Tag Archives: Caregiving

That’s What Caregivers Do!


Presidential Proclamation — November is National Family Caregivers Month!

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 I am proud to be one of the over 60 million Caregivers in the United States today.  Being a Caregiver can be, and often is challenging… But also so very  rewarding.  I believe that to be entrusted with the care of another human being is one of the greatest honors that can be bestowed on another person.  Those long sleepless nights, those challenging trips to the doctor and hospitals, those times when you have to intercede, educated and advocate come full circle when your Caree looks at you and  simply says…”Thank You for what you do for me.”  

I am also mindful of those family Caregivers who are never thanked, never appreciated and overworked.  If it means anything to you, from one Caregiver to another, I offer my thanks and appreciation to you because… That’s what Caregivers do! 

Caregiving is not a role that is often chosen and Caregiving is not for everyone.  Caregivers come in many different shapes, sizes, philosophies and cultures:  Caregiving and Caregivers are diverse. While our Caregiving  journeys might be different, Caregivers have this innate ability to understand each other,  to care for each other, to be there for each other, because…  That’s What Caregivers do!

Through the wonders of the internet, my Caregiving journey has been enriched by the countless number of people I have met along the way.  Each one of you have inspired me, supported me and have been there for me because… That’s what Caregivers do! 

A special ‘thank you’ to Author, Caregiving Coach, Speaker and owner at Caregiving.com Denise Brown and my extended family at  Caregiving.com  for your support. You opened up your ‘home’ to us and made us feel welcome from the start because…  That’s what Caregivers do!

We know that our current Caregiving journey is going to be filled with a few bumps and bruises along the way; Cancer has a way of doing that.  Yet we know those bumps and bruises will be a tad softer because of our extended Caregiving family we’ve met along the way because…That’s what Caregivers do!.  

TLO

Caregivers: Thank You for all you do from Bernard Richard Schiffer…’The Little One’

To all Caregivers, I share this simple smile from a very special fellow whose courage is unbounded, as a way of thanking you for all that you do, because…That’s what Caregivers do! 

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The Foundation: The Honor Of Caregiving.


I have looked into your eyes with my eyes.  I have put my heart near your heart. Pope John XXIII

This Friday I will be presenting on Caregiving at SunServe’s Silver Serve Luncheon.   I’ve taken most of what I have written below from previous blog post on ‘The Purple Jacket’.  Your feedback is always welcomed! 

The Foundation: The Honor Of Caregiving

To be entrusted with the care of another human being is one of the greatest honors that can be bestowed on you.  Caregiving takes on meaning that is beyond reproach.  New parents have nine months to prepare for the responsibility of bringing a child into the world.  Doctors and nurses undergo years of rigorous training for the work that they do.   But CaregiversDavid Allen can find themselves thrust suddenly into roles, roles that they often do not choose, when called to care for a spouse, partner or loved one after a diagnosis or accident.

At a moment’s notice you become a Caregiver, without any warning, with any training, without any time to think things through.  You feel like you have no idea of what you are supposed to do, so you do your best as you follow your instincts and common sense.  You embrace the new reality…You simply care for the one you love.

When you become a Caregiver for your spouse, partner, significant other,   a new and uncharted realm opens up.  Two distinct relationships must now be blended into one.   The familiar partner from the past remains and is always present. But now there is someone different on the scene – someone with a significant illness.

Suddenly, two people sharing a life together will face challenges that cannot  be left unattended?  A whole set of new and intense emotions are likely to intrude on the relationship.  Worry, detachment, mortality, anger, fear of abandonment and having to live life alone,  begin to intertwine with the idiosyncrasies of your personal dynamics.  These gut wrenching emotions can lurk in a caregiver’s mind when faced with a life-and-relationship-altering illness with your life partner.

Caregiving is an intense experience that asks you to surrender yourself to the needs of someone else.  Often times, you have to give up things that you love, in order to care for the one you love.  Even though it might feel like a hardship, you make the choice, you make the choice because you know that it is what love and commitment is all about.  Yet it is not that simple, because Caregiving can be an emotional, physical, and interpersonal roller coaster that is both tremendously rewarding and frustrating.   These emotions can surely test even the best communication and trust in a relationship.

The common denominator when blending a life partnership with Caregiving is communication.

Successful relationships are built on strong communication and trust.  It is throughcaring hands honest communication that the true essence of a life partnership is revealed.  This does not change when you add the role of Caregiver to the mix.  Communication has to be the focal point for conveying the wants and needs of the one who is ill. This must be accomplished without losing one individuality, the life partnership, or the role of the Caregiver.  The term “delicate balance” takes on a whole new meaning

Frequent review and maintenance of clarity in your roles becomes crucial so that our judgment and decision-making skills are based on sound facts instead of raw emotions.  How much can the mind and body take when faced with so many changes in such period of time? I think that really depends on the couple’s ability to safely, clearly and honestly communicate their wants, needs and desires as indicated by the partners health needs first and the relationship second.

