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After Caregiving Ends


Being deeply loved by someone gives you strength, while loving someone deeply gives you courage. Lao Tzu

March 9th! This day comes around every year and there is no way to avoid it. Sure, I could roll the covers over my head for the entire day and wallow in sadness, but what does that accomplish; more sadness, more isolation? I think not!

As I look back on these last four years, I see quite a bit of change in all facets of my life. There is the weight loss, the new moustache, establishing The Whole Care Network and TLO Cruises and Tours and of all things getting a tattoo!

 

The tattoo is probably the most outlandish thing I have ever done in my entire life, however the tattoo has so much meaning to me as I ACE, (After Caregiving Ends). I believe it is through the experience of the white flower and tattoo which has allowed me to work through my grief and (If you would like to learn more about the tattoo see my post entitled “We’ve Only Just Begun: White Flowers and Green Shoes by clicking here“) guide me on a peaceful path.

When Richard (aka TLO) made his life transition on March 9, 2104, two lives were forever changed. As I look back on what I wrote the three previous years on March 9, there is one constant theme, love endures. What is different for me on March 9, 2018 is that I have started to live life again and break out of my isolation.

As I wrote in “What’s The Deal With Caregiving” I believe there are four stages of grief that caregivers experience:

  1. Relief < caregiving has come to an end and the one you are caregiving is now pain-free
  2. Sadness < the life that you once knew is forever changed
  3. Guilt < when you realise that you move on with your life without the one you love
  4. Acceptance < that day when you wake up and say to yourself…”Job well done” and you’re ready to move on with your life with your head held hight.

It took me 15 months to get to the point when I could get to acceptance. What I realize this past year is that I left out one important stage in grief, taking…

5. Action < Moving from isolation and activate your hopes, dreams and desires.

Whether it was the experience of the while flower, the tattoo, starting the Whole Care Network, (I could use countless examples from this past year) these experiences that happened over the past 12 months made me realize that until I took action, I was going to continue to isolate myself and stay stuck in my own muck (Richard would be most displeased!). Taking action has not only has restored my confidence, taking action has allowed me step outside my comfort zone which has provided exciting opportunities for personal growth and fulfilment.

What I have learned along the way is just as caregiving is different for each one of us, life after caregiving is going to be different for each one of us too. Now four years past, I don’t miss him any less; I’ve learned to live with him, and the love, care and commitment we had for each other, in a different way.

It’s “funny” how taking action has allowed me to find deeper meaning to our love, care and commitment. I will be interested to see what March 9, 2019 brings to me on The Purple Jacket!

 

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Milestones


Life isn’t about finding yourself. Life is about creating yourself. George Bernard Shaw

I think it is safe to say that there are no better milestones in life than birthdays. As I

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write this on my 61st birthday, I look back on all the different milestones that have happen in or around my birthday of February 18th.

The first milestone (of course) was being born on February 18, 1957. I was born on the night of the Father/Daughter dance was Nerix Hall High School in St. Louis where my oldest sister Joanne was attending with our father. In fact, I just got off the phone with my sister Joanne who reminded me how our father had to leave her at the dance to attend my birth. Not even a minute old and my first milestone has already been created; I interrupted my sister’s dance with our father. “Funny” how that milestone is still talked about today!

There are many common milestones that we all experience in life that relate to our birthday; three come to mind immediately:

  • Turning 16 provided us the eligibility to start driving and gain some independence. Even if our parents are paying for the insurance.
  • Turning 18 provides us with the eligibility to vote and a sense of civic responsibility.
  • Turning 21 gives one the ability to “legally” to drink alcohol.

Then there are the decade milestones when we hit those magical number in the 30’s, 40’s, 50’s, 60’s, 70’s and hopefully beyond.

One of the best things about being the youngest of six children is no matter how old, and no matter what my sister says who is going on 29, for the 45th year says, I will always be the youngest! I know my five siblings are “smiling” when they hear this because I am always the little brother.

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The late Bernard Richard Schiffer, February 18, 2014

One of the most difficult milestones in two lives, happened just four years ago on my 57th birthday when Richard and me were at his appointment with the radiation oncologist. I remember the appointment vividly, not so much for what the radiation oncologist told us (I’ll get to that in just a bit), rather by the way Richard greeted me when I walked into the examination room.

