Tag Archives: HealingTies

Caregiver Call In Show: How Do You Manage Long Distance Caregiving


Join Denise Brown from Caregiving.com and me tonight (September 25th) on Blog Talk Radio  for our monthly Caregiver Call-In Show for a conversation on long distance Caregiving: What’s it like to care for a family member from a distance?

Call us at (646) 652-4944 during tonight’s live 30-minute talk show which airs at 8 p.m. ET (7 p.m. CT, 6 p.m. MT, 5 p.m. PT). Share your answers to this question: What’s it like to care from a distance?  To join our chat room and to listen live, simply click here! 

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Join us in Chicago on December 2 and 3 for the First Annual National Caregiving Conference hosted by Denise Brown at Caregiving.com.   Complete a paid registration for our First Annual National Caregiving Conference on or before October 1, 2016, for a chance to win a free night (Friday, December 2, or Saturday, December 3, your choice) at the Chicago Marriott O’Hare.

To learn more about our conference click here! 

 

National Caregiving Conference Flyer

 

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Cancer, Caregiving and Advocacy


There is only one rule for being a good talker – learn to listen. Christopher Morley

Just this week I was asked to participate in a splendid article written by Bill Briggs of the Fred Hutchinson Cancer Research Center in Seattle about family caregivers “Finding their calling: Why  cancer caregivers join cause”.    Bill’s questions to me were thought provoking and struck me at my inner core and caused me to ask myself, “Why am I an advocate?”

After pondering Bill’s questions about caregivers finding their calling, I am reminded about a book my good friends  Joni Aldrich and Christopher Jerry wrote entitled Advocacy Heals UYes advocacy does heal us!

I do believe family caregivers find a calling through caregiving. Family caregivers have an innate ability to understand each other; to validate another caregiver’s feelings, just when the time is right.  That is why I believe it so important for every family caregiver, (as they feel comfortable)  to share their story, because when you have been in the caregiving trenches, you understand the agony… and the joy that caregiving brings to a relationshipSharing your caregiving experience is not only therapeutic, it helps current and future family caregivers cope and understand.  That’s why so many people find their calling after caregiving ends.  Through story telling, we impact the lives of others, while allowing advocacy to play a key role in our own healing when our loved one life transitions and caregiving ends.  (Thank You Joni and Chris!)

Family caregivers are changing the landscape in America.  Take for instance the working family caregiver who advocates for paid time off of work to care for their elderly parent or a disabled spouse.  This reminds me of the child care crisis in the 70’s when employers recognized that they were losing good employees because there was no legal protection in place for employees to take time off of work to care for a new born or sick child. By 1993 FLMA was enacted sick-leavewhile employers made adjustments in personnel policies to accommodate working parents.   Now changes in FLMA are being proposed through local, state and nation wide legislation to impact the lives of family caregivers.  This is happening not only because caregivers are sharing their stories, this is happening because family caregiving is taking place in every neighborhood, and in every boardroom. While in the midst of caregiving, we as family Caregivers do not recognize that we are the backbone of the American Health Care System.   Yet when caregiving ends, and we have time to reflect on our time spent as a caregiver, we come to recognize the important role we played as an advocate.   That is why we as caregivers, continue on with our mission; to share, to educate, and to heal.

Chris MacLellan became a full-time caregiver to his partner, Richard Schiffer, after he was diagnosed with esophageal cancer two years ago.

Even though Richard was 20+ years older than me, caregiving was the farthest thing on our mind when we started to develop our beautiful relationship.  Caregiving is not on anyone’s bucket list, Caregiving just happens.  The family caregiver is the unsung hero, and each an every one of us is an expectant caregiver.  I often relate caregivers to that of being a Servant Leader, putting the needs of someone else, first.  When Richard was diagnosed with esophageal  cancer, we  came up with a motto that got us through the day.  “We Might Have Cancer, But Cancer Never Has Us.”  Now, more than two years past his life transition, our motto is still the same, we just use it differently to positively impact the lives of other family caregivers.  Because that is what family caregivers do!

 Join us in Chicago for the 1st Annual National Caregiving Conference on December 2 & 3.  Register now by clicking here! 

Chris MacLellan is the author of “What’s The Deal with Caregiving?” and host of “Healing Ties” Radio. ©WholeCareNetwork

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The Love Not Fear Movement


“The only thing we have to fear is fear itself.” — Franklin Delano Roosevelt

Elizabeth Noelle-Neumann was a German political scientist who developed a mass communication theory called the Spiral of Silence.  The Spiral of Silence is a term meant to refer to the tendency of people to remain silent when they feel that their views are in opposition to the majority view on a subject.  People who feel they are in the minority, sense isolation, fear or exclusion  and tend to remain silent instead of voicing opinions.  Often used in a political or media content,  Noelle-Neumann’s Spiral of Silence mass communication theory explains the growth and spread of public opinion.

