Tag Archives: advocacy

Caregivers: It’s Time To Get Healthy with ‘VRide’


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We do not have to do it alone!  

What is a V-Ride you might ask?  V-Ride stand for Virtual Ride, or better yet a fancy word for a ride on a stationary bike!    I am teaming up with my friends at Caregiving.com  to create awareness to caregivers health.

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Caregivers often put  own personal needs second, which often turns into weight gain or other calamities which can affect one’s health.   I’ve been there! 

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As Caregivers, we are united in our care for our caree, now through our VRide we can unite in care for ourselves.  The great thing about the VRide is that anyone can do it.  VRide is about getting fit, staying motivated and making virtual visits to other family caregivers. My first destination is to ‘visit’ another caregiver in the Orlando area.  In fact my riding partner on the west coast of Florida ‘will meet me there.’  Once we’ve made it to our destination, we’ll visit another caregiver in another state.  We’ll make stops along the way and chart our progress on a daily basis.

Here is a map of my route to Orlando…

Deerfield Beach, FL to Orlando, FL - Google Maps 1

I have just a tad over 200 miles to pedal to ‘get’ to Orlando, it will be a daunting ride, but one that will be healthy for me. Our ‘V’ Ride allows caregivers the comfort of exercising in the comfort of their own home without the worry of leaving their caree behind. This is a win/win for everyone.

You can follow my progress here on ‘The Purple Jacket’ and on Caregiving.com   There will be updates on Twitter, Facebook, and YouTube, too.

Thre is an  estimated 65.7 million caregivers in the U.S; Research tells us that Caregiving can have serious physical health consequences. In fact, 17% of caregivers feel their health in general has gotten worse as a result of their Caregiving responsibilities.  I have allowed my weight to balloon up to 253 lbs, a mere  73 lbs off my target weight.

Weight as of January 19, 2013

Weight as of January 19, 2013

I know most of the weight I have put on is  because of the stress of Caregiving, yet I also have to take personal responsibility too.  If I am to Be A Healthy Caregiver, I have to take better care of myself, too.  The VRide is one way that I can give back to others while helping myself. 

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Want to join us? Great! Just start moving and post your daily activity in our VRide group. We’ll add events to our group’s calendar when we know the dates of a virtual stop and a caregiving visit.  To join our group and blog, you must be a member of Caregiving.com. It’s easy and free to join; just go here.

The Purple Jackety Highly recommends Caregiving.com

The Purple Jackety Highly recommends Caregiving.com

 Don’t let your health linger any longer, come join us on our VRide!

We Might Have Cancer…

TLOCJM

…But Cancer Does Not Have Us

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‘Be A Healthy Caregiver’ on Blog Talk Radio


On Tuesday, January 22nd we welcome Mandy Harrell from Wearvever* USA to our ‘Be A Healthy Caregiver’ show on Blog Talk Radio.  The Wearever* Brand offers comfortable, quality, affordable and stylish apparel solutions for everyday health and wellness concerns.  You can access the show live or at your convenience (after Tuesday at 1:30pm) by clicking here

The men’s and women’s line of washable, reusable urinary incontinence panties and briefs is especially beneficial for active people who want to continue their normal lifestyles without worry or emotional stress resulting from urinary incontinence.  Additionally, Wearever* offers incontinence bedding products as well as Buster Brown socks.

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As the Brand Manager for Wearever* USA, Mandy will provide us with some helpful tips and talk about their great products as Wearever USA helps us to ‘Be A Healthy Caregiver!’ 

To learn more about Wearever* USA, you can visit their website by simply clicking here.

Our show is available live or archived online for your convenience.

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To access all our ‘Be A Healthy Caregiver’ episodes on

blogtalkradiologo Simply click here

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Caregivers: How Do We Listen at the End of Life?


On Tuesday  we welcomed  Dr. Richard Wagner, M.Div., Ph.D., ACS to our ‘Be A Healthy Caregiver’ show on Blog Talk Radio.

