Tag Archives: Bow Tie Guy

‘I Do Not Need Any Help…I Have A StepLadder!’


Health is the greatest gift, contentment the greatest wealth, faithfulness the best relationship. Buddha

As Caregivers, more often than not, we pay better attention to the health and well-being of our caree rather than to ourselves; It just goes with the territory. Just the other day, I found ‘The Little One’ pulling out the stepladder to use to reach the upper cabinets (after all he is 5’5”) in our kitchen. Being the over protective caregiver that I am, I immediately balked at his use of the ladder. “What are you doing,” I said! “What does it look like I am doing, putting away the groceries.” He responded. “Not with that ladder you’re not.” The conversation deteriorated from there…

Safety is a big concern for all of us. One harmless fall can put an entire series of health concerns into play. Yet there is a delicate balance between independence and common sense.

Dr. Starcevic with ‘The Little One’

On Friday, ‘The Little One’ had his quarterly check up with his primary care physician, Dr. Starcevic. Dr. Starcevic continues to be amazed at ‘The Little One’s’ progress and stated…”We should review the pathology report because this is truly amazing!” I was gratified when she spoke about how important I was in the progress that he has made over the past year. Of course, he agreed with her 100%. This conversation really helped boost my ego and confidence.

‘The Little One’ highly respects Dr. Starcevic, and I do too. When ‘The Little One’ was in the middle of his chemo and radiation treatments last year, she was the one who determined that he needed to be in the hospital. Not only did she have him admitted, she put him in a wheel chair and took him to the hospital herself! We will never forget that act of kindness on her part.

The Famous Stepladder

During the conversation with Dr. Starcevic, ‘The Little One’ mentioned that he is “extra careful when he walks because he does not want to fall down and break a hip.” As I listened attentively to his words, I could not resist jumping in. “Why don’t you tell Dr. Starcevic how you like to get on stepladders, “ I said! They both turned to me (with different expressions on their face of course) at the same time: then the real conversation ensued about ‘The Little One’s’ safety. The conversation was lively and to the point; it is harder for ‘The Little One’ to dispute Dr. Starcevic than it is me!

Every caregiver wants to ensure that their caree is 100% safe. While I know I cannot be at home 24/7, I also know that I cannot control what ‘The Little One’ does when I am not home. (Like I can really control him when I am at home!) I can hear ‘The Little One’ saying, ‘I can put those cans on that top shelf, I’ve been doing it this way my entire life;’ I get that response and respect it too.

Even as we age, each one of us has that indestructible opinion of ourselves. We do not want to lose our independence, but we also do not want to lose our independence through a fall that is preventable. Sometimes we just need a different messenger, and sometimes we have to realize that our message needs to be tapered. In this case, we learned the meaning of both. Thank goodness for the wonderful work of Dr. Starcevic!

You see…We might have Cancer…But Cancer does not have us!

5 Comments

Filed under Caregiving, The Purple Jacket

“I’m between 81 and Death!”


If I had no sense of humor, I would long ago have committed suicide.
Mahatma Gandhi

We are three weeks into our FitPass program with Caregiving.com and the group is progressing along just fine. There are so many reasons why we put on weight; stress, poor choices, not seeing food as fuel is just a few of the topics that come up during our FitPass discussions on Monday night. While I have a long way to go in order to sort out why I have put on weight, I am pleased with the loss of 8lbs since we’ve started this program.

It just so happened that the ‘The Little One‘ had his own discussion on health and fitness with a nurse who came to visit him on Monday in our home. This visit was a courtesy of one of the many programs that his insurance plan has for him in Florida. (Hence another reason to be here full-time) While I missed the visit today, I certainly heard about it during our dinner conversation.

“I was given all these instructions on what I should be eating and how I should be eating. While I appreciated the concern and the information I was given, I just looked at her and said...I’m between 81 and death, at this point in my life and what I have been through this past year, what difference does it really make what I eat?” I’m sure he said this in a polite tone.