It’s time to break our silence and exchange fear for love. 

People, like myself, who have lived in fear for a variety of reasons, often tend to stay silent until they experience that “Ah-Ha” moment and come to realize that fear is useless.th (2)As a young man, my fear always centered around my sexual orientation.  As I have grown older, my fear has shifted to fearing success. What a quagmire; life is a process...I am letting go of my fears.

In today’s society,  there seems to be a cultural bias that leans towards fear? Cable news tends to report more negative aspects of life and politics: Are things really bad as they appear (political climate) or is our current climate permeated by a lack of leadership, poor communication skills or…fear?   Where has open, honest and respectable dialogue gone from our leaders?   The Spiral of Silence is alive in our own fears.

One of the ways of letting go of fear is to embrace communication from the standpoint of love.  That is what the Love Not Fear Movement is all about.  I think all of us recognize from our diversity, we are not always going to agree,  nor am I am suggesting that we live in acalmPollyanna world.  However, when we focus our communication to others with love, we tear down walls, not build them. We lift people up, not criticize them. We disagree with respect, and learn from our differences.   We then break the Spiral of Silence

How do we build a community that surrounds us with the lovenotfearlogomessage of love?  Listen in and learn how Jeff Johnson is eliminating fear (and the Spiral of Silence) through the Love Not Fear Movement!   Because in the end…Love Is The Winner! 

Chris MacLellan is the author of “What’s The Deal with Caregiving? and the Executive Producer and Host of Healing Ties Radio. 

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Smart Home Technology that Connects Caregivers


Any sufficiently advanced technology is indistinguishable from magic. Arthur C. Clarke

The Purple Jacket is pleased to welcome back one of our favorite guest bloggers, Maria Alice

Caring for a loved one at home can be a challenge, but it’s also tremendously rewarding. Seniors are the fastest growing demographic in the United States, and the number of people who require care and monitoring at home continues to rise. Fortunately, modern technology now provides a broad assortment of tools that make in-home caregiving less stressful, more effective and safer than ever.

2016-07-28-1469685942-7343603-smarthomeThe Smart Home

For the aging or disabled, home automation offers great promise as a way to make their home safer, more accessible and better equipped to handle their specific needs. The modern smart home features a host of inter-connected appliances, fixtures and systems that are easily voice-controlled and able to be set to schedules, from locking doors at night to turning on lights and opening blinds in the morning.

Improving Quality of Life

The influx of smart products designed to aid seniors and disabled people is a significant step toward providing a higher quality of life. Accessible controls and automated scheduling mean more control over the local environment, granting more of the independence and agency that is so important to so many seniors. Caregivers, too, can enjoy the benefits of automation. The ability to automate many of the tasks that once demanded their attention leaves more time for caregivers to care for their loved ones, handle other tasks or even take a bit of personal time.

Improving Health Care

For caregivers, the health of their loved one is always a worry. Here, too, technology offers a variety of aids. Automated medication dispensers allow the elderly to handle their own medications without the typical risks of forgetting pills or taking the wrong dosages. Wearable technology, while still in the early stages of development, promises to provide a convenient and unobtrusive way for caregivers and even health professionals to monitor important vital signs and other health information.

For those caring for someone afflicted with Alzheimer’s, devices such as GPS-enabled trackers, door alarms and other monitors even offer the ability to send immediate alerts to a caregiver should their loved one attempt to leave the house after a set time.

Safety Through Technology

Security, too, is of paramount importance when it comes to the elderly. Remote monitoring allows caregivers to keep tabs on their loved one at any time, employing home security cameras not only for protection against outside threats but to allow monitoring from any location. Many of today’s security systems also feature monitoring for fire, carbon monoxide and other potential hazards.

Security can be further enhanced by installing door locks that can be automated or remotely controlled, implementing access codes to control who can enter the home and at what times and using a camera to safely identify visitors at the door.

The smart technology revolution is barely underway, yet it has already radically altered how caregivers protect and care for their loved ones. The elderly, ill or disabled finally have the tools to allow them more control, independence and accessibility to take on aspects of their lives that they were previously not able to manage, while technology also lessens the burden on caregivers. This benefits everyone, resulting in happier seniors, improved safety and quality of care and less stress for those who care for them.

Maria Alice is a freelance writer currently living in Chicago. She has a Bachelor of Arts degree in English from the University of Illinois at Chicago with a minor in Communication. She blogs about environmentally friendly tips, technological advancements, and healthy active lifestyles.