On that morning, I had another commitment and had to meet Richard at the doctor’s office. Thankful for the help from my sister Merrille and our friends a Emerald Elite Home Health in Fort Lauderdale, FL., I did not have to worry about getting Richard to his appointment that day. As the story was told, Richard was adamant to have have something for me upon my arrived at the doctors office. I think the picture tells the story.

Sure, I remember the information the radiation oncologist gave us that day which forever impacted our lives. However, the lasting impression of that day was not the knowledge that Richard’s cancer has spread throughout his little body, the lasting impression I have from that day is even in the midst of his pain, Richard was focused on making me happy! His act of focusing on me is the essence of true love, care and commitment, and one of the many reasons why I miss him quite a bit.

While in the middle of caregiving, we may not think too much about how our day-to-day stories impact us and others while in this massive caregiving sphere. Story sharing is at its best with caregivers. Caregivers connect through story sharing because every caregivers has this innate ability to understand each other, even when our caregiving experiences are different. Story sharing also provides a sense of comfort and relief to those who are telling the story; story sharing also provides one of the best sources of information and referrals for caregivers. I encourage all caregivers, as they feel comfortable, to share their stories because it is healing, therapeutic and helpful to other caregivers.

My friends, family, and readers on The Purple Jacket, along with the listeners to my Healing Ties podcast know that I have had difficult time adjusting to the major void that has been left in my life by Richard’s passing. We all deal with grief in our own way. Just like there are no two caregiving journeys alike, there are no journeys along the path of grief that are alike too. The one common thread that keeps comes back to me is story sharing and the healing component story sharing brings to me. Story sharing leaves a lasting imprint in our memories which will last a lifetime. I am creating a new chapter in my life; story sharing has helped me move from my grief too.

The current chapter in my life I am now writing allows me to recognize the pain of losing Richard has subsided, while at the same time, my love for Richard continues remains strong. I have simply learned to love him in a different way. It’s taken me awhile to get to this point in my grief recovery. I’ll be writing more about how my life has changed and how I have been able to move on with my head held high in future blog posts in 2018 on The Purple Jacket and The Whole Care Network.

My I be so bold and suggest, as you feel comfortable, share your caregiving story with others because I believe it is through story sharing where diversity meet the road to combat a common cause. That’s because there is no gender, orientation or economic boundaries when it comes to caregiving; we are all in this together. Story sharing bounds those who care for another person and allows us to find healing and strength.

Thank you for allowing me to continue to share my story!

Chris MacLellan is the host of Healing Ties Podcast, Author of “What’s The Deal with Caregiving” and the founder at The Whole Care Network.

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Age Without Borders Virtual Caregiving Summit


 

I am honored to participate in the Age Without Borders Global Caregiving Virtual Summit which begins on January 20-26. You can receive your free pass to attend the summit by visiting  Age Without Borders website by clicking here

The summit features over 60 thought leaders, experts and luminaries from 17 countries who share leading edge tools, insights, and personal stories. (My 30 minute presentation is on day 5 of the summit).

Plus, the summit includes a substantial FREE Care Package that offersinspirational tools and gifts, like Pulitzer prize winning poets, downloadable music and art, recipes, and spot-on caregiving tutorials and guides. Use this to help yourself, and to share with your family for quality time together.

Get your free pass, for daily links, and get a LIFETIME access to the entire collection (over 30 hours of content, plus care package gifts) for our $97 early bird All Access Pass, valid through midnight this Friday. The All Access Pass once the summit begins is $147.

Have you recently taken time out of your life to care for someone you love? Statistics estimate there are anywhere from 40-100 million people in the USA alone serving as unpaid caregivers- without any sort of information, training or support.

While done with love, caregiving for others professionally, or for family and friends, often leaves us feeling overwhelmed, burned out, stressed, even depressed. We find ourselves needing information, advocacy, self-care and inspiration.  

I’d like to offer you a complimentary FREE PASS to attend the Age Without Borders Global Caregiving Virtual Summit, January 20-26, 2018 featuring over 60 thought leaders, experts and luminaries from 17 countries who share leading edge tools, insights, and personal stories.

Here is a preview of my presentation:


<p><a href=”https://vimeo.com/240288692″>Christopher MacLellan Promo</a> from <a href=”https://vimeo.com/user60061055″>Kari Henley</a> on <a href=”https://vimeo.com”>Vimeo</a&gt;.</p>

Think of it as a free online conference or Netflix series that brings you knowledge and help for the most important job of your life. Enjoy two minute trailer videos to highlight each session, and full length interviews that last about 20 minutes- easy and fun to watch! Click here to see a few other
Topics include: inspiration to prevent burnout, caregiving policy updates, family coordination of care, respite and self care, digital tools to improve independence, family caregiver reflections and more.

