Tag Archives: Caregiver Support

Going For A Ride on Christmas Eve


 Love is what makes the ride worthwhile.

 Holiday HugsOne of the many things that I have missed this holiday season is the rides TLO and  I took to see the beautiful Christmas lights up and down Ocean Drive in Palm Beach and Broward County, Florida.  Usually our drives were filled with lots of chatter, or gossip, depending  on your point of view.  Yet one thing that we did during these rides that I miss the most is simply holding hands.  There is so many ways to express love, yet there is nothing more basic, more real, than to hold hands.  That gentle touch which bringshands comfort in so many ways, is missing this holiday season.
Christmas eve was always our special night.  Whether our pocket books were flush or not, we always made that evening, our evening.  We would sit down and plan for weeks about what posh restaurant where we would make our reservation.  Yet no matter20111225-083458.jpg where we decided to have dinner on Christmas eve, we always made plans to end the evening with a drive down Ocean Drive to see the Christmas lights.  Of course a nice ice cream cone was in order too!
I have not taken a drive down Ocean Drive this holiday season.  Yet I think I am going to take that ride on Christmas eve as a way to remember…as a way to celebrate our life together, as a way to create my own Healing Ties, but most of all, I am going to take that ride just to be thankful  for having the experience of love and being loved.  Caregiving is over for us; but love endures forever and love does make the ride worthwhile.
To all who are grieving this holiday season, I wish you peace, comfort and lots of Holiday Hugs!

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Creating The Life You Love


We shall never know all the good that a simple smile can do. Mother Teresa


Join us Wednesday, December 17th at 7:00 pm (est) on Health Cafe Live for a conversation with nationally recognized and award-winning speaker, Judy Ryan.
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Judy Ryan

Judy is the founder of Life Work Systems and has been delivering personal and professional development services since 1999.
LifeWork_Logo_PRINT On Wednesday’s episode of Healing Ties, Judy Ryan and I will be discussing the topic of Creating the Life You Love because there is nothing more important than enjoying the life we have, whether at work, at home, at school, in our communities, and with those we have, no matter what circumstances we face.  This topic is timely for anyone listening, especially our Caregivers.  As Judy says: “Now, you (Caregivers) are a group that knows what is really important and you are hungry to enjoy living into your most loving, expanded human potential.”
To listen live at 7:00 pm (est) simply follow this link to Health Cafe LIVE W4HCPROOF3
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Cannot listen live?  NO WORRIES!  Healing Ties in ON DEMAND at iHeart Radio by clicking on the iHeart Icon download
TieHands ‘Healing Ties’ is a radio show about your Health, Happiness and Prosperity, hosted by Chris MacLellan, ‘The Bow-Tie-Guy.’  Interested in being a sponsor of the show, contact Chris at TheBowTieGuy@HealingTies.com.  Healing Ties is apart of  the Whole Care Network

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Laughter is the best medicine, then and now.


There cannot be a crisis next week. My schedule is already full ~ Henry A. Kissinger

As I continue to grieve and heal, I look back at those moments during our caregiving journey that brought laughter to our hearts.  Richard had such a dry sense of humor and a quick wit and if truth be told, he really did enjoy having his picture taken too.  We used humor and laughter quite bit during our Caregiving journey.  Whether it was a trip out for a delicious scoop of ice cream or a visit to get a hair cut, we tried to inject as much humor into our day as was humanly possible.

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We let our humor combat some of those dark days, too.  Richard loved Monty Python, especially ‘Spamalot’…I think we both saw the play three times.  There was a day, early on after the diagnosis where Richard was playing the music from ‘Spamalot’ when all of a sudden the famous song,

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Spamalot (Photo credit: Wikipedia)

“He’s Not Dead Yet” started to blare through the Bose speakers.  We both looked at each other in utter amazement; we laughed, we cried, we hugged each other and we laughed some more.  That song became our battle cry, and because of that song, the laughter we shared, provided that spark which enabled Richard to live his life to the fullest.

As our caregiving journey continued to unfold, there was no doubt that we traveled the journey together, side by side, one by one.  We shared in the emotions, we shared in the joy and laughter,  knowing that sorrow was somewhere around the corner.  Yet the sorrow that we shared was the realization that our time together was not going to be as long as we would have wanted it to be.  No more, no less.

