Tag Archives: TheBowTieGuy

Reimagining the Care Experience—For Our Loved Ones and Ourselves


They always say time changes things, but you actually have to change them yourself. Andy Warhol

061.JPG

Mel Coppola

Mel Coppola is enriching the care experience and changing lives through advocacy, coaching and education .   On this episode of Healing Ties, Mel shares her wisdom on how we as caregivers can re-imagine the care experience, for our self, our care partner and our loved ones.

Listen in and learn how Mel Coppola is creating Healing Ties all around us!

 

logo.png

Visit Mel on line at http://www.heartsincare.com/

Join Us in Chicago on December 2 and 3 for the 1st Annual National Caregiving Conference hosted by Caregiving.com.  Registration is now open by clicking here!  .  Sponsorship  and Exhibitor opportunities available, contact me direct at Chris@thepurplejacket.com for details.  

For additional information on the conference click in the National Caregiving Conference click on the icons below or visit http://www.caregiving.com/national-caregiving-conference-hub/

National Caregiving Conference (1)

NCCFlyerB&W

 

Leave a comment

Filed under Caregiving, Healing Ties Radio

Authors Spotlight: Kathryn Leigh Scott


The art of medicine consists in amusing the patient while nature cures the disease. Voltaire

KathrynLeighScottAuthorHeadshot

Kathryn Leigh Scott 

On this episode of Healing Ties Author’s Spotlight, we visit with Kathryn Leigh Scott who has written writes a compelling story about her husband’s diagnosis of Progressive Supranuclear Palsy (PSP) in her book,  LAST DANCE AT THE SAVOY.   

Progressive supranuclear palsy (PSP) is an uncommon brain disorder that affects movement, control of walking (gait) and balance, speech, swallowing, vision, mood and behavior, and thinking. The disease results from damage to nerve cells in the brain. EstimatesLastDanceAtTheSavoyCoverBorder vary, but only about three to six in every 100,000 people worldwide, or approximately 20,000 Americans, have PSP—making it much less common than Parkinson’s disease (another movement disorder in which an estimated 50,000 Americans are diagnosed each year). Symptoms of PSP begin on average after age 60, but may occur earlier. Men are affected more often than women.

Listen and  learn how Kathryn Leigh Scott is creating “Healing Ties” all around us!

Join Us in Chicago on December 2 and 3 for the 1st Annual National Caregiving Conference hosted by Caregiving.com.  Registration is now open by clicking here!  .  Sponsorship  and Exhibitor opportunities available, contact me direct at Chris@thepurplejacket.com for details.  

For additional information on the conference click in the National Caregiving Conference click on the icons below or visit  http://www.caregiving.com/national-caregiving-conference-hub/

National Caregiving Conference (1)

NCCFlyerB&W

Leave a comment

Filed under Caregiving, Healing Ties Radio, Healing Ties Radio Show

Do You Know Your Numbers?


The great aim of education is not knowledge but action . Herbert Spencer

IMG_8642

Chris MacLellan with Dr. Sarah Koplow

Do you know your blood pressure?  Pulse?  Good and Bad Cholesterol?  The meaning of saturated fat?  And why is it important to your overall  health to know these important numbers?

On this episode of “Healing Ties” Dr. Sarah Koplow, PhD, RN  assistant professor from NOVA Southeastern School of Nursing breaks down these important numbers and why it is important for each one of us to “Know Our Numbers.”  Listen in and learn how Dr. Sarah Koplow is creating “Healing Ties” all around us! 

Join Us in Chicago on December 2 and 3 for the 1st Annual National Caregiving Conference hosted by Caregiving.com.  Registration is now open by clicking here!  .  Sponsorship  and Exhibitor opportunities available, contact me direct at Chris@thepurplejacket.com for details.  

For additional information on the conference click in the National Caregiving Conference click on the icons below! 

National Caregiving Conference (1)NCCFlyerB&W

Leave a comment

Filed under Caregiving, Healing Ties Radio, Healing Ties Radio Show

Sunday August 28: Two Great Family Caregiver Events


 Join us on Sunday August 28th at 8 p.m. ET  on Blog Talk Radio for our monthly family caregiver call in show as I will be co-hosting with Denise Brown from Caregiving.com.  Our topic for Sunday’s show is “Dealing With The Daily Grind.”  To listen in and join our chat room log onto www.blogtalkradio.com/caregiving .    Guest call in line:  646.463.7486 to

FIRST CALLER RECEIVED A COPY OF MY BOOK: “What’s The Deal with Caregiving?” wpid-wp-1448113432219.jpeg

Twitter ChatAfter our call-is show is finished, take a half-hour break and jump over to Twitter for #carechat:  Sunday, August 28, at 9 p.m. ET (8 p.m. CT, 7 p.m. MT, 6 p.m. PT). Join us to connect and share with others who care for a family member or friend.

