Tag Archives: Caregiving

82: Who Would Have Known?


Love is composed of a single soul inhabiting two bodies.  Aristotle 

026Today, ‘The Little One’ turns 82! It is a feat to recognize considering we are now 16 months past the oncologist‘s original  estimation of 3-4 months to live after the completion of his radiation and chemotherapy treatments in October of 2011.      We all know that Cancer is an insidious disease, unpredictable and unkind to many.  While we feel blessed to have the extended time together,  we are cognizant of all  cancer victims and their families today.

We learned from our oncologist prediction in October of 2111 that there is really no one who can tell us how this ordeal was going to play out.  There are no timetables in life:  what is here today, is gone tomorrow.  Knowing full well that I am not the one with cancer, I had to learn my supporting role as the caregiver as time played out.  Remembering ‘TLO’ determination and commitment to ‘fight this as best I can’ still rings in my ears from October 2011.  His determination is still prevalent today!

I have never liked phrase ‘terminal illness‘ …some people view life as a terminal illness.  Yikes, how sad that is!   TheWorry TLO and I have both buried our previous partners, in one sense that is what drew us together.  Our previous Caregiving experiences give us the foresight to know that…we really don’t know what is going to happen.  The best we can do is be present in the day.  That is why is it our hope that lets us withstand problems, and it is our dreams that lets us find solutions.  

We celebrate birthdays as milestones, and today is a special milestone for ‘TLO’.  Happy Birthday to my best friend, pal and partner.   May your hills always have a gentle wind at your back.

We Might Have Cancer…

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But Cancer Does Not Have US!

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Challenges of caregiving ‘weigh’ on Chris MacLellan


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I would like to thank Florida Blue for this article which was published on their website today.  

Chris MacLellan is among the estimated 65.7 million caregivers in the U.S., so he has a lot of people who can understand the challenges of caring for a loved one. However, sometimes he’s felt completely alone.

“Just as the caree needs support, caregivers need their own support system to help them get through the ups and downs of the caregiving experience,” said Chris. “I found out that if I can’t take care of myself, how can I take care of my partner?”

Research tells us that caregiving can have serious physical health consequences. In fact, 17% of caregivers feel their health in general has gotten worse as a result of their caregiving responsibilities.*

Chris knows all about the toll that caregiving can inflict upon his own health. In past years, he has cared for a close friend and he now cares for his partner, who was diagnosed with esophageal cancer in 2011. He describes these experiences as “life changing.”

But what also changed during these experiences was his weight. While he cared for others, he struggled with using food as comfort instead of fuel. At one point in Chris’ life he weighed almost 300 lbs. – and he knew he was at a breaking point. Through diligent efforts, he lost 100 lbs. and continues the battle to keep it off. However, due to the recent stress of his partner’s diagnosis and subsequent caregiving duties, his weight has started to rise once again.

“I knew I had to make a permanent change in my weight,” he said. “If I am to be a healthy caregiver, I have to take better care of myself.”

Chris now is a big believer in caregivers taking care of their physical and mental health. He also realizes that like him, other caregivers often put their own personal needs second, which often turns into weight gain or other health problems..

In February of 2011, he began writing a blog to share his caregiving story and

create awareness. Today, an interactive online community of caregivers also thrives as a result of his outreach. He calls his blog The Purple Jacket, where you’ll find his passion for caregiving, personal experiences and struggles, and advocacy efforts. Plus, the blog has blossomed into a full-scale resource for caregivers with a focus on the specific challenges of the LGBT community.

Chris also hosts Be a Healthy Caregiver on BlogTalkRadio and you’ll find his helpful tips, words of encouragement and retweets @TheBowTieGuy.

“I am a communicator, not a clinician,” Chris says. “My passion for increasing awareness about caregiving has been my mental therapy, of sorts. Sharing my life has helped others…and me, too.”

So, after all, Chris is not alone.

Take a virtual ride with Chris

On January 20th, Chris will kick off a virtual ride, tweeting from his stationary bike about improving his personal health while continuing to raise awareness for fellow caregivers. His goal to lose weight is teamed with reaching other caregivers to motivate them to focus on their own health. Florida Blue will follow Chris’s ride on Twitter, so be sure to help us cheer him on!

We understand the importance of making your health a priority, especially if you’re a caregiver. To help you make the difficult decision to focus on your own health, we invite you to stop by one of our Florida Blue Centers, where one of our staff nurses will speak with you about your personal health challenges. You can even get a your blood pressure checked, have a cholesterol and blood glucose screening, check your height and weight, and more.

