Tag Archives: The Bow-Tie-Guy

When The Caregiver Becomes Ill


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You must do things you think you cannot do.  Eleanor Roosevelt

I love that quote from Eleanor Roosevelt; I wonder if she had Caregivers in mind when she spoke those lovely words? Caregivers often find themselves in impossible positions balancingPr_102_-_TRI_-_22_12_10_-_043 work, life along with Caregiving responsibilities.  Sometimes our Caregiving Cape does wear out, we are only human, even if sometimes we think that we’re not!  This past week, my Caregiving Cape took its turn on the sidelines as I became the Caree.  Stricken with Strep Throat, I was down and out for the count.  I’ve been blessed throughout my life with very few health calamities, but this illness through both of us for the loop.

ID-10014937 My first concern this week was for ‘The Little One’ as we both know that Strep Throat can be highly contagious.  We took every precaution we could possibility think of while staying as far apart from each other was we could.  One of his great lines this week was, “if I end up getting what you have, just drop me off at the hospital!”  I could see the concern in his eyes!  Even when I was ‘down and out’ my thoughts were always with him.  Then TLO finally said, ‘When are you going to take better care of yourself!’  Not being the one who gets sick, his comments hit me square in the eye.

When one becomes concerned about everything else but self, one tends to get ill, physically, mentally, spiritually.  It’s that good approach to holistic health that we all strive for in our busy caregiving day, but can be so elusive when we get lost. I know, I’ve been there!  While I’ve taken the steps to deal with my weight gain (14 lbs. eliminated!) I recognize after this past week that now it is time for me to get my embrace a holistic approach to good health and spirituality which is comprehensive of my needs.  This past week has been a great wake-up call for me.  To ‘Be A Healthy Caregiver’ means to embrace all components in life, not just a select few.

As a Caregiver, we are often planning doctors appointments, transportation, meals, you name is, we plan it.  But I have to wonder, do we have a plan for when we get sick?  One of the ‘TLO’s’ concerns this week was simply what happens to me if you get sick?  Having a plan in place, (and a back up plan to the first one, too!) is imperative to obtaining a piece of that holistic approach to good health and spirituality.  Many friend will tell you when you discuss a plan,  ‘don’t worry, call me at a moments notice  and I will be there.’  However a plan that is not written down on a piece of paper, then confirmed by all participants, is worthless.

043My plan this weekend is to make sure that all our plans are in place so that both of us can rest assured when I am not in service.   I would be interested to know what plans you have in place to help deal with the onset of illness when you’re a Caregiver?

You see…We Might Have Cancer, But Cancer Does Not Have Us!

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Hug A Caregiver Day!


Caregiving can sometimes be hard:

But Hugging a Caregiver is easy!

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Listen to: 

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Tuesday’s  at 1:00 pm (EST) and Thursday’s at 8:00 pm!

Can’t listen live…NO WORRIES!

All of our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here! 

 

 

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Dementia and Rummage Bags: Yes!


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Join me on Tuesday August 13th at 1:00 pm on ‘Be A Healthy Caregiver’ on Blog Talk Radio, as we visit Seth Gillman and  Kaitlyn Henderson from Passages Hospice.  Passages Hospice has developed this wonderful program simply called ‘Rummage Bags’ to help dementia patients (and their caregivers) cope!    Whether you are a man or a woman, we’ve all had the experience of rummaging through a bag, a box, a pocket, a drawer, looking for the elusive item that just seems to be out of our reach. Yet when we find what we are looking for, there is that moment of elation!  To listen to our show live, simply click here! 

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Seth Gillman

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Kaitlyn Henderson

We will have a delightful conversation on Tuesday about this terrific program, while chatting about the great work Passages Hospice does in many communities throughout the Midwest. We will also have some terrific tips for Caregivers who are caring for a loved one with dementia.   Through our conversation with Seth and Kaitlyn, we will all learn how to ‘Be A Healthy Caregiver!’ 

To listen to our show live on Tuesday at 1:00 pm (est) click here!

Visit Passages Hospice online by clicking here! 

Can’t listen live…NO Worries!

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All our epidsoes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here!

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Guests This Week on Be A Healthy Caregiver!


