Tag Archives: The Purple Jacket

A Birthday Gift: Introducing TLO Travel and Tours.


Wherever you go, go with all your heart. Confucius

Richard would have celebrated  his 86th birthday today, (January 24th) and I think it is fitting to formally announce my new endeavor in his honor, TLO Travel and Tours!  For those who have been reading my blog since Richard was diagnosed with esophageal cancer will know that TLO was the fun-loving acronym I used in my blog posts to describe him when writing about our caregiving journey.  TLO simply means, “The Little One” …remember, Richard stood a foot shorter than me!   Richard loved to be called TLO, and Richard loved to travel.

wp-1454002775318.jpgAs I continue to advocate for family caregivers and for those like myself, whose caregiving journey has ended, I wanted to find an opportunity that celebrates our love, care and commitment in all shapes and forms in a way that is unique.   During our eleven years together, we spent time cruising in Europe and traveling by car and plane throughout our beautiful country.  TLO Travel and Tours is not only dedicated to Richard, but to all current, past and future caregivers and their caree’s. Traveling with your caree may not be as impossible as you might think.

I can imagine that many of my caregiving friends are thinking…”Travel with my caree…how can I do that?”  Well, let me tell you about a wonderful proAccessable travelgram called Special Needs At Sea.  I learned about Special Needs at Sea when Richard and I were booking a cruise in January of 2014. Special Needs At Sea can provide you will just about any durable medical product, from oxygen to a hoyer lift and most importantly, a scooter to help make transportation easy on any cruise ship for your caree.  Special Needs At Sea can deliver the product to your stateroom, your hotel room and even your home.  Special Needs At Sea is located in Fort Lauderdale and available in over 150 ports world-wide.  As a certified Accessible Travel Advocate, I can help arrange all your durable medical equipment needs with our friends at Special Needs At Sea.

What’s ahead for TLO Travel and Tours?  We have group cruises on the horizon, four international train tours planned through 2020 including, The Canadian Rockies, Italy, the United Kingdom, and a very special Passion Play tour in 2020.  Through my association with Travel Planners International, I have access to all the best rates for land, air and sea travel that you would see on any travel website.   As we grow into the travel business, TLO Travel and Tours will focus on group tours for current and former family caregivers, retreats to re-energize, while engaging organizations to bring their conferences and workshops aboard a cruise ship or a retreat center.

TLO Travel and Tours is pleased to announce our association with Hope Love Company. Hope Loves Company (HLC) is the only non-profit in the U.S. with the mission of providing educational and emotional support to children and young adults who had or have a loved one battl2017-01-23ing Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s. TLO Travel and Tours is the preferred Travel Company of Hope Loves Company as this wonderful organization travels to Iceland in the summer of 2017 for a terrific international camp for kids who care for their parents with ALS.  To learn more about Hope Loves Company, be sure to visit their website Hope Loves Company (HLC)  and listen to my podcast with Jodi O’Donnell-Ames, Executive Director of Hope Loves Company.   [/audio

Richard and I were fortunate to not only spend 11  wonderful years together., but to spend quite a bit of time traveling as well.  Whether it was sporting our Bow Ties on a formal night on our cruise, dining in the French Alps, or just hanging out together, we always found something to do together.  Making travel easy for those we love and care for is possible.

 This is an exciting time for me as I continue to grow my Whole Care Network brand with new radio shows, individual and corporate training events and now travel and tours.  Our new TLO Travel and Tours website is now live, but still in the development stages.  You can visit the travel website by simply clicking here!

When caregiving ends, its not surprising that we find our self lost and picking up the pieces of a life that was left behind.   That has been me for quite some.  I started to turn the corner with my grief about six months ago which means, I don’t miss him any less, I can now be present to myself and move on with my head held high.  Now, my next challenge is to step outside my comfort zone and get back to things that I am passionate about…travel and advocacy equals passion for me!

Welcome to TLO Travel and Tours, part of the Whole Care Network!  Feel free to contact me direct at chris@tlotravelandtours.com

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Filed under After Caregiving, Caregiving, TLO Travel and Tours

Dementia Patients at Home: Care Taker’s Guide


The Purple Jacket welcomes back guest blogger Andrea Bell 

Dementia Patients at Home: Care Taker’s Guide

According to the behaviorist perspective, the environment plays a key role in how people behave. The impact comes from the people as well the type of house or even inanimate objects that are placed there. Dementia is not a disease in which a patient can admit himself into a hospital and receive proper treatment. He has to live with it for the rest of his/her life. Since they cannot control the progression of the disease, what they can control is to choose the way they want to spend their remaining years. Home décor can have a significant impact on dementia patients who are receiving care at home. It is important to understand that their life has or is beginning to change drastically, so a change in surroundings to help them adapt better is necessary. Here are some absolutely easy home décor ideas especially for people with Dementia:

  1. Bedding and comfort

Every patient (Dementia or not) needs comfort. Bedding, chairs and sofas should all be soft and cozy enough for the patient to stay in. Discomfort can stress the patient very easily which can increase the adverse effects of the disease. Comfort is also provided through emotional support of the care taker, it is necessary to educate yourself about Dementia patients before taking care of them. Their mattresses should have a plastic covering as well as be fire retardant.

