Tag Archives: CaregivigKids

When Hope Loves Company


Leadership and learning are indispensable to each other. John F. Kennedy

When it comes to caregivers, we often think about caregiving for a spouse, partner, parent or grandparent. But what if you happen to be a kid who is caring for a parent with ALS (Lou Gehrig’s disease)?

Through the loss of her husband Kevin to ALS, Jodi O’Donnell-Ames created Hope Loves Company where kids and families dealing with ALS can find strength, comfort and compassion.

Hope Loves Company (HLC) is the only non-profit in the U.S. with the mission of providing educational and emotional support to children and young adults who had or have a loved one battling Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s disease.

Listen in and learn about Hope Love’s Company’s camps for kids, where kids can go and just be kids and “not have to explain ALS to anyone.”

Like many caregivers who turn their caregiving experience in to advocacy,  Jodi O’Donnell-Ames has a beautiful mission to ensure families and kids receive the hope, love and encouragement they need while in the midst of ALS.  Jodi O’Donnell-Ames is someone who is  creating Healing Ties all around us!

2 Comments

Filed under Caregiving, The Purple Jacket