The lesson that I’ve learned during our Caregiving journey was that I was  the co-pilot, Richard was the pilot. Richard was  the one going throughSONY DSC the radiation treatments, Richard was  the one taking the medicine; I was there in a supporting role, simply loving, caring and coping as best we could.  As Caregivers, our journey is filled with difficult peaks and valley’s, we try to pave the roads we journey so that the path is as smooth possible, so when there is a problem at hand,  there is always a gentle breeze at our caree’s back.  Caregiving is filled with so many raw emotions, that sometimes we forget that we are on a beautiful, yet difficult journey together.   For Richard and I, humor and laughter helped lightened some very dark days.  For us then, and for me now, laughter is truly the best medicine.  Laughter allows me to grieve and heal.

 

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‘Healing Ties’ radio show, live every Wednesday at 7:00pm on Health Cafe LIVE by clicking here 

Cannot listen live…No worries!  Hear our podcast anytime on iHeart Radio by clicking here

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Everlasting Love: TLO Is At Rest And At Peace


Love is the beauty of the soul ~ Saint Augustine

Bernard Richard Schiffer January 24, 1931 ~ March 9, 2014

Sophia Looking Gay

LilyThe house is quiet; so different, so empty. The beautiful aroma of the stargazer lilies fills the house as one by one, they bloom in their mystical way. Just as the lilies transition from a small bud to a beautiful flower; TLO’s transition into eternal life was just as mystical, and just as beautiful.  Holding him in my arms as he took his last breath on Sunday, March 9th at 1:20 pm was surely a  paradoxical honor, however we would not have had it any other way.

Our Caregiving journey ended on Sunday, March 9, yet this is not the end ofSchiffer blend our love, we just get the chance to know and love each other in a different way.  Words can’t describe how I feel at this moment, but I take comfort in knowing that he is pain-free and he left this world with a beautiful smile on his face.  When I placed his head back down on the pillow after his last breath, I knew that he was in a better place;  no stress, no strife, no agony, only peace.  I’m sure my faith will grant me those same gifts in the months ahead.

We have been on this Caregiving journey for over two years now, yet it seems like yesterday when I wrote my first post on ‘The Purple Jacket.”   Writing proved to be therapeutic for both of us, however, it is strange to realize  that the only two posts that we will never get to share with each other is this post and the post from last week, Approaching The Final Destination.  I do take comfort in knowing that TLO enjoyed reading about our Caregiving journey as much as I enjoyed writing about it.

The comfort and love I have felt from family and friends over the past week has been heartfelt.  May it continue. While on this Caregiving journey, so many people have touched our lives along they way.  I am so grateful for all   your words of encouragement. Denise Brown from Caregiving.com and her vast network of Caregivers who have been our extended family during our journey, are friends for life.  Even in the midst of the intensity of daily Caregiving, Denise and our extended family have been there at a moment’s notice to extend comfort.  Word’s can’t describe how wonderful TLO’s primary care physician, Dr. Milica Starcevic of Broward Health, has been to us during our time in her care.   Dr. Starcevic’s genuine care and concern for us will always have a special place in my heart.  It goes without saying how wonderful the entire staff at Gold Coast Hospice treated us as well.  The word that comes directly to mind when thinking about the staff at Gold Coast Hospice is ‘authentic.’  There was not one staff member who walked into our room who was not authentic in their care for both of us.  Like ministry, working in Hospice is a special calling, not everyone can do it, but the staff that we met from the administrator down, was just splendid.  We never had a worry or concern, the entire Hospice staff honored us and our relationship.

For me, life does move on, just in a different way.  As much as the two of us talked about ‘this day,’ one can never prepare for an experience like this.  He is forever in my heart, sealed with that lasting smile he left for20120407-001829.jpg me when he made his transition.  One thing that TLO asked, well…demanded…is that I start to take better care of myself.  That is my immediate intention, to create some  ‘healing ties’ so that I can become  stronger mentally and to get physically fit because on Monday, March 10th I haven’t only started a new chapter in my life, I started a new Caregiving journey as well.  That new journey is to be a Caregiver for myself.   Many caregivers have this trait where we put our needs second to the needs of our Caree.  It is easy to say we are going to take better care of ourselves, but harder to do when you’re in the midst of Caregiving.  My advocacy in the days, months and years ahead will focus on the importance of Caregivers taking better care of themselves because it is important not only for the Caregiver, but important for the Caree as well.  If I can learn to be half the caregiver to myself as I was to TLO, I think I’ll be in pretty good shape.  Following this path allows me to be with him while honoring his wishes for me to take better care of myself:  It’s a ‘win/win’ don’t you think?

