Tag Archives: advocate

What’s On Your Refrigerator?


The Giving Of Love Is An Education In Itself…  Eleanor Roosevelt 

 I was thinking about that television commercial which constantly asks ‘What’s In Your Wallet’ and how catchy their marketing theme is.  I instantly think of Capital One when I hear that phrase…’What’s In Your Wallet’.  We keep most of our important identification and credit cards in our wallet; I think carrying important identification and credit cards in a wallet a common trait for everyone.

As we move into the second phase of palliative radiation treatments, and while engaging our new friends with Hospice Of Broward County, it occurred to me that we are going to have a number of ‘new friends’ visiting us in our home.  It is going to be important for these new friends to have quick access to our important documents which include TLO’s current meds and medication history, doctor information, health care directives, DNR, Durable Power of Attorney.  That is why I put (some of) these  important documents on our refrigerator in our File For Life folder for easy access!  We even spiced our file up with a little New Orléans!

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 While I am a big proponent of electronic media and databases, we also have to be mindful that sometimes networks and computers crash.  When you need your most important documents at a moments notice, the last thing you need is a failed hard drive or jump drive to add to the stress.  In my opinion, there is nothing that replaces the hard copy of your important documents.

The key to having a hard copy of these documents is to know where they are at a moments notice.  When you are in the midst of an emergency, the last thing that you want to have to think about is..‘where are those documents!  Additionally, you want emergency personnel to have quick access to these documents.   In our File For Life, I have a spreadsheet of TLO’s current meds, Doctor’s / Hospice contact information, Diagnosis, DNR and my contact information.  I also indicate in our File For Life, where the larger documents are located, I.e. Power of Attorney, Health Care Proxy, Living Will.

So…’What’s On Your Refrigerator?’

You see…We Might Have Cancer, But Cancer Does Not Have Us! 

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Positive Thoughts Helps Ease The Diagnosis


Today we had our second visit to the radiation oncologist to secure images on TLO’s spine in order to determine the course of action for the upcoming radiation treatments. We were so pleased by the experience we had today because of the care and concern showed to us by the technician who was taking the images.

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Luis was a class act today. He took the time to thoroughly explain to us the procedure, what to expect and when we would know of the results. He listened attentive to our questions and made us both feel at ease. But I think what set the positive tone off was the way he greeted us in the waiting room. He went right over to TLO, extended his hand and introduced himself, then turned to me with the same warm welcome!

His approach was truly an ice breaker!

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Luis’ style today was not only professional and friendly, it was therapeutic! His demeanor today completely put TLO at ease, which has lasted the rest of the day.

“I really feel good today” said TLO after dinner this evening. “Was my cooking that great tonight I asked?” “Don’t kid yourself” he said. “I really came away from our appointment today feeling good about the how I was treated and the whole environment of the office. Luis was so nice to me and listened, that does not always happen in these settings. I am so glad that we are going to this office for treatments, I feel safe, secure and appreciated!”

I agree with him 100%!

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As the night has progressed, TLO is resting comfortably and we are both at peace thanks to Luis’ excellent care today. We don’t look at the future as being bleak, we look at each day as a blessing to share with each other, to care for each other and to be open to the days ahead.

We’ve had our cries; we’ve had our frustration and now we just deal with the reality of what is in front of us. One simple act of kindness by Luis today help alleviate 10 days worth of fear and frustration. Our hats are off to Luis!

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You see… We might have cancer…but cancer does not have us!

 

 

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Cancer: That Unwelcomed Guest Has Returned


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Love Is Composed Of A Single Soul Inhabiting Two Bodies:  Aristotle 

Saturday’s revelation that ‘The Little Ones’ cancer has metastases to his spine was devastating.  Two years past his radiation and chemotherapy treatment for esophageal cancer, we are back facing this vicious disease.  ‘It’s’ been knocking on the door the last few weeks; it is difficult to acknowledge this unwelcome guest has returned with new vigor and new strength.

I am not sure I can accurately describe our emotions at this time.

Concerned for the past few weeks that the tumor was active again, Friday’s MRI and CT scan proved our suspicions true.  While the news is unwelcome, we are thankful that at least we know the source the pain and discomfort which will allow us to act accordingly.  Palliative radiation is a new term that I learned on Saturday; TLO will immediately start palliative radiation treatments to help relieve the serve pain that suddenly came upon him Thursday night.

Scary does not do his pain justice on Thursday night; nor how we feel right now.

