Tag Archives: Family Caregiver

Thursday’s are always ‘Hug A Caregiver Day!’


Caregiving can sometimes be hard:

But Hugging a Caregiver is easy!

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Listen to: 

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‘”Be A Healthy Caregiver” is on hiatus while “TLO” is undergoing radiation treatments.  We plan on being back on the Air in December!

Can’t listen live…NO WORRIES!

All of our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here! 

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The Foundation: The Honor Of Caregiving.


I have looked into your eyes with my eyes.  I have put my heart near your heart. Pope John XXIII

This Friday I will be presenting on Caregiving at SunServe’s Silver Serve Luncheon.   I’ve taken most of what I have written below from previous blog post on ‘The Purple Jacket’.  Your feedback is always welcomed! 

The Foundation: The Honor Of Caregiving

To be entrusted with the care of another human being is one of the greatest honors that can be bestowed on you.  Caregiving takes on meaning that is beyond reproach.  New parents have nine months to prepare for the responsibility of bringing a child into the world.  Doctors and nurses undergo years of rigorous training for the work that they do.   But CaregiversDavid Allen can find themselves thrust suddenly into roles, roles that they often do not choose, when called to care for a spouse, partner or loved one after a diagnosis or accident.

At a moment’s notice you become a Caregiver, without any warning, with any training, without any time to think things through.  You feel like you have no idea of what you are supposed to do, so you do your best as you follow your instincts and common sense.  You embrace the new reality…You simply care for the one you love.

When you become a Caregiver for your spouse, partner, significant other,   a new and uncharted realm opens up.  Two distinct relationships must now be blended into one.   The familiar partner from the past remains and is always present. But now there is someone different on the scene – someone with a significant illness.

Suddenly, two people sharing a life together will face challenges that cannot  be left unattended?  A whole set of new and intense emotions are likely to intrude on the relationship.  Worry, detachment, mortality, anger, fear of abandonment and having to live life alone,  begin to intertwine with the idiosyncrasies of your personal dynamics.  These gut wrenching emotions can lurk in a caregiver’s mind when faced with a life-and-relationship-altering illness with your life partner.

Caregiving is an intense experience that asks you to surrender yourself to the needs of someone else.  Often times, you have to give up things that you love, in order to care for the one you love.  Even though it might feel like a hardship, you make the choice, you make the choice because you know that it is what love and commitment is all about.  Yet it is not that simple, because Caregiving can be an emotional, physical, and interpersonal roller coaster that is both tremendously rewarding and frustrating.   These emotions can surely test even the best communication and trust in a relationship.

The common denominator when blending a life partnership with Caregiving is communication.

Successful relationships are built on strong communication and trust.  It is throughcaring hands honest communication that the true essence of a life partnership is revealed.  This does not change when you add the role of Caregiver to the mix.  Communication has to be the focal point for conveying the wants and needs of the one who is ill. This must be accomplished without losing one individuality, the life partnership, or the role of the Caregiver.  The term “delicate balance” takes on a whole new meaning

Frequent review and maintenance of clarity in your roles becomes crucial so that our judgment and decision-making skills are based on sound facts instead of raw emotions.  How much can the mind and body take when faced with so many changes in such period of time? I think that really depends on the couple’s ability to safely, clearly and honestly communicate their wants, needs and desires as indicated by the partners health needs first and the relationship second.

While I have no doubt that caring for your life partner will strengthen a relationship, Caregiving will change a relationship too!  It is not uncommon to see someone who has been firmly independent, become dependent in certain areas of life that have been difficult for them to accept. Stepping outside one’s comfort zone and asking for assistance with mundane everyday chores adds stress to both parties…That is undeniable!

Caregivers often become the voice for the one who is ill.  As Caregivers, we have to be mindful that we are in a supporting role.  First and foremost, Caregivers are advocates.   In our role as an advocate, we must remember that what we may want for our loved one may not necessarily be what the love on wants. What a slippery slope this becomes when caring for your life partner!

Life’s journeys are not often driven on smooth roads, but we can always hope for a gentle wind at our back. This gentle wind is always fortified by love, trust, commitment and communication.

