Love is the only force capable of transforming an enemy into a friend. Martin Luther King, Jr.
I will be the first one to admit that my caregiving journey did not include the special trails and tribulations when caring for someone who has dementia or Alzheimer’s. For many families, a diagnosis of dementia is an ending. For Deborah Shouse, it was a beginning, “My mother taught me how to celebrate and appreciate what we have right now.” Through her mother’s dementia, Deborah discovered compassion, deepening love, and increased connection with her mother and her family.
Deborah Shouse is an author and dementia advocate. Deborah knows first hand that finding the connection with a love one afflicted with dementia is a challenge millions of people face. Too often, people living with dementia are entertained instead of engaged. In this episode of “Healing Ties” Deborah talks about the differences between Dementia and Alzheimer’s while sharing her love and passion for those who care for someone with this insidious diagnosis.
Listen in and learn how Deborah is creating “Healing Ties” all around us by finding love in the land of dementia.
Love in the Land of Dementiaoffers hope to family members, friends, and care partners of people who are living with memory loss. Strong, fluid organization and tender writing distinguish this purposeful and compelling read, which is filled with practical suggestions, compassionate support, and unexpected insights. Visit Deborah on line at Dementia Journeys
Deborah offers some sage advice on how to choose holiday activities; explaining the needs of the person living with dementia to family and guest, creating a quite space available for down time while in the midst of the festivities. My personal favorite is Deborah’s suggestion that a family member or friend take turns being around the family member with dementia in order to answer a quick question or to just make them feel comfortable a large gathering of people.
When memory loss is first detected in a loved one or friend, it can be troubling for the person affected, but also for the entire family and friends. Too often, people living with dementia are entertained instead of engaged. Connecting in the Land of Dementia shows us how to engage and connect with people who are living with memory loss and dementia.
On this version of Healing Ties, Deborah provides us with some timely tips to help caregivers and their caree’s have a dementia friendly holiday season.
Listen in and learn how Deborah Shouse is creating Healing Ties all around us!
Chris' Master Degree Thesis Spiral of Silence: Caregiving, Stress and its Impact in the Workplace was accepted by the faculty at Gonzaga University in May of 2016 earning an MA Degree in Communication and Leadership. Email me at firstname.lastname@example.org for information on the financial impact of caregiving. Proud to be an Alumni of Gonzaga University 2016
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Learn How To Become A Certified Dementia Communication Specialist with Silver Dawn Training. Tell Cathy and Tami that "The Bow Tie Guy" sent you!
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Hope Loves Company (HLC) is the only non-profit in the U.S. with the mission of providing educational and emotional support to children and young adults who had or have a loved one battling Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig's disease. Many of these children become caregivers to their parents. Please visit Hope Loves Company's website to learn more about this wonderful program!
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"What's The Deal With Caregiving?" is available on Amazon. Click above to see the reviews of the book and to purchase a copy of your own
Culture Change In A Box is our new show on the Whole Care Network featuring cost host Judy Ryan from LifeWork Systems and Chris MacLellan from the Whole Care Network.
As a certified accessible travel advocate, I can book all your travel plans! Ask me how you can have anything from oxygen to a hoyer lift delivered to your cruise ship stateroom or hotel around the world! For more information email me at email@example.com
Our Three Part Caregiving Story…
Nominated for a Pulitzer Prize in 2015, Our Caregiving Story "In Sickness and In Health: A Couple's Final Journey" written by Diane Lade and photgraphed by Carline Jean from The South Florida Sun-Sentinel. Click on the photo to be taken to the original story. Photo Credit Carline Jean/Sun-Sentinel
Story 2: "Life After Death: Couple's Story Sparks Change." Click on the photo to be taken to the second story. Photo Credit Carline Jean Sun-Sentinel
Story #3 "Saying Goodbye" Click on the photo to be taken to our final story. Photo Credit Carline Jean/Sun-Sentinel
Affectionately known as “The Bow Tie Guy” in many caregiving circles, the story of Chris MacLellan and his partner, Richard Schiffer was chronicled in a 2015 Pulitzer Prize nominated story “In Sickness and In Health: A Couple’s Final Journey” about their journey of caregiving. The story told of the challenges that LGBT partners have in dealing with the medical and legal system, but it also told of the love and joy that Richard’s last years had on their relationship. Out of this experience Chris has written a powerful and compelling book “What’s The Deal With Caregiving” that informs caregivers on how to deal with the challenges that they will encounter, regardless of sexual orientation, family situation or age. Chris’ soothing style is conveyed through his caregiving blog, The Purple Jacket and podcast entitled Healing Ties where he connects with caregivers and industry experts around the globe through story sharing while providing timely tips for family caregivers. Chris’ Master's Degree thesis entitled, “Spiral of Silence: Caregiving, Stress and its Impact in the Workplace” was accepted by the faculty at Gonzaga University, where Chris earned a Master’s degree in Leadership and Communication. Chris is the founder of The Whole Care Network and presents regularly on topics that impact family caregivers.