Plus, the summit includes a FREE Care Package that offers inspirational tools and gifts, like Pulitzer prize winning poets, downloadable music and art, recipes, and spot-on caregiving tutorials and guides.

Click here to get your free pass, for daily links, and check out the very reasonable option to purchase the entire collection (over 30 hours of content, plus care package gifts) for only $97 early bird price.

Don’t just take my word for it.  Listen in to Kari Henley on this segment of Healing Ties Podcast and learn f

See you there!

 

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Getting To Bluetiful


Love has no age, no limit; and no death. John Galsworthy

As the holiday’s approach, it can be easy to fall into the “blues” especially when you are experiencing your first holiday without someone you love. When a life transitions, two or more lives are impacted, there are no two experiences that are exactly alike.

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Chris MacLellan with a portrait of the late Bernard Richard Schiffer in the background.

I’ve heard it said many times, “the first year is always the toughest when you lose someone you love.” I think the jury is still out on this statement. I know in my case, after my loss, I realized how ill prepared I was for the conflicting emotions of grief that I experienced. One of the most disheartening experiences for me was when someone criticized me for the way I handled my grief. We all experience loss, yet no one can tell us exactly how to deal with loss, loss is so personal and so real. I’ve come to learn this was their problem, not mine.

I also learned that it was equally important not to have anyone impose a time-frame on when I should be “beyond my grief.” Grief isn’t something that is taught in school, grief is an emotional experience that impacts each one of us in different ways. Like a plant that needs to be watered to regain its bloom, we too in our grief process need to be watered for us to bloom again. There is no timetable for a new bloom, yet without the proper nurturing and care, our soil dries and we start to wither away. Finding the proper water and soil is critical for “Getting to Bluetiful.”

There is one aspect to grief that I think all of us experience in one way or another, we stop living… I know, I let it happened to me! I believe once we recognize that we have stopped living, then we are ready to start the process of dealing with our unresolved grief.

Emotional isolation has an adverse effect on anyone. Getting to “Bluetiful” starts by being validated by trusted family and friends, without fear of judgement and without fear of laughter. Telling our stories allows our soil to be tended so we can receive nourishment on our journey to “Bluetiful.” I appreciate everyone who has allowed me to share my story.

While amid grief, “Getting to Bluetiful” can have its challenges, but it is a worthy journey when you have the proper water and soil to help you along the way. Sure, there will be days where the path will be bumpy, mixed in with some sharp curves. When those days happen out of the blue, simply pull off to the side of road for some fresh water and soil (a good cry? YES!) which will replenish your journey to “Bluetiful.” That old cliché is true: Time heals all wounds, however wounds healing at their own pace and in their own time and in your time, you will get to Bluetiful!

I’m almost there too!

Chris MacLellan is the host of Healing Ties Podcast and the author of “What’s The Deal With Caregiving?

“Everyone has the potential to be a kindness leader. Everyone has the potential to leave footprints on the heart of another. It is simply choosing to do a kind act to make someone else’s life ‘bluetiful.'” Allison Lazicky from Top-Notch Teams.

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Balancing Life, Work and Caregiving


Management is doing things right; leadership is doing the right things.  Paul Drucker

The emotional and financial stress of caregiving affects every segment of our society.  Caregiving touches every industry with an untold effect on the financial, physical and mental health of the family caregiver.  Caregivers face and uphill latter to overcome fatigue, burnout, stress and financial ruin.  I know, I’ve been there!

Assessing the long-term financial impact of caregiving will play a role in shaping local, state and federal policies.  Just recently, (May 2017) the House or Representative passed H.R. 1180, know as the Working Families Flexibility Act.  According to the National Law Review, the bill proposes to amend the Fair Labor Standard Act (FLSA), will allow employees to “bank” comp time for future use.  At least from my point of view, it appears that this Bill falls short of addressing the needs of working family caregivers and their employers.

The financial impact of Caregiving is not limited to the caregiver, the employers is also affected.  Creating an awareness to the critical issues family caregivers face on a daily basis will help the employer and caregiving employee find solutions that have a positive impact in the work place.  Smart employers adopt innovated ways to keep productivity high and help everyone become successful not matter what life throws at their staff.

