Happy Thanks-Caregiving


You must do things you think you cannot do.  Eleanor Roosevelt

ViolenMan

 We are Thankful for those who are Caregivers today:

We are Thankful for those who will be Caregivers tomorrow:

We are especially Thankful for those Caregivers whose journey has past. 

We share  in our Caregiving Journey in a special way, knowing that while our Caregiving roads might be different, our paths are filled with comfort and joy from the support we receive from each other!  

Thank You for being a part of our Caregiving Journey.  

From our Caregiving Journey to yoursHappy Thanks-Caregiving         

The Bow Tie Guys!

You see…We Might Have Cancer...But Cancer Does Not Have Us! 

cjmbtr (1)

‘Be A Healthy Caregiver’ is on hiatus until January 2014 while ‘TLO’ is undergoing radiation treatments.  To listen to  archived episodes of our show, simply click here! 

Christopher MacLellan is a Certified Senior Advisor, the coordinator of senior services for SunServe Social Services and the host of ‘Be A Healthy Caregiver’ on Blog Talk Radio.  ©ThePurpleJacket

3 Comments

Filed under Caregiving, The Purple Jacket

Whose Journey Is It?


 The longest journey you’ll ever take is from the head to the heart. Regina Rosenthal 

As we come to the end of the 5th week of palliative radiation treatments, the word ‘journey’ keeps resonating with me.   Our recent journey with Hospice of Broward County proved to20131023-101238.jpg be bumpy; we’ve moved on from that  bumpy road and have brought in new ‘friends’ to help us continue on with our journey, we’re hoping for smooth sailing as we forge ahead on our ‘new’ path.

There are so many components when planning a journey.  GPS devices have become the fad; some might even spread out an old fashion map on their kitchen table to highlight the path of the journey.  Planning a Caregiving journey is a little more difficult than planning a road trip, or is it? 

ID-10030063When we are planning a journey, there is usually someone who is in charge, a leader, guide, pilot, etc.  All those fancy electronic devices that help plan a journey, goes for not if there is not a leader orchestrating the plan.  The lesson that I’ve learned during our recent Caregiving journey is that I’m the co-pilot, ‘TLO’ is the pilot. ‘TLO’ is the one going through the radiation treatments, ‘TLO’ is the one taking the medicine…’TLO’ is the one that has the cancer inside of his body.  For me to assume that I know how he feels, pales in comparison to his reality of his health and how he feels.

There is no doubt that we are both on this journey together; we share in the emotions, we share in the joy and we share in the sorrow during this journey.  We both know that there is a fork in the road that lies ahead of us that no Map or GPS will detect. We also know  that trying to dodge that fork in the road will be  unavoidable.    The ‘funny’  thing about that fork in the road is that at some point in our life, each one of us will find its path and end up at the same destination.  As Caregivers, we try to pave the road so that when that fork does arrive, there is a gentle breeze at our back.  Caregiving is often filled with so many raw emotions that sometimes we forget that we are on a beautiful journey together.    That’s why sometimes the longest journey that we will ever take is from the head to ID-10047257the heart.

While we know that fork in the road will take us on a different path, we understand that at some point, we will end up at the same destination. For now,  we will continue on our journey together as pilot and copilot creating, and enjoy, that  gentle breeze at our back that no map or GPS device can locate for us.

Thank You for being our copilot’s; we are pleased that you are on this journey with us helping us create that gentle breeze at our back!

You see…We might have cancer, but Cancer does not have us! 

Christopher MacLellan is a Certified Senior Advisor, the coordinator of senior services for SunServe Social Services and the host of ‘Be A Healthy Caregiver’ on Blog Talk Radio.  ©ThePurpleJacket

cjmbtr (1)

‘Be A Healthy Caregiver’ is on hiatus until January 2014 while ‘TLO’ is undergoing radiation treatments.  To listen to  archived episodes of our show, simply click here! 

 Related articles

2 Comments

Filed under Caregiving, The Purple Jacket

Whose Journey Is It?


 The longest journey you’ll ever take is from the head to the heart. Regina Rosenthal 

As we come to the end of the 5th week of palliative radiation treatments, the word ‘journey’ keeps resonating with me.   Our recent journey with Hospice of Broward County proved to20131023-101238.jpg be bumpy; we’ve moved on from that  bumpy road and have brought in new ‘friends’ to help us continue on with our journey, we’re hoping for smooth sailing as we forge ahead on our ‘new’ path.

There are so many components when planning a journey.  GPS devices have become the fad; some might even spread out an old fashion map on their kitchen table to highlight the path of the journey.  Planning a Caregiving journey is a little more difficult than planning a road trip, or is it? 