Dr. Wagner’s book ‘The Amateur’s Guide to Death and Dying: enhancing the wagner._SL110_End of Life.”   provides us with a realistic view of a topic that is often difficult to talk about.  Out of Seattle, WA., Dr. Wagner has worked in the field of end of life issues for over 30 years.

As Caregivers, we often face the issues of death on a daily basis.  Yet as caregivers, we often help facilitate healthy transitions for the person that we care for and love.  “Curiously enough, people who are dying usually have a different priority system at this time in their life…..”   As the caregiver, we are so focused  on the needs of our caree, sometimes we just need to be present and listen.

During my Caregiving experience with Fr. Orlando, I had the privilege to hold him while he made his transition.  I would not have been able to do that without knowing from our conversations that he was at peace with his life and had accepted what was going to happen.  Of course, during those marvelous conversations, we had no idea when the time would come, yet we both knew that it would come. Those last few weeks with him were amazing and filled with raw emotions.  Honest, heartfelt conversations seemed to happen with such ease.  That was his way of preparing me for what was coming down the road.   Sometimes, listening is the best answer.

While death is not a ‘lively’ topic to talk about, I am confident that you will find the conversation with Dr. Wagner upbeat, real and sensitive.

To listen to Tuesday’s episode,  simply click here (I would appreciate your feedback on this episode.)

To learn more about Dr. Wagner, click here.

To purchase Dr. Wagner’s books, click here.

Next Tuesday, January 15th at 1:00pm (est) our guest will be Mandy Harrell from WeareverUSA .  The Wearever brand offers comfortable, quality, affordable and stylish apparel solutions for everyday health and wellness concerns.

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To access all our ‘Be A Healthy Caregiver’ episodes on blogtalkradiologo

Simply click here

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‘Be A Healthy Caregiver’ on Blog Talk Radio


On Tuesday January 8th,  we welcome Dr. Richard Wagner, M.Div., Ph.D., ACS to our show Be A Healthy Caregiver!  Out of Seattle, WA., Dr. Wagner is a psychotherapist/clinical sexologist and has been in private practice since 1981.

Dr. Wagner has been working with the terminally ill, chronically ill elder and dying people in hospitals, hospice and home settings for over thirty years.

We will be chatting about Dr. Wagner’s work and his book The Amateur’s Guide to Death and Dying: enhancing the End of Life.  As Caregivers, we are often dealing with issues surrounding life and death.  Our conversation will be upbeat, real and with a touch of spirituality.

To learn more about Dr. Wagner, click here.

To purchase Dr. Wagner’s books, click here.

To Listen to  Dr. Wagner on ‘Be A Healthy Caregiver’ on  Blog Talk Radio click here

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Our show is available live or archived online for your convenience.

To access all our ‘Be A Healthy Caregiver’ episodes on blogtalkradiologo

Simply click here

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Helpful Tips from All Mobility Scooters!


I am pleased to welcome Paul Stiner from All Mobility Scooters as a guest blogger to ‘The Purple Jacket’

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Stress is natural during this time of year, especially when in a wheelchair or mobility scooter; however, we at AllMobilityScooters.com want to ensure that you have a safe and relaxing Holiday season this year. Here are some tips on how to get through the winter with your mobility aid:

  • When venturing outdoors:  It’s always best to wear multiple layers of clothing. It would also be wise to carry a cell phone in case of emergencies, even if it’s a cheap pay-as-you-go phone. If there is snow or ice on the ground, one tip we’ve found useful is to create “snow tires” on your scooter or wheelchair by securing cable ties around the tires (a caregiver may have to assist with this process).
  • When travelling out-of-town by plane: It’s important to call your airline before booking your flight. You want to make sure the plane can accommodate you comfortably with wider aisles and other helpful features. As a rule of thumb, arrive at the airport at least 2 hours before domestic flights or 4 hours before when flying internationally. Airline staff is generally pretty helpful when it comes to getting you on and off the plane safely and comfortably so never feel afraid to ask! For a full list of travel tips— check out this article on our AMS main page.
  • When planning to attend holiday parties/family get-together: Don’t feel afraid to make sure the host has the proper accommodations for your mobility device, especially if you’ve received your mobility aid recently. Of course when it comes to alcohol, drink responsibly, especially in unfamiliar territory. Also make sure your special holiday drinks won’t interfere with any medications you might be on.