Employers and their employee caregivers face significant challenges balancing workweblogo with caring for a loved one. On Wednesday August 30th, Impact Broward is taking the bold step to brings the issues facing working family caregivers and their employers to the forefront in Broward County, Florida with the Work/Life Caregiving Symposium hosted at the Urban League of Broward County in Fort Lauderdale.

At the symposium you’ll hear:

  • Hear first-hand accounts of the impacts of caregiving,
  • Learn how flexible HR policies can lead to increased employee retention, improved productivity, and shareholder gains, and
  • Discuss public policies that help caregivers and employers thrive.

Listen too our Work/Life Caregiving Symposium Podcast with Peter Kaldes from Impact Broward and Kim Praitano from Gilda’s Club of South Florida by clicking here! 

Keep your eye on The Purple Jacket for more information on the Caregiving Symposium, the development of the Caregiving Coalition of Broward County and our new website The Whole Care Network!   

For information on how you can participate in the Work/Life Symposium visit Impact Broward by clicking here! 

When we create a collective impact on a social issue that impacts all segments of society, we build stronger communities locally and nation-wide.

Christopher MacLellan,  has a Masters degree in Communication and Leadership from Gonzaga University, the author of “What’s The Deal with Caregiving”,  and a Certified Senior Advisor. To learn more about Chris, simply click here! 

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Creating Servant Leaders One Oreo Cookie At A Time


Good leaders must first become good servants.  Robert K. Greenleaf

Servant Leadership is a philosophy and set of practices that enriches lives of individuals, builds better organizations and creates a more just and caring world.  Servant Leaders lead with others in mind.   Robert Greenleaf  is regarded as the founder of the concept of Servant Leadership. Servant Leadership is not only a process, it is a way of life.  

The Way To SuccessAllison Elkow Lazicky from Top Notch Teams is serving up Servant Leadership in more ways than one.  Using the metaphor of an Oreo Cookie, Allison  sets the stage by saying that before one can dig into the delicious center cream, we set expectations with the top half of the cookie and learn how to develop an attitude of gratitude with the bottom half of the cookie.  I love the metaphor of the Oreo Cookie and Servant Leadership.

I think there is a strong connection between servant leadership and being a caregiver.  As caregivers we often put ourselves second and focus on the needs of someone else. Becoming a servant leader is a process; becoming a caregiver is a process too.  When we (caregivers) develop a care team, we have to empower members to the best of their abilities.  While we might want to jump right into the center of the Oreo cookie, we have to set our expectations and adapt that attitude of gratitude.

I find the concept of Servant Leaders and Caregivers fascinating.  I think you will find the conversation with Allison Elkow Lazicky fascinating too.  Here’s to creating great teams and Oreo Cookies! Listen in and learn how Allison is creating healthy teams and Healing Ties all around us!

 Visit Allison’s website, Top-Notch Teams by clicking here! 

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Toula’s Tips: Caregiver Burnout — It’s Real!


Today we welcome my good friend and guest writer, Toula Wootan from Toula’s Tips for Caregivers to “The Purple Jacket”

 Have you ever felt like this? If so, you are certainly not alone. It’s so very common. Here are a few symptoms to let you know if you are experiencing caregiver burnout:

  • Overreacting to minor nuisances

  • Feeling constantly exhausted

  • Losing interest in work

  • Decrease in productivity at work

  • Withdrawing from social contacts

  • Increasing use of alcohol or stimulants

  • Change in eating patterns

  • Change in sleeping patterns

  • Increasing use of medications for sleeplessness, anxiety or depression

  • Inability to relax

  • Scattered thinking

  • Feeling increasingly resentful

  • Being short-tempered with care recipient frequently

Do you see yourself in the above? If so, perhaps it’s time to take a step back, or perhaps to take a real time-out.

How, you say? If you don’t have family or friends who can step in, there are many support services to help you do this. Many assisted living facilities offer respite, a short-term stay. There are also many adult day care centers in our area, and we have many companion/sitter agencies. Perhaps you qualify for Aging True — they have a team of volunteers who can sit with your loved one occasionally.

 Whatever it takes, take a break so you can rest, do something for yourself, renew your perspective and refresh. It’s essential. I like the saying, “You can’t pour from an empty cup.”

 I am the primary caregiver for both of my parents and work full-time, leading caregiving initiatives! I keep these eight things in mind to help me: sunshine, fresh air, exercise, prayer, water, diet, rest and laughter. Do they resonate with you? They are simple but make a big difference. So does having fun with friends! Don’t forget that.

