Leadership and learning are indispensable to each other. John F. Kennedy
When it comes to caregivers, we often think about caregiving for a spouse, partner, parent or grandparent. But what if you happen to be a kid who is caring for a parent with ALS (Lou Gehrig’s disease)?
Through the loss of her husband Kevin to ALS, Jodi O’Donnell-Ames created Hope Loves Company where kids and families dealing with ALS can find strength, comfort and compassion.
Hope Loves Company (HLC) is the only non-profit in the U.S. with the mission of providing educational and emotional support to children and young adults who had or have a loved one battling Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s disease.
Like many caregivers who turn their caregiving experience in to advocacy, Jodi O’Donnell-Ames has a beautiful mission to ensure families and kids receive the hope, love and encouragement they need while in the midst of ALS. Jodi O’Donnell-Ames is someone who is creating Healing Ties all around us!
Try to learn something about everything and everything about something. Thomas Huxley
The month of November is always an exciting time as we look ahead to Thanksgiving and the Holiday Season. November is also significant for family caregivers as November is designated as National Family Caregivers month. November is also designated as Alzheimer’s Disease Awareness Month. Family Caregiving and Alzheimer’s disease go hand in hand, it is proper that they both share a month together.
Our caregiving journey did not include the insidious disease of Alzheimer or dementia. However thousands upon thousands of family caregivers care for a family member or friend who struggle with memory loss. The common denominator for all family caregivers is to find safe places where you and caree can enjoy life as much as a day in caregiving will allow.
As I have come to learn, those who suffer from memory loss often find it difficult to go to loud and unfamiliar places. We know isolation starts to occur when we feel there is no viable option, rather, it’s just easier to stay home than to do deal with the obstacles of the unknown.
But what if there was a safe place for those incurring memory loss and their caregivers?
KalendarKards is creating a Memory Cafe Directory where people can socialize, listen to music, play games and other activities. They can simply enjoy the company of those with these things in common. A Memory Cafe is a safe and comfortable space and great place for individuals with Alzheimer’s or any of the dementia’s. But it’s not just for them, the memory café for their caregivers as well.
The world of reality has its limits; the world of imagination is boundless. Jean-Jacques Rousseau
According to the Centers for Disease Control: “each year, millions of older people—those 65 and older—fall. In fact, more than one out of four older people falls each year, but less than half tell their doctor. Falling once doubles your chances of falling again.
Falls Are Serious and Costly
But what if there was a way to encourage those 65 and older (well, everyone for that matter) to exercise and create better balance? Well now, you’ve come to the right place!
Dr. Sheryl Flynn is the founder and CEO of Blue Marble Health, a software company that specializes in developing tools that support healthy aging and chronic disease management. Dr. Flynn founded Blue Marble Health because she wanted to develop tools that could directly impact older adults while supporting their care team. I just love that!
Dr. Flynn’s Health in Motion platform offers older adults and those with chronic disease to screen their fall risk while offering exercises to help improve balance and coördination. And best of all, the App is user-friendly along with the ability to send information to your care team. Having your health care information readily available at a moment’s notice helps mitigate emergencies when we have to interact with healthcare professionals who are not regularly on our health-care team.
Dr. Flynn has a goal to prevent one million falls within the next five years. This is a lofty, but attainable goal with the Health in Motion App. Don’t just take it from me! Listen in and learn how Dr. Flynn and the staff are preventing falls and creating Healing Ties all around us!
As an added bonus, enter the code “Healing Ties” and receive 20% off your order!
Life is really simple, but we insist on making it complicated. Confucius
Working family caregivers often struggle balancing work and caregiving duties. Many caregivers who work full-time worry, about losing their benefits because of the amount of time they have to take off of work because of their role as a family caregiver.
The Affordable Care Act when into effect in 2015 and much as been written about the pros and cons of the Affordable Care Act. As an self employed individual myself, I am grateful for the Affordable Care Act as, like 90% of today’s American’s, I am fully covered.
Photo Credit: Wage Works
I have not experienced some of the trials and stipulations that I read about in regards to the Affordable Care Act as I was able to stick with the same physician and my level of care has not changed one bit. I know that is not the same for everyone!