Imploring the attending physicians at the hospital to consult with TLO’s primary care physician helped avoid an unnecessary cardiac catheterization procedure which would have been dangerous and certainly unnecessary.  The cardiologist was sure his issues were cardiac, ‘he has the classic symptoms and history of heart disease,” said the cardiologist.  ‘That may be true, but before we make any decisions on doing a cardiac catheterization, it is important that we first find out what is going on with the tumor; we are not doing any invasive procedures until we have the MRI and CT scan’, I suggested. The cardiologist was working out of his area of medicine and we respect that.  

The harsh reality of the news creates an immediate void to an unpredicted 1385583_607513719290066_905165614_n (1)future.  The last twenty-four hours back at the house has found both of us to be just a bit sad and depressed.  We both have to watch those emotions so that they do not permeate our decision-making process. Depression often plays such a strong role in how disease functions in the body.  While we are both cognizant of that, it comes down to mind over matter.  As I’ve said before…”It just ain’t easy!”

A whole set of new and intense emotions intrude on us right now.  Worry, detachment, mortality, anger, fear of abandonment and having to live life alone. These gut wrenching emotions lurk in our minds when faced with a life-and-relationship-altering illness.  Often times, you have to give up things that you lovein order to care for the one you love.

Over the past 24 hours, we have had the chance to talk openly about what lies ahead of us.  As we begin to accept the raw news that was delivered yesterday, TLO is insistent that we continue to advocate for those who have no one to advocate for them.  “What would have happened to me if I had gone ahead with the cardiac producer; what would have happened to me if I had no one to advocate for me,” TLO exclaimed!  We intend to be as open as possible with everyone as we move forward with treatments.

We will push ahead because life’s journeys are not often driven on smooth roads, but we can always hope for a gentle wind at our back. This gentle wind is always fortified by our love, our faith, our friends and our trust.

Thank You for being a part of this journey with us!

You see…we might have cancer, but cancer does not have us! 

TLOCJM

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Tuesday On Be A Heatlhy Caregiver


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Tuesday’s topic on ‘Be A Healthy Caregiver’ is the  Society of Certified Senior Advisors in Denver, Colorado.   To listen to our show live, simply click here!

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Through the vision of Ed Pittcok, founder of Society of Certified Senior Advisors,  Ed gathered experts in all facets of aging, including doctors, attorney, geronotoligst, accountants and financial planner.  All shared Ed’s vision; that seniors would benefit from an in-depth, standardized education from professionals who work with seniors. The education program that his group of renowned experts created became the basis for the Certified Senior Advisors (CSA) designation.

Why work with a CSA?  CSA’s are held to a high standard of competency as the society wants only ethical, honest and principal professionals as members. Any professional who wants to become a CSA must first agree to the CSA Code of Professional Responsibility.

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Curtis Petersen

Our guest today,  Curtis Petersen, has spent 7 years as a National Accounts Manager with the Society and works directly with national companies and professionals in the senior market navigating the education and certification process.  Through our conversation today with Curtis, not only will we learn of the importance of working with a CSA, we will all learn how to ‘Be A Healthy Caregiver!’

To listen to our show live, simply click here! 

To contact the Society of Certified Senior Advisors call 888-819-3917

To locate the Society of Certified Senior Advisors on-live visit these links:

www.csa.us

https://www.facebook.com/CertifiedSeniorAdvisors

www.linkedin.com/in/curtispetersen

www.twitter.com/SocietyCSA

blog.csa.us

Listen to:

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Tuesday’s at 1:00 pm / Thursday’s at 8:00 pm: all times eastern

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Tuesday On Be A Heatlhy Caregiver


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Tuesday’s topic on ‘Be A Healthy Caregiver’ is the  Society of Certified Senior Advisors in Denver, Colorado.   To listen to our show live, simply click here!

Member 2C

Through the vision of Ed Pittcok, founder of Society of Certified Senior Advisors,  Ed gathered experts in all facets of aging, including doctors, attorney, geronotoligst, accountants and financial planner.  All shared Ed’s vision; that seniors would benefit from an in-depth, standardized education from professionals who work with seniors. The education program that his group of renowned experts created became the basis for the Certified Senior Advisors (CSA) designation.

Why work with a CSA?  CSA’s are held to a high standard of competency as the society wants only ethical, honest and principal professionals as members. Any professional who wants to become a CSA must first agree to the CSA Code of Professional Responsibility.

