Often times we go through life with so many misunderstandings, so many unresolved conflicts and so many worries that seem unbearable.

Yet when you think about it, it is easier to get through the day simply when people are nice!

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Moving Forward


With no test scheduled until the middle of March, we look ahead thankful for the break from the radiation and chemotherapy, yet concerned as we move forward. Cancer takes so much out of everyone; its not a disease that leaves quietly, but rather lingers on in our mist.  Treatments are a necessity; aftereffects are unknown.

“The Little One” reminds me on a day to day basis  that he has lost a step or two.  Not wanting to admit it, but I see it too. We hold out so much hope for a full recovery, and in our mind and in our hearts, we know we have been given extended stay.  Why not make the most of it, even if its just a step or two slower?

Giving up control is such a hard thing to do.  (Where is that Tumor Extractor when you need it!)  One of the hardest things to do as a Caregiver is to give up control, but this is an essential element of being a caregiver.  We want to take control of the disease, take control of the loved one, take control of everything in our paths in order to provide the utmost care.  Yet it is when we give up control that we really care: What is here today, is gone tomorrow.  Yet in our thoughts and in our prayers, we only want to do what is best.

“The Little One” knows that he has lost a step or two; who wouldn’t after having 30 radiation treatments to go along with 6 sessions of Chemotherapy? I see it, too…but that does not detour us.  There will be good days, there will be bad days and there will be more days of beauty.  We can only go by how the day takes us, which in turn means giving up control and being free from what binds us!

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Cardiologist…Day Two…


While we know that the tumor has shrunk, we also know that the tumor still have its ‘activities’ within the body.  Like a rumbling volcano, the tumor will react to certain foods and hard swallows.  ‘The Little One’ really has to be careful on how and what he eats, or else he’ll have an ‘eruption’ filled with gastric acid and sharp pain.

The location of tumor has made it difficult for us to decide the origin of  the sharp pain, hence the need to see the cardiologist.  Pleased with the weight loss, the cardiologist went about his work in the most pleasant of ways.   The EKG showed that the heart was in good shape and that the pain that ‘The Little One’ has been experiencing is directly related to the tumor.

Of course, these are all scientific speculations and based on his years of experience as evidence from the EKG.  While there is relief in this news, that fact of the matter is that the pain still is a part of his every day life.    As we age, we all have to accept the little bumps and bruises to our health that come along in life.

Each one of us handles those little bumps and bruises in a different manner, and my suspicion is that those of us who have a healthy acceptance  of our health calamities,  tend to fare better with their reality than those who don’t.  I certainly see a healthy attitude of acceptance in “The Little One”.

Acceptance goes a long way in building a healthy attitude.  Of course, we have our bad days and ask ourselves…’why me’…that’s just a part of human nature.   The lesson that I have learned from this experience  while watching  ‘The Little One’s’ attitude  is to simply just give up control;  but boy…do I have a long way to go with that!

Just like the doctors who can’t control the outcomes of the test, we can’t control the reality of disease. We know that the tumor has shrunk, but we also know that the tumor is still causing some issues.  Yet what we can control is how we react to the pain and issues that it creates,  and that my friends,  is where the secret lies.

 

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We Give Thanks…to the Horn Blower!


One of our favorite breakfast nook’s is Chris’ Pancake & Dining (it gives us the illusion that I am cooking!). As we pulled the car up to the parking lot, I stopped the car in front of the building so that ‘The Little One’ would have a short distance to walk to the restaurant. (Four weeks ago he would not have been able to walk on his own to the front door of the restaurant.)

As he was getting out of the car, the person behind us had to blow the horn as we were not moving fast enough to meet his needs. In the classic ‘The Little One’s’ style, he got out of the car and asked the horn blower…’What’s the hurry?’ That exchange reminded me that he is feeling better as four weeks ago, he would not have even bothered with an exchange like that.

While thinking about the ‘horn blower’ and his impatience, I was reminded about what really is important on Thanksgiving… Giving thanks, being present to your loved ones and caring for those around you.

Cancer has taught both of us a lesson that has been invaluable and it comes in one simple word… Thanksgiving!

We are thankful for today, hopeful for tomorrow and want to enjoy as many sunsets as we possibly can. There are so many things that happen in life that are not in our control. Why blow the horn if you are not in danger?

When you give up control, you gain freedom!

The horn I am blowing today is in thanksgiving and gratitude for the things I have, the family and friends that surround us and the continued good health and happiness of ‘The Little One.’

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November – National Care Givers Month


November is National Care Givers Month!

