Tag Archives: love

The Bow-Tie-Guy Tip of the Day:


Never …just blend in!

Photo Credit: The Purple Jacket

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The Bow Tie Guy Tip of the Day:


Nothing breeds success like failure! 

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‘IN THESE SHOES?’


If you are a fan of Bette Midler you are probably aware of one of her (many) popular songs, one in particular is a favorite of mine…‘In These Shoes’. The lyrics are wonderful, funny and maybe a tad over the top for some. This favorite song of mine popped up yesterday while ‘The Little One’ was being fitted for diabetic shoes at Hanger Prosthetic and Orthotics. (You might be familiar with the movie Dolphin Tail, the good folks at Hanger worked on this project, their work is quite moving as is this movie) They are a great company!

Having  experience in this procedure with Fr. Orlando a number of years ago, I have been gently bugging ‘The Little One’ to obtain a referral from his PCP for a pair of these diabetic and therapeutic shoes. Finally, our day for our custom fitting was Wednesday!

You might ask…’Why these shoes? It’s no secret that diabetics have an increased risk of developing foot problems. These custom-made therapeutic shoes offer support, relieve stress and strain on the foot and back while providing a better ‘walk’.  Watching “The Little One” walk over the past few months, I have grown concern with his balance and his foot ware. Asking him to change shoes, well…uh…hmm…change can be difficult, even with shoes.  (While the closet is full of shoes, some of them should really stay in the closet!)   Having these custom fitted shoes will only enhance his walking, while aiding him with better balance. Better balance means less chance of a fall.  I think you get the picture…

photo credit: Chris MacLellan

When the attendant noticed the shoes ‘The Little One’ was wearing…she said out loud…’You’re walking IN THESE SHOES’.  ———————————————————>

It was a jolt to the ‘Imelda Marcos‘ of South Florida; I mean these shoes are at least 20 years old!  Twenty years ago, ‘The Little One’ was stronger and could manage shoes like this which offered little or no support…but ohhhhh…forget safety, they do look marvelous!

Since we’ve been back in Florida, ‘The Little One’ has surprised me from time to time with ‘treasures’ like these shoes, which he has had in his possession for a long period of time.  Many of these ‘surprises’ have a story to them, or are connected to his partner Herman of 43 years.    It’s hard to just walk away from these treasures…. no matter how mundane I might think they might be.

 As the conversation with orthopedic professional continued, it was easier for ‘The Little One’ to hear and accept what he needed in foot wear for his own safety from a professional.  Always mindful of his safety and what is best for him, I also have to be careful not to over step my boundaries and ‘demand’ that he do something that he may not want to do.    You know the phrase…’you pick your battles.’ I knew that this  was one battle that would be won by the professional. (When it comes to personal safety, sometimes you do have to take a stand.)

As a caregiver, it is important for me to know as many resources as possible, yet we can’t know them all.  Having previous experience to build on, I was able to tell ‘The Little One’ that diabetic/therapeutic shoes are the only foot-ware covered by medicare   (You will need a referral from your PCP)  That opened the door for the referral and hence, he will have new shoes next week.  (To show his need, the orthopedic professional moved up his second appointment to next week because of his critical need for these shoes!)

The lesson of this story for me has to do more with how we see things that are important to us.  Shoes, trinkets, all of the collectibles, have a particular meaning to them.  We all have something in our possession that we can identify that has meaning to it.    We get attached to items for different reasons that are very personal, yet until you are IN THESE SHOES, who is it for us to tell someone to give up something that has meaning to it?

 One of the lyrics in Bette’s song is…”In these shoes? Oh, I doubt you’d survive.”  Bette is so right…In these shoes,  I doubt “The Little One” would he would have survived.  We can all survive and prosper when we are mindful of each other needs, react accordingly to those needs and care for those who cannot care for themselves.

When we care like that…we  can care in ‘ANY SHOES’

You see…we might have cancer; but cancer does not have us! 