CurtisPeterson

Curtis Petersen

Our guest today,  Curtis Petersen, has spent 7 years as a National Accounts Manager with the Society and works directly with national companies and professionals in the senior market navigating the education and certification process.  Through our conversation today with Curtis, not only will we learn of the importance of working with a CSA, we will all learn how to ‘Be A Healthy Caregiver!’

To listen to our show live, simply click here! 

To contact the Society of Certified Senior Advisors call 888-819-3917

To locate the Society of Certified Senior Advisors on-live visit these links:

www.csa.us

https://www.facebook.com/CertifiedSeniorAdvisors

www.linkedin.com/in/curtispetersen

www.twitter.com/SocietyCSA

blog.csa.us

Listen to:

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Tuesday’s at 1:00 pm / Thursday’s at 8:00 pm: all times eastern

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Caregivers And Their Relationships!


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On Thursday September 5th, at 8:00pm (EST) we welcome, the Wisdom of Matt Ghezzi, MS, LMHC, ACHT.

To listen to our show live, simply click here! 

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Matt Ghezzi, Ph.D.

Thursday September 5th, at 8:00pm (EST) 

Caregivers and their Relationships!

Matt Ghezzi is a Licensed Mental Health Counselor in the state of Florida, and is certified as an Advanced Clinical Heart-Centered Hypnotherapist and an expert in the field of Chakra.  On Thursday’s show, we are going to focus on Caregivers and their relationship.  We will take a look at the  Victim Triangle and how that impacts not only the Caregiving relationship, but the relationships outside the caretaker, such as family, health care professionals, social workers, hospice care, colleagues etc.   Dr. Ghezzi will talk about hypnotherapy and the subconscious and how that works in our relationships as well as grief and loss.     Dr. Ghezzi will lead us in a discussion on how to capture  positive energy in all our relationships so that we can  ‘Be A Healthy Caregiver!’

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 To listen to our show live, simply click here! 

To learn more about Matt Ghezzi, simply click here! 

Can’t listen live, NO Worries…All our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by simply clicking here! 

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Caregivers: Learn to Unfrazzle!


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Wednesday September 4th, at 8:00 pm (EST) I welcome Rajiv Mehta, creator and developer of ‘Unfrazzle’ to ‘Be A Healthy Caregiver’ on ‘Blog Talk Radio. You can listen to the show live by simply clicking here! 

‘Unfazzle’ is a Caregivers  App which helps Caregivers not only sort out their Caregiving days, this App allows Caregivers to share information with those who are on the Caregiving team.

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Raj Metha

Caregivers you are going to want to Unfrazzle!

 OH and did I mention that Unfrazzle is a FREE APP! 

Click here to listen to our show live! 

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Lost Time Is Never Found Again


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Time Is What We Want Most, But What We Used Worst…William Penn

This week we motored to the Eye Doctor for an appointment for TLO.  This was a new doctor added to our portfolio as his previous Eye Doctor was no longer on the TLO’s insurance plan.   Like many caregivers, I ended leaving 

eyecheckwork early in the afternoon to pick up TLO so that we could head west to the appointment.  Twenty minutes from work to home; Twenty minutes from home to the doctor’s office, I guess you can say I was ‘Driving TLO’  (Driving Miss Daisy just did not sound right!)

On our way to the Doctor’s appointment, I got my first indication that this appointment had the potential to be a problem.

  • TLO: “When I made the appointment I asked them to send me the paperwork so I could fill it out and have it ready when we arrive.  I never received the paperwork, so if I do not have any of the information they need, I am going to write on each line, “I’m too old to remember because you did not send me the paperwork ahead of time!”
  • Me:  “How long ago did you make this appointment?”
  • TLO:  “At least six weeks ago and I called them in the mean time to ask them to send me the paperwork”
  • Me: “So you made two request for the paperwork”
  • TLO “Yes!”
  • “Oh Boy” I thought to myself…”This is going to be a long afternoon”

 We promptly arrived 15 minutes ahead of schedule and TLO started to fill out his paperwork.  Surprised that he did not say something to the receptionist about not being mailed the paperwork prior to the appointment, he took pen to paper and started to fill out the requested information.  (Of course, they took his Co pay first!)  As I peeked over to see what how he was doing with the paper work, I noticed a few long answers which started…”I’m too old to remember”… I chuckled, but made sure he was not missing any critical information that the doctor or staff needed which was important to his care.

While completing the paperwork we sat in what I thought was a waiting room, which was empty.  “We are going to move through this appointment quickly I thought.”  WRONG!  45 minutes later the receptionist called us and pointed us down the hallway to a second waiting area.  We were shocked to find 12 people in this waiting room to see the ‘tech’ then the doctor’.  Another 45 minutes, and finally he is called in for his eye exam, which took all of about 15 minutes.