And, don’t forget to visit Staying Healthy on floridablue.com for great tips and guidance.

Be sure to tell us about your caregiving experiences, below. We want you to know you are not alone…

*Source: http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=439

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‘Be A Healthy Caregiver’ on Blog Talk Radio


On Tuesday, January 22nd we welcome Mandy Harrell from Wearvever* USA to our ‘Be A Healthy Caregiver’ show on Blog Talk Radio.  The Wearever* Brand offers comfortable, quality, affordable and stylish apparel solutions for everyday health and wellness concerns.  You can access the show live or at your convenience (after Tuesday at 1:30pm) by clicking here

The men’s and women’s line of washable, reusable urinary incontinence panties and briefs is especially beneficial for active people who want to continue their normal lifestyles without worry or emotional stress resulting from urinary incontinence.  Additionally, Wearever* offers incontinence bedding products as well as Buster Brown socks.

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As the Brand Manager for Wearever* USA, Mandy will provide us with some helpful tips and talk about their great products as Wearever USA helps us to ‘Be A Healthy Caregiver!’ 

To learn more about Wearever* USA, you can visit their website by simply clicking here.

Our show is available live or archived online for your convenience.

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To access all our ‘Be A Healthy Caregiver’ episodes on

blogtalkradiologo Simply click here

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‘Be A Healthy Caregiver’ on Blog Talk Radio


On Tuesday January 8th,  we welcome Dr. Richard Wagner, M.Div., Ph.D., ACS to our show Be A Healthy Caregiver!  Out of Seattle, WA., Dr. Wagner is a psychotherapist/clinical sexologist and has been in private practice since 1981.

Dr. Wagner has been working with the terminally ill, chronically ill elder and dying people in hospitals, hospice and home settings for over thirty years.

We will be chatting about Dr. Wagner’s work and his book The Amateur’s Guide to Death and Dying: enhancing the End of Life.  As Caregivers, we are often dealing with issues surrounding life and death.  Our conversation will be upbeat, real and with a touch of spirituality.

To learn more about Dr. Wagner, click here.

To purchase Dr. Wagner’s books, click here.

To Listen to  Dr. Wagner on ‘Be A Healthy Caregiver’ on  Blog Talk Radio click here

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Our show is available live or archived online for your convenience.

To access all our ‘Be A Healthy Caregiver’ episodes on blogtalkradiologo

Simply click here

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‘Be A Healthy Caregiver’ on Blog Talk Radio Every Tuesday at 1:00pm


Blog Talk RadioJoin us this Tuesday, December 18th at 1:00pm for ‘Be A Healthy Caregiver’ on Blog Talk Radio with our special guest, acclaimed Caregiving author,  Rob Harris.   You can listen live on Tuesday or at a time that is convenient for you by simply clicking here 

Rob’s book, We’re In This Together: A Caregiver’s Story and the 70 Caregiving Tips that he included, has been a #1 Amazon.com bestseller in the Physicians & Patient Caregiver category. Celebrities, the media, and some of the leading oncologists, surgeons and doctors in the United States and abroad have praised it. Excerpts of his book, along with many of his Caregiver Tips will soon appear in one of the nation’s leading magazines and websites: Coping With Cancer.

robharrismuralHis book has inspired many, including two songwriters that produced a song and had it recorded by an up-and-coming recording artist. The song, We’re In This Together, will be made available in the near future.

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Rob enjoys writing, blogging, and speaking in front of audiences, but gets the most pleasure from helping caregivers, patients, and those within the medical community. In whatever free time remains, he enjoys visiting with family, friends, and spending time at the beach.

If you would like to be a guest on ‘Be A Healthy Caregiver’ contact me direct at Chris@thepurplejacket.com

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Every Day: Set An Intention For Yourself.


‘Be A Healthy Caregiver’ on Blog Talk Radio 

On Tuesday’s ‘Be A Healthy Caregiver’ Blog Talk Radio Show, my special guest was David Levison from ‘Get2BFit’ in Fort newlogoLauderdale, Fl.  David and I talked at great length about the importance of getting into a routine the centers around our personal health and well-being, along the importance of having a good body image.     Yet one of the comments from David that stood out the most was simply this:  Every day:  set an intention for yourself.

As caregivers, we often take a back seat and never ‘set and intention’ for ourselves: I think David is on to something sunset_yoga_girlshere!    Often time as caregivers, our intentions are completely focused on our Caree.  To set an intention for ourselves seems scary, but…it is the right thing to do.  Setting an intention keeps us on track, allows us to focus on our needs, while making us better caregivers, too!