I mentioned ‘The Little One’s conversation this evening during our FitPass conference call and made the comment, “I’m the one who should have had that conversation today as it is my eating habits and fitness that is out of whack.”

The common denominator here is simple, it is about the perception of one’s quality of life.

‘The Little One’ can never be accused of not having a realistic view of his condition. Yesterday is gone — today is here — not sure about tomorrow. He has admirably lived by this motto for quite some time now. (Remember, he was given 3-4 months to live last October!) Like many people who are diagnosed with a life threatening illness, it’s not uncommon for a conversation to take place about Quality of Life. Quality of Life will have a different meaning for each one each of us. ‘The Little One’ has outlived everyone’s expectations; he is cognizant of what quality of life means to him. Who is it for anyone else to argue with him on this point? At this time in his life, eating one less scoop of ice cream or having one less helping of milk chocolate raisins is not going to do anything for him other than deprive him of a pleasure. I’d say ‘go for it and enjoy!’

Photo Credit: The Purple Jacket

The more I thought about his visit with the nurse, and the more I talked about it with our FitPass group, I realized that I have lost sight of what quality of life means to me. You see, as a Caregiver we get so wrapped up in the needs of our caree, we often forget about our own needs. That extra scoop of ice cream sure feels good when you’ve had a stressful day of Caregiving, work, life etc. However, that does not mean you have to have that extra scoop of ice cream every night!

Photo Credit: Wayne Dyer

In order to make healthy choices, we have to be aware of our options. With that, we have to recognize and own what quality of life means to us as an individual . For ‘The Little One’ that extra scoop of ice cream signifies an accomplishment and truly is a part of his quality of life; he has earned it! For me, my quality of life can not be tied solely to his, for in that, I lose my sense of self. (I.e. Weight Gain) How can I be a good caregiver if I am not taking care of myself?

While the nurse that visited our home on Monday was not there to see me, in reality the message she left…was solely for me!

You see…We might have Cancer…But Cancer does not have us!

3 Comments

Filed under Caregiving, The Purple Jacket

The ‘Price’ of CareGiving


I have found the paradox, that if you love until it hurts, there can be no more hurt, only more love.  Mother Teresa 
 

As Caregivers we are often put in a position where we have to choose between what’s good for our self and what is  good for the person for whom we are caring.  If you are a caregiver like me (and I bet you are), you are always putting the needs of your caree first.   Placing someones else’s needs in front of your own can be difficult for some people to understand; but not for the caregiver! In our me first society, and in many business circles, decisions like this are frowned on and often not understood.

To be a healthy caregiver, we have to learn how to live life in the solutions of our Caregiving experience; not solely in the problems of our Caregiving experience.  By living a life focused on solutions, we live our life with clarity, hope and love. Focusing solely on problems, we live in fear, worry and despair.  Focusing on solutions is not only a  healthy mindset for caregivers, it is a healthy mindset for everyone.  

I have had to learn this lesson the hard way. After almost 10 years of Caregiving,  I started to focus more  on the problem, not the solutions. By focusing only on the problems, I lost myself and just created more problems in return.   Losing yourself complicates Caregiving.  While the love for your caree is strong and sealed, you have to love yourself first in order to solidify your inner peace and purpose.  Your life can’t be that of your caree!

Photo Credit: The Purple Jacket

The price of Caregiving is not fixed, it is different for everyone. But if you don’t recognize the personal cost in Caregiving, you can lose yourself in the process, and that cost is priceless.   What are the signs of losing yourself: weight gain, loss of focus/clarity, financial stress, spiritual uncertainty, your own purpose, professional satisfaction, detachment just to name a few.

For people who care, this is a conundrum. We are always asking ourselves…”Did I do enough; could I have done something different.”  

Yet what we might ask ourselves is…

Are we always looking at the problem, and not the solution? 