On Sunday, we’ll discuss how to balance work and caring for a family member friend. As part of the curriculum in order to graduate from Caregiving.com Certified Caregiving Consultant training program, I will lead the discussion on Sunday.  Interested in becoming a Certified Caregiving Consultant?  Final class of 2016 commences September 5th.

These questions will guide our discussion:

Q1.: What is your biggest obstacle balancing work and family caregiving?
Q2.: Why might it be beneficial to self-identify at work as a family caregiver?
Q3.: What are your fears in regards to self-identifying at work as a family caregiving?
Q4.: What is more difficult: Missing an important work meeting or an important doctors appointment. Why?
Q5.: How can your employer make your family caregiving journey easier for you?
Q6.: Is quitting your job the only solution?
Q7.: If I could change one thing about work and caregiving it would be…
Q8.: Why is a work-place caregiving support group important?

To take part in our chat, go to tweetchat.com, sign in with your Twitter credentials and follow our hashtag: #carechat.

Be sure to follow Chris on Twitter: @thebowtieguy and Denise @caregiving

CCC_CHRISInterested in becoming a Certified Caregiving Consultant?  Visit Caregiving.com for details by clicking here!  Final class for 2016 starts early September.  Use the coupon code Chris to receive 20% off the cost of the course!

Join us in Chicago for the 1st Annual National Caregiving Conference on December 2nd and 3rd.  For information on how you can be a sponsor orNational Caregiving Conference (1) exhibitor, email me at chris@thepurplejacket.com. Visit Caregiving.com for all the conference details by clicking here! 

Leave a comment

Filed under Caregiving

The Caregiving Years: Through the Lens of an LGBT Caregiver


Education is not preparation for life; education is life itself. John Dewey

Recently I obtained a certification from Caregiving.com to present on the The Caregiving

20140109_el_aarp_caregiver_484

Chris MacLellan and his deceased partner, Richard Schiffer. Chris became a full-time family caregiver after Richard’s diagnosis with Esophageal cancer in 2011.  Mr. Schiffer passed away in March of 2014. 

Years: Six Stages To A Meaningful Journey.   On Monday I will present The Caregiving Years at the Florida Council on Aging Conference in Orlando during my presentation on LGBT Caregiving: Is There a Difference?

The six stages of caregiving encompass from the Expectant caregiver to the Godspeed Caregiver and many different stages in between.  On Monday, I will present a preview of The Six Stages of Caregiving while demonstrating the similarities and differences LGBT Caregivers face on a daily basis.

Thanks to Colette Vallee from the Florida Council on Aging, I will be broadcasting live from the conference with special guest all throughout the three day conference.  Be sure to visit me on Spreaker for the podcasts.  Follow me on Twitter @thebowtieguy  with hashtags #fcoa1 and #fcoa2016.

I am available for Work Shops, Presentations, Panel Discussions: some of my curriculum includes…

  • Caregivers as Servant Leaders<>Leadership training for the family Caregiver.
  • The Caregiving Years <>Objective is to learn to create a perspective that best helps you during your caregiving experience
  • LGBT Caregiving: Is There A Difference? <> The Caregiving Years through the lens of an LGBT Caregiver
  • Beginning After Caregiving Ends<>Objective is to learn how to refocus your life after caregiving ends.
  • Spiral of Silence: Caregiving, Stress and its Impact in the Work Place.<>Objective is to learn the financial impact of Caregiving and create a positive workplace culture for family caregivers and employers/

CCC_CHRISShare your knowledge, become a Certified Caregiving Consultant and a Certified Caregiving Educator.

What’s The Deal with Caregiving available on Amazon. Ask Chris 3D1how you can brand “What’s The Deal with Caregiving” to your organization.

Contact Chris about being an upcoming guest on  “HealingTies” at chris@thepurplejacket.com

wpid-wp-1448112894007.jpeg

Join us in Chicago as an exhibitor for the 1st Annual National Caregiving Conference onNational Caregiving Conference (1) Saturday December 3rd contact me for details on this exciting event!