Open enrollment is upon us and sometimes understanding the Affordable Care Act and how it best works for you is a daunting task. Not today! On this episode of Healing Ties, Independent Insurance Broker Sam Chalfant breaks down the Affordable Care Act in simplistic terms in preparation for open enrollment on November 1st.
Listen in and learn how Sam Chalfant is creating Healing Ties all around us!
Sam Chalfant is an Independent Insurance Broker in the state of Florida. Sam welcomes your call at 954.257.8788. Visit Sam on line at Chalfant Insurance Services
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Chris' Master Degree Thesis Spiral of Silence: Caregiving, Stress and its Impact in the Workplace was accepted by the faculty at Gonzaga University in May of 2016 earning an MA Degree in Communication and Leadership. Email me at email@example.com for information on the financial impact of caregiving. Proud to be an Alumni of Gonzaga University 2016
Chris MacLellan is a Certified Caregiving Consultant and Certified Caregiving Educator
Have "THE TALK" with your love one! Listen in as Chris and Richard talk about Richard's End Of Life Wishes
The Whole Care Network Proudly Recommends Health Labs. Click on the logo to learn more about HealthLabs.com
The Whole Care Network Recommends Care Match America. Click on the logo to learn how CareMatch American can find the perfect senior living MATCH for you and your family!
Hope Loves Company (HLC) is the only non-profit in the U.S. with the mission of providing educational and emotional support to children and young adults who had or have a loved one battling Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig's disease. Many of these children become caregivers to their parents. Please visit Hope Loves Company's website to learn more about this wonderful program!
Keep Your Legacy Intact With Mike Stith From One Legacy.
The Whole Care Network Proudly Recommends KalendarKards. Use the code BowTieGuy for 20% off your purchase of KalendarKards!
Moving to Acceptance! Click on the icon above to be taken to the You Tube video
You Tube Video: Life after caregiving ends can be hard, but in your time, it will get better!
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Culture Change In A Box is our new show on the Whole Care Network featuring cost host Judy Ryan from LifeWork Systems and Chris MacLellan from the Whole Care Network.
The Whole Care Network is being developed as a multi-media outlet. Ask me how you can become part of the Whole Care Network by emailing me at firstname.lastname@example.org
As a certified accessible travel advocate, I can book all your travel plans! Ask me how you can have anything from oxygen to a hoyer lift delivered to your cruise ship stateroom or hotel around the world! For more information email me at email@example.com
Our Three Part Caregiving Story…
Nominated for a Pulitzer Prize in 2015, Our Caregiving Story "In Sickness and In Health: A Couple's Final Journey" written by Diane Lade and photgraphed by Carline Jean from The South Florida Sun-Sentinel. Click on the photo to be taken to the original story. Photo Credit Carline Jean/Sun-Sentinel
Story 2: "Life After Death: Couple's Story Sparks Change." Click on the photo to be taken to the second story. Photo Credit Carline Jean Sun-Sentinel
Story #3 "Saying Goodbye" Click on the photo to be taken to our final story. Photo Credit Carline Jean/Sun-Sentinel
Christopher MacLellan is affectionately known as “The Bow Tie Guy” in many caregiving circles. The author of "What's The Deal with Caregiving?" Chris started a caregiving blog entitled, “The Purple Jacket,” after his partner’s diagnosis of esophageal cancer in 2011. Chris is an ardent advocate for caregivers and their carees through his blog and radio show, “Healing Ties.” Chris and his deceased partner, Bernard Richard Schiffer, were featured in a 2015 Pulitzer Prize nominated caregiving story, “In Sickness and in Health: A Couple’s Final Journey” which has been read by over 400,000 people worldwide. In 2016, Chris earned a masters degree in Leadership and Communication from Gonzaga University and is the founder of the Whole Care Network, Inc. The author of “What’s The Deal With Caregiving”, Chris presents regularly on topics that impact family caregivers and LGBT seniors.
I am creating at new life to love now that Caregiving has ended through advocacy, leadership, writing, radio and travel