…My your hills be always be slight and with a gentle wind at your back.

The Purple Jacket©

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That’s What Caregivers Do!


Presidential Proclamation — November is National Family Caregivers Month!

 I am proud to be one of the over 60 million Caregivers in the United States today.  Being a Caregiver can be, and often is challenging… But also so very  rewarding.  I believe that to be entrusted with the care of another human being is one of the greatest honors that can be bestowed on another person.  Those long sleepless nights, those challenging trips to the doctor and hospitals, those times when you have to intercede, educated and advocate come full circle when your Caree looks at you and  simply says…”Thank You for what you do for me.”  

I am also mindful of those family Caregivers who are never thanked, never appreciated and overworked.  If it means anything to you, from one Caregiver to another, I offer my thanks and appreciation to you because… That’s what Caregivers do! 

Caregiving is not a role that is often chosen and Caregiving is not for everyone.  Caregivers come in many different shapes, sizes, philosophies and cultures:  Caregiving and Caregivers are diverse. While our Caregiving  journeys might be different, Caregivers have this innate ability to understand each other,  to care for each other, to be there for each other, because…  That’s What Caregivers do!

Through the wonders of the internet, my Caregiving journey has been enriched by the countless number of people I have met along the way.  Each one of you have inspired me, supported me and have been there for me because… That’s what Caregivers do! 

A special ‘thank you’ to Author, Caregiving Coach, Speaker and owner at Caregiving.com Denise Brown and my extended family at  Caregiving.com  for your support. You opened up your ‘home’ to us and made us feel welcome from the start because…  That’s what Caregivers do!

We know that our current Caregiving journey is going to be filled with a few bumps and bruises along the way; Cancer has a way of doing that.  Yet we know those bumps and bruises will be a tad softer because of our extended Caregiving family we’ve met along the way because…That’s what Caregivers do!.  

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Caregivers: Thank You for all you do from Bernard Richard Schiffer…’The Little One’

To all Caregivers, I share this simple smile from a very special fellow whose courage is unbounded, as a way of thanking you for all that you do, because…That’s what Caregivers do! 

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Cancer: That Unwelcomed Guest Has Returned


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Love Is Composed Of A Single Soul Inhabiting Two Bodies:  Aristotle 

Saturday’s revelation that ‘The Little Ones’ cancer has metastases to his spine was devastating.  Two years past his radiation and chemotherapy treatment for esophageal cancer, we are back facing this vicious disease.  ‘It’s’ been knocking on the door the last few weeks; it is difficult to acknowledge this unwelcome guest has returned with new vigor and new strength.

I am not sure I can accurately describe our emotions at this time.

Concerned for the past few weeks that the tumor was active again, Friday’s MRI and CT scan proved our suspicions true.  While the news is unwelcome, we are thankful that at least we know the source the pain and discomfort which will allow us to act accordingly.  Palliative radiation is a new term that I learned on Saturday; TLO will immediately start palliative radiation treatments to help relieve the serve pain that suddenly came upon him Thursday night.

Scary does not do his pain justice on Thursday night; nor how we feel right now.

Imploring the attending physicians at the hospital to consult with TLO’s primary care physician helped avoid an unnecessary cardiac catheterization procedure which would have been dangerous and certainly unnecessary.  The cardiologist was sure his issues were cardiac, ‘he has the classic symptoms and history of heart disease,” said the cardiologist.  ‘That may be true, but before we make any decisions on doing a cardiac catheterization, it is important that we first find out what is going on with the tumor; we are not doing any invasive procedures until we have the MRI and CT scan’, I suggested. The cardiologist was working out of his area of medicine and we respect that.  

The harsh reality of the news creates an immediate void to an unpredicted 1385583_607513719290066_905165614_n (1)future.  The last twenty-four hours back at the house has found both of us to be just a bit sad and depressed.  We both have to watch those emotions so that they do not permeate our decision-making process. Depression often plays such a strong role in how disease functions in the body.  While we are both cognizant of that, it comes down to mind over matter.  As I’ve said before…”It just ain’t easy!”

