Tag Archives: Caregiving

Follow Up on Re-Branding The Purple Jacket Blog?


The starting point of all achievement is desire. Napoleon Hill

The Purple Jacket

Chris and his Purple Jacket circa 2006

 Thank you for all who have voted in our poll about re-branding The Purple Jacket Blog to Healing Ties!

Up today Monday December 8th, here are the poll results up to Monday, December 8th.

Question 1: Should the blog be re branded from The Purple Jacket to Healing Ties? 63% said YES: 25% said NO: 2% said other

Question 2: On first look, did you identify The Purple Jacket as a Caregivers Blog,70% said YES: Alzheimer Blog, 10 % said YES: Clothing Blog 10% said Yes: Other, 10% said yes!

Question 3: What makes a blog, the title or its contents?   87% responded contents/ 13% responded both

I appreciate your vote and yes, there is still time to cast your vote at http://wp.me/p1gewn-142

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You’ll Be Okay!


Love is when the other person’s happiness is more important that your own ~ H. Jackson Brown, Jr

Earlier this month, I was asked by my good friend Denise Brown from Caregiving.com and AfterGiving.com  to share a video for today’s family caregivers that comforts with three words: You’ll be okay.

While creating this video, I learned that I  was comforted, knowing that by sharing my after caregiving journey might help someone else, just like me,  who is also in the grieving and healing process.

Loss is so personal, so real.  No one can really tell us how to deal with the loss of a loved one, yet that old cliché, ‘time does heals all wounds’  is true! However wounds heal at their own pace and in their own time, and in your time…you’ll be Okay…. because it does get better! 

To see my ‘You’ll Be Okay” video for AfterGiving.com, simply click on the heart!

 

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Click on the Heart to see Chris’ ‘You’ll Be OK” Video for AfterGiving.com

 

AfterGiving_Logo2If  you cared for a family member or friend? Please feel free to participate in  AfterGiving.com You’ll Be Okay campaign.

Like me, you will be glad that you did!

 

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Laughter is the best medicine, then and now.


There cannot be a crisis next week. My schedule is already full ~ Henry A. Kissinger

As I continue to grieve and heal, I look back at those moments during our caregiving journey that brought laughter to our hearts.  Richard had such a dry sense of humor and a quick wit and if truth be told, he really did enjoy having his picture taken too.  We used humor and laughter quite bit during our Caregiving journey.  Whether it was a trip out for a delicious scoop of ice cream or a visit to get a hair cut, we tried to inject as much humor into our day as was humanly possible.

IceCream1  IceCream3

 

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We let our humor combat some of those dark days, too.  Richard loved Monty Python, especially ‘Spamalot’…I think we both saw the play three times.  There was a day, early on after the diagnosis where Richard was playing the music from ‘Spamalot’ when all of a sudden the famous song,

Spamalot

Spamalot (Photo credit: Wikipedia)

“He’s Not Dead Yet” started to blare through the Bose speakers.  We both looked at each other in utter amazement; we laughed, we cried, we hugged each other and we laughed some more.  That song became our battle cry, and because of that song, the laughter we shared, provided that spark which enabled Richard to live his life to the fullest.

As our caregiving journey continued to unfold, there was no doubt that we traveled the journey together, side by side, one by one.  We shared in the emotions, we shared in the joy and laughter,  knowing that sorrow was somewhere around the corner.  Yet the sorrow that we shared was the realization that our time together was not going to be as long as we would have wanted it to be.  No more, no less.

The lesson that I’ve learned during our Caregiving journey was that I was  the co-pilot, Richard was the pilot. Richard was  the one going throughSONY DSC the radiation treatments, Richard was  the one taking the medicine; I was there in a supporting role, simply loving, caring and coping as best we could.  As Caregivers, our journey is filled with difficult peaks and valley’s, we try to pave the roads we journey so that the path is as smooth possible, so when there is a problem at hand,  there is always a gentle breeze at our caree’s back.  Caregiving is filled with so many raw emotions, that sometimes we forget that we are on a beautiful, yet difficult journey together.   For Richard and I, humor and laughter helped lightened some very dark days.  For us then, and for me now, laughter is truly the best medicine.  Laughter allows me to grieve and heal.