We hope you find this post helpful. Feel free to leave any feedback or questions in the comment section below, and we’ll do our best to respond promptly. Stay safe, stay warm, and we wish you all an amazing holiday season!

Author Bio:

Paul is one of the staff writers for AllMobilityScooters.com, a one stop source for all of your mobility aid needs.  He enjoys traveling and international affairs but is also deeply passionate about issues related to health care and elder care. paul.stiner@allmobilityscooters.com

Thanks Paul for your sound advice!  heart

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On Tuesday’s ‘Be A Healthy Caregiver’ Show with Rob Harris…


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To purchase Rob’s book from Amazon.com, simply click on the icon above

On Tuesday’s ‘Be A Healthy Caregiver’ show,  we had a wonderful conversation with acclaimed Caregiving author Rob Harris.   Rob, who cares for his wife Cindy,  has written a beautiful book, ‘We’re In This Together: A Caregivers Story.’  Rob’s book takes us on a Caregiver’s journey that is heartfelt, real and without a doubt, a true love story.   While reading the book, I felt as if I was sitting in Rob and Cindy’s living room,  having a conversation with them while sharing a cup of coffee.    Rob’s ability to pinpoint his 70 Caregiving tips to his real life Caregiving experience, is a must read for anyone who is, will be, or has been a caregiver.  There is a reason Rob’s book has been a #1 Amazon.com best seller in the Physicians & Patient category.  I highly recommend, ‘We’re In This Together: A Caregivers Story.‘  You will not be able to put the book down!  You can purchase Rob’s book through Amazon.com 

You can listen to our conversation from Tuesday’s  ‘Be A Healthy Caregiver’ show by simply clicking here.

For more information on Rob and to follow his blog, Facebook Page and Twitter updates, please visit his website at www.robcares.com or simply click the icon below. robharrismural

 

 

 

 

The Fab 4 together

The Fab Four

Blog Talk Radio

Be sure to join us every Tuesday at 1:00pm for ‘Be A Healthy Caregiver on Blog Talk Radio.  Yes, we are on the air next Tuesday, Christmas afternoon with ‘The Fab Four’ …no, not those guys from England;  My four fabulous sisters!   Having a sister is like having a friend for life,  I am lucky enough to have four!  My Caregiving genes are rooted through the love and care my sisters have demonstrated to me over the years.  Our conversation Tuesday will be fun and upbeat.  After this half hour, you will know  why they are the ‘Fab Four’!

 

 

Remember:  We might have Cancer…But Cancer Does Not Have Us! 

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Every Day: Set An Intention For Yourself.


‘Be A Healthy Caregiver’ on Blog Talk Radio 

On Tuesday’s ‘Be A Healthy Caregiver’ Blog Talk Radio Show, my special guest was David Levison from ‘Get2BFit’ in Fort newlogoLauderdale, Fl.  David and I talked at great length about the importance of getting into a routine the centers around our personal health and well-being, along the importance of having a good body image.     Yet one of the comments from David that stood out the most was simply this:  Every day:  set an intention for yourself.

As caregivers, we often take a back seat and never ‘set and intention’ for ourselves: I think David is on to something sunset_yoga_girlshere!    Often time as caregivers, our intentions are completely focused on our Caree.  To set an intention for ourselves seems scary, but…it is the right thing to do.  Setting an intention keeps us on track, allows us to focus on our needs, while making us better caregivers, too!