While I do not intend to lose  focus on the care of ‘The Little One’,  I am starting to refocus on caring for myself. This has been a revelation of sorts because ‘The Little One’  has been asking me (telling, demanding, requesting, you get the picture) to take better care of myself. Yet immersed in this care and unwilling to listen, reality has come full force.  How can I be a good caregiver, if I can’t take better care of myself?

Photo Credit: The Purple Jacket

It’s simple:

Eat Less… Move More

Focus on Solutions…Not Problems

Never quit caring… Especially for yourself  

You see…We might have Cancer…

but Cancer does not have us!

7 Comments

Filed under Caregiving, The Purple Jacket

LGBT Aging through the lens of Gen Silent


It’s never too late to give up our prejudices.Henry David Thoreau

You might remember an earlier blog post where I talked about a question that was posed to me by a good (straight) friend of mine, his question was simple: ‘What’s different about LGBT Caregiving.  In that blog post, I wrote  “ A very profound question that is easy to answer, yet difficult to explain.   “Caregiving in and of itself is the same for every couple, you simply care for the one you love.   The difference for the LGBT caregiver is when we have to interact with systems outside of our home that are out of our control.”

As an LGBT caregiver and advocate, my response to that important question pales in comparisons to the magnificent and gut wrenching documentary, Gen Silent.     The real life stories of love, commitment, discernment, hope, happiness and despair told through the lens of “Gen Silent” are gut wrenching, yet important for all audiences in order to understand the plight of LGBT seniors in America. Producer/Director Stu Maddux does a splendid job in piecing together these LGBT pioneers who helped paved the way for what we know today as Gay Pride.

We should all be indebted to them.  

Throughout their life, LGBT seniors have experienced discrimination solely for being ‘different’. LGBT Seniors are one of the most underserved communities in our nation.  Today’s LGBT seniors grew up in a time where they were told that homosexuality was not only a mental illness, but also a crime!

Systems can be unfair, yet pioneers like those in this marvelous film are the ones who help foster change.   Out of the shadows and into our hearts, this documentary provides  viewers with critical examples of why NO senior should be left behind.  This issue is not a local issue, it is a universal issue.  Somewhere along the line in our discussion about critical issues that face our society, we have lost the ability to look and talk about these issues empathically.

No matter what side of the fence you are on in regards to gay marriage; Equality in not a privilege, it is a basic human right.  Through the lens of Gen Silent” you will see the true meaning of love and why equality and equal rights are so important in our society today because everyone deserves a perfect sunset to their life.

Kudo’s to Stu Maddux and the staff at the LGBT Aging Project for a job well done.   Thank You to Ellen Wender of Creative Arts Enterprises and Treece Financial Group for taking the initiative to bring this documentary to South Florida.  Thank You to Diane Lade of the Sun-Sentinel for writing such a superb article on “Gen Silent” how nursing homes can push gay seniors back into the closet.

For information on how you can bring “Gen Silent” to your community, click here to visit the films website and ‘like’ them on Facebook, too!

To learn how your agency can develop LGBT-sensitive policies, train staff,  create welcoming environments, and receive CEU’s visit SunServe Social Services.

“We might have cancer…but cancer does not have us!”

5 Comments

Filed under Caregiving, The Purple Jacket

Gen-Silent in Fort Lauderdale


Leave a comment

Filed under Caregiving, The Purple Jacket

On Borrowed Time?


 

I decided to try something different this evening with my blog post… I am using Dragon Naturally Speaking to post my blog this evening.  I have come to the realization that I am much better at speaking than I am at typing: this just might be a better way for me to communicate my thoughts, feelings and emotions as I moved forward with ‘The Purple Jacket.”  So far so good!

Jewish Halo

This past week,  The Little One had his appointment with the oncologist. What was amazing about this appointment was that I did not feel the need, nor did I have the time to go to the appointment with him.   Now the ‘Mother Hen’ in me worried all morning about the whereabouts of “The Little One” yet  I knew deep down inside me that could handle the oncologist, handle the drive down to the office and be independent.  He did not get to be 81 without some form of independence!