ID-10030063When we are planning a journey, there is usually someone who is in charge, a leader, guide, pilot, etc.  All those fancy electronic devices that help plan a journey, goes for not if there is not a leader orchestrating the plan.  The lesson that I’ve learned during our recent Caregiving journey is that I’m the co-pilot, ‘TLO’ is the pilot. ‘TLO’ is the one going through the radiation treatments, ‘TLO’ is the one taking the medicine…’TLO’ is the one that has the cancer inside of his body.  For me to assume that I know how he feels, pales in comparison to his reality of his health and how he feels.

There is no doubt that we are both on this journey together; we share in the emotions, we share in the joy and we share in the sorrow during this journey.  We both know that there is a fork in the road that lies ahead of us that no Map or GPS will detect. We also know  that trying to dodge that fork in the road will be  unavoidable.    The ‘funny’  thing about that fork in the road is that at some point in our life, each one of us will find its path and end up at the same destination.  As Caregivers, we try to pave the road so that when that fork does arrive, there is a gentle breeze at our back.  Caregiving is often filled with so many raw emotions that sometimes we forget that we are on a beautiful journey together.    That’s why sometimes the longest journey that we will ever take is from the head to ID-10047257the heart.

While we know that the fork in the road will take us on a different path, we understand that at some point we will end up at the same destination, just at different times. For now,  we will continue on our journey together as pilot and copilot creating, and enjoy, that  gentle breeze at our back that no map or GPS device can locate for us.

Thank You for being our copilot’s; we are pleased that you are on this journey with us helping us create that gentle breeze at our back!

You see…We might have cancer, but Cancer does not have us! 

Christopher MacLellan is a Certified Senior Advisor, the coordinator of senior services for SunServe Social Services and the host of ‘Be A Healthy Caregiver’ on Blog Talk Radio.  ©ThePurpleJacket

cjmbtr (1)

‘Be A Healthy Caregiver’ is on hiatus until January 2014 while ‘TLO’ is undergoing radiation treatments.  To listen to  archived episodes of our show, simply click here! 

 Related articles

9 Comments

Filed under Caregiving, The Purple Jacket

Thursday’s are always ‘Hug A Caregiver Day!’


Caregiving can sometimes be hard:

But Hugging a Caregiver is easy!

thursdays

Listen to: 

cjmbtr (1)

‘”Be A Healthy Caregiver” is on hiatus while “TLO” is undergoing radiation treatments.  We plan on being back on the Air in Januray!

Can’t listen live…NO WORRIES!

All of our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here! 

 

1 Comment

Filed under Caregiving, The Purple Jacket

That’s What Caregivers Do!


Presidential Proclamation — November is National Family Caregivers Month!

BHC_fb

 I am proud to be one of the over 60 million Caregivers in the United States today.  Being a Caregiver can be, and often is challenging… But also so very  rewarding.  I believe that to be entrusted with the care of another human being is one of the greatest honors that can be bestowed on another person.  Those long sleepless nights, those challenging trips to the doctor and hospitals, those times when you have to intercede, educated and advocate come full circle when your Caree looks at you and  simply says…”Thank You for what you do for me.”  

I am also mindful of those family Caregivers who are never thanked, never appreciated and overworked.  If it means anything to you, from one Caregiver to another, I offer my thanks and appreciation to you because… That’s what Caregivers do! 

Caregiving is not a role that is often chosen and Caregiving is not for everyone.  Caregivers come in many different shapes, sizes, philosophies and cultures:  Caregiving and Caregivers are diverse. While our Caregiving  journeys might be different, Caregivers have this innate ability to understand each other,  to care for each other, to be there for each other, because…  That’s What Caregivers do!

Through the wonders of the internet, my Caregiving journey has been enriched by the countless number of people I have met along the way.  Each one of you have inspired me, supported me and have been there for me because… That’s what Caregivers do! 

A special ‘thank you’ to Author, Caregiving Coach, Speaker and owner at Caregiving.com Denise Brown and my extended family at  Caregiving.com  for your support. You opened up your ‘home’ to us and made us feel welcome from the start because…  That’s what Caregivers do!

We know that our current Caregiving journey is going to be filled with a few bumps and bruises along the way; Cancer has a way of doing that.  Yet we know those bumps and bruises will be a tad softer because of our extended Caregiving family we’ve met along the way because…That’s what Caregivers do!.  

TLO

Caregivers: Thank You for all you do from Bernard Richard Schiffer…’The Little One’

To all Caregivers, I share this simple smile from a very special fellow whose courage is unbounded, as a way of thanking you for all that you do, because…That’s what Caregivers do! 

3 Comments

Filed under Caregiving, The Purple Jacket

Thursday are always ‘Hug A Caregiver Day!’


Caregiving can sometimes be hard:

But Hugging a Caregiver is easy!

thursdays

Listen to: 

cjmbtr (1)

‘Be A Healthy Caregiver’ is on hiatus until December while the ‘TLO’ is undergoing radiation treatments for his cancer

Can’t listen live…NO WORRIES!

