Tag Archives: Caregiving

Caregiver Call In Show: How Do You Manage Long Distance Caregiving


Join Denise Brown from Caregiving.com and me tonight (September 25th) on Blog Talk Radio  for our monthly Caregiver Call-In Show for a conversation on long distance Caregiving: What’s it like to care for a family member from a distance?

Call us at (646) 652-4944 during tonight’s live 30-minute talk show which airs at 8 p.m. ET (7 p.m. CT, 6 p.m. MT, 5 p.m. PT). Share your answers to this question: What’s it like to care from a distance?  To join our chat room and to listen live, simply click here! 

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Join us in Chicago on December 2 and 3 for the First Annual National Caregiving Conference hosted by Denise Brown at Caregiving.com.   Complete a paid registration for our First Annual National Caregiving Conference on or before October 1, 2016, for a chance to win a free night (Friday, December 2, or Saturday, December 3, your choice) at the Chicago Marriott O’Hare.

To learn more about our conference click here! 

 

National Caregiving Conference Flyer

 

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Cancer, Caregiving and Advocacy


There is only one rule for being a good talker – learn to listen. Christopher Morley

Just this week I was asked to participate in a splendid article written by Bill Briggs of the Fred Hutchinson Cancer Research Center in Seattle about family caregivers “Finding their calling: Why  cancer caregivers join cause”.    Bill’s questions to me were thought provoking and struck me at my inner core and caused me to ask myself, “Why am I an advocate?”

After pondering Bill’s questions about caregivers finding their calling, I am reminded about a book my good friends  Joni Aldrich and Christopher Jerry wrote entitled Advocacy Heals UYes advocacy does heal us!

I do believe family caregivers find a calling through caregiving. Family caregivers have an innate ability to understand each other; to validate another caregiver’s feelings, just when the time is right.  That is why I believe it so important for every family caregiver, (as they feel comfortable)  to share their story, because when you have been in the caregiving trenches, you understand the agony… and the joy that caregiving brings to a relationshipSharing your caregiving experience is not only therapeutic, it helps current and future family caregivers cope and understand.  That’s why so many people find their calling after caregiving ends.  Through story telling, we impact the lives of others, while allowing advocacy to play a key role in our own healing when our loved one life transitions and caregiving ends.  (Thank You Joni and Chris!)

Family caregivers are changing the landscape in America.  Take for instance the working family caregiver who advocates for paid time off of work to care for their elderly parent or a disabled spouse.  This reminds me of the child care crisis in the 70’s when employers recognized that they were losing good employees because there was no legal protection in place for employees to take time off of work to care for a new born or sick child. By 1993 FLMA was enacted sick-leavewhile employers made adjustments in personnel policies to accommodate working parents.   Now changes in FLMA are being proposed through local, state and nation wide legislation to impact the lives of family caregivers.  This is happening not only because caregivers are sharing their stories, this is happening because family caregiving is taking place in every neighborhood, and in every boardroom. While in the midst of caregiving, we as family Caregivers do not recognize that we are the backbone of the American Health Care System.   Yet when caregiving ends, and we have time to reflect on our time spent as a caregiver, we come to recognize the important role we played as an advocate.   That is why we as caregivers, continue on with our mission; to share, to educate, and to heal.

Chris MacLellan became a full-time caregiver to his partner, Richard Schiffer, after he was diagnosed with esophageal cancer two years ago.

Even though Richard was 20+ years older than me, caregiving was the farthest thing on our mind when we started to develop our beautiful relationship.  Caregiving is not on anyone’s bucket list, Caregiving just happens.  The family caregiver is the unsung hero, and each an every one of us is an expectant caregiver.  I often relate caregivers to that of being a Servant Leader, putting the needs of someone else, first.  When Richard was diagnosed with esophageal  cancer, we  came up with a motto that got us through the day.  “We Might Have Cancer, But Cancer Never Has Us.”  Now, more than two years past his life transition, our motto is still the same, we just use it differently to positively impact the lives of other family caregivers.  Because that is what family caregivers do!

 Join us in Chicago for the 1st Annual National Caregiving Conference on December 2 & 3.  Register now by clicking here! 