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American Society on Aging


I am pleased to share with you my article that was published today with the American Society on Aging. There are five wonderful articles, along with an introduction from Holly Deni who helped collaborate this project;  Finding Pride in Caring: LGBT caregivers answer the call from the community  This link will take you to Holly’s introduction where you can see all the wonderful articles written by LGBT care givers. It is an honor to be associated with these fine people! ENJOY

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Transitions


As we make the transition and return to Florida full-time for our next round of test and treatments, this is what we think about Cancer!

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You see, while we have Cancer; Cancer does not have us.

See you in Florida… Thanks for reading The Purple Jacket!

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The Heart of Caregiving


Cancer came upon us in one full swoop.  Often times, we get into situations that are beyond our control…’things’ just happen, like Cancer.  Care-givers are often thrown into their roles on a moments notice.  Cancer or other debilitating illnesses do not arrive by invitation, they just show up at your door unannounced. When you think about it, no one wants their loved one to be ill, no one wants to see their parent, spouse, child or best friend ill.  Unfortunately, illness is a part of life that we all have to deal with.  At a moments notice you become a care-giver, without any warning, without any preparation, without any idea of what you are supposed to do next.  All of a sudden you are responsible for someones well-being because of their illness.    Care-giving is a tremendous, rewarding  and sometimes a frustrating experience, yet care-giving has meaning to it that is beyond approach.

While I do not often revert  to my theological training, I am reminded of the Corporal Works of Mercy which are, simply stated, the seven practices of charity towards our neighbor…

1. Feed the hungry: 2. Give drink to the thirsty: 3. Clothe the naked: 4. Shelter the homeless: 5. Visit the sick: 6.Visit those in prison: 7. Bury the dead.

I see the Corporal Works of Mercy as a job descriptions for caregivers.  There is an art in accomplishing these task and  and in accomplishing these tasks, one has to have a caring heart.  Care-giving is not a role for the faint of heart, it is not a role suited for everyone.  Just as we all have different talents, skills and life avocations, being a care-giver is no different.  The tryouts are usually on the fly and without much preparation, however care-giving is bound to have a profound effect on all involved in the experience.

One of the most important components of being a care-giver is that you  have a caring heart.  Sound kind of silly doesn’t it?  But it is true!   How many other ‘jobs’ monitor the feelings inside your heart?  Being a care-giver is not a ‘job’ to those who do it, it’s an avocation.    If  you are not truly concerned about the person you are caring for, then it might be a good idea for you  to take a close look at what you are doing for that person. There is a high rate of burn out in care-giving;  care-giving is an  intense experience where you often surrender your self for the needs of someone else.  Finding that happy balance is truly a slippery slope. The art of care-giving always starts with a feeling from inside heart.

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A Word from The Little One


Tonight at dinner we were chatting about our blog as I have been asked to write an article for a national publication on Care-Givers and Care-Giving in April (more to come on that exciting news).  The Little One wanted me to share these words with you this evening…

“Thank you for reading ‘The Purple Jacket” I hope that in reading Chris’ account of my fight with esophagus cancer  that you don’t give up hope, share in the joy and comfort that you can reap from this wonderful thing, a dedicated caregiver. My siblings have pass on; not only is he my caregiver, he is my partner I would be all alone with out his dedication and love.  Even though cancer has struck me, for the second time, I find joy and compassion being with my partner and caregiver.  Go through life with a strong will, even at those darkest times, there is a light at the end of the tunnel.   Bernard Richard Schiffer 2.5.2012.

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‘The Extreme Patient’


While ‘The Little One’ continues to show marked improvement while recovering from the trauma of chemotherapy and radiation, we move on to another calamity called sciatica. Anyone who has had back pain knows how debilitating it can be, yet to alleviate the pain we must be open to new modes of treatment.

On Wednesday we motored to InMotion Health and Wellness for a visit with Dr. Greg Neff to see if Chiropractic help was in order for his current ailment.  The ‘Extreme Patient’ as we see in this photo opportunity for his building fan club,  (yes KJ, the only thing missing is the Tiara!) decided to ride the wave and try out this new treatment.   Of course there was the debate…”This is not going to work”…’Why are we wasting our time”… etc, etc, etc.  While I try not to roll my eyes (at least noticeably  to others), we just continue on with our friendly banter because that is the way we communicate.