To listen to ‘Be A Healthy Caregiver’ featuring Chris MacLellan ‘The Bow Tie Guy’ and ACSM Certified  Trainer,  blogtalkradiologoDavid Levison on ‘Be A Healthy simply click here

Join us every Tuesday at 1:00 pm (est) for ‘Be A Healthy Caregiver’ on Blog Talk Radio.   Upcoming Guests:

December 11th:  David Treece from Treece Financial Group 

December 18th:  Author and Caregiver Rob Harris from Rob Care

If you are interested in being a guest on ‘Be A Healthy Caregiver’ please email me at Chris@thepurplejacket.com

If you cannot join us live, you can listen to this show, or  any of our earlier episodes of ‘Be A Healthy Caregiver’ by simply by clicking here

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Remember…We Might Have Cacner...But Cancer Does Not Have us!

 

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What Is The Best Thing For Me, The Caregiver?


TLO The Original Blueberry Pancake

TLO The Original Blueberry Pancake

While making Blueberry Pancakes  recently for ‘The Little One,’ I was reminded of a blog post that I wrote last year right after he completed his round of radiation and chemotherapy treatments.  I wrote this post titled ‘The Tumor Extractor’ for just $19.99!   This is one of my very first blog post  (which is copied below)  where I  reflected on how  hope, love, support and care are the real tumor extractors as well as how humor can play an important role in the recovery process, too.  Now more than one year past the original post,  I took a second look at was written and  I am  amazed at what (still) applies today.  Now I take it one step further, as caregivers, we need to apply these same feelings and emotions to ourselves too!  I have to look myself square in the eye on this one!

Dr. Starcevic with 'The Little One'

Dr. Starcevic with ‘The Little One’

Many of the decisions that we made over the past year or so have been centered around what was best for ‘TLO.’  As Caregivers, we know that decisions are often based on what is best for the Caree and for the most part, we’re OK with it. Yet how often do we as Caregivers say…’What is the best thing for me, the Caregiver? 

It is easy to get lost in the  Caregiving experience and lose sight of self.  I’ve been there!  Trying to regroup in the midst of Caregiving and express  my own needs is by no means an easy task.  For me, expressing my own needs can be scary, well…actually it is scary.  Is it a sign of weakness, or failure or the messiah complex.  Or am I just a rut?   The bottom line is simple, when you put someone else’s needs ahead of your own, you lose sight of self.   It happens before you know it.  The signs are obvious to everyone, yet camouflage to self.

These are some of the critical signs that caregivers need to be aware of  in relation to our own health and well-being. 

I get a gold star: I score high on all five traits!  

Photo Credit: Dr. Wayne Dyer

Photo Credit: Dr. Wayne Dyer

I have been conscious of these issues for quite some time, yet have been immobilized to act on it.   I don’t know why, I just know that it has happened. Over the past number of weeks, ‘TLO’ has been asking me to make an appointment to see my doctor.   “You need to take better care of yourself,’ he demanded!   He has recognized ‘the signs’, inspired me to do something about it,  and finally I acted on it.

The trip to the doctor’s office was not without anxiety.  I had not seen Dr. Scalia since I left Fort Lauderdale in 2007 and much has changed since then. Going in, I knew he would ‘get-it’ as  Dr. Scalia was on the team of Doctors who took care of Father Orlando, so there was immediate comfort and recognition.

Healthy Living is for everyone!

Healthy Living is for everyone!

Yet at the same time, there was quite a bit of reflection on Father Orlando as Dr. Scalia was the attending physician leading up to his transition in 2006.    When he entered the room, I was greeted with a warm smile…There was no need to hold back, he could see the expression on my face.   We talked openly and honestly; it felt great to have someone totally focused on my needs.   He did the battery of tests; EKG was normal, blood pressure normal: the blood work results and follow-up will be later in December.   All the same concerns that I demonstrate for ‘TLO’ are the same concerns that both Dr. Scalia and ‘TLO’ expressed for me.  That’s not a bad thing!

‘To Be A Healthy Caregiver’  does not mean just taking care of your Caree, it caregivinglogomeans taking care of yourself, too.  I’ve taken the first steps and now need to follow through with a Care Plan for myself.  The best  Care Plan available to me is through Caregiving.com.   Denise Brown from Carigiving.com offers a care plan that  focuses on WELL:

Wisdom comes from being attentive, grateful and curious.

Energy comes from my food, my exercise and my physical, mental, spiritual and emotional breaks.