Chris MacLellan is the author of “What’s The Deal with Caregiving?” and host of “Healing Ties” Radio. ©WholeCareNetwork

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Smart Home Technology that Connects Caregivers


Any sufficiently advanced technology is indistinguishable from magic. Arthur C. Clarke

The Purple Jacket is pleased to welcome back one of our favorite guest bloggers, Maria Alice

Caring for a loved one at home can be a challenge, but it’s also tremendously rewarding. Seniors are the fastest growing demographic in the United States, and the number of people who require care and monitoring at home continues to rise. Fortunately, modern technology now provides a broad assortment of tools that make in-home caregiving less stressful, more effective and safer than ever.

2016-07-28-1469685942-7343603-smarthomeThe Smart Home

For the aging or disabled, home automation offers great promise as a way to make their home safer, more accessible and better equipped to handle their specific needs. The modern smart home features a host of inter-connected appliances, fixtures and systems that are easily voice-controlled and able to be set to schedules, from locking doors at night to turning on lights and opening blinds in the morning.

Improving Quality of Life

The influx of smart products designed to aid seniors and disabled people is a significant step toward providing a higher quality of life. Accessible controls and automated scheduling mean more control over the local environment, granting more of the independence and agency that is so important to so many seniors. Caregivers, too, can enjoy the benefits of automation. The ability to automate many of the tasks that once demanded their attention leaves more time for caregivers to care for their loved ones, handle other tasks or even take a bit of personal time.

Improving Health Care

For caregivers, the health of their loved one is always a worry. Here, too, technology offers a variety of aids. Automated medication dispensers allow the elderly to handle their own medications without the typical risks of forgetting pills or taking the wrong dosages. Wearable technology, while still in the early stages of development, promises to provide a convenient and unobtrusive way for caregivers and even health professionals to monitor important vital signs and other health information.

For those caring for someone afflicted with Alzheimer’s, devices such as GPS-enabled trackers, door alarms and other monitors even offer the ability to send immediate alerts to a caregiver should their loved one attempt to leave the house after a set time.

Safety Through Technology

Security, too, is of paramount importance when it comes to the elderly. Remote monitoring allows caregivers to keep tabs on their loved one at any time, employing home security cameras not only for protection against outside threats but to allow monitoring from any location. Many of today’s security systems also feature monitoring for fire, carbon monoxide and other potential hazards.

Security can be further enhanced by installing door locks that can be automated or remotely controlled, implementing access codes to control who can enter the home and at what times and using a camera to safely identify visitors at the door.

The smart technology revolution is barely underway, yet it has already radically altered how caregivers protect and care for their loved ones. The elderly, ill or disabled finally have the tools to allow them more control, independence and accessibility to take on aspects of their lives that they were previously not able to manage, while technology also lessens the burden on caregivers. This benefits everyone, resulting in happier seniors, improved safety and quality of care and less stress for those who care for them.

Maria Alice is a freelance writer currently living in Chicago. She has a Bachelor of Arts degree in English from the University of Illinois at Chicago with a minor in Communication. She blogs about environmentally friendly tips, technological advancements, and healthy active lifestyles.

Join Us in Chicago on December 2 and 3 for the 1st Annual National Caregiving Conference hosted by Caregiving.com.  Registration is now open by clicking here!  .  Sponsorship  and Exhibitor opportunities available, contact me direct at Chris@thepurplejacket.com for details.  

For additional information on the conference click in the National Caregiving Conference click on the icons below or visit http://www.caregiving.com/national-caregiving-conference-hub/

National Caregiving Conference (1)

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Reimagining the Care Experience—For Our Loved Ones and Ourselves


They always say time changes things, but you actually have to change them yourself. Andy Warhol

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Mel Coppola

Mel Coppola is enriching the care experience and changing lives through advocacy, coaching and education .   On this episode of Healing Ties, Mel shares her wisdom on how we as caregivers can re-imagine the care experience, for our self, our care partner and our loved ones.

Listen in and learn how Mel Coppola is creating Healing Ties all around us!

 

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Visit Mel on line at http://www.heartsincare.com/

Join Us in Chicago on December 2 and 3 for the 1st Annual National Caregiving Conference hosted by Caregiving.com.  Registration is now open by clicking here!  .  Sponsorship  and Exhibitor opportunities available, contact me direct at Chris@thepurplejacket.com for details.  