 

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‘Healing Ties’ radio show, live every Wednesday at 7:00pm on Health Cafe LIVE by clicking here 

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Letting Go, Together As One


We loved with a love that is more than love ~ Edgar Allan Poe

As I pulled up to the boat dock on Tuesday, I was amazed at what a beautiful,  clear and sunny day it was in South Florida. At this time of year, especially in the height of hurricane season, one never knows what the weather might bring us. The boat caption’s words last week after I booked the reservation–“we will sail at 9:30 am, weather permitting–reminded me that even when we put our best plans in place, there are things beyond our control.   BoatWaves

Sure, we all know that we cannot control the weather, we can only work with it.  Yet for me, the plans to sail on Tuesday, September 9th was significant because Tuesday, September 9th was the six month anniversary of Richard’s life transition and it was time for us to let go, so that we could be together again as one.   I’ve never experienced a burial at sea, so I had no personal experience to go by, but I did know that what was important for both Richard and I, was to be set free from the perils of death and be free, free so that we can be together  again as one.

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On this beautiful sunny Tuesday morning, it was a small gathering of friends as we motored out into the Atlantic ocean.  Making the decision to bury Richard’s ashes at sea was something that we had both talked about, and something that I knew he approved of since he buried his first partner, Herman at sea in 1999.  The biodegradable boxes were a work of art; one blue with the (last) remains of Herman and one white with the  remains of Richard.  Yet even in those conversations about burial at sea,  you really don’t know if you can ‘do it’ until you get right to the point or rather, the day of ‘doing it.’

In a sense, I knew that placing Richard’s ashes at sea WAS my last act of Caregiving for him.   Sure, I had the option of the funeral home ‘doing it’ for me, but I knew deep inside my heart that this was my sole responsibility and something I wanted, and needed to do.  Then the conversation started on the boat.  “I understand that we have to be more than three miles from shore before the boxes can be placed in the ocean,” I said.  Then in unison, two of my friends said…”You’re going to just place his box in the ocean, he wants to be set free, just like you, let the ashes out of the box and set both of you free!”  “Hummm,” I thought…”Another Caregiving decision to make, and how I thought those decision were behind me!”

As the boat slowed down and then anchored, I knew that we had approached our destination and it was my turn to act.  I had no special words to say, yet I shared pictures of Herman and Richard and talked about their 43 years together as I placed Herman’s beautiful blue box in the ocean. Ocean 2 As I reached for Richard’s beautiful white box, I was still unsure of what I was going to do, then the box slightly opened, I could hear him speaking to me, “let me be free!”  After a few words, I took Richard’s box, and spread his ashes in the ocean and then watched as a beautiful array of colors gleamed at the top of the ocean as his ashes floated away on his eternal cruise.  As difficult as this was, as I watched his ashes float away, there was a sense of peace that came upon me that is difficult to explain.

As the box emptied of Richard’s ashes and then dropped into the ocean, the caption circled Richard’s starting point of his life-long cruise, where everyone placed  roses in the water,  and I thought about how happy he was because he was free.  It was at this point when I realized that I was free, too.

My last act of Caregiving for the one I continue to love, was to set him free, so that we both could be free.  BRScar2

You see, I did not mind being Richard’s caregiver, in fact I believe it is an honor to be a Caregiver, but for now and forever, I can go back to just being his partner, which is what I miss the most.  My faith tells me that I will see him again; my mind tells me that he is now forever free; my heart tells me that he 20120407-002416.jpgis right next to me.

For now, he is just a port ahead of me on his life-long cruise, catching up with family and friends, while speaking to me in different ways, because  I know that one day, I will arrive at his port and catch up with him on that life long cruise.  I’m sure he’ll have reserved a good cabin!

 

 

 

 

 

 

 

 

 

 

 

 

 

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Advocacy Heals U: Healing Ties of Change


Recently I had the opportunity to be a guest on Joni Aldrich show, “Advocacy Heals U”, which is now featured on iHeart Radio.  Joni is an accomplished author, radio show host, public speaker, but most importantly, Joni has been a caregiver for her husband, Gordon, who like Richard, passed away from Cancer.
22958786 Connecting with Joni has been a pleasure and sure proves that Caregivers, no matter what their journey might be, have this innate ability to understand each other, to be there for each other, to care for each other.  Joni has been that connection for me.   As Joni so eloquently wrote: “Love radiates through this show. Love of a partner for a partner through life, illness and difficult loss. “To love someone is to see the face of God.” Guest: Chris MacLellan, The Bow-Tie-Guy. Chris loved Richard Schiffer through the twists and turns of life and Richard’s end-of-life. Experience IS the most brutal of teachers. But you heal. Chris’s new show, Healing Ties, will discuss 4 aspects interwoven in hope: physical, mental, spiritual, financial. While his focus is on caregivers, the message is much deeper. Why are health care rights connected to marriage rights? In many states, gay couples do not have that option. Love can move mountains, but can it break down walls?”