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Join us on Tuesday August 13th at 1:00pm for a wonderful conversation with Seth Gillman and Kaitlyn Henderson from Passages Hospice as we discuss their insightful Rummage Bag Program!  To hear the show live on Tuesday,  simply click here!

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Seth Gillman

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Kaitlyn Henderson

 

On A special Wednesday edition of Be A Healthy Caregiver on Blog Talk Radio we welcome Soul Dancer: A Monk On A Mission to Care for Caregivers.  This will be a lively discussion starting at 8:00 pm (EST).  To listen live, simply click here! 

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Can’t listen to our show live…NO Worries!

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 Click on the icon above to listen to all of our archived episodes of ‘Be A Healthy Caregiver’ on Blog Talk Radio!

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My 90 Day Weight Loss Challenge


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I’ve had it with my excuses; I’ve had it with feeling lousy; I am in control of my own destiny!  This Yo-Yo weight gainweight loss has to stop, who is the one that can do this…ME, only ME.  Do I need encouragement, yes I do!

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254 lbs as of 8/11/2013

We are 90 days out from our 1st Annual Care Cruise and I want to fit into the most meaningful piece of clothing that I own, my Purple Jacket. 

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The ‘Real’ Purple Jacket

There really is a Purple Jacket and as evident by the picture about and the picture below

The Purple Jacket

Circa 2006

The Purple Jacket signifies a beautiful time in my life while caring for my friend Father Richard Orlando.  Prior to taking on the role of his Caregiver, I worked hard to lose 100lbs. The purchase of ‘The Purple Jacket’ was totally out of character for me because I would never have worn something like that when I was so heavy.  Now, it simply does not fit!

 The pictures tell the story, the round and bloated face is reappearing…

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Circa 2003

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Circa 2006

 

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Circa August 11, 2013

Caregivers often lose sight of themselves while in their role of Caregiver.  While that is a common trait, the one person who wants you to take good care of yourself is the person you are caring for!  I know that is what is prevalent in my home, how about yours?

As much as I want to swirl  my Caregiving Cape (admit it, you know you have a Caregiving Cape, too!)  I can’t bring Father Orlando back, nor can I take away TLO’s esophageal cancer; but I can control how I feel, what I say and what I do to make myself healthy.  I owe is to myself…Imagine that a Caregiver taking care of themselves! 

So here is the plan…

  • Eat Less > Move More
  • No more processed food
  • No more power eating
  • Healthy Mind Set
  • Work with my trainer David Levison
  • No more excuses
  • Chart food intake and exercise on My Fitness Pal
  • No more eating out
  • No more short cuts
  • Walk, Bike Ride, or Swim every day
  •  Connect Body, Mind and Spirit

Where You Can Help…

  • Encourage Me
  • Challenge Me
  • Be With Me
  • Join Me
  • Follow my progress on my blog
  • Join us on our Caregiving Cruise by clicking here

The first few days this week I am going on a ‘cleanse’ by getting the toxins out of my body with lots of water, fruits and exercise.  In fact, as soon as I hit the publish button, I am going for a walk with my new shoes!

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Shoes on the left are from the time when I lost 100lbs

I want to be able to wear my Purple Jacket on our Care Cruise in November…but most of all, I want to be fit both mentally and physically for my own well-being.  In order to ‘Be A Healthy Caregiver’  we have to take care of yourself, too!  I’ve dropped the ball over the past few months, but now I am ready to go.  Fr. Orlando said to be before he died, ‘Do not put that weight back on!’

It’s time to make it happen and the e only one who can make this happen is me.  If I can learn to take care of myself as well as I take care of TLO, I will be in tip-top shape before I know it!

You see, we might have Cancer, But Cancer Does Not Have Us!

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Lost Time Is Never Found Again


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Time Is What We Want Most, But What We Used Worst…William Penn

This week we motored to the Eye Doctor for an appointment for TLO.  This was a new doctor added to our portfolio as his previous Eye Doctor was no longer on the TLO’s insurance plan.   Like many caregivers, I ended leaving 

eyecheckwork early in the afternoon to pick up TLO so that we could head west to the appointment.  Twenty minutes from work to home; Twenty minutes from home to the doctor’s office, I guess you can say I was ‘Driving TLO’  (Driving Miss Daisy just did not sound right!)