Laughter comes from within myself, from my relationships and from my entertainment.

Love comes from within myself, from my relationships and from my passions,

However, the best care plan will be for not if you don’t use it!

  • I encourage you to visit’s Caregiving.com by simply clicking here to…lots of great information…lots of great people too!

I often forget that my biggest supporter is the one who I care for because he knows me better than anyone else.  By going to the doctor and implementing my care plan through Caregiving.com , I can take better care of myself.  Not every day is a ‘Blueberry Pancake’ Day.  Caring for someone who has a chronic illness is not for the faint of heart.  As caregivers, caring-for-caregiverit is essential that we to  apply  Love, Hope, Support and Care in relation to our needs too.  

If I am going to be a provider of  Love, Hope, Support and Care… Shouldn’t I be a receiver too?  Yet in order to receive, you have to be open and recognize your own personal needs.   For me, looking internally and owning my own feelings and emotions,  then expressing those emotions and feelings will not only make me healthier, it will make be a better caregiver, too!

Below is my post from November 6th, 2011…Thanks for reading it again!

We have all seen those gadgets that they sell on TV… It seems that all those gadgets sell for just $19.99 and better yet, all these gadgets are a must need for every household! As I was preparing waffles for breakfast this morning I came across a new product called ‘The Tumor Extractor’

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‘The Tumor Extractor’

Simply apply to the area of the tumor and all your troubles will be gone!

‘The Little One’ and I enjoyed a great laugh when I presented him with our new ‘Tumor Extractor’ and just think…we only spent $10,000 on chemo and radiation and could have had this gadget for $19.99! (Of course Monty Python’s Spamalot is playing in the background.) Every cancer patient and caregiver wishes there was something as quick and simple as ‘The Tumor Extractor’ to remove cancer from the body. But what is available to every cancer patient and caregiver is hope, love, support and humor. That is the true Cancer Extractor! While each one of us deals with the reality of cancer in a different way, we want to look on the bright side of life! Yesterday is gone, today is here, not sure about tomorrow. Today we are enjoying our new ‘Tumor Extractor’ even if it will only help us make waffles. It is our hope that lets us withstand stand problems…but it is our beliefs that lets us find solutions.   And remember… ‘Always look on the bright side of life!’

You See…We Might Have Cancer…But Cancer Does Not Have Us! 
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‘Be A Healthy Caregiver’ on Blog Talk Radio


On Tuesday’s   ‘Be A Healthy Caregiver’ show our special guest are Attorney’s Ryan Shaughnessy and Michelle Silies who practice law in St. Louis, MO.  Our discussion will center around the importance of having your legal documents in order, before a crisis happens.    Join us at 1:00 pm (est) for another episode of ‘Be A Healthy Caregiver’ on Blog Talk Radio.  Not able to listen to the show live, that’s OK…You can listen to the show at anytime after 1:00pm (est) by clicking here. 

 

 

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Happy Thanks-Caregiving


 

We are thankful for those who are Caregivers today, those  who will be Caregivers tomorrow and especially those who have been Caregivers in the past.

 

We share in our Caregiving Journey with each other in a special way, knowing that while our roads might be different, our paths are filled with comfort and joy from the support we receive from each other!

From our Caregiving Journey to yours…Happy Thanksgiving from                  ‘The Purple Jacket‘ and The Bow Tie Guys’

 

 

‘The Bow-Tie-Guys’

Remember…We Might Have Cancer...

But Cancer Does Not Have Us! 

 

 

 

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‘Be A Healthy Caregiver’ on Blog Talk Radio


On Tuesday’s ‘Be A Healthy Caregiver’ show, we had a wonderful conversation with Fr. J. Lawrence Richardt from the Archdiocese of Indianapolis where we discussed how Spirituality can play a role in being a healthy caregiver.   Approaching his 50th anniversary of his ordination, Fr. Larry has been a caregiver for his mother for the past seven years in Indiana.

During our conversation we talked about:

  • How being present to others is important in ministry and in Caregiving…
  • The importance of being anchored to a larger world outside of Caregiving…
  • How Scripture and Spiritual Direction helps keep me  (us) honest…
  • How we laugh and find beauty during those dog days of caregiving…

To listen to our conversation on Blog Talk Radio, please click here.

 

Join us next Tuesday at 1:00pm (est)for another episode of ‘Be A Healthy Caregiver’ on Blog Talk Radio for a discussion with Attorney’s Ryan Shaughnessy and Michelle Silies as we discuss the importance of having your legal documents in order.  For the link to next week show you can click here

 

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