To listen to our show, simply click here! 

To learn more about Joni Aldrich simply click here!

Approaching six months after Richard’s transition into eternal life, my life continues to transition.  I’ve made the decision to leave my job with Screen Shot 2014-08-21 at 2.30.41 PMSunServe Social Services and start to write our story through my own words.  I’ll be heading over to New Orléans to write, spend time healing and starting my new radio show, ‘Healing Ties’ from ‘The Bow Tie Guy.’  Stay tuned to ‘The Purple Jacket’ for the launch date of my new show which will be featured on W4HC.com and iheart Radio.

Remember:  “Love, Care and Commitment is the same for any two people, no matter what gender.”  Make your day count, never pass up the opportunity to tell your spouse or partner that you love them!

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Day By Day: Grieving and Healing


Experience: that most brutal of teachers. But you learn, my God do you learn.  C. S. Lewis.

Finding the energy to blog on The Purple Jacket has been difficult for me these past few months.  Let’s face it, grieving can be a full-time ‘job’ which takes quite a bit of energy.  But grieving can be healthy too.  Today I experienced a form or healthy grieving by visiting  Gold Coast Hospice where Richard made his life transition, to say hello to the staff and present them with gift as a token of my appreciation for the kindness and love that was demonstrated to us while we were both under their care. This visit had been planned in advance and while I was unsure of what my initial reaction would be, I knew that the staff would greet me warmly.

Kermit  As I approached the Hospice unit, I was struck by the utter calmness that suddenly came upon me.  My eyes immediately looked to the right as I entered the ward as Richard’s room was the first room on the right side entering the unit.  As I walked past and looked in the room through the crack of the door, it seemed fitting that today, this room was vacant.  Suddenly I heard, “He’s here” from the  Hospice nurse who came to the house to admit Richard to the unit in March. I knew right then and there that this was going to be the right thing for me to do today!

Hugs, well wishes, great conversation and tears followed as we greeted each other and shared stories. Fittingly, we moved into ‘that room’ for my formal ‘Thank You’ to the staff.   “As a part of my healing process, it was important for me to come here today to say hello, and to say ‘Thank You’ for allowing us to spend our last days together.”  In the six days that we were in the hospice unit, there was not one time were I did not feel welcomed, all we felt during our Flowersstay was love…I wanted to return the favor!

“It is important for me to present you with a copy of a pictorial book which was given to me by the two great journalist from the Sun-Sentinel who followed us on our final journey together and wrote our story, “In Sickness and In Health: A Couple’s Final Journey” which was published in April.”  More tears, more laughter, more love!  And yes, I think it is possible to cry and be calm at the same time.

There are many books written on grieving, yet one thing is certain; grieving is an individual process that is unique to each one of us.  In order for me to continue in the healing process, it was important for me to reach out and make this journey to the Hospice unit.  You see, the pictorial book that was provided to me by Diane and Carline from the Sun-Sentinel is the best book on (my) grieving that I have  read.  I am fortunate to have such a wonderful, life-long gifts of this book, and the article in the Sun-Sentinel. By sharing the book with the Hospice staff, and subsequently, other families who come to the unit, was my way of giving back, saying thanks and continuing my grieving and healing process.

Life is much different now.  There are more challenges ahead, yet in order to take on these challenges, I have to find a way to soften what has transpired.  There is no easy way around grieving, it is important for me, in my grieving process, to  simply just ‘own it.’   Today helped soften the anguish of missing him: May your grieving process be filled with  few hills and always, a gentle breeze at your back.

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‘Things That Never Die’


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Photo Credit: Carline Jean, South Florida Sun-Sentinel

This is one of my favorite photos’ from Sunday’s article in the Sun-Sentinel, ‘In Sickness and in Health’ .  This picture was taken on Richard’s 83rd birthday on January 24th of this year. The picture really captured how good Richard was feeling as we started the evening.  As Diane Lade wroteRichard ordered one of his favorite dishes, salmon. He started to eat but became increasingly quiet.”   He was able to eat some of his salmon while enjoying his club soda with lime before we abruptly had to leave. Once we got settled at home and after his pain medicine kicked in,  he was able to enjoy some of the delicious cake that we were not able to eat while at the restaurant.  I know he thoroughly enjoyed the cake, and I wanted you to know that as well! 