On our way to the Doctor’s appointment, I got my first indication that this appointment had the potential to be a problem.

  • TLO: “When I made the appointment I asked them to send me the paperwork so I could fill it out and have it ready when we arrive.  I never received the paperwork, so if I do not have any of the information they need, I am going to write on each line, “I’m too old to remember because you did not send me the paperwork ahead of time!”
  • Me:  “How long ago did you make this appointment?”
  • TLO:  “At least six weeks ago and I called them in the mean time to ask them to send me the paperwork”
  • Me: “So you made two request for the paperwork”
  • TLO “Yes!”
  • “Oh Boy” I thought to myself…”This is going to be a long afternoon”

 We promptly arrived 15 minutes ahead of schedule and TLO started to fill out his paperwork.  Surprised that he did not say something to the receptionist about not being mailed the paperwork prior to the appointment, he took pen to paper and started to fill out the requested information.  (Of course, they took his Co pay first!)  As I peeked over to see what how he was doing with the paper work, I noticed a few long answers which started…”I’m too old to remember”… I chuckled, but made sure he was not missing any critical information that the doctor or staff needed which was important to his care.

While completing the paperwork we sat in what I thought was a waiting room, which was empty.  “We are going to move through this appointment quickly I thought.”  WRONG!  45 minutes later the receptionist called us and pointed us down the hallway to a second waiting area.  We were shocked to find 12 people in this waiting room to see the ‘tech’ then the doctor’.  Another 45 minutes, and finally he is called in for his eye exam, which took all of about 15 minutes.

While watching the other patients in the waiting room, I was trying to determine how people were being called in for their exam.  There seemed to be no rhyme or reason as patients who were there before us, were called after us.  You know that is the case when you get the evil eye from someone sitting across the room from you when your name is called, and their name is not.  I could see the nurses, tech support, receptionist all fluttering around the office, but no one taking charge.  Patients sitting there getting frustrated: receptionists with their glass window closed.

Soon TLO returned with the nurse who said…“Take a seat, Mr Schiffer the doctor will see you soon!’  I said to him, ‘What’s up, did you not see the doctor’…’no’ he replied, ‘they just did the test, they will call us again to review with the doctor.’

Oh boy, more delay’s, there is just so much daytime TV one can take; How do people watch those judge shows?

Time continues to drag on, and on and on… now we’re past two hours waitingeye rolling in this office, (as were many of the other patients) and we’re both started to get frustrated.  One of the nurses approaches us wanting to know his primary care doctor and his previous eye doctor. “All that information is on the paperwork, what seems to be the problem” we said in unison. (Yes, he did put that info on the paperwork!)  ‘Oh, we’re just waiting on the referral’ the doctor will not see you without the referral.  YIKES!

One of the great things about TLO is that he follows up with his Primary Care Physician on a regular basis when there is a need for a referral.  He confirmed weeks prior to the appointment that the referral had been sent by his PCP.

Before I could even get to the receptionist to straighten out this mess, TLO had beaten me to the punch.  Let us just say that we have two very diverse ways in handling conflict.  I will let your imagination  run wild about his loud and direct conversation with the receptionist!

thumbsdownTwo and a half hours into our extended stay at the Eye Doctor’s office, we finally just left. 

We have reported the Eye Doctor to our Primary Care Physician so that they do not make any more referrals to that office.  Knowing that they have the needed referral, we have also reported the Eye Doctor to our insurance company because we are both confident that they will bill for the appointment.

Time is a precious commodity. Too often time waiting in doctors’ offices is wasted by inefficiency of the staff; we have all experienced it.  But how do we combat it?

  • Always tell the doctor about your positive and/or negative experience with staff or office procedures, often doctors are the last ones to know.  It is their reputation!
  • Always tell the referring physician about a positive/negative experience with a referral they  have made.
  • When going to a new doctor, always ask for the paperwork in advance of the appointment to help expedite the wait time.
  •  Inform your insurance provider of a problem with a referral
  • Always double-check with your PCP to make sure that the referral has been made.

 I would love to hear what you do to combat wasted time at the doctor’s office!