A whole set of new and intense emotions intrude on us right now.  Worry, detachment, mortality, anger, fear of abandonment and having to live life alone. These gut wrenching emotions lurk in our minds when faced with a life-and-relationship-altering illness.  Often times, you have to give up things that you lovein order to care for the one you love.

Over the past 24 hours, we have had the chance to talk openly about what lies ahead of us.  As we begin to accept the raw news that was delivered yesterday, TLO is insistent that we continue to advocate for those who have no one to advocate for them.  “What would have happened to me if I had gone ahead with the cardiac producer; what would have happened to me if I had no one to advocate for me,” TLO exclaimed!  We intend to be as open as possible with everyone as we move forward with treatments.

We will push ahead because life’s journeys are not often driven on smooth roads, but we can always hope for a gentle wind at our back. This gentle wind is always fortified by our love, our faith, our friends and our trust.

Thank You for being a part of this journey with us!

You see…we might have cancer, but cancer does not have us! 

TLOCJM

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The Financial Struggles of Caregiving


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On Tuesday, October 1st at 1pm (est), I am pleased to welcome Nate Purpura, from eHealth, Inc.   To listen to our show live, simply click here! 

There is an estimated 44 million working family Caregivers in the United States today. Recent studies also indicate that due to time off of work, Caregivers can expect to lose wages totaling over $140,000!  According to eHealth Insurance, about one-third of adults who provide unpaid care for their elderly parents say they’ll have to use their own retirement savings to help their parents financially.

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Our guest, Nate Purpura, is the Director of Public Relations for eHealthmedicare.com and eHealthinsurance.com – division of eHealth, Inc has spent the last decade working in the health care and insurance industries. Nate’s area of focus have included everything from pharmaceuticals, health and wellness and chronic disease management programs to cutting diagnostic tools, insurance products, including Medicare, and internet-based “exchanges” or  marketplaces.

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Having a grasp of finances is a critical component to Caregiving, but at times, an area that can be left unattended.  Through our conversation with Nate, we will learn why Caregivers often struggle with finances, along with gaining some helpful tips make this area of our Caregiving journey less stressful so that we can all ‘Be A Healthy Caregiver!’

To listen to our show live, simply click here! 

To Visit eHealth online:

Homepage: http://www.ehealthmedicare.com/ 

Blog: http://blog.ehealthmedicare.com/ 

Facebook: https://www.facebook.com/ehealthmedicare 

Google+: https://plus.google.com/108383927295539973030/posts  

Twitter: https://twitter.com/ehealthmedicare

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Relax With A Care Cruise!


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Relax with a Care Cruise! 

On Thursday  September 12th at 8;00 pm (est)  we visit with Denise Brown from Caregiving.com and Jerry  Dismarias from Island City Cruise and Cruise, Inc as we prepare for our upcoming Care Cruise in November. To listen live to our show live, simply click here! 

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Denise Brown from Caregiving.com

November is designated National Caregiving Month and what a better way to celebrate than joining all your Caregiving friends on a relaxing Cruise.  There will be workshops, relaxation and just quite a bit of fun sharing with family Caregivers from across the country.

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Our cruise expert Jerry Dismarias will help guide us through the booking process while taking care of all your travel needs!  Through our conversation with Denise and Jerry, we will all learn how to ‘Be A Healthy Caregiver!’

To listen live to our show live, simply click here! 

To learn more about the Care Cruise and to Book your cabin, simply click here!

Can’t listen to our shows live…NO Worries!  All our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here! 

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The Caregiving Hour With Kim Linder


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I am excited to be a guest on The  Caregiver Hour  radio show hosted  Kim Linder, founder of Senior Holistic Living and creator of The New Age of Caregiving Symposium on Monday August 5th at 11:00 am (est)

There are Four Ways to Listen (For questions, call 877-897-8255)

  • On the Radio: 
    11AM to 12PM EST Mondays on
    Clear Channel 1250 AM WHNZ Impact Radio in Tampa

 

TCH_listenliveKim’s  aim is to support caregivers by providing encouragement, advice and helpful resources. Recognizing that many caregivers want to be authentic while setting healthy boundaries, Kim seeks to guide them towards a place of purposeful wisdom. A place where they can look at the big picture and make conscious decisions rather than reacting to the fear and panic that often set in after someone in their life falls, becomes ill, or experiences another type of crisis.