Just as is the primary care doctor was encouraged at his progress, so was the oncologist.  It just so happens that the oncologist and the primary care doctor share the same office space;  this convenient for sharing information between staff and doctors.  The other benefit of this location in that the chemotherapy treatments is on the site, too! This  setup has made easier, not only for “The Little One”, but for all the patients that these physicians see on a regular basis.

The oncologist continued to spread good cheer,  good health and well-being for “The Little One.”  As I mentioned in my last blog post, the oncologist had projected 3 or 4 months to live after the initial diagnosis and subsequent treatments.  While he is pleased to be proven wrong, statistically speaking, the cure rate for esophageal cancer is one of the lowest there is.  If we are going solely by the book, then 3 to 4 months is correct.

It is understandable why a diagnosis like this would be attached to such a short lifespan.  That being said,  we forged ahead mindful of the pitfalls, yet striving for the best possible results.  We never want to rule out hope!

 I guess what amazes me the most about this visit to the oncologist is not the fact that we all recognize that the little one has far exceeded anyone’s expectations; it’s why is the doctor felt like he has to end this positive visit with the words…”You know you’re on borrowed time!”

Photo Credit: Pinterest

Granted I was not there for this conversation, and I have no reason to doubt what “The Little One” has told me in regards to this conversation.  Yet, I am not sure what the purpose of comments like this does for a patient, for a caregiver or for the physician themselves?  Throughout this whole ordeal, we have taken a positive approach to dealing with the effects of cancer. We could sulked, we could  have  played the blame game, we could have gone into denial… However, what good would that have done for either one of us?  That’s just like saying…”you know we’re on borrowed time.”  

I do not claim to be a doctor, I do not claim to be a clinician, but I do believe that I understand how a positive outlook and healthy communication  can have a soothing and  healing effect on the mind, on the body, and of the spirit when dealing with critical health issues.  When you think about it,  we are all on borrowed time, yet does a cancer patient really need to be reminded of that?

Photo Credit: Pinterst

The healing power of body, mind and spirit plays such an important role in overcoming physical (and mental) illness.   To use a sports metaphor, the best defense is usually a good offense.  The best way to deal with a diagnosis of cancer is to be as realistic and honest as possible.  Our best offense was to plunge full force  When I look at this comment from the oncologist in this light, I can understand it.  Yet to presuppose a diagnosis without the addition of hope, only leads us to despair.  Reality is painful enough, more so without the effects of hope!

Sometimes Just Being There is all we need

Through this experience, I am convinced that one of the key tools in transmitting hope and reality,  is the ability to be an empathetic communicator.    Calmly… Empathy transmits hope and reality.  I don’t think that there is anymore that we can ask for when dealing with the stark reality of Cancer or any other disabling illness.

You see…We Might Have Cancer…But Cancer Does Not Have Us! 

Photo Credit: ‘The Bow-Tie-Guy”

 

4 Comments

Filed under Caregiving, The Purple Jacket

Amazement!


Photo Credit: Pinterest

As we continue to move forward with his aftercare, there is amazement on every side of the aisle. Our last report from the primary care doctor was terrific. She, like everyone else involved in his care, is utterly amazed at the progress that ‘The Little One’ has made since this ordeal started almost a year ago. I have been reluctant to blog lately, because quite frankly, I am amazed (and quite busy) too.

When ‘The Little One’ was diagnosed with cancer in late July of 2011, we started six weeks’ worth of treatments almost immediately. The outcome looked bleak back then, and in fact the doctors gave us little hope for the future when the diagnosis came in. ‘Three maybe four months” said the oncologist back in September of 2011.

It was at that time I made the conscious decision to withhold that information from ‘The Little One’ while telling the doctor ‘let’s wait and see how he responds to treatments.’ I never shared that conversation with ‘The Little One’ until after our last appointment with his primary care doctor just a few weeks ago. (If we are doing the math, that last appointment was in June; I was told in August of 2011 that he had 3 to 4 months. We are almost to a year since the first treatments….) Of course, I consulted with the oncologist on the decision not to share this information with ‘The Little One’ , and he agreed. “Let see how the treatments go and let him live his life to the fullest!” He has exceeded all expectations, and now his doctors want to do a case study on him.