Here are some pages to get you started: How to properly deal with Dementia; Dementia nursing and caring tips.

  1. When Nature calls

Most patients with mild cognitive impairment or even normal physical weaknesses tend to wet their beds. It is absolutely essential to stay absolutely calm as it is already a pretty shameful moment for them. To avoid this, adult diapers and catheters are necessary. Other than this, easy to use bathroom fixtures and fittings are something that can provide the patients and their care takers both, some ease. Also, there are several kinds of bath chairs with all proper washing functions available which can be placed in the bathroom. Get them here.

  1. Reminders and forgetfulness

Dementia is probably the second name for forgetfulness. It can make the patient feel useless, as they at some point are not able to remember important pieces of information, or even the insignificant things like names of different foods or what day it is today. So to help them remember the house should be ‘reminder friendly’ in ways that the patient is instantly reminded of basic things. Sticky Notes always come in handy, even for everyday life. Post them everywhere, especially near the bedside or work areas with whatever information that you choose to remind them.

Large reminder boards can be placed on the wall, or the fridge, which can keep track of things like what time do they have to take their medicine, or how many times or pills do they have to take etc. If it is someone’s special day, like a birthday or a wedding anniversary, it can be easily posted on the reminder board in bold letters, which can allow the patient to be reminded of it every time they look at it or walk by it. You can easily by them from this store.

Bold analogue wall clocks can also be a good way for the patients to keep track of time. Large clocks with bold calendars are also available especially for dementia patients. Get them here.

  1. Way finding and wandering

A smart way to stop the patient from wandering is to plant or paste arrows inside the house, or in the backyard to allow the patient to recognize where he has to go. As soon as he begins to wander, the arrows will prompt him with the path that needs to be followed.

  1. Color selection for the eyes

With Dementia in old age, many patients may develop blindness or cataract eventually leading lives with blurry vision. Usage of bright and bold colors in things that need to be highlighted such as their pill boxes or their food containers can help them locate and even remember it easily. On the other hand, for areas such as those meant for sleeping and relaxing, the colors should be light and pastel in order to provide a soothing effect for the patient. These bold and soothing colors can be integrated into walls, curtains, bed sheets as well as the carpets on the floor.

  1. Organization to reduce confusion

Old age can cause a lot of confusion for the patient, especially if it is accompanied by Dementia. To reduce daily life confusion as much as possible, you can color coordinate their wardrobes, or pre pick out their clothes that they have to wear daily. Arrange their personal belongings or toiletries in a way that they are clear and visible right in front.

Andrea Bell is  freelance writer by day and sports fan by night.  Andrea writes about tech education and health related issues (but not at the same time). Live simply, give generously, watch football and a technology lover. Find Andrea  on twitter @IM_AndreaBell.

(All content and links submitted in this post are written and submitted by Andrea Bell.)

 

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Filed under Alzheimers, Dementia, Guest Bloggers

Caregivers: This Week on ‘Be A Healthy Caregiver’


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 Tuesday at 1:00 pm (EST) ‘Sink Your Teeth into Dental Hygiene’ with America’s Dental Hygienist Shirley Gutkowski.

To listen to Tuesday’s show live, simply click here! 

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America’s Dental Hygienist, Shirley Gutkowski

Thursday at 8:00 pm (EST) ‘The Sandwich Generation’ with best-selling  author Sherri Snelling. 

To listen to Thursday’s show live, simply click here!

Purple Suit from J Jacquez

From the Caregiving Club, Author Sherri Snelling

Listen to

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Tuesday’s at 1:00 pm & Thursday’s at 8:00 pm.  All our episodes of ‘Be A Healthy Caregiver’  are archived for your listening convenience by clicking here!

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A Conversation About Our Cargiving Cruise


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On Tuesday’s ‘Be A Healthy Caregiver’ show, I visited with Denise Brown on Caregiving.com  to discuss our upcoming Caregiving Cruise on the Norwegian Sky leaving out of Miami, Florida on November 11, 2013.   You can listen to our show by clicking here

No, this isn’t me or Denise, . But they sure look happy frolicking in the ocean in the Bahamas. We will, too!

No, this isn’t me or Denise, But they sure look happy frolicking in the ocean in the Bahamas. We will, too!