While watching the other patients in the waiting room, I was trying to determine how people were being called in for their exam.  There seemed to be no rhyme or reason as patients who were there before us, were called after us.  You know that is the case when you get the evil eye from someone sitting across the room from you when your name is called, and their name is not.  I could see the nurses, tech support, receptionist all fluttering around the office, but no one taking charge.  Patients sitting there getting frustrated: receptionists with their glass window closed.

Soon TLO returned with the nurse who said…“Take a seat, Mr Schiffer the doctor will see you soon!’  I said to him, ‘What’s up, did you not see the doctor’…’no’ he replied, ‘they just did the test, they will call us again to review with the doctor.’

Oh boy, more delay’s, there is just so much daytime TV one can take; How do people watch those judge shows?

Time continues to drag on, and on and on… now we’re past two hours waitingeye rolling in this office, (as were many of the other patients) and we’re both started to get frustrated.  One of the nurses approaches us wanting to know his primary care doctor and his previous eye doctor. “All that information is on the paperwork, what seems to be the problem” we said in unison. (Yes, he did put that info on the paperwork!)  ‘Oh, we’re just waiting on the referral’ the doctor will not see you without the referral.  YIKES!

One of the great things about TLO is that he follows up with his Primary Care Physician on a regular basis when there is a need for a referral.  He confirmed weeks prior to the appointment that the referral had been sent by his PCP.

Before I could even get to the receptionist to straighten out this mess, TLO had beaten me to the punch.  Let us just say that we have two very diverse ways in handling conflict.  I will let your imagination  run wild about his loud and direct conversation with the receptionist!

thumbsdownTwo and a half hours into our extended stay at the Eye Doctor’s office, we finally just left. 

We have reported the Eye Doctor to our Primary Care Physician so that they do not make any more referrals to that office.  Knowing that they have the needed referral, we have also reported the Eye Doctor to our insurance company because we are both confident that they will bill for the appointment.

Time is a precious commodity. Too often time waiting in doctors’ offices is wasted by inefficiency of the staff; we have all experienced it.  But how do we combat it?

  • Always tell the doctor about your positive and/or negative experience with staff or office procedures, often doctors are the last ones to know.  It is their reputation!
  • Always tell the referring physician about a positive/negative experience with a referral they  have made.
  • When going to a new doctor, always ask for the paperwork in advance of the appointment to help expedite the wait time.
  •  Inform your insurance provider of a problem with a referral
  • Always double-check with your PCP to make sure that the referral has been made.

 I would love to hear what you do to combat wasted time at the doctor’s office!

You see…We Might Have Cancer, But Cancer Does Not Have Us!

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Elder Care Mediation


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 Join us Tuesday, July 30th at 1:00 pm (EST) for a conversation with  Doris Haas and Bonnie Pará from Elder Care Mediation.  Doris and Bonnie are both Florida Supreme Court Mediators with extensive experience in senior care. To listen to our show live, simply click here! 

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Families are complex entities, and it is not unusual for submerged anger or conflict to boil up in times of stress. Siblings can often find it difficult to work together to help their aging parents, especially when there is unresolved conflict between them.  It can feel impossible to think about being together to make decisions regarding the well-being of their parents. Hence the need for Elder Care Mediation!

Elder Care Mediation

Our episode on Tuesday will surround the importance of Elder Care Mediation and why having an objective third person involved in the process is beneficial to everyone. Through our conversation with Doris and Bonnie, we will all learn how to ‘Be A Healthy Caregiver!’

To learn more about Elder Care Mediation, simply click here!

To listen to our show live, simply click here! 

Can’t listen live...NO Worries…All our episodes are archived for your listening convenience by clicking here! 

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Caregivers: This Week On ‘Be A Healthy Caregiver’


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This week on Be A Healthy Caregiver’ on Blog Talk Radio I welcome:

‘Elder Care Mediation’: Tuesday at 1:00 pm (EST) with 

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Doris Hass and Bonnie Pará from

Elder Care Mediation

To listen to the show live on Tuesday, simply click here! 

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Caregiving Has No Boarders’: Thursday at 8:00 pm (EST) with 

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Author Rick Lauber

To listen to Thursday’s show live, simply click here! 

Cannot listen to our  shows live…NO Worries!  All our episodes of ‘Be A Healthy Caregiver are archived for your listening convenience by clicking here!

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