While I have no doubt that caring for your life partner will strengthen a relationship, Caregiving will change a relationship too!  It is not uncommon to see someone who has been firmly independent, become dependent in certain areas of life that have been difficult for them to accept. Stepping outside one’s comfort zone and asking for assistance with mundane everyday chores adds stress to both parties…That is undeniable!

Caregivers often become the voice for the one who is ill.  As Caregivers, we have to be mindful that we are in a supporting role.  First and foremost, Caregivers are advocates.   In our role as an advocate, we must remember that what we may want for our loved one may not necessarily be what the love on wants. What a slippery slope this becomes when caring for your life partner!

Life’s journeys are not often driven on smooth roads, but we can always hope for a gentle wind at our back. This gentle wind is always fortified by love, trust, commitment and communication.

…My your hills be always be slight and with a gentle wind at your back.

The Purple Jacket©

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That’s What Caregivers Do!


Presidential Proclamation — November is National Family Caregivers Month!

 I am proud to be one of the over 60 million Caregivers in the United States today.  Being a Caregiver can be, and often is challenging… But also so very  rewarding.  I believe that to be entrusted with the care of another human being is one of the greatest honors that can be bestowed on another person.  Those long sleepless nights, those challenging trips to the doctor and hospitals, those times when you have to intercede, educated and advocate come full circle when your Caree looks at you and  simply says…”Thank You for what you do for me.”  

I am also mindful of those family Caregivers who are never thanked, never appreciated and overworked.  If it means anything to you, from one Caregiver to another, I offer my thanks and appreciation to you because… That’s what Caregivers do! 

Caregiving is not a role that is often chosen and Caregiving is not for everyone.  Caregivers come in many different shapes, sizes, philosophies and cultures:  Caregiving and Caregivers are diverse. While our Caregiving  journeys might be different, Caregivers have this innate ability to understand each other,  to care for each other, to be there for each other, because…  That’s What Caregivers do!

Through the wonders of the internet, my Caregiving journey has been enriched by the countless number of people I have met along the way.  Each one of you have inspired me, supported me and have been there for me because… That’s what Caregivers do! 

A special ‘thank you’ to Author, Caregiving Coach, Speaker and owner at Caregiving.com Denise Brown and my extended family at  Caregiving.com  for your support. You opened up your ‘home’ to us and made us feel welcome from the start because…  That’s what Caregivers do!

We know that our current Caregiving journey is going to be filled with a few bumps and bruises along the way; Cancer has a way of doing that.  Yet we know those bumps and bruises will be a tad softer because of our extended Caregiving family we’ve met along the way because…That’s what Caregivers do!.  

TLO

Caregivers: Thank You for all you do from Bernard Richard Schiffer…’The Little One’

To all Caregivers, I share this simple smile from a very special fellow whose courage is unbounded, as a way of thanking you for all that you do, because…That’s what Caregivers do! 

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Filed under Caregiving, The Purple Jacket

What’s On Your Refrigerator?


The Giving Of Love Is An Education In Itself…  Eleanor Roosevelt 

 I was thinking about that television commercial which constantly asks ‘What’s In Your Wallet’ and how catchy their marketing theme is.  I instantly think of Capital One when I hear that phrase…’What’s In Your Wallet’.  We keep most of our important identification and credit cards in our wallet; I think carrying important identification and credit cards in a wallet a common trait for everyone.

As we move into the second phase of palliative radiation treatments, and while engaging our new friends with Hospice Of Broward County, it occurred to me that we are going to have a number of ‘new friends’ visiting us in our home.  It is going to be important for these new friends to have quick access to our important documents which include TLO’s current meds and medication history, doctor information, health care directives, DNR, Durable Power of Attorney.  That is why I put (some of) these  important documents on our refrigerator in our File For Life folder for easy access!  We even spiced our file up with a little New Orléans!

Life

 While I am a big proponent of electronic media and databases, we also have to be mindful that sometimes networks and computers crash.  When you need your most important documents at a moments notice, the last thing you need is a failed hard drive or jump drive to add to the stress.  In my opinion, there is nothing that replaces the hard copy of your important documents.

The key to having a hard copy of these documents is to know where they are at a moments notice.  When you are in the midst of an emergency, the last thing that you want to have to think about is..‘where are those documents!  Additionally, you want emergency personnel to have quick access to these documents.   In our File For Life, I have a spreadsheet of TLO’s current meds, Doctor’s / Hospice contact information, Diagnosis, DNR and my contact information.  I also indicate in our File For Life, where the larger documents are located, I.e. Power of Attorney, Health Care Proxy, Living Will.