Communication is a funny thing; just like relationships.  It’s funny how the two go hand in hand.  Relationships are built on strong communication and trust.    Yet in communicating his apprehension to Chiropractic care, I knew that this was simply a way for him to let off some frustration.    Sometimes, you just have to let go!

As caregivers, we have to be mindful that while we are there in a supporting role, it’s not our body that  is going through the treatments.   How much can the mind and body take in such a short period of time?  I think that really depends on the person and their ability to communicate their wants, needs and desires.  And in the supporting role, the caregiver has to be mindful that what you might want for your loved one, may not be what they want; what a slippery slope!

It is through honest communication,  built on trust and love that truly reveals the essence of a relationship.  We’re glad that we have (and share) this trust and love as we continue on this journey to better health and happiness.

 

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“Because They Are Nice”


As we continue to recover from the chemo and radiation therapy, we often reflect on ‘how things used to be’.  Always willing to be on the go, ‘The Little One’ has taken a wait and see attitude on many of the things he used to like to do.   While there has been steady progress in his overall health these past few weeks, we are really on a ‘day-to-day event planner schedule.

Crowds has never been his thing, even when feeling good.  So approaching his 81st birthday, I was puzzled at what might we do?  And…if we would be able to do it!  With a small gathering in Brentwood, ‘The Little One” was greeted by ‘The Sisters’ and a couple of friends from our Tuesday night group at Pietro’s.   (of course, one sister forgot to make it)

What struck me about the evening was not so much about the significance of the day, but rather the engagement in conversation of “The Little One.”    I will be the first one to admit that I can be a little worry wort and always have one eye out for him, yet on this night I glad that I did because I saw a person return to life in a way that was good to see.

You see, cancer can take the root out of your being. Cancer drains your energy, it drains your confidence and it drains your piece of mind.  It is easy to understand why so many people give up, that is why outside support is so important in the healing process.  What I saw on Saturday was a man who enjoyed talking about topics that were important to him, all removed from the thought of having cancer.  When the topic turned to the Virgin Islands, well…he was off and running. You can’t go through 81 years of life without having special memories of people, places and things.   It was a joy to watch him revel in the conversation.

When we talked about his ‘engagement’ at the gathering, I mentioned to him that it was great to see him involved in conversation that was important to him and completely outside to scope of health, cancer and the rest.  He too, acknowledged that it was a great experience, with lots of fun  and easy to talk to ‘because they are so nice.’

What “The Little One” learned on this evening is that its good for him to be in conversation on topics that he enjoys as it takes his mind of the health concerns.  What I learned is that I cannot be mother hen, worried about every step in the road.   We live day by day.   Often times we go through life with so many misunderstandings, so many unresolved conflicts and so many worries that seem unbearable.

Yet when you think about it, it is easier to get through the day simply when people are nice!

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Moving Forward


With no test scheduled until the middle of March, we look ahead thankful for the break from the radiation and chemotherapy, yet concerned as we move forward. Cancer takes so much out of everyone; its not a disease that leaves quietly, but rather lingers on in our mist.  Treatments are a necessity; aftereffects are unknown.

“The Little One” reminds me on a day to day basis  that he has lost a step or two.  Not wanting to admit it, but I see it too. We hold out so much hope for a full recovery, and in our mind and in our hearts, we know we have been given extended stay.  Why not make the most of it, even if its just a step or two slower?

Giving up control is such a hard thing to do.  (Where is that Tumor Extractor when you need it!)  One of the hardest things to do as a Caregiver is to give up control, but this is an essential element of being a caregiver.  We want to take control of the disease, take control of the loved one, take control of everything in our paths in order to provide the utmost care.  Yet it is when we give up control that we really care: What is here today, is gone tomorrow.  Yet in our thoughts and in our prayers, we only want to do what is best.

“The Little One” knows that he has lost a step or two; who wouldn’t after having 30 radiation treatments to go along with 6 sessions of Chemotherapy? I see it, too…but that does not detour us.  There will be good days, there will be bad days and there will be more days of beauty.  We can only go by how the day takes us, which in turn means giving up control and being free from what binds us!

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