All of our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here! 

 

Leave a comment

Filed under Caregiving, The Purple Jacket

Eliminating A Health Care Provider


It’s not what you look at that matters, it’s what you see…Henry David Thoreau.

As you’ve heard me state many times before here on ‘The Purple Jacket,” one of the most important roles that  a Caregiver plays is that of an advocate.  Advocacy came in full force this week when we had to eliminate our choice for Hospice and seek other assistance for our current health care journey.

thumbsdownWhen we established services with Hospice, I had anticipated a fluid relationship that would be built on clear and consistent communication.  That has been far from our experience: I would wager that many of you are shocked by this revelation! From the start of our relationship with Hospice, I have coined Hospice as our ‘friends.’  It saddens me that our ‘friends’ were such a disappointment.

It’s difficult to put my finger on how this ‘friendship’ went sour, yet from theBWI_125sq onset of a bumpy  admission process, to the latest problem with a medication order, it became quite clear to me that ‘our friends’ do not seem to be able to communicate in a timely manner with their clients, nor work within a team of health care providers. Cancer is difficult enough, yet when “TLO” indicated that ‘our friends’ had become an “irritant,” I knew it was time to step in and eliminate them as a part of our care team.

I’m confident that any Caregiver and/or advocate would agree that what is most important for any health care team, is to work in unison, with one taking the lead role.  In the almost four weeks since we enlisted our ‘friends’ to be part of our team, their failure to communicate with other health care professionals on our team was of great concern to me.  Over the past two years since TLO was originally diagnosed with esophageal cancer, we have had tremendous support from his primary care physician, Dr. Milica Starcevic, his oncologist, Dr. Luis Barraras and his cardiologist, Dr. Harold Altschuler. The support we have had from these fine physicians has been based  on clear and concise communication.  They share in the care plan for TLO and work happily within a team.   A major player in his care, our ‘friends’ at Hospice severely dropped the ball!

When we invited our ‘new friends’ into our home, we were thankful because we both knew that we could not do this alone.   We both felt that adding them to our team  would be of benefit, because when we looked at what our  new ‘friends’ could offer us, we were impressed.  But what really mattered was what we saw from our ‘friends’ that shaped our impression. 

I will continue to be a big supporter of Hospice because I believe in the mission of Hospice. But just like in any business, not all service providers are alike.  I do not hold any animosity toward our former ‘friends’,  but I do hope that they have learned something from our experience:  I know that I have!  I think Henry David Thoreau said it correctly: It’s not what you look at that matters, it’s what you see.

You see…We Might Have Cancer, But Cancer Does Not Have Us! 

2 Comments

Filed under Caregiving, The Purple Jacket

Eliminating A Health Care Provider


It’s not what you look at that matters, it’s what you see…Henry David Thoreau.

As you’ve heard me state many times before here on ‘The Purple Jacket,” one of the most important roles that  a Caregiver plays is that of an advocate.  Advocacy came in full force this week when we had to eliminate our choice for Hospice and seek other assistance for our current health care journey.

thumbsdownWhen we established services with Hospice, I had anticipated a fluid relationship that would be built on clear and consistent communication.  That has been far from our experience: I would wager that many of you are shocked by this revelation! From the start of our relationship with Hospice, I have coined Hospice as our ‘friends.’  It saddens me that our ‘friends’ were such a disappointment.

It’s difficult to put my finger on how this ‘friendship’ went sour, yet from theBWI_125sq onset of a bumpy  admission process, to the latest problem with a medication order, it became quite clear to me that ‘our friends’ do not seem to be able to communicate in a timely manner with their clients, nor work within a team of health care providers. Cancer is difficult enough, yet when “TLO” indicated that ‘our friends’ had become an “irritant,” I knew it was time to step in and eliminate them as a part of our care team.

I’m confident that any Caregiver and/or advocate would agree that what is most important for any health care team, is to work in unison, with one taking the lead role.  In the almost four weeks since we enlisted our ‘friends’ to be part of our team, their failure to communicate with other health care professionals on our team was of great concern to me.  Over the past two years since TLO was originally diagnosed with esophageal cancer, we have had tremendous support from his primary care physician, Dr. Milica Starcevic, his oncologist, Dr. Luis Barraras and his cardiologist, Dr. Harold Altschuler. The support we have had from these fine physicians has been based  on clear and concise communication.  They share in the care plan for TLO and work happily within a team.   A major player in his care, our ‘friends’ at Hospice severely dropped the ball!

When we invited our ‘new friends’ into our home, we were thankful because we both knew that we could not do this alone.   We both felt that adding them to our team  would be of benefit, because when we looked at what our  new ‘friends’ could offer us, we were impressed.  But what really mattered was what we saw from our ‘friends’ that shaped our impression. 