As I continue to listen to the CD, ‘Love Changes Everything’ from the Gateway Men’s Chorus, I am struck by the lyrics from the song ‘Things That Never Die‘ on track 13…

The Pure, The Bright, The Beautiful

That stirr’d our Hearts in Youth

The impulses to Wordless Prayer

The Dreams of Love and Truth

The Longing after something Lost

The Spirits Yearning Cry

The Striving after better Hopes –

These Things Can Never Die.

The timid Hand stretched fort to Aid

a brother in his need

The kindly Word in Griefs Dark Hour

That Proves a Friend Indeed

The Plea of Mercy softly Breath’d

when Justice threatens nigh

The Sorrows of a Contrite Heart –

These Things Shall Never Die.

Let nothing pass, for every hand

Shall find some work to do

Lose not a chance to waken Love

Be Firm, and Just, and True

So shall a Light that never Fade

Beam on thee from on High

and Angel Voices say to Thee

These Things Shall Never Die

Dickens

The outpouring of love and support has been simply overwhelming.    ‘ The Longing After Something Lost’ has been tempered by  ‘The Kindly Words in Grief’s Dark Hour.’‘  Thank you, ‘Friends’, for expressing your love and support because, ‘These Things Shall Never Die.’ 

Don’t ever  pass up a chance to love!

TLO

 

 

 

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Love Is The Winner


❤ ❤ LOVE IS THE WINNER ❤ ❤
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❤ I LOVE YOU ❤

By Mary MacLellan-Stough

Three magical words that make a heart flutter.
Will make someone’s heart melt like butter
Just hearing those words uttered.
Life is full of ups and downs
And at times the see-saw seems weighed down.
Then someone comes along and touches your heart and soul
and takes your breath away.
When you wish upon a star
Your loved one isn’t very far.
They are closer to us than you will ever know-
Tossing pennies from a far
Letting us know how loved we are.
The hugs we feel when no one else is near
The dimes, the parking places we find
Remind us we are not alone as we fear.
Those hugs we feel, they are real,
The soft whispers in our ear
Next thing we know we shed a tear.
The world keeps moving-life goes on
But we keep trying to be strong.
The signs are there, we just need to be still,
Then there is a yellow butterfly, which gives you a chill.
They come when we least expect them, but need them the most.
The timing is never right when a loved one departs
But their physical journey here is over, time to start a-new
In a place that is all brand new.
No pain, no suffering-all sorrow is gone
Replaced with happiness and a glow
That one day we all will know.
Imagine the reception when we arrive
Our loved one(s) will be there to greet us home.
We are never alone on this journey here on earth.
Richard is up there watching over you Chris.
“Put in a good word, tell everyone hello.”
Until we meet again TLO ❤ ❤ ❤
With Love to you from me
Your younger sister I will always be…Meo

Mary

Mary MacLellan-Stough

 

This poem was beautifully written by my sister, Mary MacLellan-Stough and will appear on the back folder of our  Celebration of Bernard Richard Schiffer life in both Fort Lauderdale and St. Louis

 

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Approaching The Final Destination


I have found the paradox, that if you love until it hurts, there can be no more hurt, only more love ~ Mother Teresa

With TLO’s recent diagnosis that his cancer has spread to multiple parts of his body,  I have to admit this news, along with intense Caregiving over the past month, has put me in a position where I have hit the wall with LifeChangesblogging. While  I’ve learned over the past two years  that writing about TLO’s bout with esophageal cancer has provided a great deal of comfort for both of us, I now find it interesting that writing about the end stages of our Caregiving journey to be a tad more difficult. 

And that is precisely where we are at in our Caregiving journey, we are at the end-stage.

TLO was admitted to Gold Coast Hospice as an inpatient  on Monday, March 3rd.  We are in a small 8 unit facility under the umbrella of Broward Health. With the mindset that we were going to inpatient care Hospice-1“just for a few days for an evaluation and re-set of his medications;”  we have since learned that God and TLO’s body had other plans.

 The last thing he said to me on Monday night was…”Please go home and get some rest, I will be OK here and we’ll see each other in the morning.”  Reluctantly I agreed with him and headed home.  Now knowing that this is going to be our  last lucid conversation we have on this journey is fitting, for in  his time of strife, his  concern and love for me was first and foremost in his mind. We tend to share that similar trait when caring for each other.

TLO has been resting comfortably in our hospice suite since Tuesday; in and out of consciousness, his little body is ravished by cancer.   “We don’t know how this man has lived so long with the amount of cancer that is 1385583_607513719290066_905165614_n (1)inside of him,” the hospice doctor said to me Friday. “It is only by the grace of God and the love that the two of you have that has kept this man alive.” The Doctor’s words are comforting because it has taken me a few days to get beyond the quick transition from our Monday evening conversation, to finding him resting peacefully since my arrival on Tuesday morning. I suspect that he needed that time alone on Monday night moving into Tuesday morning, so that he could rest and prepare for his journey.   