For additional information on the conference click in the National Caregiving Conference click on the icons below or visit http://www.caregiving.com/national-caregiving-conference-hub/

National Caregiving Conference (1)

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Authors Spotlight: Kathryn Leigh Scott


The art of medicine consists in amusing the patient while nature cures the disease. Voltaire

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Kathryn Leigh Scott 

On this episode of Healing Ties Author’s Spotlight, we visit with Kathryn Leigh Scott who has written writes a compelling story about her husband’s diagnosis of Progressive Supranuclear Palsy (PSP) in her book,  LAST DANCE AT THE SAVOY.   

Progressive supranuclear palsy (PSP) is an uncommon brain disorder that affects movement, control of walking (gait) and balance, speech, swallowing, vision, mood and behavior, and thinking. The disease results from damage to nerve cells in the brain. EstimatesLastDanceAtTheSavoyCoverBorder vary, but only about three to six in every 100,000 people worldwide, or approximately 20,000 Americans, have PSP—making it much less common than Parkinson’s disease (another movement disorder in which an estimated 50,000 Americans are diagnosed each year). Symptoms of PSP begin on average after age 60, but may occur earlier. Men are affected more often than women.

Listen and  learn how Kathryn Leigh Scott is creating “Healing Ties” all around us!

Join Us in Chicago on December 2 and 3 for the 1st Annual National Caregiving Conference hosted by Caregiving.com.  Registration is now open by clicking here!  .  Sponsorship  and Exhibitor opportunities available, contact me direct at Chris@thepurplejacket.com for details.  

For additional information on the conference click in the National Caregiving Conference click on the icons below or visit  http://www.caregiving.com/national-caregiving-conference-hub/

National Caregiving Conference (1)

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Sunday August 28: Two Great Family Caregiver Events


 Join us on Sunday August 28th at 8 p.m. ET  on Blog Talk Radio for our monthly family caregiver call in show as I will be co-hosting with Denise Brown from Caregiving.com.  Our topic for Sunday’s show is “Dealing With The Daily Grind.”  To listen in and join our chat room log onto www.blogtalkradio.com/caregiving .    Guest call in line:  646.463.7486 to

FIRST CALLER RECEIVED A COPY OF MY BOOK: “What’s The Deal with Caregiving?” wpid-wp-1448113432219.jpeg

Twitter ChatAfter our call-is show is finished, take a half-hour break and jump over to Twitter for #carechat:  Sunday, August 28, at 9 p.m. ET (8 p.m. CT, 7 p.m. MT, 6 p.m. PT). Join us to connect and share with others who care for a family member or friend.

On Sunday, we’ll discuss how to balance work and caring for a family member friend. As part of the curriculum in order to graduate from Caregiving.com Certified Caregiving Consultant training program, I will lead the discussion on Sunday.  Interested in becoming a Certified Caregiving Consultant?  Final class of 2016 commences September 5th.

These questions will guide our discussion:

Q1.: What is your biggest obstacle balancing work and family caregiving?
Q2.: Why might it be beneficial to self-identify at work as a family caregiver?
Q3.: What are your fears in regards to self-identifying at work as a family caregiving?
Q4.: What is more difficult: Missing an important work meeting or an important doctors appointment. Why?
Q5.: How can your employer make your family caregiving journey easier for you?
Q6.: Is quitting your job the only solution?
Q7.: If I could change one thing about work and caregiving it would be…
Q8.: Why is a work-place caregiving support group important?

To take part in our chat, go to tweetchat.com, sign in with your Twitter credentials and follow our hashtag: #carechat.

Be sure to follow Chris on Twitter: @thebowtieguy and Denise @caregiving

CCC_CHRISInterested in becoming a Certified Caregiving Consultant?  Visit Caregiving.com for details by clicking here!  Final class for 2016 starts early September.  Use the coupon code Chris to receive 20% off the cost of the course!

Join us in Chicago for the 1st Annual National Caregiving Conference on December 2nd and 3rd.  For information on how you can be a sponsor orNational Caregiving Conference (1) exhibitor, email me at chris@thepurplejacket.com. Visit Caregiving.com for all the conference details by clicking here! 