Photo Credit: Pinterest

To withhold this information is a difficult judgment call that caregivers, spouses, doctors have to make on a daily basis. I made this decision based on one simple fact. ‘The Little One’ knew that he had cancer, and he knew that it was serious; I also knew that he was going to do anything he possibly could to beat the diagnosis. Why train the mind to think something is going to happen, when we really do not know when is going to happen?

This week, ‘The Little One’ will visit his oncologist for a quarterly check-up. I am confident that the oncologist will be pleased and say again….”Bern, you look great,” which ‘The Little One will reply, “ Yes, I’ve got a new embalmer!” Laughter is the best medicine, even in its most trying times.

What is left of the tumor is dormant and for all intent and purposes, his cancer is in remission. From the first day, we have taken this day by day. What else is there to do? Every case is different. My decision to withhold this information from “The Little One” was not an easy decision to make. After revealing this decision to him, he was glad not to know… even though he did know.

Photo Credit: Pinterest

In a sad, but beautiful twist of fate, ‘The Little One’s lifelong friend Jill has recently been diagnosed with cancer. Like our first report, Jill’s first report has us all concerned. What is beautiful about this is how ‘The Little One’  is able to transfer his experience of this insidious disease to Jill… to encourage her, to console her, to simply be there for her.  This gift of encouragement is one of the best gifts that one can give to a friend.

We send out a big hug and hello to our friend Doug in STL who is going through treatments at this time.  We are thinking of you Doug!

 Remember…We might have cancer…But cancer does not have us.

Photo Credit: The Purple Jacket

As you have noticed, we have taken a break from Blogging on ‘The Purple Jacket’ for the past few weeks.  As I transition into a new job and into a new academic program at Gonzaga University, “The Purple Jacket” will be taking on a new look too.   We will continue to provide you updates on ‘The Little One’ as this blog is really dedicated to him.  Yet in future weeks, we will expand the content of the blog to discuss the effects of Caregiving on the caregiver.   What is often overlooked in Caregiving is the importance of the health of the caregiver.  Personally, I have had to take a long hard look at this issue, and have come to the conclusion  that the best way to deal with this issue is to blog about it.  In essence, there is a real purple jacket.  I just can’t fit into it any longer.   We have to explore the issue of what it means to be a healthy caregiver!

Photo Credit: Caregiving.com

I am BIG fan of Caregiving.com  The community on Caregiving.com is just tremendous and Denise Brown who is the proprietor of this wonderful website, is an expert in the field of Caregiving. You want to be sure to check out Caregiving.com and become a part of the Caregiving family too!  Follow Denise on Twitter @caregiving and on Blog Talk Radio, too!

WE will also be exploring a new communication theory entitled ‘The Theory of Empathic Communication” in an upcoming blog posts, as well as our Phone A Friend program at SunServe Social Services.  We will also be chatting about a great program at the Pride Center in Fort Lauderdale, Coffee & Conversation which takes place every Tuesday morning at 11:00 am in Wilton Manors, Florida.   I will also have some speaking engagements to announce in August and September.  Coming soon,  ‘The Bow-Tie-Guy’ on Blog Talk Radio!  

Photo Credit: The Bow-Tie-Guy

6 Comments

Filed under Caregiving, The Purple Jacket

The Bow-Tie-Guy Tip of the Day:


Amplify the Positive! 

Photo Credit: Free Digital Photos

Leave a comment

Filed under Caregiving

The Bow-Tie-Guy Tip of the Day:


 Live your Life, not your Age! 

Photo Credit: Free Digital Photos

Leave a comment

Filed under Caregiving

The Bow-Tie-Guy Tip of the Day:


Where would we be without Support?  

Leave a comment

Filed under Caregiving