 I hope these help you. As always, thank you for caring.

 

Toula Wootan

 Toula’s Tips for Caregivers, can now be hear on Spreaker.com/user/toulastipsforcaregivers or from Toula’s website at ToulasTipsforCaregivers.com.  You can email Toula at toulastips@gmail.com

Thank you Toula for all you do for Caregivers in Jacksonville and all over the country!

 

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The Family Historian


A people without the knowledge of their past history, origin and culture is like a tree without roots. Marcus Garvey

I did not have the opportunity to meet three of my four grandparents.  Aunt and Uncles? Well they lived in Canada and New Orleans; I grew up far far away, in St. Louis.  While the internet has made the world smaller and quite a bit faster; how are we preserving our family legacy for generations to learn about there family history?

Mike Stith from One Legacy has a  passion for collecting inspirational stories.  Mike believes that by sharing stories, “we’re adding a special piece of history for future generations.”  Mike’s new publication, The Family Historian 20170211_110727continues to share  special pieces of family history, yet in a more traditional way. The Family Historian is in newspaper format and is available for free!  Imagine sitting in a waiting room at the doctor’s office and picking up a copy of The Family Historian and being comforted by stories that are similar to yours?

While the internet has changed the way we communicate, there is something special about holding a publication in your hand while reading compelling stories.  The Family Historian is a publication you will want to take home with you!

Everyone has a story, but not everyone gets to tell there story. Listen in and learn how Mike Stith from One Legacy and The Family Historian is creating Healing Ties all around us!  

To learn more about One Legacy and The Family Historian click hereWould you like to receive The Family Historian journal free at your business or organization? Contact info@onelegacy.com or call 618-960-7252 today!

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I’m a Teenage Caregiver: Now What?


“Education is what remains after one has forgotten what one has learned in school.”       Albert Einstein

aacy_logo-for-webNot every child gets 18 years of childhood. There are an estimate of 1.3 million caregiving children ages 8.-18 years old in the U.S.*  We often think of Caregiving as a role solely for adults. Child caregivers are a hidden, vulnerable population in the US, sacrificing their education, health and childhood while fulfilling roles and responsibilities beyond their years.  The risk of underachievement and high school dropout increases for teenagers who end up taking on the role as family caregiver.

When child caregivers are recognized and supported, their lives change and they learn that they are not alone. The American Association of Caregiving Youth of Palm Beach, County (FL) was developed by Connie Siskowski, RN, PHD and is the first US program to support the hidden population of child caregivers.   Through a variety programs to help young caregivers and their families, the American Association of Caregiving Youth brings the issues facing young caregivers and their families to the forefront.

Don’t just take it from me, listen in and learn how Connie Siskowski and American Association of Caregiving Youth is creating Healing Ties all around us!

To learn more about the American Association of Caregiving Youth and the upcoming Caregiving Youth Institute conference on Thursday, April 27th in Boca Raton, Florida simply click here! 

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Author’s Spotlight: Mama Peaches and Me.


All that I am, or hope to be, I owe to my angel mother. Abraham Lincoln

kl-portfolio-1Combining his personal stories and no-nonsense advice with a healthy dose of humor,Christopher Chaney writes about what it means to love and care for an aging parent in his book Mama Peaches and Me. This book is the first of the Mama Peaches Caregiving Reading Series.

With a mixture of humor, scripture and timely caregiving tips, Mama Peaches and Me is like having a close friend to support those caring for an aging parent, disabled spouse and other loved ones.  As I read through Christopher’s book, I felt like I was part of the family.  Christopher’s nine caregiving tips are essential for all caregivers. A must-read for anyone who is a caregiver or anyone who just loves old-school humor.

Don’t just take it from me; Listen in and learn how Christopher Chaney is creating Healing Ties all around us!

287855_bd19c93bb5f2408da345c5485e2e963d-mv2_d_1672_2316_s_2In celebration of National Caregivers Day (Feb. 17th)  Christopher is offering the e-book version of my Mama Peaches and Me book absolutely free for two days only (Feb 17 and 18).  This book was named as one of the eight best caregiving books of 2017 by the editor of care.com . Getting your Free e-Book is easy and quick when you visit my website at http://www.authorchristopher.com./    Use promo code: Bowtie for your free book! 

Christopher-Charles Chaney is a caregiving advocate, published author, award-winning public speaking champion and CEO of Kingdom Majesty International Ministries.

 

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