You see…We Might Have Cancer, But Cancer Does Not Have Us!

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Thursday’s are Hug A Caregiver Day!


Caregiving can sometimes be hard:

But Hugging a Caregiver is easy!

thursdays

Listen to: 

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Tuesday’s  at 1:00 pm (EST) and Thursday’s at 8:00 pm!

Can’t listen live…NO WORRIES!

All of our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here! 

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A Caregivers Journey Through Music


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On Thursday August 8th at 5:00 pm (est) we welcome Oncologist, Dr. Rick Boulay to ‘Be A Healthy Caregiver’ on Blog Talk Radio!  To listen to our show live, simply click here! 

Rick Boulay, MD is a Board Certified Gynecologic Oncologist and serves as Division Director of Gynecologic Oncology at Lehigh Valley Health Network in Allentown, PA. While Dr. Boulay is highly recognized in his field, but there is much more to his story! 

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At the young age of 4, Rick was faced with the tragic news of his Grandmama being diagnosed with Colon Cancer.  As an adult, Rick wife was diagnosed with Leukemia. Through his Caregiving Journey, Rick learned that peace and hoped dwells within all of us. But the road is not always smooth!

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On Thursday’s show, we’ll explore not only Dr. Boulay’s work, we’ll listen to tracks from one of his three CD’s, Love A Caregivers’ Journey, and talk about the Catherine Boulay Foundation in honor of his Grandmama and all those touched by cancer.

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While listening to Rick’s beautiful music, we’ll be able to connect our Caregiving journey through song.  And without a doubt, through our conversation with Dr. Boulay, we will all learn how to ‘Be A Healthy Caregiver!’    

We will be taking your calls during our second segment at 646.478.3716

Visit Dr. Boulay at Journey Through Cancer by simply clicking here! 

Visit the Catherine Boulay Foundation by simply clicking here! 

Cannot listen to our show live…NO Worries!  All of our episodes of ‘Be A Healthy Caregiver are archived for your listening convenience by clicking here! 

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Happy Birthday Caregiving.com!


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Denise Brown, Caregiving.com

It is not often someone get’s to celebrate a 17th birthday twice, but that is what is going on today with Denise Brown at Caregiving.com! Denise registered CareGiving.com seventeen years ago on August 3rd; Denise and her website continue to offer soothing support, wonderful direction for a host of family Caregivers that instantly become your extended family.  Denise has been a mentor to many Caregivers and always, I MEAN ALWAYS, is there to lend her support, wisdom and care.  

There are an estimated 66 million family caregivers just in the United States.  Caregiving is about collaboration, not about competition. Each family Caregiver has their own Caregiving journey story to tell, yet it is through those stories where Caregivers connect with each other, understand each other, are there for each other.  Denise Brown and Caregiving.com is a perfect example of this philosophy.  

Take the time to visit Denise at Caregiving.com by simply clicking here! You’ll find Denise as an author, keynote speaker, radio show host and a friend to many.  But what you will really find without evening knowing it, is that gentle  guide and support that every caregiver needs while on their journey from someone who really does care.  

I found Caregiving.com two years ago when I started to write about my Caregiving Journey and have not looked back since.  Denise has encouraged me to find my voice through blogging, and my weekly radio show; my life has been changed for the better by Denise and my extended family of Caregivers on Caregiving.com   Your life will be changed too by visiting Caregiving.com!  Stop by today or anytime this week and wish  Denise another 17th birthday and see what she has in store for everyone during her birthday celebration!  

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Guests this Week On ‘Be A Healthy Caregiver’


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On Tuesday August 6 at 1:00 pm (EST) join us for a discussion on ‘DOMA: What It Means To You; with Attorney Stephanie Schneider and Certified Financial Planner David Treece.  To listen to our show live on Tuesday, simply click here!

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David Treece

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Thursday August 8th at 5:00 pm (EST) enjoy the beautiful music of Gynecologic Oncologist,  Dr. Rick Boulay as we explore a Caregivers Journey through Music.  To listen to our show live on Thursday, simply click here!

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Can’t listen to our shows live…NO Worries!  All our episodes of ‘Be A Healthy Caregiver are archived for your listening convenience by clicking here! 

 

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