As I write this on ‘The Purple Jacket”, I do not have any fancy words to share or meaningful slogans to portray, I just want to tell you about a story of love.  Two people connecting from different sides of the religious aisle, making a go at life, while forming a meaningful relationship that even to this day,  is difficult to describe.  TLO might have been slight in stature, but he stood tall in life.  With few regrets and quite a bit of joy, TLO lived his life his way. I have learned so much about being strong from him. He was and still is my best friend, pal and partner. My Caregiving cape wanted to fix everything inside of his body; eleven years just whisked by within one week in hospice with me asking that final day…”Lord, can’t I have just one more hour, one more minute to know him..to love him?”   As I gently laid his head back on the pillow after he made his transition, I was comforted to see a smile on his face.  I knew he was pain TLOCJMfree and I knew that he left this world in love and yes, he did beat Cancer!

In the weeks ahead, there will be a few announcements on ‘The Purple Jacket’ about special events that are in the works to celebrate the life of Bernard Richard Schiffer.  Our Caregiving journey has been documented over the past seven months with reporters from the South Florida Sun-Sentinel; filled with video and pictures of the two of us,  we look forward to sharing that article with you when published is just a few short weeks.   I will be writing again in the months ahead, but this space here on ‘The Purple Jacket’ is reserved for my best friend, pal and life partner, Bernard Richard Schiffer for without him, there would be no ‘Purple Jacket!’

But for now,  I must take a breath and get some rest.

   You seeWe Might Have Had Cancer: But Cancer NEVER had us.  The thing we have is Love and come to think about it, Love is the most important gift of all!

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Happy Thanks-Caregiving


You must do things you think you cannot do.  Eleanor Roosevelt

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 We are Thankful for those who are Caregivers today:

We are Thankful for those who will be Caregivers tomorrow:

We are especially Thankful for those Caregivers whose journey has past. 

We share  in our Caregiving Journey in a special way, knowing that while our Caregiving roads might be different, our paths are filled with comfort and joy from the support we receive from each other!  

Thank You for being a part of our Caregiving Journey.  

From our Caregiving Journey to yoursHappy Thanks-Caregiving         

The Bow Tie Guys!

You see…We Might Have Cancer...But Cancer Does Not Have Us! 

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‘Be A Healthy Caregiver’ is on hiatus until January 2014 while ‘TLO’ is undergoing radiation treatments.  To listen to  archived episodes of our show, simply click here! 

Christopher MacLellan is a Certified Senior Advisor, the coordinator of senior services for SunServe Social Services and the host of ‘Be A Healthy Caregiver’ on Blog Talk Radio.  ©ThePurpleJacket

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Thursday’s are always ‘Hug A Caregiver Day!’


Caregiving can sometimes be hard:

But Hugging a Caregiver is easy!

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Listen to: 

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‘”Be A Healthy Caregiver” is on hiatus while “TLO” is undergoing radiation treatments.  We plan on being back on the Air in Januray!

Can’t listen live…NO WORRIES!

All of our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here! 

 

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Thursday are always ‘Hug A Caregiver Day!’


Caregiving can sometimes be hard:

But Hugging a Caregiver is easy!

thursdays

Listen to: 

cjmbtr (1)

‘Be A Healthy Caregiver’ is on hiatus until December while the ‘TLO’ is undergoing radiation treatments for his cancer

Can’t listen live…NO WORRIES!

All of our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here! 

 

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Thursday’s are always ‘Hug A Caregiver Day!’


Caregiving can sometimes be hard:

But Hugging a Caregiver is easy!

thursdays

Listen to: 

cjmbtr (1)

‘”Be A Healthy Caregiver” is on hiatus while “TLO” is undergoing radiation treatments.  We plan on being back on the Air in December!

Can’t listen live…NO WORRIES!

All of our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here! 

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The Foundation: The Honor Of Caregiving.


I have looked into your eyes with my eyes.  I have put my heart near your heart. Pope John XXIII

This Friday I will be presenting on Caregiving at SunServe’s Silver Serve Luncheon.   I’ve taken most of what I have written below from previous blog post on ‘The Purple Jacket’.  Your feedback is always welcomed! 

The Foundation: The Honor Of Caregiving

To be entrusted with the care of another human being is one of the greatest honors that can be bestowed on you.  Caregiving takes on meaning that is beyond reproach.  New parents have nine months to prepare for the responsibility of bringing a child into the world.  Doctors and nurses undergo years of rigorous training for the work that they do.   But CaregiversDavid Allen can find themselves thrust suddenly into roles, roles that they often do not choose, when called to care for a spouse, partner or loved one after a diagnosis or accident.

At a moment’s notice you become a Caregiver, without any warning, with any training, without any time to think things through.  You feel like you have no idea of what you are supposed to do, so you do your best as you follow your instincts and common sense.  You embrace the new reality…You simply care for the one you love.