1 Comment

Filed under Caregiving, LGBT Caregiving

Monthly Caregiver Call-In Show


Let’s Talk About: When We Want to Run Away

Each month on the last Sunday at 8 p.m. ET, we’ll pose a question that sparks a conversation we’d love for you to be a part of. You can give us a call during our live show at (646) 652-4944 to share your thoughts. You also can join the show’s chat room and discuss your experiences with other listeners. Listen to our show and join the chat room.

On July 31, we’re discussing this question: When do you want to run away? When do you feel intimidated or overwhelmed or frustrated or just done that running away seems your own option? Call and share your stories and experiences. Be sure to share how you stayed.

Join Denise Brown from CareGiving.com and her co-host, Chris MacLellan,  Sunday July 31st at 8:00 pm eastern / 7:00 pm central on Blog Talk Radio as  we talk about when we just want to run from caregiving. Please feel free to call us during our 30-minute show! 

12144764_10207087416960465_5072855123559877099_nAbout Chris

Chris is the author of “What’s the Deal with Caregiving?” and the host of “Healing Ties,” a weekly radio show. You can learn more about  me on at  www.thepurplejacket.com and www.thebowtieguy.com.

d_cp6Qzj_400x400About Denise

Denise, founder of CareGiving.com, coaches family caregivers before, during and after caregiving. She’s the author of “The Caregiving Years, Six Stages to a Meaningful Journey” and “Take Comfort, Reflections of Hope for Caregivers.”

Join us in Chicago for the 1st annual National Caregiving Conference #NCC16. Looking for exposure for your products and services for Caregivers?  We have sponsorship and exhibitor packages to meet your needs!  Contact me direct at Chris@thepurplejacket.com

National Caregiving Conference (1)

To learn more about the conference click here!

Leave a comment

Filed under Caregiving

Become A Certified Caregiving Consultant


Education is not preparation for life; education is life itself. John Dewey

Chris MacLellan became a full-time caregiver to his partner, Richard Schiffer, after he was diagnosed with esophageal cancer two years ago.

Chris and Richard, January 2014

You made a difference when you cared for a family member.

Now, make a difference to those who care for their family member.

The next session of the Certified Caregiving Consultant training program begins the week of July 4.   Join us!

Use the coupon code “Chris” and receive 20% off the cost of the course.

Details: http://www.caregiving.com/become-a-certified-caregiving-consultant/

Leave a comment

Filed under Caregiving, Certification, Certified Caregiving Consultant

A Day of Beauty


With so much seriousness over the past few months dealing with Cancer, it is time to relax, reflect and be thankful for our time together.

So what does one do with ‘A Day of Beauty’….

20111231-130855.jpg

20111231-130908.jpg

20111231-130922.jpg

Beauty is in the eye of the beholder; we are thankful for our time together. No matter what the future has in store for us, we will forge ahead. Because in our heart and in our mind, everyday is a day of beauty!

Happy New Year from ‘The Purple Jacket’

2 Comments

Filed under Caregiving

Goodness Gracious St. Ignatius!


If you have ever had the chance to sit by the beach at night to hear the thunderous waves while smelling the salty wind, you know how relaxing that experience is.  Tonight I write from beautiful Hillsboro Beach; relaxing, reflecting and thinking about the events of the long-awaited results of the day.

“Near resolution of a previously seen hyper-metabolic focus at the gastroenterology junction since the prior study, indicting an excellent response to therapy.”    Whew…that’s a mouth full!  

Of course the conversation with the oncologist did not start out that way as he was startled to see us sitting in the waiting room.   “Bern” he called out; “you look GREAT, I did not recognize you at first!”  (We both look at each other and said…’We’re not dead yet!) If he only knew how much ‘The Little One’ hates to be called, ‘Bern’…but not today!

In layman’s terms, the reports indicates that the majority of the tumor has been removed by the ‘intense’ treatment; what is left of the tumor we hope, will lay dormant for many years to come.

‘Cautiously Amazed‘ is two words that come to mind.

The oncologist recommended that ‘Bern’ live his life as he is able.  ‘Enjoy what you can, do what you want to do.’   You don’t have to worry, doc…The Grim Reaper will have to chase us, we do not intend to grow any daisy’s under our feet.    Out of the woods, yes?  When you think of it, how many of us are really out of the woods?   You know the story…death and taxes;  It’s all in the attitude, don’t you think?  We hope and pray that what is remaining of the (little) tumor leaves us alone, let it lie idle for many years to come.