Join Us in Chicago on December 2 and 3 for the 1st Annual National Caregiving Conference hosted by Caregiving.com.  Registration is now open by clicking here!  .  Sponsorship  and Exhibitor opportunities available, contact me direct at Chris@thepurplejacket.com for details.  

For additional information on the conference click in the National Caregiving Conference click on the icons below or visit http://www.caregiving.com/national-caregiving-conference-hub/

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Reimagining the Care Experience—For Our Loved Ones and Ourselves


They always say time changes things, but you actually have to change them yourself. Andy Warhol

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Mel Coppola

Mel Coppola is enriching the care experience and changing lives through advocacy, coaching and education .   On this episode of Healing Ties, Mel shares her wisdom on how we as caregivers can re-imagine the care experience, for our self, our care partner and our loved ones.

Listen in and learn how Mel Coppola is creating Healing Ties all around us!

 

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Visit Mel on line at http://www.heartsincare.com/

Join Us in Chicago on December 2 and 3 for the 1st Annual National Caregiving Conference hosted by Caregiving.com.  Registration is now open by clicking here!  .  Sponsorship  and Exhibitor opportunities available, contact me direct at Chris@thepurplejacket.com for details.  

For additional information on the conference click in the National Caregiving Conference click on the icons below or visit http://www.caregiving.com/national-caregiving-conference-hub/

National Caregiving Conference (1)

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Authors Spotlight: Kathryn Leigh Scott


The art of medicine consists in amusing the patient while nature cures the disease. Voltaire

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Kathryn Leigh Scott 

On this episode of Healing Ties Author’s Spotlight, we visit with Kathryn Leigh Scott who has written writes a compelling story about her husband’s diagnosis of Progressive Supranuclear Palsy (PSP) in her book,  LAST DANCE AT THE SAVOY.   

Progressive supranuclear palsy (PSP) is an uncommon brain disorder that affects movement, control of walking (gait) and balance, speech, swallowing, vision, mood and behavior, and thinking. The disease results from damage to nerve cells in the brain. EstimatesLastDanceAtTheSavoyCoverBorder vary, but only about three to six in every 100,000 people worldwide, or approximately 20,000 Americans, have PSP—making it much less common than Parkinson’s disease (another movement disorder in which an estimated 50,000 Americans are diagnosed each year). Symptoms of PSP begin on average after age 60, but may occur earlier. Men are affected more often than women.

Listen and  learn how Kathryn Leigh Scott is creating “Healing Ties” all around us!

Join Us in Chicago on December 2 and 3 for the 1st Annual National Caregiving Conference hosted by Caregiving.com.  Registration is now open by clicking here!  .  Sponsorship  and Exhibitor opportunities available, contact me direct at Chris@thepurplejacket.com for details.  

For additional information on the conference click in the National Caregiving Conference click on the icons below or visit  http://www.caregiving.com/national-caregiving-conference-hub/

National Caregiving Conference (1)

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Do You Know Your Numbers?


The great aim of education is not knowledge but action . Herbert Spencer

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Chris MacLellan with Dr. Sarah Koplow

Do you know your blood pressure?  Pulse?  Good and Bad Cholesterol?  The meaning of saturated fat?  And why is it important to your overall  health to know these important numbers?

On this episode of “Healing Ties” Dr. Sarah Koplow, PhD, RN  assistant professor from NOVA Southeastern School of Nursing breaks down these important numbers and why it is important for each one of us to “Know Our Numbers.”  Listen in and learn how Dr. Sarah Koplow is creating “Healing Ties” all around us! 

Join Us in Chicago on December 2 and 3 for the 1st Annual National Caregiving Conference hosted by Caregiving.com.  Registration is now open by clicking here!  .  Sponsorship  and Exhibitor opportunities available, contact me direct at Chris@thepurplejacket.com for details.  

For additional information on the conference click in the National Caregiving Conference click on the icons below! 

National Caregiving Conference (1)NCCFlyerB&W

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The Caregiving Years: Through the Lens of an LGBT Caregiver


Education is not preparation for life; education is life itself. John Dewey

Recently I obtained a certification from Caregiving.com to present on the The Caregiving

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Chris MacLellan and his deceased partner, Richard Schiffer. Chris became a full-time family caregiver after Richard’s diagnosis with Esophageal cancer in 2011.  Mr. Schiffer passed away in March of 2014. 

Years: Six Stages To A Meaningful Journey.   On Monday I will present The Caregiving Years at the Florida Council on Aging Conference in Orlando during my presentation on LGBT Caregiving: Is There a Difference?