So…’What’s On Your Refrigerator?’

You see…We Might Have Cancer, But Cancer Does Not Have Us! 

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Thursday are always ‘Hug A Caregiver Day!’


Caregiving can sometimes be hard:

But Hugging a Caregiver is easy!

thursdays

Listen to: 

cjmbtr (1)

Tuesday’s  at 1:00 pm (EST)

Can’t listen live…NO WORRIES!

All of our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here! 

 

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Positive Thoughts Helps Ease The Diagnosis


Today we had our second visit to the radiation oncologist to secure images on TLO’s spine in order to determine the course of action for the upcoming radiation treatments. We were so pleased by the experience we had today because of the care and concern showed to us by the technician who was taking the images.

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Luis was a class act today. He took the time to thoroughly explain to us the procedure, what to expect and when we would know of the results. He listened attentive to our questions and made us both feel at ease. But I think what set the positive tone off was the way he greeted us in the waiting room. He went right over to TLO, extended his hand and introduced himself, then turned to me with the same warm welcome!

His approach was truly an ice breaker!

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Luis’ style today was not only professional and friendly, it was therapeutic! His demeanor today completely put TLO at ease, which has lasted the rest of the day.

“I really feel good today” said TLO after dinner this evening. “Was my cooking that great tonight I asked?” “Don’t kid yourself” he said. “I really came away from our appointment today feeling good about the how I was treated and the whole environment of the office. Luis was so nice to me and listened, that does not always happen in these settings. I am so glad that we are going to this office for treatments, I feel safe, secure and appreciated!”

I agree with him 100%!

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As the night has progressed, TLO is resting comfortably and we are both at peace thanks to Luis’ excellent care today. We don’t look at the future as being bleak, we look at each day as a blessing to share with each other, to care for each other and to be open to the days ahead.

We’ve had our cries; we’ve had our frustration and now we just deal with the reality of what is in front of us. One simple act of kindness by Luis today help alleviate 10 days worth of fear and frustration. Our hats are off to Luis!

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You see… We might have cancer…but cancer does not have us!

 

 

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Thursday are always ‘Hug A Caregiver Day!’


Caregiving can sometimes be hard:

But Hugging a Caregiver is easy!

thursdays

Listen to: 

cjmbtr (1)

Tuesday’s  at 1:00 pm (EST) and Thursday’s at 8:00 pm!

Can’t listen live…NO WORRIES!

All of our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here! 

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Fall Prevention – How to Minimize Risk


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Tuesday at 1:00 pm (EST)  on ‘Be A Healthy Caregiver’ , I am pleased to welcome Dina Ramon from iStand.  

To listen to our show live, simply click here! 

Tuesday’s  Topic: Falls Prevention – How To Minimize Risk and Reverse and Epidemic of Injury

According to the Centers for Disease Control and Prevention, One in three adults aged 65 and older falls each year. 2 Of those who fall, 20% to 30% suffer moderate to severe injuries that make it hard for them to get around or live independently, and increase their risk of early death.

iStandLogo

 Creating more stable and easy-to-use walking aids brought the issue of falls among seniors to the forefront for the company’s founder Mazy Holiday.  Mazy  recognized that falls prevention for seniors was a critical necessity, and began developing a mobile application that incorporated programs with the highest demonstrated return rate on reducing falls.

Because of the lack of nationwide and organized dissemination of falls prevention programs for seniors, digital technology has become the clear and obvious solution for a segment of the population that has limited income, and often does not or cannot leave the house regularly.

On Tuesday’s show,  we will learn about iStand while gaining some important tips on how to help prevent falls.

Through our conversation with Dina, we will all learn how to ‘Be A Healthy Caregiver!’

 To listen to our show live, simply click here! 

To learn more about iStand, visit their website by clicking here! 

Visit iStand on Facebook by clicking here

Can’t listen live to our show…NO WORRIES

cjmbtr (1)

All episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here!

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Hug A Caregiver Day!


Caregiving can sometimes be hard:

But Hugging a Caregiver is easy!

thursdays

Listen to: 

cjmbtr (1)

Tuesday’s  at 1:00 pm (EST)

Can’t listen live…NO WORRIES!

All of our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here! 

Leave a comment

Filed under Caregiving, The Purple Jacket

Hug A Caregiver Day!


Caregiving can sometimes be hard:

But Hugging a Caregiver is easy!

thursdays

Listen to: 

cjmbtr (1)

Tuesday’s  at 1:00 pm (EST) and Thursday’s at 8:00 pm!

Can’t listen live…NO WORRIES!

All of our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here! 

Leave a comment

Filed under Caregiving, The Purple Jacket