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TLO with my sister Sissy, Feb 11, 2014

While in the midst of Caregiving, we often lose sight of what is transpiring right in front of us because we are so intent on service and care. Trips for radiation become routine because that is something that is just a part of our day?  With one of my sisters here helping us for the past month, I’ve come to realize that what I might think is a routine day, is totally off the charts by normal standards. I’m sure most family caregivers can get in touch with that. 

“If you could look inside his body you would understand what is going on inside of him” was another comment the hospice doctor said to me on Friday.  This ‘trip’ has been hard for me to accept because I am so used to him just getting up and continuing on.  He is such a fighter! Yet this ‘trip ‘ is just a little bit different because he has acknowledged that he is tried, he has acknowledged that he is ready and from our previous conversations,  he knows that I am going to be safe.  So in just a few short hours, I have had to learn how to separate my emotions from the reality that we face; TLO was able to do that after I left on Monday night. In fact, he had prepared for this day longer than I have ever realized.

The Mad Hatters

Chris and TLO at SunServe’s Hat and Garden Party 2013

I have had to put into perspective that this journey just did not start on Monday of this week, this journey started over three years ago in a little Greek restaurant in Indianapolis when there was the first indication that something might be wrong with his throat.  Through all the tests and tribulations of the last three years, not to mention the original diagnosis of 3 to 4 months to live in 2011, I’d say we have had a pretty darn good run at it.  Up until recently, we have had more good days and bad, and along the way on this journey, we have met so many wonderful friends from around the world who simply ask…”How’s TLO”.  The Caregiving community is so vast, so strong and so very comforting;  Where would we have been without you!

TLO is just mighty fine my friends!  He is resting peacefully, and we have been able to communicate through touch and some words.  He now gets to run the show and call the shots. Actually, he’s been doing that for quite some time, I’ve just been here proud to be along for the ride.  Right now I just want to be his partner, holding him close, caressing and kissing him while telling him that I love him with an everlasting love.  His squeeze of my hand gives me strength and helps take my sadness away.

You seeCancer is not winning here.  Love is winning here.

The Bow Tie Guys

 

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Coffee With A Caregiver


Coffee shared with our Caregiving family is happiness tasted and time well spent.

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#CoffeeWithACaregiver

Thursday’s are usually held for  “Hug A Caregiver‘ day, however, there is something exciting trending on the internet which was started by two of my Caregiving friends, G-J and Kathy who  I have met through Denise Brown’s wonderful siteCaregiving.com .  G-J was looking for another way to support Kathy, so she shared a photo with a cup of coffee, a cookie and a note of encouragement, Kathy returned the favor and before you know it, our friend Trish created the hashtag #CoffeeWithACaregiver.  We’ve been exchanging virtual coffee greetings for the past week or so: Because of the challenging Caregiving week I had had with TLO,  I can’t tell you how much I have looked forward to #CoffeeWithACaregiver each day.  The daily support from #CoffeeWithACaregiver is very special, and very meaningful.

#CoffeeWithACaregiver is another great example of how Caregivers have this innate ability to understand and support each other even when the Caregiving journey’s are different.  No matter what your Caregiving journey might be, finding support and comfort, in any form, is healthy and important to ones own personal health and well-being.  I know that I would not have been able to get through all the challenging Caregiving days without my extended Caregiving family I have found through ‘The Purple Jacket’ and Caregiving.com 

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#CoffeeWithACaregiver 10:00am Friday Feb 14

On Friday, February 14, share the love with fellow family caregivers. Join all of us for a virtual cup of coffee and share the love of care. Simply use the hashtag #CoffeeWithACaregiver and share it across your Social Networks, Twitter, Facebook, Instagram, Pinterest.  We’ll start posting at 10:00am, but feel free to post anytime of the day.  We will all be sharing across our networks; it is not only going to be quite a bit of fun, you’ll see the love and support Caregivers have for each other right before your very eyes!

If you are  a Caregiver  and looking for a soothing place to share your story, join us on Caregiving.com.  Denise Brown has created a soothing community of family Caregivers where we are all one, big, supportive,  Caregiving family!

 

The  Purple Jacket Highly recommends

The Purple Jacket Highly recommends Denise Brown at the extended family at Caregiving.com

 

 

 

 

 

 

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