Tag Archives: Caregiver

Moving Forward


With no test scheduled until the middle of March, we look ahead thankful for the break from the radiation and chemotherapy, yet concerned as we move forward. Cancer takes so much out of everyone; its not a disease that leaves quietly, but rather lingers on in our mist.  Treatments are a necessity; aftereffects are unknown.

“The Little One” reminds me on a day to day basis  that he has lost a step or two.  Not wanting to admit it, but I see it too. We hold out so much hope for a full recovery, and in our mind and in our hearts, we know we have been given extended stay.  Why not make the most of it, even if its just a step or two slower?

Giving up control is such a hard thing to do.  (Where is that Tumor Extractor when you need it!)  One of the hardest things to do as a Caregiver is to give up control, but this is an essential element of being a caregiver.  We want to take control of the disease, take control of the loved one, take control of everything in our paths in order to provide the utmost care.  Yet it is when we give up control that we really care: What is here today, is gone tomorrow.  Yet in our thoughts and in our prayers, we only want to do what is best.

“The Little One” knows that he has lost a step or two; who wouldn’t after having 30 radiation treatments to go along with 6 sessions of Chemotherapy? I see it, too…but that does not detour us.  There will be good days, there will be bad days and there will be more days of beauty.  We can only go by how the day takes us, which in turn means giving up control and being free from what binds us!

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A Day of Beauty


With so much seriousness over the past few months dealing with Cancer, it is time to relax, reflect and be thankful for our time together.

So what does one do with ‘A Day of Beauty’….

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Beauty is in the eye of the beholder; we are thankful for our time together. No matter what the future has in store for us, we will forge ahead. Because in our heart and in our mind, everyday is a day of beauty!

Happy New Year from ‘The Purple Jacket’

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A Night with Opera St. Louis


Wednesday night we had the pleasure of listening to a couple of performers from Opera St. Louis. With ‘The Little One’ being a big fan of Opera, I knew we were in for quite an enjoyable evening.

As we were preparing for the festivities, I heard the ‘The Little One’ say in the distance…”well, this should be interesting”. Curious, I peaked in to the bedroom to see what he was he was talking about; his dress pants!

Once I saw him holding up the pair of pants, I knew exactly his concern. With a weight loss of over 35 lbs, we both knew these dress pants were not going to hug the hips.

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Thank goodness for suspenders!

When he put the pants on, we were both amazed at how much weight he has lost. He has easily lost four pants sizes! (I now need to do the same)

While his weight loss is good for his overall health, they way it has happen is certainly not one of those fad diets you see on TV!

The second PET scan has now been scheduled for December 12 in Fort Lauderdale; we will be heading south in just a little more than a week. We are anxious to see where we stand with the tumor and the only way for that to happen is to conduct the follow-up PET scan.

While the PET scan might give us the physical facts of the tumor; we will not be held back by the results. We are moving ahead with our heads held high.

You see, we might have cancer… But cancer does not have us! We are putting money away for a trip to Paris in Spring of 2012. I have never been, ‘The Little One’ has been three times!

Live each day like it is your last; care for those who are always by your side!

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November – National Care Givers Month


November is National Care Givers Month!

 We all know some one who is a caregiver, whether we find ourselves taking care of a loved one, know someone who takes care of a loved one, or even if we have heard an inspritational story on the news.

 In today’s busy world it can be easy to forget to show our appreciation to those who make a difference in our lives and the lives of others everyday. As we prepare to celebrate another Thanksgiving, let us give thanks to those who choose to spend their days serving others.

“Appreciation is the highest form of prayer, for it acknowledges the presence of good wherever you shine the light of your thankful thoughts.”
Alan Cohen

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The Tumor Extractor just $19.99


We have all seen those gadget that they sell on TV… It seems that all those gadgets sell for just $19.99 and better yet, all these gadgets are a must need for every household!

As I was preparing waffles for breakfast this morning I came across a new product called ‘The Tumor Extractor’

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Simply apply to the area of the tumor and all your troubles will be gone!

‘The Little One’ and I enjoyed a great laugh when I presented him with our new ‘Tumor Extractor’ for just $19.99 and just think…we only spent $10,000 on chemo and radiation! (Of course Monty Python’s Spamalot is playing in the background.) Every cancer patient and caregiver wishes there was something as quick and simple as ‘The Tumor Extractor’ to remove cancer from the body. But what is available to every cancer patient and caregiver is hope, love, support and humor. That is the true Cancer Extractor!

While Each one of us deals with the realty of cancer in a different way, we want to look on the bright side of life!
Yesterday is gone, today is here, not sure about tomorrow. Today we are enjoying our new ‘Tumor Extractor’ even if it will only help us make waffles.

It is hope that let us stand problems…but our beliefs let us finds solutions.

Happy Sunday! And remember… ‘Always look on the bright side of life!’

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In Medicine…East vs. West


As ‘The Little One’ continues to show signs of regaining his strength, we decided to take a detour and visit Dr. Mo this past Saturday.  Who is Dr. Mo you might ask…well Dr. Mo specializes in eastern medicine, specifically acupuncture.   We visited Dr. Mo earlier this year for treatments of sciatica and after four treatments we were pleasantly surprised at the relief ‘The Little One’ received from the acupuncture.   ‘Why not consult with Dr. MO’, we both asked each other this past week. 

While we will not know for a least another month what effect the radiation and chemotherapy has had on the tumor; we know very well that the chemo and radiation has ravished his body, zapped his strength and pretty much turned his life upside down.  Traditional medicine, while proper seems to have a wait and see attitude during this ‘down time’ before the next PET scan.

This attitude was confirmed during my phone consultations with the oncologist and primary care doctor this past week.  The nurse for the oncologist told me over the phone that ‘The doctor normally does not call patients back’…my response to that was simply…’That is odd, don’t you think?’   The primary care doctor referred me back to the oncologist…(they share the same office!).   My response to the primary care doctor was just a tad more direct…”In the patients best interest, one of you needs to be taking the lead in the decision-making.’

That comment rang a bell with me.  The ones who need to take the lead in the decision making are the patient and the caregiver.  While we are all striving for excellency, when it comes right down to it, we are the captions of our own ship.  Authority while respected, is not all-knowing.  There is a reason that medicine is a science.  There are no two bodies alike!

We both know what we are facing with this disease, sometimes you just have to think outside the box.

What do we expect to gain from Dr. MO?  Alternatives, options, hope…just as we expected to gain from the traditional forms of medicine.  Yet not to pursue all options available to us, does not give life a chance.   We both saw the results of the acupuncture in March and April of this past year…why not give it a chance? 

In life…there are plenty alternatives, there are plenty of options, and there is plenty of hope…we just have to engage these options ourselves….rather than waiting for that call to be returned.

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Meet Me In St Louie, Louie…


The ‘Little One’ heads to his final radiation treatment this morning. We are both thankful this chapter has come to an end. Yet in retrospect, there has been some bonding with the other patients who are scheduled at or around the same time.

Whether it is a gentle hello, a wave of the hand or just a simple jester, there is a bond with these patients that in undeniable. It has been an honer to be in their presence.

We will be motoring up the road today to St Louis. We are looking forward to the trip as a change of scenery will do the Little One some good!

Meet me in St Louie, St. Louie!

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