Denise  and I spoke about our goals for the cruise: To connect you with others who understand Caregiving, to have fun and to relax. We’re thrilled to be able to offer this opportunity to cruise with you. We’ve got a special price for our cruise, which includes the cost of the cruise, a one-hour cocktail party and three one-hour workshops. To make sure we keep this special rate, book your cruise by March 15.  

Have a special need?  Our travel agent (and expert) Jerry Dismaris is a Certified Travel Advocate and will be able to work with you to meet all of your special needs. Jerry will also be able to help with transportation to Miami.  He is a full-serve cruise agent!

To learn more about our cruise and to book your reservation, click here 

To go directly to booking, click here

We Might Have Cancer…

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...But Cancer Does Not Have Us! 

 

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Filed under Be A Healthy Caregiver, Caregiving Cruise

‘Be A Healthy Caregiver’ on Blog Talk Radio


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On Tuesday February 26th  at 1:00 pm,  we welcome  Denise Brown  from  Caregiving.com  to  our ‘Be A Healthy Caregiver’ show on Blog Talk Radio .

The Purple Jacket Highly recommends Caregiving.com

The Purple Jacket Highly recommends Caregiving.com

On Tuesday’s  show, not only will we be talking with one of the leading Caregiving experts in the country, we will be sharing some exciting news about our upcoming Caregiving cruise in November of 2013.  For more information on our Caregiving Cruise, simply click here. 

Our show is available live at 1:00 pm with optional chat room for you to ask questions to our guest. (Our show is archived so you can listen at your  convenience.) To access our show, simply click  here.

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 To access all our ‘Be A Healthy Caregiver’ episodes on

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Filed under Be A Healthy Caregiver, Blog Talk Radio, Bow Tie Guy, Caregiving Cruise

‘Be A Healthy Caregiver’ on Blog Talk Radio Every Tuesday at 1:00pm


Blog Talk RadioJoin us this Tuesday, December 18th at 1:00pm for ‘Be A Healthy Caregiver’ on Blog Talk Radio with our special guest, acclaimed Caregiving author,  Rob Harris.   You can listen live on Tuesday or at a time that is convenient for you by simply clicking here 

Rob’s book, We’re In This Together: A Caregiver’s Story and the 70 Caregiving Tips that he included, has been a #1 Amazon.com bestseller in the Physicians & Patient Caregiver category. Celebrities, the media, and some of the leading oncologists, surgeons and doctors in the United States and abroad have praised it. Excerpts of his book, along with many of his Caregiver Tips will soon appear in one of the nation’s leading magazines and websites: Coping With Cancer.

robharrismuralHis book has inspired many, including two songwriters that produced a song and had it recorded by an up-and-coming recording artist. The song, We’re In This Together, will be made available in the near future.

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Rob enjoys writing, blogging, and speaking in front of audiences, but gets the most pleasure from helping caregivers, patients, and those within the medical community. In whatever free time remains, he enjoys visiting with family, friends, and spending time at the beach.

If you would like to be a guest on ‘Be A Healthy Caregiver’ contact me direct at Chris@thepurplejacket.com

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Filed under Be A Healthy Caregiver, Blog Talk Radio, Bow Tie Guy, caregiver, Caregiving, Chemotherapy

Progressive Holiday Blog Party with Caregiving.com


The Purple Jacket Highly and The Bow Tie Guy highly recommends Caregiving.com

The Purple Jacket and The Bow Tie Guy highly recommends Caregiving.com

The Purple Jacket is pleased to take part in this year’s Progressive Holiday Blog Party with the wonderful members of Caregiving.com.  The Community at Caregiving.com  is like having an extended family;  I am proud to be a part of this wonderful group!

For those first time visitors to ‘The Purple Jacket’ welcome and Thank You for stopping by!  I blog about my Caregiving SONY DSCexperience for my partner, who I loving refer to as ‘The Little One.’  He was diagnosed with esophagus cancer in August of 2011.  Given three to four months to live, he has outlived all predictions.  While each one of us deals with the reality of cancer in a different way, each one of us wants to look on the bright side of life. Yesterday is gone, today is here, not sure about tomorrow. It is our hope that lets us withstand problems; it is our beliefs that let us find solutions.

To learn more about me,  I invite you to visit my ‘about page’ on my website by clicking here.

My Blog Talk Radio Show, Be A Healthy Caregiver’  airs every Tuesday at Blog Talk Radio1:00 pm.  If you would like to be a guest on the show, please contact me at Chirs@thepurplejacket.com

Currently I am the coördinator of Senior Services with SunServe Social Services in Wilton Manors, FL.SunServe logo deb  I am also an M.A. Candidate attending Gonzaga University studying Leadership and Communication .

Remember…We Might Have Cancer…But Cancer Does Not Have Us!

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Filed under advocacy, Advocate, Be A Healthy Caregiver, Caregiving, LGBT Caregiving, LGBT Couples, LGBT Seniors