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Sam Chalfant: Health Solutions With A Heart


Communication leads to community, that is, to understanding, intimacy and mutual valuing. Rollo May

Sam Chalfant is an independent insurance broker in Florida.  Sam is also a former family caregiver, not once, not twice, but three times!  Now Sam helps family caregivers and their caree’s, secure credible insurance through the Affordable Care Act.  On this episode of video Healing Ties, Sam share his caregiving story and encourages each of us to be strong and diligent in our self-care.

 

As a member of the Whole Care Network, Sam has branded  my  book “What’s The Deal with Caregiving” with his company’s logo.   Inside Sam’s branded book, you’ll find a bio of Sam’s company, along with a brief story about his caregivingChalfant_logo_final experience and a resource guide for his clients in South Florida.  Visit Sam on-line at Chalfant Insurance or email Sam at Sam@samchalfant.com for information on the Affordable Care Act or to order a his personalized copy of “What’s The Deal with Caregiving?”.   Sam Chalfant,    “Insurance Solutions With A Heart!” 

mockcover (1)To learn how you can be part of the Whole Care Network and brand my book, “What’s The Deal with Caregiving?” to your company, send me an email to Chris@thepurplejacket.com .

Join us in Chicago for the 1st Annual National Caregiving Conference in Chicago on December 2 & 3 hosted by Denise Brown at Caregiving.com.   Contact National Caregiving Conference (1)me direct at Chris@thepurplejacket.com  for information on being an exhibitor and sponsor of the event.

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Caregivers: When You Need A Lyft!


Man is free at the moment he wishes to be. Voltaire

Have you seen a car driving down the street a featuring a pink mustache on the front of the hood, or maybe resting on the front of a windshield?  Those pink mustaches would be your next LYFT,  arriving to pick you up to take you to your next destination.

Dan Trigub

Dan Trigub

While attending the Florida Council on Aging in Orlando, FL I had the opportunity to visit with Dan Trigub Strategic Account Executive at LYFT.  Dan and his team at LYFT recognize the need for Caregivers and their Caree’s to have safe and adequate transportation to help make their caregiving day just a little easier.  Transportation is one of the biggest issues family caregivers face when juggling their caree’s appointments.  I know from personal experience, finding a ride in order for Richard to go to radiation was challenging.  My time spent on the road, driving back to the house, then to the doctor’s appointments…Whew…I spent quite a bit of time on the road that no can be eliminated with a LYFT!

LYFT recognizes the need for Caregivers to have additional transportation assistance, and they are doing something about it.  Don’t just take my word for it, take it first hand from Dan.

On this episode of Healing Ties, Dan Trigub and me chat about LYFT, the  pink mustache and how LYFT can make a Caregivers day just a little lyftless stressful.  Listen in and learn how Dan and the entire staff at LYFT are creating Healing Ties all around us!   

Just as Voltaire said, “Man is free at the moment he wishes to be”  LYFT free’s up a Caregivers moment, in order to make the Caregiver’s life just a littler easier.

 

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Chris MacLellan is the author of “What’s The Deal with Caregiving?” and the Host of Healing Ties featured on Spreaker, iTunes, iHeart and UK Health Radio.  Healing Ties and The Purple Jacket are a part of the Whole Care Network, Inc

Join us in Chicago for the 1st National Caregiving Conference hosted by Denise Brown from Caregiving.com.  Now through August 25, register to win cash prizes to help with your travel cost to the conference.   Visit our conference hub by clicking here.   Contact me direct about becoming a sponsor or exhibitor at the conference! National Caregiving Conference (1)

 

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The Caregiving Years: Through the Lens of an LGBT Caregiver


Education is not preparation for life; education is life itself. John Dewey

Recently I obtained a certification from Caregiving.com to present on the The Caregiving

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Chris MacLellan and his deceased partner, Richard Schiffer. Chris became a full-time family caregiver after Richard’s diagnosis with Esophageal cancer in 2011.  Mr. Schiffer passed away in March of 2014. 

Years: Six Stages To A Meaningful Journey.   On Monday I will present The Caregiving Years at the Florida Council on Aging Conference in Orlando during my presentation on LGBT Caregiving: Is There a Difference?

The six stages of caregiving encompass from the Expectant caregiver to the Godspeed Caregiver and many different stages in between.  On Monday, I will present a preview of The Six Stages of Caregiving while demonstrating the similarities and differences LGBT Caregivers face on a daily basis.