To listen to ‘Be A Healthy Caregiver’ featuring Chris MacLellan ‘The Bow Tie Guy’ and ACSM Certified  Trainer,  blogtalkradiologoDavid Levison on ‘Be A Healthy simply click here

Join us every Tuesday at 1:00 pm (est) for ‘Be A Healthy Caregiver’ on Blog Talk Radio.   Upcoming Guests:

December 11th:  David Treece from Treece Financial Group 

December 18th:  Author and Caregiver Rob Harris from Rob Care

If you are interested in being a guest on ‘Be A Healthy Caregiver’ please email me at Chris@thepurplejacket.com

If you cannot join us live, you can listen to this show, or  any of our earlier episodes of ‘Be A Healthy Caregiver’ by simply by clicking here

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Remember…We Might Have Cacner...But Cancer Does Not Have us!

 

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What Is The Best Thing For Me, The Caregiver?


TLO The Original Blueberry Pancake

TLO The Original Blueberry Pancake

While making Blueberry Pancakes  recently for ‘The Little One,’ I was reminded of a blog post that I wrote last year right after he completed his round of radiation and chemotherapy treatments.  I wrote this post titled ‘The Tumor Extractor’ for just $19.99!   This is one of my very first blog post  (which is copied below)  where I  reflected on how  hope, love, support and care are the real tumor extractors as well as how humor can play an important role in the recovery process, too.  Now more than one year past the original post,  I took a second look at was written and  I am  amazed at what (still) applies today.  Now I take it one step further, as caregivers, we need to apply these same feelings and emotions to ourselves too!  I have to look myself square in the eye on this one!

Dr. Starcevic with 'The Little One'

Dr. Starcevic with ‘The Little One’

Many of the decisions that we made over the past year or so have been centered around what was best for ‘TLO.’  As Caregivers, we know that decisions are often based on what is best for the Caree and for the most part, we’re OK with it. Yet how often do we as Caregivers say…’What is the best thing for me, the Caregiver? 

It is easy to get lost in the  Caregiving experience and lose sight of self.  I’ve been there!  Trying to regroup in the midst of Caregiving and express  my own needs is by no means an easy task.  For me, expressing my own needs can be scary, well…actually it is scary.  Is it a sign of weakness, or failure or the messiah complex.  Or am I just a rut?   The bottom line is simple, when you put someone else’s needs ahead of your own, you lose sight of self.   It happens before you know it.  The signs are obvious to everyone, yet camouflage to self.

These are some of the critical signs that caregivers need to be aware of  in relation to our own health and well-being. 

I get a gold star: I score high on all five traits!  

Photo Credit: Dr. Wayne Dyer

Photo Credit: Dr. Wayne Dyer

I have been conscious of these issues for quite some time, yet have been immobilized to act on it.   I don’t know why, I just know that it has happened. Over the past number of weeks, ‘TLO’ has been asking me to make an appointment to see my doctor.   “You need to take better care of yourself,’ he demanded!   He has recognized ‘the signs’, inspired me to do something about it,  and finally I acted on it.

The trip to the doctor’s office was not without anxiety.  I had not seen Dr. Scalia since I left Fort Lauderdale in 2007 and much has changed since then. Going in, I knew he would ‘get-it’ as  Dr. Scalia was on the team of Doctors who took care of Father Orlando, so there was immediate comfort and recognition.

Healthy Living is for everyone!

Healthy Living is for everyone!

Yet at the same time, there was quite a bit of reflection on Father Orlando as Dr. Scalia was the attending physician leading up to his transition in 2006.    When he entered the room, I was greeted with a warm smile…There was no need to hold back, he could see the expression on my face.   We talked openly and honestly; it felt great to have someone totally focused on my needs.   He did the battery of tests; EKG was normal, blood pressure normal: the blood work results and follow-up will be later in December.   All the same concerns that I demonstrate for ‘TLO’ are the same concerns that both Dr. Scalia and ‘TLO’ expressed for me.  That’s not a bad thing!

‘To Be A Healthy Caregiver’  does not mean just taking care of your Caree, it caregivinglogomeans taking care of yourself, too.  I’ve taken the first steps and now need to follow through with a Care Plan for myself.  The best  Care Plan available to me is through Caregiving.com.   Denise Brown from Carigiving.com offers a care plan that  focuses on WELL:

Wisdom comes from being attentive, grateful and curious.