PET scans are pretty magical and pretty revealing, too…

“There is a large calcified gall stone in the gallbladder.”    Oh Boy…here we go again, another health calamity  to deal with.  The gall stone explains the pain in the back; we’ll deal with this on Monday morning, enough is enough for one day.  Aging gracefully has nothing on us!

One of the key components to age gracefully is to have acceptance of your reality. Fiercely independent most of his life, “The Little One’ knows and accepts that he just can’t do it solo.  There will be some good days, there will be some bad days…it’s just the process of aging gracefully.

Unfortunately for many LGBT seniors, aging gracefully often comes with some difficulty.  In my opinion, our bodies age by our metabolism and what we choose to put in it; our mind ‘ages’ because of our personal experiences and understanding — it’s not all relative.   I’ve never been much of a political person and my theological training has always leaned more to the social side of dogma;  bias aside, should we all not be given the opportunity to age gracefully?

Unless you’ve lived in fear, you never really know what it feels like.  Many LGBT seniors live in fear of being outed, in fear of being mistreated, in fear of the type of care they received simply because of someones personal bias.  Some are fearful that their life long partners will be turned away at their bedside because of someone’s bias.   Think of being in a hospital, nursing home or an independent living center and living in fear because of someones bias?   The closet is no fun.

It’s concerning; having empathy for  bigot is simply a misplacement of morals.

While societal norms have adjusted in recent years, we are all products of our youth.  What is ‘accepted’ today, in most cases was not on the books when we were kids.  Imagine the climate that  an 80-year-old LGBT senior faced when they grew up in?  That is their reality.  We are all a product of the societal norms in which we grew out of; some grow out of it, some over come it, some don’t care about it, some live it their entire life, many are in fear of it.  Acceptance is a two-way street.

Having the experience as a caregiver himself  for  his partner Herman of 43 years for the last 9 years of his life, provided ‘The Little One” with a keen sense of his own needs as he ages gracefully.   (History aside, 43 years together is a feat, no matter what side of the fence you’re on!)     We are fortunate that we have not experienced bias in relation to health care, yet I carry my legal documents where ever we go because you just don’t know what or when you’ll need it.  However the legal documents don’t necessarily open all the doors to the closet.

We  started on this health journey just about a year ago when we had the first flare up with the esophagus while enjoying a meal with a number of friends in Indianapolis.  Over this past year, we’ve learned a bit about ourselves; we’ve  met some new friends, had some friends leave and we have grown closer.  In our diversity, we’ve all had one thing in common and that is  we’ve all aged gracefully,  I hope.  We can’t avoid the aging process, we just do it!

Care-giving will always be an honor; and just like his health…there are going to be some good days and some bad.    It is all about the attitude: every sunset should have its dream.

I think we can see Paris in the Springtime.

 

4 Comments

Filed under Caregiving, Esophagus Cancer

The Future is Now


“No one wants to die. Even people who want to go to heaven don’t want to die to get there. And yet death is the destination we all share. No one has ever escaped it. And that is as it should be, because Death is very likely the single best invention of Life. It is Life’s change agent. It clears out the old to make way for the new. Your time is limited, so don’t waste it living someone Else’s life. Don’t be trapped by dogma — which is living with the results of other people’s thinking. Don’t let the noise of others’ opinions drown out your own inner voice. And most important, have the courage to follow your heart and intuition. They somehow already know what you truly want to become. Everything else is secondary.” – Steve Jobs

As I pondered this quote from the late Steve Jobs, I took quite a bit of solace and inspiration from it.  As a caregiver, you freely give your life to someone else while being mindful of your own individuality and needs.    As The Little One heads into his final four days of radiation treatments, our lives are changing before our eyes.   We can’t predict the future, we can only deal with the present.   We intend to live our lives to the fullest and enjoy each and every day we have.

The key here is not to wait until there is a serious illness to have this revelation.  We have been fortunate to have followed our heart and intuition since we became friends.   While our life is different because of the  illness, the illness will not control our lives.

While completing my internship in Hospice a few years ago, I was often observed families who were trying to resolve life long issues at the ’11th’ hour.  We all know that is an impossible task, yet understandable under the circumstances.   We can’t fix the past, yet we should not live in it either.    We can live today and search for tomorrow; that is what life and hope is all about.   Or as Steve Job’s put it…”Don’t be trapped by dogma — which is living with the results of other people’s thinking. Don’t let the noise of others’ opinions drown out your own inner voice. And most important, have the courage to follow your heart and intuition. They somehow already know what you truly want to become. Everything else is secondary.”

 

2 Comments

Filed under Advocate, Caregiving, Looking into the future