Thanks to Colette Vallee from the Florida Council on Aging, I will be broadcasting live from the conference with special guest all throughout the three day conference.  Be sure to visit me on Spreaker for the podcasts.  Follow me on Twitter @thebowtieguy  with hashtags #fcoa1 and #fcoa2016.

I am available for Work Shops, Presentations, Panel Discussions: some of my curriculum includes…

  • Caregivers as Servant Leaders<>Leadership training for the family Caregiver.
  • The Caregiving Years <>Objective is to learn to create a perspective that best helps you during your caregiving experience
  • LGBT Caregiving: Is There A Difference? <> The Caregiving Years through the lens of an LGBT Caregiver
  • Beginning After Caregiving Ends<>Objective is to learn how to refocus your life after caregiving ends.
  • Spiral of Silence: Caregiving, Stress and its Impact in the Work Place.<>Objective is to learn the financial impact of Caregiving and create a positive workplace culture for family caregivers and employers/

CCC_CHRISShare your knowledge, become a Certified Caregiving Consultant and a Certified Caregiving Educator.

What’s The Deal with Caregiving available on Amazon. Ask Chris 3D1how you can brand “What’s The Deal with Caregiving” to your organization.

Contact Chris about being an upcoming guest on  “HealingTies” at chris@thepurplejacket.com

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Join us in Chicago as an exhibitor for the 1st Annual National Caregiving Conference onNational Caregiving Conference (1) Saturday December 3rd contact me for details on this exciting event!

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How Can You Help Seniors Prevent Identity Theft?


We welcome back guest blogger, Maria Alice to The Purple Jacket! 

Unfortunately seniors are a popular target for identity thieves. Criminals see senior citizens as more easily influenced and assume that they have assets to plunder. As a caregiver, you can educate your seniors with tips to help prevent them from being victimized and help them out whenever possible as well. The following are some of the most valuable ways your elder loved ones can avoid identity theft.

Protect Personal Documents

Many people are in the habit of carrying around personal documents, like social security cards and insurance cards, in a purse or wallet, believing it would be safer when its on your person. However, this is not the case. It’s better to keep this personal information in a secure place at home, such as in a locked safe, just in case your senior forgets or loses their bag somewhere or it gets stolen. Additionally, make sure that all documents containing personal information or account numbers are shredded when not needed anymore as identity thieves can easily search your trash.

Avoid Phone and Door-to-Door Scams

Never give out personal information over the phone. This includes insurance numbers, social security numbers, credit card numbers and any other financial information. Instead, they should request that the information be sent in the mail or done in person. Unscrupulous door-to-door salespeople may see seniors as easy marks when it comes to selling them things they don’t need at over-inflated prices. Some examples are unnecessary insurance and home services. One popular scam involves giving a “free” inspection of the heating/cooling system and then finding “urgent repairs” that are needed.

Practice Safe Online Behavior

Make sure your loved one monitors their credit report. Many seniors don’t realize that they can monitor their credit reports online and even put a freeze on inquiries. You may be able to use a good antivirus program that is updated regularly. This will help prevent viruses on your computer that capture personal and financial information.  It is vitally important to create strong passwords and change them from time to time. Different accounts should have different passwords as having the same password for everything would help a hacker gain access to all your accounts and personal information.

Be Mindful of Home Security

Always keep doors and windows locked whether you are at home or away. Unlocked doors are an invitation to thieves. Seniors might not even know that anything is missing until they see unknown charges on their credit card bill. Make sure that your home security system is maintained, including cameras, automatic locks, and arming your house while you are away. Different houses have different necessities, so it’s important to research different websites to find one that caters to your needs.

Caregiver Responsibility

Sharing these tips will help seniors in your care avoid the heartache and hassle of being victimized. Identity theft is on the rise; our most vulnerable citizens need to be aware of the threat. Protecting personal documents, avoiding phone and email scams while being proactive about home security can weave a safety net around us. As a caregiver, your help can be instrumental in preventing senior identity theft.

Maria Alice is a freelance writer currently living in Chicago. She has a Bachelor of Arts degree in English from the University of Illinois at Chicago with a minor in Communication. She blogs about environmentally friendly tips, technological advancements, and healthy active lifestyles.

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