Focused on everything from the practical daily responsibilities to the emotional hard-to-discuss issues that caregivers face, The Caregiver Hour is a valued resource for primary and secondary caregivers. So whether you’re regularly caring for someone, or providing relief and support to a caregiver who is, this show will guide your path in a way that’s accessible, engaging, and most of all, useful to those in need.

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Happy Birthday Caregiving.com!


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Denise Brown, Caregiving.com

It is not often someone get’s to celebrate a 17th birthday twice, but that is what is going on today with Denise Brown at Caregiving.com! Denise registered CareGiving.com seventeen years ago on August 3rd; Denise and her website continue to offer soothing support, wonderful direction for a host of family Caregivers that instantly become your extended family.  Denise has been a mentor to many Caregivers and always, I MEAN ALWAYS, is there to lend her support, wisdom and care.  

There are an estimated 66 million family caregivers just in the United States.  Caregiving is about collaboration, not about competition. Each family Caregiver has their own Caregiving journey story to tell, yet it is through those stories where Caregivers connect with each other, understand each other, are there for each other.  Denise Brown and Caregiving.com is a perfect example of this philosophy.  

Take the time to visit Denise at Caregiving.com by simply clicking here! You’ll find Denise as an author, keynote speaker, radio show host and a friend to many.  But what you will really find without evening knowing it, is that gentle  guide and support that every caregiver needs while on their journey from someone who really does care.  

I found Caregiving.com two years ago when I started to write about my Caregiving Journey and have not looked back since.  Denise has encouraged me to find my voice through blogging, and my weekly radio show; my life has been changed for the better by Denise and my extended family of Caregivers on Caregiving.com   Your life will be changed too by visiting Caregiving.com!  Stop by today or anytime this week and wish  Denise another 17th birthday and see what she has in store for everyone during her birthday celebration!  

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‘Hug A Caregiver’ Day!


Caregiving can sometimes be hard:

But Hugging a Caregiver is easy!

thursdays

Listen to: 

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Tuesday’s  at 1:00 pm (EST) and Thursday’s at 8:00 pm!

Can’t listen live…NO WORRIES!

All of our episodes of ‘Be A Healthy Caregiver’ are archived for your listening convenience by clicking here! 

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“He’s My Miracle Patient!”


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“He’s MY Miracle Patient”  Dr. Milica Starcevic April 1, 2013

Today as we visited Richard’s primary care physician for his quarterly check-up. This is no April Fools joke, reality before our eyes, a miracle in the works!  BRS2

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After reviewing all the blood work, checking in on recent history with his health, then receiving updates from both of us she just uttered these words:

“He Is My Miracle Patient!”

Given 3 to 4 months to live in October of 2011; In August of this year we will ‘celebrate’ 2 years since the original diagnosis of esophagus  cancer.  Like many families who go through a cancer diagnoses, we were filled with so many diverse emotions.  Now two years past, we are thankful for each and every day we spend together.  Sure some days are better than others, and the esophagus does ‘act-up’ from time to time; the tumor does have a mind of its own!

Being a family caregiver comes with quite a bit of sacrifice and courage, and just like ‘The Little One”, I have my good days and I have my bad days.  Sleepless nights, worrying about things that I cannot control and wondering what’s going to happen next.  It’s all part of the role of being a family caregiver. 

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Yet on a day like today, being a family caregiver is put into perspective  when Dr. Starcevic turned to me and said “thank you  for being a Caregiver.”  Those long nights, followed by those uncertain  days were a thing of the past by those simple words uttered by Dr. Starcevic!  Of course, a big smile from ‘The Little One Helped, too!

You see…We Might Have Cancer,

But Cancer Does Not Have Us!

Listen to:

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Access all our shows by clicking here!

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