When you become a Caregiver for your spouse, partner, significant other,   a new and uncharted realm opens up.  Two distinct relationships must now be blended into one.   The familiar partner from the past remains and is always present. But now there is someone different on the scene – someone with a significant illness.

Suddenly, two people sharing a life together will face challenges that cannot  be left unattended?  A whole set of new and intense emotions are likely to intrude on the relationship.  Worry, detachment, mortality, anger, fear of abandonment and having to live life alone,  begin to intertwine with the idiosyncrasies of your personal dynamics.  These gut wrenching emotions can lurk in a caregiver’s mind when faced with a life-and-relationship-altering illness with your life partner.

Caregiving is an intense experience that asks you to surrender yourself to the needs of someone else.  Often times, you have to give up things that you love, in order to care for the one you love.  Even though it might feel like a hardship, you make the choice, you make the choice because you know that it is what love and commitment is all about.  Yet it is not that simple, because Caregiving can be an emotional, physical, and interpersonal roller coaster that is both tremendously rewarding and frustrating.   These emotions can surely test even the best communication and trust in a relationship.

The common denominator when blending a life partnership with Caregiving is communication.

Successful relationships are built on strong communication and trust.  It is throughcaring hands honest communication that the true essence of a life partnership is revealed.  This does not change when you add the role of Caregiver to the mix.  Communication has to be the focal point for conveying the wants and needs of the one who is ill. This must be accomplished without losing one individuality, the life partnership, or the role of the Caregiver.  The term “delicate balance” takes on a whole new meaning

Frequent review and maintenance of clarity in your roles becomes crucial so that our judgment and decision-making skills are based on sound facts instead of raw emotions.  How much can the mind and body take when faced with so many changes in such period of time? I think that really depends on the couple’s ability to safely, clearly and honestly communicate their wants, needs and desires as indicated by the partners health needs first and the relationship second.

While I have no doubt that caring for your life partner will strengthen a relationship, Caregiving will change a relationship too!  It is not uncommon to see someone who has been firmly independent, become dependent in certain areas of life that have been difficult for them to accept. Stepping outside one’s comfort zone and asking for assistance with mundane everyday chores adds stress to both parties…That is undeniable!

Caregivers often become the voice for the one who is ill.  As Caregivers, we have to be mindful that we are in a supporting role.  First and foremost, Caregivers are advocates.   In our role as an advocate, we must remember that what we may want for our loved one may not necessarily be what the love on wants. What a slippery slope this becomes when caring for your life partner!

Life’s journeys are not often driven on smooth roads, but we can always hope for a gentle wind at our back. This gentle wind is always fortified by love, trust, commitment and communication.

…My your hills be always be slight and with a gentle wind at your back.

The Purple Jacket©

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That’s What Caregivers Do!


Presidential Proclamation — November is National Family Caregivers Month!

 I am proud to be one of the over 60 million Caregivers in the United States today.  Being a Caregiver can be, and often is challenging… But also so very  rewarding.  I believe that to be entrusted with the care of another human being is one of the greatest honors that can be bestowed on another person.  Those long sleepless nights, those challenging trips to the doctor and hospitals, those times when you have to intercede, educated and advocate come full circle when your Caree looks at you and  simply says…”Thank You for what you do for me.”  

I am also mindful of those family Caregivers who are never thanked, never appreciated and overworked.  If it means anything to you, from one Caregiver to another, I offer my thanks and appreciation to you because… That’s what Caregivers do! 

Caregiving is not a role that is often chosen and Caregiving is not for everyone.  Caregivers come in many different shapes, sizes, philosophies and cultures:  Caregiving and Caregivers are diverse. While our Caregiving  journeys might be different, Caregivers have this innate ability to understand each other,  to care for each other, to be there for each other, because…  That’s What Caregivers do!

Through the wonders of the internet, my Caregiving journey has been enriched by the countless number of people I have met along the way.  Each one of you have inspired me, supported me and have been there for me because… That’s what Caregivers do! 

A special ‘thank you’ to Author, Caregiving Coach, Speaker and owner at Caregiving.com Denise Brown and my extended family at  Caregiving.com  for your support. You opened up your ‘home’ to us and made us feel welcome from the start because…  That’s what Caregivers do!

We know that our current Caregiving journey is going to be filled with a few bumps and bruises along the way; Cancer has a way of doing that.  Yet we know those bumps and bruises will be a tad softer because of our extended Caregiving family we’ve met along the way because…That’s what Caregivers do!.  

TLO

Caregivers: Thank You for all you do from Bernard Richard Schiffer…’The Little One’

To all Caregivers, I share this simple smile from a very special fellow whose courage is unbounded, as a way of thanking you for all that you do, because…That’s what Caregivers do! 

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