 We all know some one who is a caregiver, whether we find ourselves taking care of a loved one, know someone who takes care of a loved one, or even if we have heard an inspritational story on the news.

 In today’s busy world it can be easy to forget to show our appreciation to those who make a difference in our lives and the lives of others everyday. As we prepare to celebrate another Thanksgiving, let us give thanks to those who choose to spend their days serving others.

“Appreciation is the highest form of prayer, for it acknowledges the presence of good wherever you shine the light of your thankful thoughts.”
Alan Cohen

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In Medicine…East vs. West


As ‘The Little One’ continues to show signs of regaining his strength, we decided to take a detour and visit Dr. Mo this past Saturday.  Who is Dr. Mo you might ask…well Dr. Mo specializes in eastern medicine, specifically acupuncture.   We visited Dr. Mo earlier this year for treatments of sciatica and after four treatments we were pleasantly surprised at the relief ‘The Little One’ received from the acupuncture.   ‘Why not consult with Dr. MO’, we both asked each other this past week. 

While we will not know for a least another month what effect the radiation and chemotherapy has had on the tumor; we know very well that the chemo and radiation has ravished his body, zapped his strength and pretty much turned his life upside down.  Traditional medicine, while proper seems to have a wait and see attitude during this ‘down time’ before the next PET scan.

This attitude was confirmed during my phone consultations with the oncologist and primary care doctor this past week.  The nurse for the oncologist told me over the phone that ‘The doctor normally does not call patients back’…my response to that was simply…’That is odd, don’t you think?’   The primary care doctor referred me back to the oncologist…(they share the same office!).   My response to the primary care doctor was just a tad more direct…”In the patients best interest, one of you needs to be taking the lead in the decision-making.’

That comment rang a bell with me.  The ones who need to take the lead in the decision making are the patient and the caregiver.  While we are all striving for excellency, when it comes right down to it, we are the captions of our own ship.  Authority while respected, is not all-knowing.  There is a reason that medicine is a science.  There are no two bodies alike!

We both know what we are facing with this disease, sometimes you just have to think outside the box.

What do we expect to gain from Dr. MO?  Alternatives, options, hope…just as we expected to gain from the traditional forms of medicine.  Yet not to pursue all options available to us, does not give life a chance.   We both saw the results of the acupuncture in March and April of this past year…why not give it a chance? 

In life…there are plenty alternatives, there are plenty of options, and there is plenty of hope…we just have to engage these options ourselves….rather than waiting for that call to be returned.

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A Trip to the Hospital


The phone rang and there was a trembling voice on the other end…”They are admitting me to the hospital”  The Little One said.  It was not difficult to hear the fear and anxiety in his voice; the psychological aspects of going through chemo and radiation are often overshadowed while in the mist of the treatments.   Even more unbelievable…his doctor wheeled him to the hospital emergency room herself! 

While no one really relishes a trip to the hospital, this was the best way for ‘The Little One’ to help regain his strength and take a break from the cancer treatments.  The chemotherapy and radiation has zapped his strength;  low white blood cell count and low potassium levels seem to be the culprit in this sordid mess.     All fixable items on the health dept chart when recognized early and treated properly.   We are thankful for the chemo-therapist for his swift action and recognizing that was something amiss.

Try as we might, we just can no longer do these treatments apart.  Independent as he is, these treatments are just not something that you can do on your own.   The issues are enormous;   house and doctors in Florida, job and family in St. Louis.  Yet one thing is certain…home is always where you are when you are with the one you love.

Last Saturday I met with a wonderful geriatric social worker in St. Louis by the name of Jeanette.  The hour I spent with Jeanette was worth its weight in gold.  One of the great lessons that I was reminded of during my visit last week with Jeanette is the need to network and explore expertise other than your own.  (Now is not the time to be a legend  in your own mind.)  There are more options available than meets the eye, it’s just getting to the right resources in time to make the proper decisions.  I am thankful for her knowledge and thankful to Sherrill Wayland from Metro SAGE St. Louis for the great referral.

As I have previoiusly mentioned, being a caregiver is a privileged…Yet in order to be a good caregiver you have to sometimes detach your emotions and explore knowledge and resources outside your area of expertise.  There is no need for the caregiver to go solo!  My visit with Jeannette reminded me that in order to think outside the box, I have to get out of my own world.

As we move into the final stages of the chemotherapy and radiation treatments, we are doing this together…side by side, one by one.  Now that I am in Florida, one decision is firm…’The Little One’ will no longer be ‘physically’ alone to go through these daunting treatments.  We look ahead with hope, with anticipation and most of all…with all your love, prayers and support!

 

 

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