The six stages of caregiving encompass from the Expectant caregiver to the Godspeed Caregiver and many different stages in between.  On Monday, I will present a preview of The Six Stages of Caregiving while demonstrating the similarities and differences LGBT Caregivers face on a daily basis.

Thanks to Colette Vallee from the Florida Council on Aging, I will be broadcasting live from the conference with special guest all throughout the three day conference.  Be sure to visit me on Spreaker for the podcasts.  Follow me on Twitter @thebowtieguy  with hashtags #fcoa1 and #fcoa2016.

I am available for Work Shops, Presentations, Panel Discussions: some of my curriculum includes…

  • Caregivers as Servant Leaders<>Leadership training for the family Caregiver.
  • The Caregiving Years <>Objective is to learn to create a perspective that best helps you during your caregiving experience
  • LGBT Caregiving: Is There A Difference? <> The Caregiving Years through the lens of an LGBT Caregiver
  • Beginning After Caregiving Ends<>Objective is to learn how to refocus your life after caregiving ends.
  • Spiral of Silence: Caregiving, Stress and its Impact in the Work Place.<>Objective is to learn the financial impact of Caregiving and create a positive workplace culture for family caregivers and employers/

CCC_CHRISShare your knowledge, become a Certified Caregiving Consultant and a Certified Caregiving Educator.

What’s The Deal with Caregiving available on Amazon. Ask Chris 3D1how you can brand “What’s The Deal with Caregiving” to your organization.

Contact Chris about being an upcoming guest on  “HealingTies” at chris@thepurplejacket.com

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Join us in Chicago as an exhibitor for the 1st Annual National Caregiving Conference onNational Caregiving Conference (1) Saturday December 3rd contact me for details on this exciting event!

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Monthly Caregiver Call-In Show


Let’s Talk About: When We Want to Run Away

Each month on the last Sunday at 8 p.m. ET, we’ll pose a question that sparks a conversation we’d love for you to be a part of. You can give us a call during our live show at (646) 652-4944 to share your thoughts. You also can join the show’s chat room and discuss your experiences with other listeners. Listen to our show and join the chat room.

On July 31, we’re discussing this question: When do you want to run away? When do you feel intimidated or overwhelmed or frustrated or just done that running away seems your own option? Call and share your stories and experiences. Be sure to share how you stayed.

Join Denise Brown from CareGiving.com and her co-host, Chris MacLellan,  Sunday July 31st at 8:00 pm eastern / 7:00 pm central on Blog Talk Radio as  we talk about when we just want to run from caregiving. Please feel free to call us during our 30-minute show! 

12144764_10207087416960465_5072855123559877099_nAbout Chris

Chris is the author of “What’s the Deal with Caregiving?” and the host of “Healing Ties,” a weekly radio show. You can learn more about  me on at  www.thepurplejacket.com and www.thebowtieguy.com.

d_cp6Qzj_400x400About Denise

Denise, founder of CareGiving.com, coaches family caregivers before, during and after caregiving. She’s the author of “The Caregiving Years, Six Stages to a Meaningful Journey” and “Take Comfort, Reflections of Hope for Caregivers.”

Join us in Chicago for the 1st annual National Caregiving Conference #NCC16. Looking for exposure for your products and services for Caregivers?  We have sponsorship and exhibitor packages to meet your needs!  Contact me direct at Chris@thepurplejacket.com

National Caregiving Conference (1)

To learn more about the conference click here!

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New Call In Show: What’s Life Like After Caregiving Ends?


Whatever words we utter should be chosen with care for people will hear them.  Buddha

Starting on Sunday, June 26 8 p.m. ET,  (and every 4th Sunday of the month) Denise Brown from Caregiving.com and I will début a new monthly call in podcast for caregivers.   We’ll pose a question that sparks a conversation and  we’d love for you to be a part of the conversation.  You can give us a call during our live show at (646) 652-4944 to share your thoughts. You also can join the show’s chat room and discuss your experiences with other listeners.  To listen to the show and to join the chat room, simply click here!  

On June 26, we’re discussing this question: What’s life like after caregiving ends? Be sure to call us and tell us what it’s been like for you. What’s been difficult? Easy? What’s surprised you? Who’s surprised you? And, let us know what you worry about as you look into a future without caregiving.

About Denise
Denise, founder of CareGiving.com, coaches family caregivers before, during and after caregiving. She’s the author of “The Caregiving Years, Six Stages to a Meaningful Journey” and “Take Comfort, Reflections of Hope for Caregivers.”

About Chris
Chris is the founder of the Whole Care Network , author of “What’s the Deal with Caregiving?” and the host of “Healing Ties,” a weekly radio show.

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Denise Brown, CareGiving.com

Chris MacLellan

Chris MacLellan 

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