Energy comes from my food, my exercise and my physical, mental, spiritual and emotional breaks.

Laughter comes from within myself, from my relationships and from my entertainment.

Love comes from within myself, from my relationships and from my passions,

However, the best care plan will be for not if you don’t use it!

  • I encourage you to visit’s Caregiving.com by simply clicking here to…lots of great information…lots of great people too!

I often forget that my biggest supporter is the one who I care for because he knows me better than anyone else.  By going to the doctor and implementing my care plan through Caregiving.com , I can take better care of myself.  Not every day is a ‘Blueberry Pancake’ Day.  Caring for someone who has a chronic illness is not for the faint of heart.  As caregivers, caring-for-caregiverit is essential that we to  apply  Love, Hope, Support and Care in relation to our needs too.  

If I am going to be a provider of  Love, Hope, Support and Care… Shouldn’t I be a receiver too?  Yet in order to receive, you have to be open and recognize your own personal needs.   For me, looking internally and owning my own feelings and emotions,  then expressing those emotions and feelings will not only make me healthier, it will make be a better caregiver, too!

Below is my post from November 6th, 2011…Thanks for reading it again!

We have all seen those gadgets that they sell on TV… It seems that all those gadgets sell for just $19.99 and better yet, all these gadgets are a must need for every household! As I was preparing waffles for breakfast this morning I came across a new product called ‘The Tumor Extractor’

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‘The Tumor Extractor’

Simply apply to the area of the tumor and all your troubles will be gone!

‘The Little One’ and I enjoyed a great laugh when I presented him with our new ‘Tumor Extractor’ and just think…we only spent $10,000 on chemo and radiation and could have had this gadget for $19.99! (Of course Monty Python’s Spamalot is playing in the background.) Every cancer patient and caregiver wishes there was something as quick and simple as ‘The Tumor Extractor’ to remove cancer from the body. But what is available to every cancer patient and caregiver is hope, love, support and humor. That is the true Cancer Extractor! While each one of us deals with the reality of cancer in a different way, we want to look on the bright side of life! Yesterday is gone, today is here, not sure about tomorrow. Today we are enjoying our new ‘Tumor Extractor’ even if it will only help us make waffles. It is our hope that lets us withstand stand problems…but it is our beliefs that lets us find solutions.   And remember… ‘Always look on the bright side of life!’

You See…We Might Have Cancer…But Cancer Does Not Have Us! 
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Happy Thanks-Caregiving


 

We are thankful for those who are Caregivers today, those  who will be Caregivers tomorrow and especially those who have been Caregivers in the past.

 

We share in our Caregiving Journey with each other in a special way, knowing that while our roads might be different, our paths are filled with comfort and joy from the support we receive from each other!

From our Caregiving Journey to yours…Happy Thanksgiving from                  ‘The Purple Jacket‘ and The Bow Tie Guys’

 

 

‘The Bow-Tie-Guys’

Remember…We Might Have Cancer...

But Cancer Does Not Have Us! 

 

 

 

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‘Be A Healthy Caregiver’ on Blog Talk Radio


On Tuesday’s ‘Be A Healthy Caregiver’ show, we had a wonderful conversation with Fr. J. Lawrence Richardt from the Archdiocese of Indianapolis where we discussed how Spirituality can play a role in being a healthy caregiver.   Approaching his 50th anniversary of his ordination, Fr. Larry has been a caregiver for his mother for the past seven years in Indiana.

During our conversation we talked about:

  • How being present to others is important in ministry and in Caregiving…
  • The importance of being anchored to a larger world outside of Caregiving…
  • How Scripture and Spiritual Direction helps keep me  (us) honest…
  • How we laugh and find beauty during those dog days of caregiving…

To listen to our conversation on Blog Talk Radio, please click here.

 

Join us next Tuesday at 1:00pm (est)for another episode of ‘Be A Healthy Caregiver’ on Blog Talk Radio for a discussion with Attorney’s Ryan Shaughnessy and Michelle Silies as we discuss the importance of having your legal documents in order.  For the link to next week show you can click here

 

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