I will continue to be a big supporter of Hospice because I believe in the mission of Hospice. But just like in any business, not all service providers are alike.  I do not hold any animosity toward our former ‘friends’,  but I do hope that they have learned something from our experience:  I know that I have!  I think Henry David Thoreau said it correctly: It’s not what you look at that matters, it’s what you see.

You see…We Might Have Cancer, But Cancer Does Not Have Us! 

4 Comments

Filed under Caregiving, The Purple Jacket

Thursday’s are always ‘Hug A Caregiver Day!’


Caregiving can sometimes be hard:

But Hugging a Caregiver is easy!

thursdays

Listen to: 

cjmbtr (1)

‘”Be A Healthy Caregiver” is on hiatus while “TLO” is undergoing radiation treatments.  We plan on being back on the Air in December!

Can’t listen live…NO WORRIES!

All of our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here! 

2 Comments

Filed under Caregiving, The Purple Jacket

The Foundation: The Honor Of Caregiving.


I have looked into your eyes with my eyes.  I have put my heart near your heart. Pope John XXIII

This Friday I will be presenting on Caregiving at SunServe’s Silver Serve Luncheon.   I’ve taken most of what I have written below from previous blog post on ‘The Purple Jacket’.  Your feedback is always welcomed! 

The Foundation: The Honor Of Caregiving

To be entrusted with the care of another human being is one of the greatest honors that can be bestowed on you.  Caregiving takes on meaning that is beyond reproach.  New parents have nine months to prepare for the responsibility of bringing a child into the world.  Doctors and nurses undergo years of rigorous training for the work that they do.   But CaregiversDavid Allen can find themselves thrust suddenly into roles, roles that they often do not choose, when called to care for a spouse, partner or loved one after a diagnosis or accident.

At a moment’s notice you become a Caregiver, without any warning, with any training, without any time to think things through.  You feel like you have no idea of what you are supposed to do, so you do your best as you follow your instincts and common sense.  You embrace the new reality…You simply care for the one you love.

When you become a Caregiver for your spouse, partner, significant other,   a new and uncharted realm opens up.  Two distinct relationships must now be blended into one.   The familiar partner from the past remains and is always present. But now there is someone different on the scene – someone with a significant illness.

Suddenly, two people sharing a life together will face challenges that cannot  be left unattended?  A whole set of new and intense emotions are likely to intrude on the relationship.  Worry, detachment, mortality, anger, fear of abandonment and having to live life alone,  begin to intertwine with the idiosyncrasies of your personal dynamics.  These gut wrenching emotions can lurk in a caregiver’s mind when faced with a life-and-relationship-altering illness with your life partner.

Caregiving is an intense experience that asks you to surrender yourself to the needs of someone else.  Often times, you have to give up things that you love, in order to care for the one you love.  Even though it might feel like a hardship, you make the choice, you make the choice because you know that it is what love and commitment is all about.  Yet it is not that simple, because Caregiving can be an emotional, physical, and interpersonal roller coaster that is both tremendously rewarding and frustrating.   These emotions can surely test even the best communication and trust in a relationship.

The common denominator when blending a life partnership with Caregiving is communication.

Successful relationships are built on strong communication and trust.  It is throughcaring hands honest communication that the true essence of a life partnership is revealed.  This does not change when you add the role of Caregiver to the mix.  Communication has to be the focal point for conveying the wants and needs of the one who is ill. This must be accomplished without losing one individuality, the life partnership, or the role of the Caregiver.  The term “delicate balance” takes on a whole new meaning

Frequent review and maintenance of clarity in your roles becomes crucial so that our judgment and decision-making skills are based on sound facts instead of raw emotions.  How much can the mind and body take when faced with so many changes in such period of time? I think that really depends on the couple’s ability to safely, clearly and honestly communicate their wants, needs and desires as indicated by the partners health needs first and the relationship second.

While I have no doubt that caring for your life partner will strengthen a relationship, Caregiving will change a relationship too!  It is not uncommon to see someone who has been firmly independent, become dependent in certain areas of life that have been difficult for them to accept. Stepping outside one’s comfort zone and asking for assistance with mundane everyday chores adds stress to both parties…That is undeniable!

Caregivers often become the voice for the one who is ill.  As Caregivers, we have to be mindful that we are in a supporting role.  First and foremost, Caregivers are advocates.   In our role as an advocate, we must remember that what we may want for our loved one may not necessarily be what the love on wants. What a slippery slope this becomes when caring for your life partner!

Life’s journeys are not often driven on smooth roads, but we can always hope for a gentle wind at our back. This gentle wind is always fortified by love, trust, commitment and communication.

…My your hills be always be slight and with a gentle wind at your back.

The Purple Jacket©

4 Comments

Filed under Caregiving, The Purple Jacket